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Waiting for bone scan

4 REPLIES 4
Member

Re: Waiting for bone scan

Hi Mermaid

 

Thanks for posting on the Ask the Nurse site. This sounds like a difficult time for you.

 

Nearly everyone who has been treated for cancer worries about it coming back and you’re not alone  

in feeling anxious about this, particularly as your GP has referred you for a scan. It’s understandable that you are worried and thinking the worst. Everyone copes differently with the wait for tests and results to come back and it’s very individual how you manage this. You may find this link helpful.

 

Our mobile app BECCA provides day-to-day strategies, hints and tips that might help you. The easy-to-use cards give you bite-size information including strategies for coping with anxiety. Categories include food, exercise and mindfulness.

 

It might also help to talk to someone from our Someone Like Me service? We have over 200 volunteers who have had a personal experience of breast cancer and are trained to provide support. The volunteers are able to talk to you by email or telephone.

 

You can download BECCA for free from Google Play and the App Store. If you don’t have a smartphone, you can use the online version.

 

As Seabreeze has suggested, it can help to talk to a friend or family member about how you are feeling or you can call our free, confidential Helpline, if you would like to talk this through or have any further questions. The number is 0808 800 6000.

 

Our opening hours are Monday to Friday 9am - 4pm and 9am -1pm on Saturday. Out of hours you can leave a message and we will call you back when we next open.  

 

Best wishes

 

Marretje

 

Breast Cancer Care Nurse

 

Please read the Ask Our Nurses disclaimer. This thread will now be closed from further replies. If you have any additional questions or would like to provide feedback, please start a new thread.

 

Member

Re: Waiting for bone scan

At least it's not too much longer for the nuc scan. Do you have a follow up  date to see your specialist?

Just remember that the nuc bone scan picks up all sorts of, dare I say it,  'normal life' bone damage....so be prepared to see a few patches of ageing or past fractures etc, regardless of anything else. That's why they often follow up with another type of scan to work out what any patches on the skeleton are from.

 

Practice that mindfulness!

 

And do follow up by posting or email along the course of your scan/s if you feel it'd help.

 

Seabreeze x

Member

Re: Waiting for bone scan

Thank you for replying, Seabreeze - for some reason I thought this thread was locked for reply except by the BCC nurses! Glad to hear from someone who has been through the same scan.

Member

Re: Waiting for bone scan

Hi Mermaid,

I had a similar experience a couple of years ago, however since I initially thought the back rib pain was muscular I was quite calm during the nuclear bone scan and I'd been told it was precautionary. However my stress levels shot up when the nuclear bone scan came back as highly suspicious of bone met"s. I was then referred for a CT scan, and had to wait 2 weeks for the scan and results....I know none of us can count our chickens in such situations, however mine turned out to be old fractured ribs, which I didn't realise I had.... (vague memories of the area being painful, I thought muscular at the time,  after being flung forward n back against a ridge/bar on some mode of transport while on holiday) and a tiny patch of ageing bone....nothing sinister.

 

So try not to think the worst,  be kind to yourself, and do anything which helps distract you or gives you pleasure....small things....like sitting outside practicing mindfulness and listening to the sounds. I'd also suggest you confide in a friend or two and have a conversation with the breast cancer care nurse. 

 

Happy to discuss further or feel free to send an email if you think I can help in any way.

 

Sending hugs to you,

Seabreeze (5 years on from diagnosis)

Member

Waiting for bone scan

I am having an isotope bone scan this week after a few months of back pain. The GP referred me because of my history of primary breast cancer 11 years ago - WLE, FEC, Rafa and 5 years of Tamoxifen. I am going mad thinking the worst. I don’t know how to get through the waiting time without getting hysterical.