Re moisturising your back- I had a review meeting the other day with radio therapist to see how I was getting on and she said that it was worth moisturising your back as the radio waves will go through and can cause red areas on the back!
Wow it sounds pretty awful what you have been through today but thank goodness that is what it was and with the new course of antibiotics with all that gunk removed hopefully it will heal quickly.
I don't know what else to advise.Have you asked the staff for any advice? At least it will be over fairly soon. Thank goodness. I feel like I have been on a marathon with all this treatment, and the finish line is in sight! Jane xxx
I have seen moisturising your back recommended but presumably depends on whether your radiation is coming from directly overhead? Mine comes slantways across my body from the above left (right boob being treated) and then it moves around to come from the lower right IYSWIM. If you were being treated in those directions then the back wouldn't be affected.
Oh flipping heck mate hopefully these will work and you will very soon be on the mend.
Sending you lots of very gentle hugs
It was my last treatment yesterday, 15/15 so I rang the bell at our local treatment centre :-)
I was far more emotional than I thought I'd be - I thought I'd be laughing and smiing, I was so looking forward to it, but I cried, instead. I just wasn't prepared for that emotion.
The last few days has been harder than previous days, even though I had a lovely Christmas, but travelling by car for long periods meant the seat belt has affected the very top edge of my treatment area, so it is very itchy - I am using Epaderm ointment on that area now.
Good luck to everyone, andI'm wishing for you to have a smooth end to their treatment with few problems,and a smooth transition to the "Moving Forward" courses. x
When my rads team advised me to stop using aloe vera and just use my E45, they said to keep the E45 in the fridge and it would do the same job as they aloe vera.
Sending you all wishes for a Happy Christmas and all the very best for 2019.
Oh I bet it is the antibiotics, I have had that with some types as well as having a horrible taste in my mouth, cant remember which one it was though
Sending you happy christmas hugs
The nausea is possibly due to tiredness post rads but it might be worth giving your rads team a call and ask them, the other thing I am wondering is are you taking in enough fluids in the day. It is easy to make sure you do this whilst undergoing rads and then fall back into not doing it post rads
I don't think I nearly dropped off due to fatigue hitting, I was just comfortable and having a pleasant day dream!
It's nice to have the weekend off and then just one day back before another day off. Because of the holidays and my planning day I've ended up have 4 x 4 day weeks rather than 3 x 5 days, which seems to me like an improvement.
Hi Kathyx, I found I wasn’t tired (just fed up with long waits in hospital) right through my 15 rads, but now a week later I feel fine in the morning but have noticed my stamina is less than usual in the run up to Christmas... by teatime, I just have to sit down and read a book! And am going to bed earlier than usual... but otherwise much enjoying not being in the hospital every day!
i have a kind of prickly heat rash on my chest, neck and back of shoulder which is fine during the day but can be irritating enough to keep me awake at night. Using Sainsbury’s Source of Nature paraben-free cream to cool it down... doesn’t sort it (I guess that’s just a matter of time) but eases the itchiness...
Have a great Christmas all!
I have to admit I haven't - I nearly nodded off today. Do you think they may have the knee support in the wrong place for you?
Anyone experienced back pain lying on the hard rad bed? I took paracetamol 25 mins before my appointment which was a few mins late so came out 20 mins after time it was booked so they should have worked. My back was pink where it hurt. Thanks.
I've now had my first three so a fifth of the way through!
What I'm looking forward to tomorrow (and I say this at the risk of scandalising younger members who tend to think a minimum of a shower a day is compulsory) is just getting up and getting dressed without having a shower. Getting wet on cold winter mornings really isn't my thing!
I am finding it really easy so far thank you. Using the biofine and drinking lots of water, and no ill-effects so far! I am not working yet, but will start again on 2nd January, mornings only, til the last radiotherapy on 10th January, then full-time, all being well. I don't feel tired yet, but we shall see!
I started 20 sessions on Monday. I still find it a strange experience. It has been fine so far. I just need to allow lots of time and wash.in cooler water than normal if possible but am cold first thing so finding that hard. I have been moisturizing 3 times a day first thing after dads and last thing. How is everyone getting on? How are you finding it Jane? I am working full time and just going home after my afternoon appointments. x
Well, that was something of a damp squib as I got there only to find that the machine wasn't working! Apparently they'll phone tonight if it's still out tomorrow so just have to wait and see. Hey ho!
Hi again Kathyx I know what you mean about having to stay still! I was told the planning session is the hardest/longest session for staying still and keeping the position, so hopefully it'll be easier for you next time. About those blooming marks - they told me not to scrub them off, it's ok if they stay on a bit, they won't start thinking I can't have had a shower!! I also have a mark covered by tape near my neck which can stay on as long as it doesn't fall off, which means they don't have to keep doing so many x-rays to check the position, but that's because I'm having my collarbone done too, which might not be relevant for you. Also, you might be pleased to know the sessions get quicker later on. In the early days they have to do lots more checks for alignment by taking pics, but when they know they're getting it spot on, they don't have to take the pics, so that makes things quicker too. They said if I kept doing the exercises gently that might help the arm ache. Hope that's helpful. It was v helpful hearing from you yesterday, so thank you!
Well done - nearly there!
I found that none of my bras was 100% cotton (one's 95%) but I've ordered another which should arrive in a few days, Christmas post permitted. I tend to go without a bra in the summer anyway so I expect I'll do that most of the time now as I don't plan to be going anywhere much in the next few weeks.
The planning/dry run session went well, although difficult to stay still for over half an hour, particularly with the machines orbiting round me like some kind of strange planetarium visit! They very kindly told me I could wash off all the markings they'd made, which was a hint that I hadn't done a very good job of washing off the last lot!
I go for my dry run this afternoon and then start properly tomorow.
I'm stacked up with Simple soap, Aveeno and E45, gallons of bottled water and stacks of brand new but well washed towels (not bought for the purpose). My tops and bras are sorted into cotton and non cotton but I'm sure I'll find something I've forgotten.
Let the zapping commence!
I get free parking at my hospital as well, only one problem there is no space left to park in.
But it is not so bad as can get there on public transport, either two buses or a tram and bus.
I started the zapping today, So easy just lie back and think of England!
Only 15 left to go.
Well I am impressed with that, we had free parking at our hospital and you can have hospital transport but taxi is well good.
I was the same started mine on 20 December 2016 and because of Xmas and New Year it meant that it was an extra 4 days off I didnt finish mine until 19 Jan as I had 20 sessions.
I think you are right, as with everything treatment affects people in different ways so it is really a matter of just being aware of your body and going with what it tells you.
Katiepoo - that's half way though so not all that early, I suppose. Day 8 for me would be 28 December so I might still be reasonable company on Christmas Day, with any luck.
Helena, thanks for the optimistic reply.
I'm about an hour away from the hospital but this is less of a problem because I'm in France where taxi transport is provided for all chemo and rads sessions. Also, as I won't be having treatment on Christmas Day or New Years Day I'll only have one week when I have to go in every day.
I'll have to see how I go.