I know, naughty ay Lilacmoon14 😂, especially worrying when one site said it could be a symptom of throat cancer, thankfully the cancer research site said it was a rads SE and the radiographers confirmed that for me this afternoon, phew 👍😁
Welcome Madambutterfly xx
Has anyone else developed a sore throat? Not like a cough but quite painful to swallow? I've just googled it (tsk tsk) and could be a rads SE. I'm going to bring it up with the radiographers today but was interested to see if anyone else had it??
My radiographers had some cards sitting on the top of their control unit, so on my last visit I gave them a big one I bought at my Vet's. It had a large ginger cat sprawled out down a staircase, looking very comfortable and disinclined to move. The caption was: 'Naps can occur at any time, without warning.' I wrote inside, 'But not on your couch!' and added an appreciative message. It was nice to see it up with the others.
I hope everyone's aches and pains are subsiding and the break in the weather has brought some relief.
Thanks for the post, it’s everything I’d like to say too !! I have 10 sessions left but could not have got so far without the help and support on here, with people who really understand...
Love the tip re almonds and Vitamin E, I adore almonds, what a great excuse to eat loads, washed down with all the water of course !
All the the best for your last 3 sessions, after our weekend off..yay...
Its amaxzing how all of a sudden you realise that you can see the light at the end of the tunnel and you are almost finished
I finished my rads in the January and had an appointment with my oncologist in the March so pretty much the same as you. I think they like to leave it a couple of months to give you time to recover from the rads.
The effects of the rads do carry on for a couple weeks and can get more noticable however it does not always happen and affects everyone differently, just make sure you keep on moisturising and taking in plenty of fluids, your body will let you know if you need to rest
I’ve only got three sessions over with so far but am definitely just beginning to feel the effects as they seem to be hitting you at 8, not looking forward to the results of the next couple of weeks at all...skin is already quite dark in some areas, I’ve been quite pink in that area since op. Tingly and a few sharp shooting pains, snap.
I wasn’t very good at drinking water as I should, but have to agree that this treatment plus the hot weather has made it easier, as I’m thirsty most of the time ..drinking lots does help, everyone’s right about that.
I have some Aloe Vera on standby too, and cold flannels are a good tip - I’m reminded that I always resorted to using them over the years, to help me get through hot nights, (hate being hot while trying to sleep!) - hopefully they’ll work again if needed.
I hope that you will get through your remaining sessions without discomfort, and you are well on the home straight now, only 7 to go..
Best of luck, will be following a few steps behind !
mcnulcc I must be just behind you, I'm 7 down 8 to go! I haven't had any changes in my skin so far but am feeling quite fatigued, not too bad tho 😊
hi both, thanks for your replies - it was ok, quite nice to be manhandled a little less as the equpiment moves instead! Lilacmoon that sounds horrendous - no it doesn't cover my nipple (thank god as it is really sore already) my skin is really starting to suffer so I will be very glad to get to the end of this week...
You have probably had your first booster session but just in case, it is that the radiotherapy is focused on the tumour site rather than the whole breast, it generally is a lot quicker than the regular sessons. You will notice that the area that they focus on will go quite dark brown for a while but it will not be long before it lightens again. Mine looked a bit like an iron shaped area on the breast and was darker than the rest of the breast.
hi folks I started on the July thread and need to move over to August! I have completed 3 weeks of Radio and start my Booster week today, so not sure what will be different - can anyone enlighten me?
I am still working, although finishing early before heading off for my afternoon appts. I have found that if I crash for an hour when I get home, with a book and cup of tea, it helps me get through the rest of the evening.
I am certainly feeling sore and itchy now. My last review lady was telling me I must stop wearing a bra, but with large boobs that's just not comfortable (especially in this weather). I have compromised by digging out my post-surgery bras and investing in a bra extender to loosen them up a bit. I can't tell if the itchy rashy patches are being caused by the treatment or the cream - Aveeno is quite thick and my skin's not used to it!
At present, bisphosphonates are licensed for treatment for osteoporosis, but not as yet licensed for use in breast cancer patients to prevent recurrence of the disease, so they must be started by a specialist in hospital who has the appropriate experience and can advise the patient's GP.
I have taken the following notes from the booklet produced by Sheffield Teaching Hospitals, Weston Park Cancer Hospital, which is involved in the research relating to use of bisphosphonates for cancer treatment, and where I'm being treated. (Weston Park Hospital is a Centre of Excellence and one of only four dedicated cancer hospitals in England, apparently.)
Bisphosphonates control the cells that break down bone (osteoclasts) and allow the cells that rebuild bone (osteoblasts) to work better. As a result they increase bone density and strength and thereby reduce the risk of fractures especially at the wrist, hip and spine. They have been used for some time as a treatment for osteoporosis.
Clinical studies have shown that breast cancers can recur in bones, often many years after the tumour has been removed from the breast. Doctors think this could be because the chemicals that control bone turnover could also encourage the growth of breast cancer cells inside bones. Clinical trials of bisphosphonates in early breast cancer began in the 1990s. These drugs were added to standard treatments after breast surgey, like chemotherapy and tamoxifen, and compared to these standard treatments alone. These clilnical trals found that bisphosphonates reduced the risk of breast cancer coming back in patients' bones and often meant that patients lived longer.
Not all patients had the same degree of benefit. The greatest benefits were seen in two groups:
• Post-menopausal women.
• Pre-menopausal women who were treated with drugs to suppress their ovaries.
