Thank you for akingtime to write this post
im starting my radiotherapy in Thursday
and feeling nervous
but readingyour post has reassured me
about my emontial being
which I was worried about
and want to drive myself to radiotherapy
I start on Thursday 14th june
good luck girls who are starting there treatment
just be glad to get started now
longer I wait
mire nervous I'm getting
Thought I would join you as my rad's started on 4th June. I should have 5 under my belt but on Thursday all 3 machines were down so I was sent home untreated. As the journey is a round trip of 100 miles I was pretty fed up with the wasted journey. I have also now lost one of my free days.
I am having 15 + 3 boosters and will finish on the 29th June. So far I have been feeling ok much better than chemo. Using aloe Vera although I have had it for quite a few years so hope it is still effective. Also not wearing a bra at the moment, didn't used to wear one in the 60s and 70s so going back to my youth.
Like MellyL I have 2 to go (15 total) slightly different from some on here as I had a masectomy so they are doing the chest wall.
I have been using Aloe Vera and I have a nice 4-6 inch square ‘tan’ slightly pink scar which I have had to up my stretches to stop this tightening so much but ok skin wise.
I have my zaps mid morning so mostly I have gone to work driven to have my rads and then back to work, sometimes leaving early around mid afternoon after my 8th I got hit by a brick wall at work and so on the Thursday & Friday only did a couple of hours in the morning. I have and will do the same for my last 4 as work have said take what time I need, which does make a big difference.
Drinking plenty and also exercising as the best for fatigue is going for a walk ( my partner had prostrate cancer 4 years ago and he walked for 1 hr a day without fail and this helped him deal with any fatigue - he had 35 sessions). So even though some afternoons legs feel full of lead going for a walk has dealt with that and then just feel tired.
Hope everyone starting their rads or just started goes though without to many or no problems - hugs all round
Everyone is different and some people do have problems, but on the whole if you read the previous months threads it is not a big problem.
Just make sure you take in plenty of fluid to counter the dehydration effects of the rads, which can potentially cause fatigue, moisturise 2/3 times a day and listen to your body, it will tell you when you need to rest.
I had 20 sessions, my work allowed me to do 4 hours a day 3 days a week, so I arranged my rads to be in the afternoon on those days so that I could got straight from work and then it would give me the evening to rest as I needed to.
A lot of it is the tiredness from going back and forward to the hospital every day. Are you driving yourself or have you got someone who can take you as that will probably help.
Have you spoken to work to see if there is anything that they can do. I know my work did an occupational health referral and acted on their recommendations, hence my only being allowed to do those hours.
Sending you hugs
I've done 13, just 2 to go. Have to tell you that once I got used to taking pain relief (my shoulders ached through holding the position especially first sessions) it has been a breeze. Even the heat/tenderness in my nipple didn't last more than 1 day (12th). I've driven myself for most of the sessions (60 milke round trip) and been busy, but not overloaded afterwards.
Drink lots of water.. just add 2-3 glasses through the day as you remember it. The only day I felt fatigue was after a bad night's sticky sweaty sleep (weather) and not drunk much.
Slight reddening and some colouring, really little impact so far.
Once you get into the routine it's soon over.
Strange question alert - are your tattoos the same size? The one in mid cleavage is much bigger than the one on the side!
Also has anyone else got breast cording like me? I know axillary cording is common and I was warned about that, but I actually have a vertical cord right through my breast and I cannot for the life of me find anything on Google 🤔
4 sleeps until I start my radiotherapy and the boob/s have been creamed beyond belief!
Well I wouldnt call my self responsible, but I am an adult so just share away with me and the others, we will get rid of the worry head and put your logical head back on top.
I didn't realise how big the area zapped was until my skin started darkening. It's about a 6 inch sqaure covering the whole breast and across my scars and into the armpit too. My scars are feeling like they did about 4 weeks after 2nd surgery. They are of course really shaking up the tissues and a lot more going on underneath the skin than is obvious.
Everything is clearly very carefully measured every single time, so try not to worry. if you are, just ask
Good luck with the rest of your treatment.
