I think it is your last rads session today, not sure what time it is at but we are ringing the bells for you today.
Thats is really good advise from Jay about being floppy. I remember the team saying that to me, they used to say dont help us get you into position, we will do it, it took a couple of sessions before I got used to it but when I did it was so much easier.
Unfortunately I did experience quite a few delays to my appointment times, I ended up taking my partners' tablet with me so that I could play games whilst I was waiting.
Number 8 of 15 today and I'm glad that I'm over half way now. It's been a good experience on the whole. I was given a useful tip which is that if your next day's appointment is changed to a time that doesn't work for you, ask the receptionist or rads team if it can be changed. I've had a few they were able to change for better times.
Hi Nuthatch and I Don’t Believe It,
Just got home after long day. Got to hospital 30 mins early but didn’t go in until nearly 1 1/2 hours after appointment time - dept running late! So lunch was 4pm! Treatment fine - agree the hands suffered most from being over head so long, but it is shorter in next treatments apparently. We are calling it Zap treatment too, to explain to our 9yr old - she’s done me a countdown chart to cross the numbers off, so number 1 is now ticked. Taking book and my crochet project tomorrow in case I am sitting around again.
Today is 14 days after the last radiation, and I now have lots of little blisters underneath my breast, with a fair bit of accompanying pain.
Because of the whole confusion surrounding the creams to be used to moisturise the breast I chose to not use any. About a week ago I thought I saw a blister, and started to use the Flam-something that the onc gave me. I don't know if it's helped, as that blister wasn't a blister, and now I DO have blisters all over the lower part of the breast. (And the cream is to be disposed of after 7 days.)
About 3 days ago I thought that maybe I had been wrong about the moisturising, and applied some cream - Diprobase - and regretted it immediately. It was quite cooling, but my breast stung and beneath the breast it caused a huge amount of sweating, which (I believe) has made it worse. It also left a residue which had to be wiped off, which couldn't possibly have helped the pain.
Anyway, I am now back to the cornflour, and try to air the breast in bed as much as possible. When I'm in bed, that is, and the bisphosphonates make that a little more difficult.
I'm not complaining (for once), just sharing my experience.
Hi Nuthatch. first one went well. Journey there took longer than expected as got caught up with people going to the sales. Been told I can go earlier tomorrow and Friday if I wish so will go in an hour before. The drive up was lovely, lots of snow in the fields and dripping off the trees so a wonderful sight to take my mind off things. Home with Zerobase cream as the continious moisturiser and Betnovate to use once a day in the evenings. Great to have a parking place allocated in the car park about 50 Yards from the door. I really appreciate that.
Thats fab news on both counts, almost there with the regular and only the boosters to go, but wow go lady with walking the dog, such an achievement xxxxx
Thank you for your message. I certainly intend to take things slowly when I return to work. Had a nice lunch out today and a little mooch around the sales. The snow has just about melted but it's sooo cold! xxx
Its amazing isnt it, you just keep going because you know there is an end to it, but then think you are going to be ok because you have done so well, I think the body just says right thats enough, now rest.
Enjoy your walk xxxx
Oh it sounds as if you have a lovely day planned, glad you had a good christmas.
Oh it certainly does, your perspective and priorities change a lot. Wow!! 12.5 hours without a break is not good even when you have not gone through what you have 😞
Make sure you do not go back to your full working pattern for a while though as it will take it out of you when you do first go back. I was lucky I was able to do very reduced hours until a month after I finished rads (12 hours a week) but when I started building back up to my normal 25 hours it was very tiring.
Hello, hope everyone is okay and has had a lovely Christmas. Ours was good, a bit quieter than usual. Husband is back at work today so am going to take the children out to lunch in a little while. Am aiming to return to work next week on shorter shifts and gradually work my way back to full shifts. Am still pretty tired so will be sensible about this, I feel it may be a while before I can cope with working 12.5 hours (sometimes without a break). I'm also having a bit of a dilemma in that I've really had enough of always working at weekends and never doing nice things with family and friends, unless I plan 6 months in advance! This whole business certainly makes you reprioritise things, so having a little think...
Thinking of everyone having rads today / just starting. It will go quickly.
Lots of love xxx
I dont believe it
Oh crikey 5 inches, we had about 2/3 inches in Birmingham over night but it is very slushy so hopefully will disappear later today.
Well you certainly sound prepared. As you say it is emotional rather than physical thought, but once you get this one over with the rest will be a lot better and shorter, they do a lot of measurement checking at the first one which takes a bit longer.
Going this afternoon for number one of 15. Had a lovely Christmas and managed to forget things for a while. Small back pack fully loaded with cream and water and a few things in case of delay. Husband is driving me for these 3 days so all pressure off for the journey. No works traffic to cope with but about five inches of snow from yesterday to be cleared from a long driveway to get the car out. The sun is out so i am just watching hubby doing it. He is enjoying the fresh air and some sunshine. Will come straight home after this one as its the emotional thought rather than the physical idea of it all.
Thank you to all the ladies for posting their experiences over the month, I have learned a great deal in how to plan and cope with it all and hopefully it will make things a bit easier.
