Thank you for your reply Jencat, it certainly is difficult to 'relax into the bed'. Hopefully the paracetamol and shoulder excercises will now help! Here's to the last 4! x
Morning Willow, sorry you're having problems with your treatment. I finished radiotherapy in June and like you, had to do the breath holding. I used to find my sessions could take as long as 50 minutes sometimes with the positioning and the radiologists checking my breath holding before they started the radiotherapy. I found my shoulders got very painful with holding them in the same position for so long and it was difficult to 'relax into the bed' as they would always say! I was recommended to take paracetamol about 30mins beforehand, which did help. I also found my throat got very dry. Apparently the room is air conditioned and I think the breath holding made me feel thirsty too. I made sure I drank quite a bit of water before and afterwards and throughout the day.
Hope the rest of your treatments go well x
Currently having radiotherapy on left side and breath holding, this last week has been quite a challenge! Twice they were not happy with my position, after being re-positioned 3 or 4 times, so treatment was eventually cancelled for those days. They advised me to take paracetamol, to help my aching shoulders, which could be part of the problem.
I have become slightly breathless, had my review with the radiographer on Friday, who said, radiotherapy would not cause this!?
Currently had 11 treatments out of 15.
Tiredness and a 60 mile round trip each day doesnt help!
Glad it is the weekend
i totally get what you are saying. I too had a cruise booked for 29th July and had to cancel and lost my deposit money . I too asked if could start radio few days later so could do little 3 day break as we haven’t been anywhere since July 17 but told I couldn’t .
Never mind we’ll do something special next year ! Hope you get your break soon x
thanks for your advise and comments . I’ve just got back tonight at 7 pm from my 3rd radio was a long day .im still tired but drinking loads but think could be chemo side effects still . I asked tonight if I could find out times for the week and luckily they did as I’m relying on different people giving me lifts .
I just don’t know how some of you manage to work and go through this .can you not go sick but I suppose if self employed it’s hard .
12 to go now good luck everyone. I’m using zeroaqueous cream 3-4 times a day and right up to my neck .
I have my first rad session this afternoon - I have 4 weeks to ger through whilst working FT, feeling quite anxious at the mo... hoping to have time later to go back through this thread and pick up all the handy tips 🙂
Good luck all, as we start a new week xx
Yesterday I layed off any creams and potions and let my sore bit have some breathing space. It really helped and is a lot less sore today. I also slept with a cold wet face cloth over my boob and it was lovely!!!!
Im drinking heaps and haven't felt too tired over the weekend.
Lets see see what this week brings xxx
Hi Chrissy, had my follow up appointment with the Radiologist Onc yesterday (I finished rads 4wks ago) and I mentioned that I get shooting pains occasionally. He said that it was normal, just the nerve endings sorting themselves out.
I'm TN as well-onc was quite reassuring about that too, said that although we're at higher risk for the first few years after that the risk goes down and is less likely to reappear years later x
Hi Camilla, I get my rads plan on Thursday but have been told already to start massaging the areas of surgery already from now. Twice daily with E45 cream.
My rads team gave me some polymem which I used to put between my nipple and bra, it really helped, so perhaps ask your team if they can give you some and then you can get your GP to prescribe some more for you.
Are you still taking in enough fluid every day as that will help with the tiredness?
Hello and welcome to the thread.
I cant help with your question but hopefully someone will be along shortly who might be able to answer it.
With regard to the tiredness though are you taking in enough fluid every day as the effect of rads can make you dehydrated which cause cause fatigue.
It might be worth mentioning what is happening to your rads team, they might be able to suggest something and reassure you that it is to be expected.
just joining this forum.
Have had 2 rounds of radio applying aqueous cream-on 2-3 times a day but seems I need to do more .
Been getting shooting pains in chest and tired but I’m only 5 weeks following chemo too. Been getting a bit sore at back of arm pit .
I had right mastectomy and implant and sentinel node biopsy on dec 21st 17.
Unfortunately I found out the cancer had spread to lymph nodes after the implant but they aren’t doing clearance just radio to chest axilla and neck 15 sessions in total .
I’m worried about the implant capsulating does anyone know much about this and what it means or feels like I’m also triple negative so can’t have any other treatment after radio .
hope everyone is coping ok
Yay great to hear that everything went well today. Onwards and upwards now to rads and very soon you will be ringing the bell for completing them xxxx
Like just about everything we are going through, treatments affect individuals in different ways. I've been advised by the radiotherapists that soreness of the skin in the area treated is likely to kick in towards the end of the treatment, or even a couple of weeks after treatment has finished. Fatigue is partly a result of the body healing what has been damaged by the rads, but varies with different people. The effort of having to attend hospital every day is tiring, and rather obviously will vary depending on how far a patient has to travel, whether they are still working or whether they have other commitments they have to fit around. Some people are more susceptible to depression than others; this can depend a great deal on aspects of life beyond cancer, as well as the difficulties in accepting all the unknowns that go with the disease.
Do you have access to a Cancer Support Centre where you live? I am very fortunate in that one is attached to the cancer hospital I attend. They will give radiotherapy patients four complementary therapy sessions free of charge whilst undergoing treatment. I had my first (a back massage) last week, yesterday it was reflexology (wonderful!) timed for before my rads, and today I've chosen an Indian head massage, again as relaxation before rads. As the Centre allows carers to have four complementary sessions also, and as I don't have a carer and have been getting very depressed, the CSC manager has very kindly allowed me two extra sessions, so these will be after rads have finished.