I am sure they are not zapping you in the wrong place, they have very specific measurements from the oncologists which they check at every session. It is worth mentioning it as they say to tell them everything so that they can check and reassure you
Perhaps mowing the lawn was a step too far and might have just aggrevated the nerves in your breast.
Good thing is that you have two days off from them now
Have a lovely weekend
7/15 done, doing ok, always fall asleep when I get home but managing most other normal activity. Helps to have a lift sometimes. Looking forward to a weekend break! X
Hi Everyone, Thanks so much for all your comments and experiences - its really helpful to read. I am waiting to start RT and trying to keep up a normal(?) range of non hospital activities haha! Hoping I can still do things whilst having RT and from your comments - there is a good chance! Thank you all. x
Quick update. I've had 12 of 15 now. Nipple is super sensitive/warm now. Like it's had too much sun (true I guess!). Any suggestions?? It's well moisturised.
No other symptoms except skin darkening. Shoulders will be glad to stop that diving positioning.
I agree about drinking lots of water. I've only had 1 episode of fatigue so far. Travel is tiring of course.
3 to go! Yay
Thanks RosieH, good to know. Not sure I’d want to be near anyone’s pee anyway 😂
Well done to those having treatments this week, 1 more day and then weekend off! Looking forward to joining you with the, next week
Hi. Just hopping over from the May thread as I'm all done now, but I second the 'going bra-less as much as possible if you can' recommendation. I ended up wearing a double layer of lycra vests to at least give myself some support and it was infinitely more comfortable than a bra around the armpit area.
Goodl luck to everyone on the June thread! Meanwhile, keep up the fluid intake as it does really make a difference to fatigue / hydration levels!
Dealdoh and Luzxielou42
I've started leaving my bra off as much as possible now unless I get really uncomfortable.
Had my surgery April 9th.
There just always seems something else to see the dr abt at the moment!
Just catching up on the thread...I haven’t started yet but when I saw the consultant the other day and asked about exercise she said you ca do anything but absolutely no swimming or jacuzzis. Apparently they don’t want you anywhere where people pee!!!!
Starfire have they given you something other than Tamoxifen? Xx
Havent worn a bra since my double mastectomy back in November but sometimes it feels like I am wearing one that is a bit tight. Are you able to go without a bra for a little while Littkeperson?
I've had 10 treatments now and started with a skin rash a couple of days ago with some irritation. Dr says its sunsensitivity due to radio therapy. Left breast and armpit being more irritated (thats my target area).
My lymph node scar is constantly rubbung on my bra's as well - spent a fortune to date to find something that doesn't rub.
Feeling fed up 😕
Had treatment 5/15 today. A friend took me through, felt almost embarrassed about the 80 mile round trip for 10 minutes of treatment, nice to have some company though 😊
25 done now, only 5 more to go! My neck and collar bone is very red and itchy and I've got a bit of blistering under my breast, so feeling a bit sorry for myself! Start my boosters tomorrow-they've managed to double them up so that I can finish a week early
Hope it goes well for you tomorrow Lilac x
I felt the same after my first rads and as time has gone on the treatments seen to take less time (although they don’t I’m told) I had treatment 10 of 15 today and have had no s/e as yet but that could all change, hoping all goes smoothly for you.
I had treatment 10 of 15 today, I’ve been very lucky so far in that I’ve had no s/e, I’m expecting them to hit me like a train but taking it one day at a time.
So glad I have found this forum, it’s full of useful information and some great tips.
I still can not believe I have found myself on this journey, when I speak about it it’s like I’m talking about someone else,
Oh dear Starfire x you had enough problems with the chemo (and how!) I hope it settles down for you with the rads xx.
Welcome Liliacmoon. I hope your rads journey is smooth and uneventful. X
Hope it all goes well with your consultant tomorrow Starfire. Would he/she be ale to advise you about your rads treatment? x
Hope it all goes well tomorrow Sunflower. I bought my aluminium free deodrant (also paraben free) from Holland and Barrett-Dr Oniker range, more expensive than the deodrants I used prior to bc, but it has lasted a long time x