Good wishes to you all!
I am in Texas and my Radiation treatment is still 25 days. That was the plan pre Covid-19 and my Radiation oncologist didn’t offer an alternative treatment. I finished 6 rounds of chemo on May 26 and today I had my first radiation treatment. The doctors here recommend Aquaphor and/or aloe vera. I was also given a prescription for Mometasone Furoate cream to apply daily. Hope these help because I am not looking forward to having my skin burn.
I'm pleased to hear your Radiotherapy has finished. It goes so quickly doesn't it. Rest is important with lots of cream on the boob and surrounding area. If you have any side effects that concern you ring the contact telephone number you have been given to discuss. I rang my radiotherapy nurses when my boob seemed to be getting more irritated after using E45. All sorted with a recommended change of cream.
Wishing you well with your recovery
Well that’s me done I have today finished my 5 day fast forward radiotherapy and I feel this is the way to go initially I was having 20 sessions which was very daunting but necessary, but due to the Covid 19 virus it was reduced to the fast forward. I do feel tired and my boob is tender but my recovery time will be sooner which has to be good. Overall I am glad this was my way forward.
Thank you so much for your kind words and linknwhich I have read and found very informative there was so much of exactly how I have felt here’s to next week when I start the next part of my journey x
Sounds like you have it all under control and I wish you well. I've just started reading the following article though I have yet to start RT or trastuzumab.
All went well with my one week of radiotherapy. I am retired so could rest. I would say you will need to give yourself time to heal, lots of Aveeno with oatmeal or something similar. I used E45 to start with but my boob didn't like the lanolin in it.
After the Radiotherapy my collar bone, boob plus under boob and under arm needed lots of cream. I put it on after the Radiotherapy whilst I was in the hospital and more when I got home. Drink lots of water. If you are going to have any side effects they can happen for up to 2 weeks after the Radiotherapy and hopefully improve after that time. My skin is still very sensitive and I am careful when showering, no rubbing of skin and no direct shower on to the chest area.
As for going back to work, allow yourself time, you will be tired and it's quite strange when the treatment finishes and there's no investigations or treatment. The time you will need off will depend on what your occupation is. If I had been working, I would have taken off 4 to 6 weeks off. I am feeling much better now but still suffer with fatigue, I think with all that has happened in the last 5 months, I deserve to take it easy.
Sending you hugs and love .... Hope your radiotherapy goes well with a speedy recovery
Hi I am due to start my radiotherapy next week for 5 days instead of the 20 I was first going to have and while your account is positive I wonder how long did you have away from work hope you are continuing to feel better
I hope all goes well for you with your radiology, the NHS staff are wonderful at reassurance and kindness. I was informed by radiology nurses that the 1 week treatment was going to be the new normal, it had just been brought forward due to the coronavirus. Raise any concerns you have with your oncologist, I was lucky my oncologist listened and tried to answer all the questions I had. I had a small notebook with my list of issues I needed answers too, she laughed when I produced my notebook, pen in hand, ready to take down her answers! She said having a notebook was something she would use. She didn't always have the answers to my questions, but she was honest.
The next step for me is hormone therapy, an issue as I had a DEXA scan which showed osteoporosis in my spine and the tablets prescribed are not good for bone health. More decisions on the way forward!
The thing I am concentrating on now is trying to have less stress in my life, to not worry about everything and anything, in the past I spent far too much time and energy worrying about things I had no way of changing! In my case I feel the high stress levels I had been going thro in the last 3 years impacted on my health. I am going to try to relax a little, give myself time to heal, as now I want some peace.
To all of you going thro breast cancer I send you strength and love.
Wings...Thank you for sharing, and your advice much appreciated. Given me some reassurance. Will take this on board going forward. Best wishes.
The trip to hosp daily for 5 days was not the cause of my fatigue. My husband took me so I could just relax on the journey there and back. I have found hosp staff always try to put a positive spin on things, I appreciate they are only trying to reassure as they realise most of us going thro this scary journey are bewildered by what is happening to us.
My take on the fatigue is that for weeks I have been trying to hold it together, have been thro the diagnosis, biopsies, scans, 2 wide incission lumpectomies (after first lumpectomy consultant not happy with margins) so needed to be sure! Then the 5 days of radiotherapy with coronavirus in the mix. I also have lung disease bronchiectasis, so fatigue is understandable. All this and finally after weeks of hightened anxiety, I'm at home with no hosp appointments! Now is the time that my body has let me know it's ok to have fatigue, it's ok to rest and the wonderful thing is it's time to let my poor old body repair. I do think the 5 days of radiotherapy has made me tired but it's all the other things in the mix that has contributed to the fatigue. We have to be kind to ourselves. I am retired so am able to rest. I have accepted that I will have good days and some wobbly days. I try not to worry about things I cannot change as this uses up energy I need to move forward.
I wish you well especially as you have ME in the mix.
Wings...thank you for such a straightforward account. So glad it basically went well, though you are still obviously suffering with soreness. I don't like the fact that you said, "Fatigue is a big issue at present", as this is my life with M.E. My breast cancer nurse this morning said that the fatigue is down to the actual effort of getting to a hospital for 5 days in a row, as opposed to the actual radiotherapy...any thoughts?
Hi I was recently offered the 1 week radiology instead of 3 weeks plus 1 week of boosters. Apparently this will be the new normal format but has been brought forward to cope with coronavirus. I too have lung disease and my oncologist was concerned 4 weeks of radiology would be too harsh. I was concerned about reduced treatment time but did my own research online and decided to go with it. I would add that I was not pressurised into this reduced format and could have continued with the 4 weeks.
I have completed my 1 week of radiology. I found it ok, I understand I probably had about 60% radiology in that week, so treatment was harsher but side effects were doable. I had skin irritation, swollen boob and oddly more skin irritation on my collar bone area. I had chat with radiologists as I was using E45 as a cream to help but unfortunately it turned out that my boob did not like this cream (lanolin??) So it made my skin irritation worse. I went over to Aveeno lotion sensitive with oatmeal which was much better.
It's been 3 weeks since radiology. My skin is still easily irritated, I have changed my washing liquid to Fairy (other brands are available). Be careful when you shower as not a good idea to have full force of shower on boob. Pat dry only and cream on the whole area also under the arm area. Fatique is a big issue at present. My boob area is painful, shooting pains come and go but I take paracetamol if needed. Again doable.
So all in all I feel things went ok, I feel I made the right decision with advice from my oncologist. I have as an add on tweaked my diet to give me the best chance going forward. I wish you well.
Can be of no help here Cree, but following as have just been offered same! Best Wishes !
Newbie to forum.
Am due to start my Radiotherapy in May -had my planning opa etc informed of clinical trial which was positive But full data for 10 yrs not yet available advised in view of COVID this is preferred way.
Since I have been trying to gather as much information as possible..
Some articles stated the 1 week sessions would have been rolled out but brought forward due to COVID.
Am I making right decision of having the week instead of 3 weeks Radiotherapy? I am so confused(still processing diagnosis etc ) and filled with many "what if's?
Sorry for rambling..Appreciate any advice and has anyone completed the 1 week sessions, how was it?