In addition to reducing the risk of secondary breast cancer, if you are being given hormone therapy e.g. aromatase inhibitors to prevent production of oestrogen, bisphosphonates can help to compensate for the risk of bone thinning as a consequence of loss of oestrogen from fat cells.
Bisphosphonates can be taken as tablets or administered by drip. The frequency of the dose depends on whether you are having chemo at the same time, or whether (as in my case) you aren't having chemo and this therapy is following on from surgery and rads, and is associated with hormone therapy. I have a Zoledronic acid (bisphosphonate) infusion every 6 months at Weston Park Hospital. This will be for 3 years.
The side effects depend on whether bisphosphonates are given through the veins as a drip or swallowed as a tablet. In tablet form, they can cause gastroenterological problems.
When administered only for osteoporosis, the dose is lower and the frequency of doses is lower.
For the full leaflet, here is a link.
Mcnulcc - regarding bisphosphonates, I recall seeing that word on the NHS Predict website, (my oncologist put this site up on her computer to explain about the benefits of Letrozole, and I saw this 'Bisphosphonates’ mentioned.) I looked it up and saw that it was given out to prevent Osteoporosis, so was confused...
But checking out the info provided by Annieapple and the Breast Cancer Research website, they mention it being a probable preventative for recurrence, so that must be why it’s on the NHS Predict... !!
There seems to be research getting carried out on other things too, like Aspirin, I was asked if I’d partake in the Add-Aspirin trial, very interesting to read up on that !
Wonder if we will be offered bisphosphonates .. my DEXA scan in a fortnight, that may say that I need it !
Best wishes, Thistle x
Thanks for the tips re cream, I do have Aveeno already as I've been using that to moisturise arm, but thought aqueous cream was needed for rads somehow. I recall when my mum in law and her sister were having rads at our hospital, they were given big tubs of cream at their first appointments, remember them saying you could tell the newbie rads as they were all trooping down the corridor clutching cream !! Obviously not standard up here now... the Aloe Vera sounds nice, (recall using the gel from a leaf years ago on hol, it was lovely and cooling on sun burned skin)...sticking cream in fridge sounds sensible too...
I've found that Vit E oil is helping with the scarring a lot, and camellia oil for the arm as a night time treatment too.Like that as it's not greasy !!
Thanks all and continued good luck in getting through these zaps.
I used E45 for the whole time of my rads, would put it on 3 times a day and I took some with me to each apt and to apply it after each session when I got dressed. I was using aloe vera but half way through they advised me to stop, think I was over moisturising, my rads nurse told me to keep the E45 in the fridge and then it would act as a cooling agent as well.
Yes I was told not to. The deoderant thing is that there is aluminium in the usual ones. I got something called pitroc deo from Boots, it is a natural deoderant stick, takes a bit of getting used as you either need to apply to damp skin or wet the end of it, but it works.
One tip when you are havinga shower, pat your breast dry gently dont rub
Hello and welcoem to the thread. Although mine was right breast, I had 20 sessions as well.
Anything you want to know ask away and I am sure one of us will be able to help.
Starting Radiotherapy in 6th August - 15 sessions (I hope!) - interesting that I am a left-breaster but have not been told about breath-holding technique when I went for my planning meeting on 23rd July ...🤔
- but they will probably talk me through that on 6th, - the radiographers were very nice and understanding of the fact that I’m very deaf (since birth) and I was worried that they’d be shouting instructions from across the room and I’d not be able to see faces to read lips 😬😬, but in the end they ‘loomed’ over me and I got it all - thank goodness ! Very impressed and grateful to them for that day...they made it feel it wasn’t going to be such an ordeal when it all starts...
And I also mentioned swelling has started in hand,wrist and fingers, it looks like the onset of lymphoedema in the affected arm, they’ve referred me to the lympho unit on the 14th...Has anyone experience of lymphoedema worsening because of rads please ? Would appreciate any advice, so far I’ve not been given much info regarding that...I had to have full ANC clearance btw because of 2 nodes affected.
Also, any recommendations as to the best cream to slap on afterwards? People have mentioned E45 not being that good ?
Thank you to all for being there !!
And the best of luck to everyone on their rads this month.
Hello all, had session 2 of 15 today and so far all is going smoothly. I can't remember if they said no perfume but I'd probably not bother at the moment, however they did say it was ok to use roll on deodorant (not spray) and to moisturize a lot! From what I can gather from reading other forums is that each unit is different as to what they advise - helpful?! All the best everyone, Amy xx
Hi Sarah, I finished radiotherapy in June after 30 sessions and did the breath holding technque. (my 15 sessions were spread out into 25+10 lots of boosters done in 5 sessions) I didn't have goggles etc that other's have mentioned in the breath holding thread, the radiologists told me when to start and stop breathing. The radiologists were all lovely and looked after me well and I'm sure yours will do too. You might find it useful to take some paracetamol before each session because I found my arms got uncomfy being in one position for quite a while x
Having completed 5 out of 6 chemos following two operations I can finally see the light at the end of the tunnel, and have my planning appointment for radiotheraphy on Monday.
I'm a left breaster, so will be doing the breath holding technique.
Originally it was going to be 15 sessions, but I have had an extra week of boosters added on to the end, so 20 sessions altogether.
I have started the new monthly thread for those of you continuing into August and ladies who are starting this month. Ask away there will be plenty of help and support forthcoming.
Sending you all hugs and best wishes xx