Good luck to all starting and finishing this month.
I used to go for a walk around the block every day during mine which I found helped and I did continue it for some time afterwards but like everything life took over again. I do find still now that if I feel fatigued a wonder round the garden, well in the summer anyway, does help. Its just the fresh air xx
Oh my, you’ve been through so much. I feel like I got of lightly, if there is such a thing with having cancer. Random selection for mammogram in August (I’m under 50) which picked it up. I hadn’t noticed small lump (until I went looking for it after letter to attend hospital). Surgery late September so feels like long gap to start Radiotherapy. On Tamoxifen (for now - I insisted to consultant I was still premenopausal!) so been a bit weepy at times recently.
Good luck with yours later, best wishes
Thank you for the replies already. January is looming but each week done is milestone.
I’m due in for early afternoon, so have planned lunch out after with hubby, mum (in residence for few days!) and 9yr old daughter, then Panto later.
I’ll take some moisturiser with me - thanks Helena. I’ve bought Aveena, E45 and Aloe Vera gel. Hospital prescribed ZeroAQS but i can’t bear the smell and the thought of having to use this for weeks was one of my low moments (silly really, but even my daughter noticed smell and didn’t want to cuddle).
Here we go... !
Yay you are starting rads today, wont be long until you are finished and we will be ringing the bells for you
Hello and welcome to the forum and this thread.
Well you have picked up quite a lot of advise already. Once you get the first one under your belt it gets easier as that is the longest, after that the whole session takes about 10/15 mins from undressing and dressing. One tip I would give is that I took my cream with me and applied it immediately after each session when I was getting dressed, it was something one of the other lovely ladies passed on to me.
I had 15 regular and 5 boosters. It is a pain because it means around 5 weeks that you are having to make that journey to the hospital but honestly you get half way and all of a sudden you are looking at having your last session.
Sending you hugs
I’m a newbie to the forum. I’ve been lurking and reading your posts, and I’m in awe of you all. I am due to have my first radiotherapy later today - to have 22 altogether (15 plus boost). I thought I was ok, ‘just the radiotherapy to go’ after surgery (WLE/ Sentinel node removal) but now it’s here I’m feeling more apprehensive. Not so much the treatment itself, but how long it will go on for and the potential impact of it all. I’ve taken the top tips from you all - keep hydrated, rest when needed, and moisturise, moisturise, moisturise! Thought it would be finished already and I'd be back at work mid January but that is not happening.
This forum is a great support - thank you all.
Thank you Angela and Helena,
I slept so well last night which is unusual for me! Will pace myself over the next couple of days and should be fine. My husband has said he'll do everything (as in the cooking) but he's so messy and I'm a clean freak I find it hard not to interfere lol! I should think myself lucky too that I'm not at work over the festive period this year - as a nurse this has never happened before! We are going to a carol service later this afternoon which I am looking forward to.
I hope that everyone is ok today. Have a lovely, relaxing and peaceful Christmas xxx
WHat you are experiencing regarding tiredness is totally normal whether you are coming towards the end of your rads or in the weeks afterwards and of course what doesnt help is how much busier we are at this time of the year.
I was told that I could have a bath, I normally shower, but in both cases I was told not to have the water too hot and also not to rub the area being treated only pat it dry.
I thought it was just me! It's 10 days since I finished rad's and for the past few days I'm shattered by early afternoon and have to lie down. I feel like curling up and going to sleep and waking on the 27th! There's just so much going on. Both my children have just had their birthdays too so it's been really hard to take it easy. I'll really be glad when it's over but can't say anything as I don't want to upset my family xx
I was the same last year, I started 20 sessions on 20 December and had 4 days off because of weekend and bank holidays, and then the following week because of new year. They told me it was not a problem.
My sessions began 14 December but I have Christmas Day, Boxing Day and New Year's Day off. Treatment finishes on 8 January. I guess it must be ok to skip days or they wouldn't do it.
Seven sessions so so far and all ok, just a bit tender. The staff are all very friendly and patient, but they are very busy (Maidstone Kent ).
Great to hear that you are progressing well after finishing your rads and that will be so helpful for the ladies who are completely in the coming weeks to hear.
Have a wonderful christmas, all the very best for 2018 and have a wonderful holiday.
Ladies my rads finished a week and a half ago and I'm feeling pretty good. I think just the point of not having to go to the hospital every day helps immensely. My boob is in pretty good shape and I'm not too tired. Starting to do a bit of exercise again, particularly in light of the fact that I've booked a holiday to celebrate the end of treatment and could do with losing a few pounds before we go in a few weeks. I'm still not used to taking my meds daily - thank goodness for the reminder function on my iPhone - and looking forward to going back to work a couple of weeks after New Year and getting back to normal.
This is forum has been so helpful and a real comfort over the last six months or so, helping to answer questions I had and just being there with so many women (unfortunately) going through the same thing. I wish you all the best for those of you still undergoing treatment and for those of us that are finished that we can move forward positively. Merry Christmas and Happy New Year to you all xx