62235members
327617posts
cancel
Showing results for 
Search instead for 
Did you mean: 

January 2019 Radiotherapy

Member

Re: January 2019 Radiotherapy

I’m 45 and getting 23 treatments so almost 5 weeks. They told me if you’re younger you are more likely to get more treatments but I guess it does depend on individual cases. I’ve had 5 so far and all good apart from very sensitive nipple and my wounds feel a bit hot later in the day after treatment but then it seems to settle down again. Hope you’re all getting on well.
Fiona xx
Member

Re: January 2019 Radiotherapy

I'm also under 50 and will be having 3 weeks of radiotherapy not 5. Maybe it depends on location and/or the individual treatment plan?
Member

Re: January 2019 Radiotherapy

Morning all

I only had 3 weeks 1st time round when I was 42?

2 down so far. Shooting across to Guys from work then back again. The amount of waiting around is so annoying as is the cramp I get in my back when I lie on the bed. It takes me a few minutes to settle that down. Other than that it's all good.
Member

Re: January 2019 Radiotherapy

Hi Willie.

Apparently the number of sessions depends on your age. If you're under 50 like me you get 5 weeks instead of 3!

I started on 27th Dec and apart from the hour long trek to the hospital so far so good. I'm using Diprobase and I asked the radiologist for some and she gave me a big tub of it. Don't buy it. Get it prescribed. You should get free prescriptions anyway.

I exercise daily to ward off fatigue but I'm starting to feel it a bit these past two days. Not sure if it's from the radiotherapy or post Christmas blues though! I do need to drink more water so I'm going to take the good advice on here and have a bottle of water on hand to drink throughout the day.

Good luck to you all ladies
Xxx
Member

Re: January 2019 Radiotherapy

#6 today and I've developed a rash on the underside of my boob. It's not sore or itchy, will ask the team about it tomorrow. Anyone have similar?
Member

Re: January 2019 Radiotherapy

The timings of the holidays have been really good for me as it means that I haven't had a 5 day week - just 4 days a week. I've got the 11th out of 15 tomorrow.

Highlighted
Member

Re: January 2019 Radiotherapy

I've got #6 of 19 sessions tomorrow, started on 27th but due to hols all been a bit stop start, this week will be my first full week.

I was given Betnovate steroid cream to use once a day and zerobase moisturiser to use twice a day by the radiology team, have been using it religiously and drinking lots of water too.

Minimal side effects so far, my boob tends to be a bit warm for a couple of hours after and my nipple is a wee bit sensitive (but it still was after surgery, they went in through my nipple to get the lump) and no fatigue as yet (just as well as I'm working throughout and have a 2 year old, have no time to be tired!)

Will be good to see how everyone gets on, especially when the advice re various creams etc is so different!
Member

Re: January 2019 Radiotherapy

Hi Jane, thanks for your reply. I'm very happy that you're getting well on radiotherapy. Hope it will be easy for me too :-)
Member

Re: January 2019 Radiotherapy

Hi ladies,

I'm in too. 1st of 15 sessions on the 15th.
Also signed up for a new phase III drug trial, which starts in a couple of weeks if I'm one of the chosen.

Best of wishes,
Sam xx
Member

Re: January 2019 Radiotherapy

Hi Carol LIna,

Two weeks after surgery, I had a review with the surgeon and the BCN. Surgery was 31st October, and review was 15th November. After that meeting, I received a letter in the post, inviting me to the raditherapy planning appointment, which was on 3rd December. My first three radiotherapy sessions were given to me at that appointment. They try to keep it at the same time each day, and I requested afternoons from 2nd January, as I am back to work, and they accommodated that. My radiotherapy sessions started on 18th December, and, due to bank holidays, will finish on 10th January. I have found this stage of treatment really easy, but I have heard that tiredness can kick in about nine days after the last radiotherapy, so I am keeping my fingers crossed that this doesn't happen to me!

Good luck and best wishes

Jane xxx

Member

Re: January 2019 Radiotherapy

Hey ladies, thanks for posting your experiences. I hope you all have had a wonderful Christmas time and New Year eve.

Could someone tell me what are the steps between the surgery (I had lumpectomy three weeks ago) and the beginning of radiotherapy, please?

I'm starting to feel anxious again after surgery since I don't know what will happen next and my BC nurse doesn't reply my emails anymore!

Thanks in advance and wish you a great weekend.

Carol xx
Member

Re: January 2019 Radiotherapy

Thanks Jane, i think i will take your advice and get that cream you mentioned x
Member

Re: January 2019 Radiotherapy

Hi Jujustu3,

Welcome to this thread. I have had ten out of fifteen radiotherapy sessions and have had no effects so far. I am drinking at least two litres of water a day, and trying to exercise regularly, as these are both meant to counteract fatigue.

One of these lovely ladies on this forum recommended Biafine cream from Amazon. It has been absolutely fantastic. I have had no redness or soreness, and one of the radiography staff today commented on how good the irradiated area was looking. The cream is expensive ( £15.99 for a large tube), but I am using it three times a day ( morning and night, and straight after the session as I bring it with me), and the tube will last til the end of my sessions. I also bring some wet wipes with me, and use this on the mastectomy site just prior to my session, as I have read you shouldn't have cream on the site when you have the radiotherapy ( but I have also read that it makes no difference!).

Good luck with your treatment

Jane x

Member

Re: January 2019 Radiotherapy

Hi ya. I will be joining you this month. Had my planning apt today. Starting 17th Jan, consultant hasnt decided if im having 15 or 23 sessions yet. Radiographers said i cud use E45 cream so will use that i think?

Julie x
Member

Re: January 2019 Radiotherapy

Linda corinne - no, I had a lumpectomy this time, with chemo and rads. Not an improvement, I feel.

