Thanks for your post about secondary breast cancer, treatment and triple negative. It sounds like the secondary breast cancer in your bones may have been treated with hormone therapy and targeted therapies whilst the ‘multiple nodes’ are triple negative.
Triple negative breast cancer is the name given to breast cancer that is oestrogen receptor negative (ER-), progesterone receptor negative (PR-) and HER2 negative.
Being told you have secondary breast cancer can be completely overwhelming and worrying about the cancer in your nodes spreading, while having no treatment, is understandable especially as you haven’t been since by your team for some time or had a recent scan. When making decisions about how best to treat someone with secondary breast cancer, your specialist team will generally consider any symptoms that you may have at the moment and any treatment that you have had in the past. With the recent situation with COVID 19 we are aware that scans and appointments are being postponed however, you may want to contact your team and ask them what they plan in terms of treatment in the future and how they will decide with you if, and when, this might start.
I’m not sure if you are aware but we provide a number of different services for people living with secondary breast cancer aimed at providing both information and support.
Outside of the current coronavirus situation, our face to face Living with Secondary Breast Cancer monthly sessions also give you the chance to meet and share experiences with other people who understand what you’re going through because they’re going through it too.
However, we’ve had to take the difficult decision to suspend all of our face-to-face services until the end of June 2020, following the latest government guidance regarding coronavirus.
The Helpline, Ask Our Nurses, Living with Secondary Breast Cancer Live Chat and online Forum support services are all still running as usual. If you have any questions please email NRC@breastcancernow.org.
Do call our Helpline if you would like to talk this through or have any further questions. Your call will be confidential, and the number is free from UK landlines and all mobile networks.
The number is 0808 800 6000 (Text relay prefix 18001).
Our opening hours are Monday to Friday 9am - 4pm and 9am -1pm on Saturday. Out of hours you can leave a message and we will call you back when we next open.
Breast Cancer Now Nurse
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I have “multiple nodes” affected in the lower left cervical/superclavicular fossa region. diagnosed just before Christmas but showed up initially on scan April 2019. no treatment as of yet and i’m worrying this can increase the chance of the disease spreading. was due a ct scan this month(June) but due to covid there is a delay. biopsy shows it’s triple negative, my original bc was ER positive & HER2 positive on one breast ER positive & HER2 negative on other. had bilateral mastectomy 8years ago. disease has been kept stable since(bony mets in spine rib & pelvic areas) i don’t know much about triple negative but worried about it spreading while having no treatment. been assured I will be kept a tight eye on, haven’t seen oncologist since Feb😔