Just had my last rads, yaay!! The last 3 months feels like a bit of a whirlwind. I'm shattered but feel fine physically, and slightly weird emotionally. I still don't think any of this has quite sunk in yet! Now with the hustle and bustle of Christmas ( and both my children's birthdays!) I think it might all 'hit me ' in the new year.
I'm not going back to work until Jan as my job is crazy and I'm going to start with shorter shifts.
Best wishes to everyone having/about to have radiotherapy, you'll be fine.
Lots of love xxx
any kind of fluid is good, except caffeine and alcohol which are diuretic. I’ve been upsizing normal drinks and adding more water to soup, tea, green tea, decaf coffee as well as downing a glass of juice at other times and a bottle of water straight after treatment.
I carried on working with reduced hours for the first two,weeks but then hit a wall of tiredness this week after 10 treatments and have been signed off. Luckily it’s then the Christmas hols and I don’t have to go back till 8th Jan so hoping I’ll be ok, if still a bit tired. People seem to say the tiredness peaks a week or two after treatment ends because the body is clearing away dead cells and healing.
Three surgeries is a big onslaught on your body and takes some recovery too. I had 2 which was bad enough, and only just started feeling normal (but very unfit) before the radio started. It’s a good thing you have a gap, I think.
Had my pre radiotherapy CT scan today with treatment starting 27th December and finishing 18th January. 15 sessions in total but holidays are spreading it out longer. Got my little tattoos and did not even feel the little scratch that they mentioned so hardly anything considering the surgery already done.I was expecting black marker on my skin but they used a reddish pink colour. Does this go black does anyone know or is it just this hospital uses a red colour instead? Must admit once the crosses have been cleaned off only I will know where the tiny dots are as there are already other marks on the skin. Hoorah for freckles!
The team today were lovely, they were doing some training and did say to me first. It was good to hear the information being done and then checked. The trainee said the machine reminded her of an aeroplane starting up so when I was looking up at the beautiful sky on the screen above my head I just wandered off in holiday mode to stop me thinking about why I was there.
Keep posting everyone as its so helpful to see the information from those who have gone before.
Woo hoo and here are the bells ringing for you, well done thats it end of active treatment, enjoy not having to do that journey any more. Remember that you will still have the effects of the rads for the next two weeks so keep on with your regime.
So happy for you
I never was, I would go in with my popper tunic on but when I had my treatment that was opened, no definitely no paper xx
Congratulations Momo! It should have been my last session today but I had to postpone yesterday's due to the weather. Last one tomorrow now.
Ruth, yes they always cover me with a paper towel. Not quite sure why this is! I assumed it was a modesty thing, although you're exposed whilst they position you, so it makes no difference really. Maybe there's another reason!
Hope everyone is okay today xxx
It is easy to drop back into old habits, I even find now, 11 months (crickey I have only realised how long it has been) since I finished rads that if I do not take in enough fluid I will get fatigue.
I try to always keep a water bottle full by my desk and use it as a reason to move away from my desk to fill it, but even then I can go hours without doing it.
Hope all goes well today for you and be careful if you have the snow out there.
You need to be taking in at least 2 litres of fluid a day whilsts on rads to help counter the dehydration effect of the rads and also to help with fatigue, that should help xxx
Hi Angela - I only have two reviews - one after first 3 sessions and I have another review the day before my last one. Basically they just ask how things are going from your point of view and if you need any information They provided me with the sickness note that I needed for work and that's about it. My friend, who's now finished, said in the last one they assess your skin and give you any prescriptions for extra creams that they think you may need as apparently the 2 weeks following rads are when the skin can react.
It literally takes 5/10 minutes!
Just to say, I’m doing breath holding but not with any tubes etc, just taking a deep breath and holding it for 20 sec as if I was swimming underwater, which is fine. That machinery doesn’t look fun. Just thought I’d say in case people reading this get scared - I read too many scary things before treatment began!
I had two during my rads, although I was supposed to have three they missed telling about one.
Basically the rads review nurse just checks how you are doing and will look at how your skin is.At my last one she gave me some polymem dressings as my nip was rather sore and the fold underneath was a bit red so she said to use it to give a bit of protection. Also she checked what cream I was using, at the first one she told me to stop using the alo vera and only use the E45 cream and keep it in the fridge
Oh thank goodness for that, I was sure that they would not want you doing that journey when you were nearly finished xx
Well done Ruth on making it to your appointment. Go and put your feet up now. I phoned first thing and they said it wasn't a problem to add this session on at the end. Phew, I didn't have to risk life and limb on the country roads! Have finished the Christmas wrapping instead and can have a nice day with my children.
Hope everyone is ok xxx
I am sure they will be able to accommodate you in that, especially with the distance you have to travel and the weather is improving from Wednesday. Be careful any way xxx
Thankyou both for your replies. That's a good idea to ring first. We've also now got more snow forecast for this morning and it's really windy out there, not to mention the ice! Am terrified at the thought of driving all that way alone tbh. I only have 2 sessions to go, maybe I can do today's later this week.
Take care everyone xxx
I would ring up before you leave to see what they say as they may suggest cancelling it because of the weather, as it will probably depend on how many staff get in as well xxx
In response to some of the posts earlier today, I'm also quite anxious about making it to my appointment tomorrow. It's really snowy here and I'm doing the 70 mile round trip alone. Not even sure my car will make it out of our little road! Kids are delighted to have a snow day. Luckily my sister who lives close by is a teacher and also has a snow day, so she can look after them. I really didn't want to have to take them with as well! I guess I'll have to set off early and drive slowly.
Good luck and take care everyone xxx