Community Champion

Re: January 2019 Radiotherapy

Bee

 

It might be worth giving your breast care nurse a call to see if she can check it out.  You should get an appointment first of all to see your oncologist, following that about 2/3 weeks later you will get an apt for your planning session and usually rads start about 2/3 weeks after that, well that is what happened at my hospital

 

Helena xx

Member

Re: January 2019 Radiotherapy

Hi all new to this thread!

Finished chemo 20th December so still at the recovery stage, hopefully be starting radiotherapy end of January. Haven’t received anything from the hospital with regards to radio appointments?? How long does it normally take? Thanks bee 🐝 xx

Member

Re: January 2019 Radiotherapy

Kathyx did you have another mastectomy?
Member

Re: January 2019 Radiotherapy

I've had 9 out of 15 and all well so far. (Touching wood like mad!)  I've been putting on E45 immediately after treatment and then Aveeno (bought from Tesco) before bed and sometimes in the afternoon as well. I've only worn a bra going into treatment and then braless for the rest of the day. I finish a week today which will be good. It's been a long process this time as opposed to 30 years ago when I just had a mastectomy and nothing else until the reconstruction a year later.

Member

Re: January 2019 Radiotherapy

Hi ladies,

I’ll be joining you all too 💪🏻❤️ I’m still waiting on my planning appointment coming through yet so will be a bit behind some of you but it should hopefully be in the next few weeks.

Haven’t really been told much apart from it will be 15 sessions. I’ve just finished chemo so need to wait to recover from that first. Going to order some biafine - thanks for the tip Linda & Jane.

Good luck for tomorrow Fiona ❤️

Lisa xx
Member

Re: January 2019 Radiotherapy

I am joining you this month too. I have my planning meeting  next week when I will have a CT scan and get my list of appointments(15).

 

Lokking for ward to getting this step done and dusted - though with 2 re-excisions I was beginning to think  this stage would never come....

Member

Re: January 2019 Radiotherapy

I looked up the Avene products on mysupermarket.co.uk, they're all 25% off in Superdrug so a lot cheaper than Boots.   However, the Superdrug shops I went to don;t stock them.  So 25% off nothing is nothing!   I ordered a tube of Biafine on Amazon last night (15.99 for 186g, pretty similar prices to the Avene stuff) and it's due to arrive this morning.   How do they do that??

 

I was also looking for some large gauze pads so that I could smother myself in (cheaper) moisturiser and leave it to soak in but I can't find any big enough.  I want something that wont soak up the cream, ideally. I'll try the local chemist.  Or maybe try a flannel?

 

 

Member

Re: January 2019 Radiotherapy

Hi Fiona,

I have had seven out of fifteen radiotherapy sessions, and I have had absolutely no side effects so far! My top tips are to make sure that you drink plenty of water- at least two litres a day. I fill a two litre jug with water, first thing in the morning, and pop it in the fridge, and make sure that I have finished it by the end of the day. I use it to fill a water bottle which I drink after the radiotherapy session.

I use biafine cream, as recommended by another kind lady on this forum,( from Amazon). It is expensive but I have had no redness or soreness.

I am keeping up my exercises, doing at least twenty minutes exercise per day. This is meant to counteract fatigue, and I have not experienced any fatigue yet.

 Compared to chemo, this stage has been very straightforward.

Good luck

Jane xx

Member

Re: January 2019 Radiotherapy

Hi ladies, I start on 3rd January for 23 treatments. I’m just keeping an open mind about everything but any tips will be great. Only thing that I’m not looking forward to is the travelling as I live an hour from the hospital. Good luck to everyone xx
Member

Re: January 2019 Radiotherapy

Hi,

I start on 7th January, 15 sessions, nearly a year after I was told I couldn't have it because I had it before, same side. I'll just use the aqueous cream , the same as I did when I had it 13 years ago . It was a doddle then and I'm expecting no different this time. Only trouble I'll have this time is holding the position. At the planning meeting they kept wanting to know if I was comfortable. I'm never comfortable due to extensive scarring and underarm cording but we found the least uncomfortable position.

I shall pop along from work to have it done and then go back now that I've changed all the times so as to not finish to get the train home in the rush hour.
Member

Re: January 2019 Radiotherapy

Willie I thought that too about E45 and Aqeous cream so I got some Biofine but that also has paraffin in it. I tend to use E45 first thing if I have an am appointment but I could just use it after the radiotherapy & twice more but I am working full time so don't want to do that really. The Biafine emulsion is quite expensive but specially for radiotherapy. I got it off Amazon. Someone said they used it three times a day with no problens so a couple of us got it. I started radiotherapy on the 17th and finish on the 16th January. x 

Member

Re: January 2019 Radiotherapy

Right then lassies, let's get this ball rolling!

 

I'm starting on 3rd January, 16 sessions.   Any idea how the number of sessions is decided on?  

 

Moisturising - at the planning session, the radiologist (or radiologist's assistant, who knows?) suggested E45 cream or anything unfragranced.   I looked at E45, it says on the tub that it has parafin in.   I thought you had to avoid the creams with parafin in?  Confusing.   

 

On another of these monthly threads, one of the girls living in France recommended Avene Xeracalm cream.   They also have a cream called Akerat for very dry skin and it says it can be used 'with medicines'.   I looked them up on the Boots website and, while not the cheapest, they look interesting.   I might invest my points in one of them.  

 

I had planned to 'practise' by moisturising with stuff I've already got in the weeks before I start but I've only done it twice.   I'm rubbish at being a girl!

 

Willie x

 

Community Champion

January 2019 Radiotherapy

Ladies

 

I have started this thread for those of you who are starting your rads in January and the ladies who are continuing during the month.  I am sure you will get loads of help and support from the ladies on here.

 

Helena xx