glad our posts have helped. I set this up as all 8 of us were all at similar points in our treatment and just weeks apart from each other. Haven’t been back on here for a while as we started a little group on fb and still talk to each other now and still 12 month on have our moments but we are always there for each other. We are all just having our first mammograms and so far so good on all so happy days. Hang in there it does get better but know exactly how you feel. It hit me after rads big time hence the thread. It was emotions with me but talking, moaning and laughing with the fantastic friends I made on here. Hope all goes well with you.
4 weeks from ringing bell and cannot believe the fatigue and low mood that has hit me don't know if it's the rads or letrozole or even perhaps recurrence of past depression from which I have been fine for years read your posts has really helped as now don't feel so alone in this as others have the same feelings
Thank you all
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Ive not posted here recently, but recovery from rads has been gradual and progressing OK, my only gripe really is shoulder and arm pain, which seems to have hit after the daily ‘up arm’ positioning during treatment, and which isn’t really going away, and wakes me in the night sometimes...
I had a Radiology Consultant appointment today, the discharge review...she gave me some useful information regarding the state of boob! Rads finished on 24th August but I’m still a fetching pinky/sludgy brown, (I was actually very pink from the first early days after op, and never really faded, got darker during rads though ! ) She said it was because I was fair skinned, I’m quite freckly...also she told me I had a fair bit of subcutaneous swelling in the operated breast,..
I didn’t know that at all, I’d had a Therapeutic Mammoplasty on 29th May and thought that was going to be the shape forever ! But no, currently it is actually swollen, and that accounts for it’s feeling heavy, too..and here was me thinking that was just down to rads...😳
So in a twelve month or so, it should have gone down and tissues will soften, and I will likely then need a chicken fillet...!
So, subcutaneous swelling as opposed to a seroma... it is a sort of oedema, apparently. (Great, it can be a partner for my Lymph - oedema !! 😄)
And as for the shoulder and arm pain, yes, it’s probably down to the rads positioning, but she also admitted that Letrozole wouldn’t be helping, but that exercise would definitely help. So I shall grit my teeth and lift that arm...also continue with the fluid intake as it’s really important, everyone...
Hope everyone is progressing nicely, and with minimal SEs...that bell sound seems rather distant now .. and welcome to all those who’ve yet to hear it ..
Hi Gill3105...how are you and all you lovely ladies. Ive been a bit quiet this week, i seem to have hit a mental brick wall and not up to my usual humourous banter lol. So ive just had chocolate albiet only once and lay like a lump of concrete on sofa. Boob been giving me a few issues too. But hopefully i will drag myself back into reality this week, i hope so.
Stay well all you beautiful ones xxxxx
Hello lovely ladies
All good here today! Been busy working on hubbys paperwork!!! Keeps me out of mischief and he pays me a little pocket money for doing it.😉
I’m actually 14 weeks now exactly from last rads. Flushes not too bad and not too many either. Achy around my underarm scar again but not that bad, more irritated than pain. No other aches and pains so that’s good. We have some lovely sunny weather today and it’s almost 30 degrees again. Too hot for gardening or housework...especially ironing. So I’m chilling out with my book.Anyone else reading anything good?
Have a good afternoon everyone. Take care.
Bless you Gill.
I think you are allowed to be emotional over your daughters wedding anyway, regardless of bc. I would have been exactly the same, probably with the identical thoughts you had as well. You just go with it! Yes you must keep us all up to date with your outfit etc. How lovely to have something for next year when you’re stronger and looking like a princess as Lucaboo said.
Lilac, his heart was in the right place! But I know it’s the little things that hit us...!
Have a good Sunday lovely ladies. Hugs to you all.
Love Rosie xx
Oh my darling you are entitled to have emotional times, and goodness seeing your daughter in her wedding dress is very justified at any time. It is not unusual to have times like this, but I promise it does get better over time and the melt down times get less. You are still getting over your treatment so it is bound to have an impact on you.
I was talking to a colleague at work the other day about my op and promptly burst into tears, where they came from or why I dont know, but I felt a lot better afterwards.
That is the beauty of this forum we can let go and the ladies on here know exactly what we are going through because they have been there and can give us loads of support.
Sending you loads of Helena huggles xxx
aww Gill, you are allowed to cry when you see a precious daughter in her wedding dress !! And of course you're going to be there, we're all going to want to see the pics. Daughters always look beautiful in their wedding togs - it makes them glow, and it makes us super-happy for them.
Meltdowns are in the ticklist for all of us, for the most obvious or the most bizarre reason - like I nearly always cry if any therapist pays attention to what I am saying, or if virtual strangers show interest in what i am saying? ( My husband has the out of the house face, and the indoor face - the indoor face doesn't talk, watches TV incessantly, and is ALWAYS more ill/in pain than I ever could be haha ).
So now it's looking forward time for you Mrs - flowers and pretty things and happy talk - sounds like South Pacific !! My younger daughter got married in Hawaii about 18 months ago - they wanted to be super-private - but the photos were beautiful, and enough for me - elder daughter married at the local registry office with my 2 granddaughters and grandson bridesmaids and pageboy. As we always say - as long as they are happy.