For anyone finding it difficult to keep going on their own, I strongly advise making the most of whatever support is available, particularly treats such as complementary therapies, and opportunities to talk to skilled counsellors face to face. It is not suprising if agoraphobia sets in with people who are isolated and have no family available (or whose family just don't want to know), but being kind to yourself and putting your needs first is so important to recovery.
Hello Norrie, so sorry to read of your dilemma.
Is there a close family member you could perhaps have a chat with about this? You could say you're feeling rather isolated and would like to talk about what is happening to you. It might be that people aren't sure what to say to you now, so are playing safe and saying nothing. If you introduce the subject yourself, it might be easier to determine which friends and relatives are happy to talk and which might be shying away from the subject of cancer altogether.
Also, I think some people underestimate what is involved in different adjuvant treatments. One friend of mine recently expressed great surprise when I described to her what radiotherapy sessions are like. She had just thought, 'radiotherapy, oh that's just straightforward,' without really thinking about what it would involve, and how distressing it can be. It hadn't occurred to her you have to lie stock still on a very uncomfortable couch in a very vulnerable position for a good ten minutes, in a room a little like a torture chamber, day after day. Neither had she realised there can be such side effects as sore skin and fatigue weeks after the radiotherapy is over. She was also taken aback when I described the precautions I will now always have to take in protecting my left arm and hand from damage, as a result of the axillary node clearance. Side effects from endocrine therapy also came as a shock.
Another friend of mine said to me on a visit, 'Oh, cancer treatments are so much better nowadays,' without ever having had any herself. I explained it is the care of patients that has improved, in that there is a much more holistic approach to what is appropriate for each individual, and that surgical and laboratory techniques have improved, but the treatments themselves are very unpleasant, and some considerably more than others. I also suggested sweetly she might try them herself. She was quite taken aback.
It seems a lot of people just don't really want to think about what having cancer is like.
I do hope you can find a way of getting a more friendly, understanding response. Be brave and raise the subject yourself with those you think are most likely to be helpful.
Hello Pembertonrose, I thought it was just me, but my family and friends don’t speak to me. I know my family speak about me behind my back which really annoys me. WHY DON’T THEY SPEAK TO ME. Infact my daughter-in-law visited at the weekend and didn’t mention once my cancer or my Radiotherapy treatment. I could have screamed at her ‘You do know that I’ve got cancer’. As far as my friends are concerned, I had plenty of text messages, flowers, cards and visits when I was diagnosed but now, when I need to have a chat, I don’t hear from any of them. I have had five out of 15 treatments so far. Sorry Pembertonrose but I needed that rave. If anyone else is having this problem of non communication with family and friends and can understand why, please let me know.
Yesterday I reached my 9th rads session, so 6 more to go. I was advised to start applying cream before rads started, and to keep massaging it in 3 times a day, every day, throughout the treatment period. I use Aveeno cream and massage it well into my left arm and arm pit as well, as I had axillary node clearance. I drink plenty of water and tea throughout the day, don't drink alcohol and don't smoke.
After yesterday's session, I had a review with a senior radiographer. So far I have not had any skin reactions, other than a slight reddening of the left breast, but I am feeling very tired and getting very depressed.
The SR advised that skin reactions were likely to start towards the end of the treatment period (next Wednesday) or even up to two weeks after treatment has stopped. It's a delayed reaction.
Apparently the tiredness is partly due to the body going through the healing process as healthy tissue is damaged by the rads. It is also down to the stress of having to attend the hospital every day and to work life around the appointments.
As for being depressed - we're all in a club we'd rather not have joined.
All the best Camilla - I hope your programme goes well. Each session is a little easier than the one before, even although the couch isn't exactly designed for an afternoon nap. (One of the radiographers told me that one patient had actually gone to sleep during a session!)
I start my radiotherapy tomorrow and am having 20 sessions.
Those who know - am I supposed to put cream on immediately after - and what cream?
Also, why should rads cause such fatigue?
Am a bit in the dark...
Hello and welcome to the thread. Well you have come to the right place to get advice on what will happen when you have your rads.
Just to know where you are up to at the moment, have you had your planning appointment yet so that we know where to start from?
Had surgery for high grade DCIS in left breast at end of May just waiting for radiotherapy appointment. Had DCIS right breast with no radiotherapy in 2010. Dont know what to expect.
I think you finished rads yesterday, ringing the bells for you. Sounds an excellent plan and why not, this is your time now to rest and recooperate xx
Hello and welcome to the thread.
ANything you need to know jsut ask one of the ladies will be able to help you
What a wonderfully supportive post for the ladies who are about to embark on rads.
Hello and welcome to the thread.
Well how about a really positive post - I finished my radiotherapy in January 2017 after having had 15 regular and 5 boosters. To be honest I had very little problems with it, more around the actual journey each day that really got me down. That as you can see was 17 months ago and life is totally back to normal for me.
I worked throughout my rads, but was only allowed to do 4 hours a day 3 days a week, so I timed the ones on those days to be after I had finished work as it was half way between home and work.
The actual rads sessiosn themselves are ok, the first one does tend to be longer as they have to do a check on the measurements etc., from the oncologist report, it will probably be about 25 minutes. After that from undressing, having the session and dressing it is usually only about 10/15 minutes in total
Please come on here and ask whatever questions you need, rant, rave, whatever there will always be someone who will be able to help and support you.
I am so sorry to hear about what is happening with regard to your family and friends, I wonder if it is that they really do not know how to deal with your diagnosis. Have you considered counselling to help you with the way you are feeling. i had this just before I started my rads and all the way through, it was so good to have someone to talk to, who I did not know, and who made total sense of everything I was feeling, putting it all back into perspective again for me. I was the best thing I did.
Sending you lots of hugs