The timings of the holidays have been really good for me as it means that I haven't had a 5 day week - just 4 days a week. I've got the 11th out of 15 tomorrow.
Hi Carol LIna,
Two weeks after surgery, I had a review with the surgeon and the BCN. Surgery was 31st October, and review was 15th November. After that meeting, I received a letter in the post, inviting me to the raditherapy planning appointment, which was on 3rd December. My first three radiotherapy sessions were given to me at that appointment. They try to keep it at the same time each day, and I requested afternoons from 2nd January, as I am back to work, and they accommodated that. My radiotherapy sessions started on 18th December, and, due to bank holidays, will finish on 10th January. I have found this stage of treatment really easy, but I have heard that tiredness can kick in about nine days after the last radiotherapy, so I am keeping my fingers crossed that this doesn't happen to me!
Good luck and best wishes
Welcome to this thread. I have had ten out of fifteen radiotherapy sessions and have had no effects so far. I am drinking at least two litres of water a day, and trying to exercise regularly, as these are both meant to counteract fatigue.
One of these lovely ladies on this forum recommended Biafine cream from Amazon. It has been absolutely fantastic. I have had no redness or soreness, and one of the radiography staff today commented on how good the irradiated area was looking. The cream is expensive ( £15.99 for a large tube), but I am using it three times a day ( morning and night, and straight after the session as I bring it with me), and the tube will last til the end of my sessions. I also bring some wet wipes with me, and use this on the mastectomy site just prior to my session, as I have read you shouldn't have cream on the site when you have the radiotherapy ( but I have also read that it makes no difference!).
Good luck with your treatment
It might be worth giving your breast care nurse a call to see if she can check it out. You should get an appointment first of all to see your oncologist, following that about 2/3 weeks later you will get an apt for your planning session and usually rads start about 2/3 weeks after that, well that is what happened at my hospital
Hi all new to this thread!
Finished chemo 20th December so still at the recovery stage, hopefully be starting radiotherapy end of January. Haven’t received anything from the hospital with regards to radio appointments?? How long does it normally take? Thanks bee 🐝 xx
I've had 9 out of 15 and all well so far. (Touching wood like mad!) I've been putting on E45 immediately after treatment and then Aveeno (bought from Tesco) before bed and sometimes in the afternoon as well. I've only worn a bra going into treatment and then braless for the rest of the day. I finish a week today which will be good. It's been a long process this time as opposed to 30 years ago when I just had a mastectomy and nothing else until the reconstruction a year later.
I am joining you this month too. I have my planning meeting next week when I will have a CT scan and get my list of appointments(15).
Lokking for ward to getting this step done and dusted - though with 2 re-excisions I was beginning to think this stage would never come....
I looked up the Avene products on mysupermarket.co.uk, they're all 25% off in Superdrug so a lot cheaper than Boots. However, the Superdrug shops I went to don;t stock them. So 25% off nothing is nothing! I ordered a tube of Biafine on Amazon last night (15.99 for 186g, pretty similar prices to the Avene stuff) and it's due to arrive this morning. How do they do that??
I was also looking for some large gauze pads so that I could smother myself in (cheaper) moisturiser and leave it to soak in but I can't find any big enough. I want something that wont soak up the cream, ideally. I'll try the local chemist. Or maybe try a flannel?
I have had seven out of fifteen radiotherapy sessions, and I have had absolutely no side effects so far! My top tips are to make sure that you drink plenty of water- at least two litres a day. I fill a two litre jug with water, first thing in the morning, and pop it in the fridge, and make sure that I have finished it by the end of the day. I use it to fill a water bottle which I drink after the radiotherapy session.
I use biafine cream, as recommended by another kind lady on this forum,( from Amazon). It is expensive but I have had no redness or soreness.
I am keeping up my exercises, doing at least twenty minutes exercise per day. This is meant to counteract fatigue, and I have not experienced any fatigue yet.
Compared to chemo, this stage has been very straightforward.
Willie I thought that too about E45 and Aqeous cream so I got some Biofine but that also has paraffin in it. I tend to use E45 first thing if I have an am appointment but I could just use it after the radiotherapy & twice more but I am working full time so don't want to do that really. The Biafine emulsion is quite expensive but specially for radiotherapy. I got it off Amazon. Someone said they used it three times a day with no problens so a couple of us got it. I started radiotherapy on the 17th and finish on the 16th January. x
Right then lassies, let's get this ball rolling!
I'm starting on 3rd January, 16 sessions. Any idea how the number of sessions is decided on?
Moisturising - at the planning session, the radiologist (or radiologist's assistant, who knows?) suggested E45 cream or anything unfragranced. I looked at E45, it says on the tub that it has parafin in. I thought you had to avoid the creams with parafin in? Confusing.
On another of these monthly threads, one of the girls living in France recommended Avene Xeracalm cream. They also have a cream called Akerat for very dry skin and it says it can be used 'with medicines'. I looked them up on the Boots website and, while not the cheapest, they look interesting. I might invest my points in one of them.
I had planned to 'practise' by moisturising with stuff I've already got in the weeks before I start but I've only done it twice. I'm rubbish at being a girl!
I have started this thread for those of you who are starting your rads in January and the ladies who are continuing during the month. I am sure you will get loads of help and support from the ladies on here.