Happy daze for you - onwards and upwards - and no R/T side effects by then !!! yay !!
Wow thankyou Gill3105 and all you other lovely ladies for the hard work, and i love the name cant wait. Sorry been off radar in everyway as they say. Hopefully bit better tmrw.
Hope all you ladies are well, im looking forward to fb group xxxx
It’s amazing that when I miss a day on the forum how much has gone on!!!! Had a busy couple of days but I’ve at least conquered the ironing. Just the spiders, cobwebs and moths to go - cats are helping but not quickly enough.
Thank you Gill for having me and thank you for setting this up for us all. Much appreciate the work you’re doing. Love the name - well done, Paulus, nice one.😉 I will PM you my FB user name over the weekend.
Welcome jclarke and how brave of you to text 5Live and be interviewed. Must have been quite emotional too.
I listened to the first set of podcasts and will go onto the new ones but I’m afraid, at the moment, I’ll end up sobbing my way through them and not actually listening to a thing.
Hope everyone is ok today and feeling positive. The sun is shining here and it’s quite warm too. My garden is calling me.
Love and hugs to everyone.
😄Tina Turner fan here too...love the name..
It’s set me off for the rest of the day..! 👍
Thank you for all the work you are putting in, Gill.
No I didn't fess up. . . . after I'd mentioned the weight query, and she said what she thought, and that made some sense, I thought that maybe I better go back on them !! She was saying that the Letrozole really was the best for my diagnosis etc . . .and I just couldn't own up !! That was probably really childish, but I couldn't face a lecture, and I thought she'll have to tell the oncologist ( my unfavourite professional ), and then I'll get another lecture . . . .so sorry, I bottled out of owning up to 4 days Letrozole-free.
I'm sorry I can't guide you on this one . . . . xx
(A big part of me really wants to stop taking them - but as you say, the 'what if's' are psychological blackmail aren't they - and like I said in past, I didn't have good margins, I refused chemo, it was present in one lymph and I'm ER8 ? )
Been for my post-radiotherapy check - 5 weeks since last zapps - and the therapeutic radiologist, to give her her full title, is really lovely and easy to talk to and with. I think it's mainly the tiredness that I'm left with, and she said that we have to be kind to ourselves, give ourselves a break, because these bodies have had good and bad cells zapped, and the good ones are busy repairing themselves . . . . and she looked surprised when I said that I felt that the Letrozole might be nudging my weight up. And she explained why. That being more tired, I possibly am not moving and doing things at my usual pace, even though it might feel like I am? I have to agree, she may well have a point, as I know Letrozole hasn't got weight gain as a usual s/e. ( That doesn't mean that it doesn't make me TOUCHY and MOODY !!) So I may give the L's the benefit of the doubt, in view of my ER8, and after 4 days off, go back to taking the drugs. We shall see.
Welcome jclark, glad you found your way here. . . .that was me who replied to your post when you wrote in the 'ask the nurses' section - that MUST have been a Letrozole moment, my excuse was that I was scrolling through 'latest posts' and didn't pay any attention to the 'heading box. And it was the weekend, I didn't want you thinking thre was no one around. . . .only Nurse Paulus !!!
FB group sounds good - although I'm on there as myself ( I am actually not called Paulus can you believe ) - so I think I'll have to think up yet another alias . . . . . xx
Ooh, what a load of posts since I tried to post this morning and lost the lot ! Hate it when that happens, as I write screeds...
I’m not on FB - what a sad person 🙃, but I’m sure my daughter will help put me on, would love to join the group if allowed ! Sad persons at the back....
Janebelinda, so sorry about your meltdown, don’t let it get you, I’m sure you will fight it off....it’s so familiar to hear though,...I’m going through this thread and going, meltdowns, check, husband in spare room, check, angry and tearful mood swings, check, Letrozole yuk, check, ironing floordrobes 😄, check , (that was funny tho and very true!), house is a spider’s dream still, (cats are very bored now with catching them) and the garden has a long lost tribe of pygmies in there somewhere ...
I went bonkers at our local shops earlier, came out with a load of totally unnecessary stuff, (distinctly unhealthy stuff too) and promptly joined the RSPB, as they were canvassing outside....going to have to get some rational thinking back soon 😳,...On the slightly more rational side, I’ve enquired about the Moving Forward Course that starts in October, unfortunately not near me at all..I can’t drive but hey, I can get the train...now how to cancel membership of the RSPB ?
Hope this ‘new normal’ becomes more normal soon...
Best wishes to all, hope you are all ok this evening...
A private Facebook group sounds great...just what everyone needs I think, something to look forward to. Count me in, that’s if an expat is allowed to join.🇫🇷
Having said that, I have been fairly quiet on FB through all of this. I’m not a Dave or anything 😂 but haven’t used my real name either.
As the other ladies have said, JaneBelinda, you are feeling relief that you made it through. Look after yourself and take it easy.