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May 2018 Radiotherapy

Community Champion

Re: May 2018 Radiotherapy

I didn’t have to breath hold either, Sunflower. I did check & was told it wasn’t necessary. Thinking back, I think the radiotherapy suite had been recently upgraded.

ann x

Member

Re: May 2018 Radiotherapy

Of course you can join us Sunflower Smiley Happy

I'm afraid I can't help you regarding the machine being used for your radiotherapy as I'm doing the breath holding. I'm surprised that it's not being used at the hospital where I'm having mine though as the unit is only a year old and it's part of Guy's Hospital.

Hope you found you're planning session reassuring yesterday x

Member

Re: May 2018 Radiotherapy

Hi!

Sooooo very grateful for the weekend! 

Enjoy the break if you have the weekend free, and I hope you’re not suffering too many side effects! 

Member

Re: May 2018 Radiotherapy

Hi Hanbagaddict

 Loved your story about getting measured up for booster sessions. I had something similar but it was pretty weird as well. Again, after my normal session I was asked to go round to another area to wait for the consultant to measure me for the booster sessions.  This turned out to be a corridor, with staff passing backwards and forwards and me in my dressing gown. Didn’t particularly enjoy this. And I waited… And waited… And waited! After 45 minutes I managed to catch one of the radiotherapist to ask where the specialist was. She went to find someone to tell me and when he came he looked all embarrassed and said “we think he might be in clinic. We’re trying to find him“.! I then realise there were three other women all waiting to see him. He finally arrived an hour and a half later. By then I was not only freezing but stretched flat in the usual uncomfortable position with my arms above my head circled by two nurses on tiptoe obviously on tenterhooks waiting for him to arrive. Finally he came into the room. greeted me cheerily and explained he was going to measure me up. I thought this was going to be really complicated but all he did was look at my breast, ask for a plastic disk, round which he drew with a felt tip pen and then disappeared. No apology for the long wait which made me really annoyed. After that the nurses carefully used tracing paper to trace round the marks he had made and that was it. Really 21st-century. I discovered the next day that the poor women waiting after me had to wait even longer because he then disappeared off somewhere else and had to be found again. 

Member

Re: May 2018 Radiotherapy

Hi Vonne
Thank you for your good wishes. I did think recently that I hadn't seen anything from you on the forum

I posted mainly in the April Rads thread although I completed on the 4th May.

Rads went really well and I just have minor irritated areas. GP prescribed hydrocortisone for the itching. I think another week and my skin will be almost back to normal.

Wishing you all the best and hope your treatment runs smoothly

xxx
Member

Re: May 2018 Radiotherapy

Morning all.  Session 6 today and one of the most weird yet.  Normal treatment went fine and then I got measured up for my booster sessions.  Cue 3 x radiographers and 1 x student all standing over me (whilst completely naked from waist up) discussing positioning, marking me up with black pen and taking photos! They don’t do tattooing anymore where I have treatment, hence this novel approach!  Very surreal!

 

Anyway, holding up well generally and no side effect to be seen so far.  I am being very careful on skincare and drinking what seems like gallons of water......

Member

Re: May 2018 Radiotherapy

Good to see you Vonne, hope you are getting into the swing of things. It will be number 10 of 15 for me today, can’t believe two thirds through already. 

All the staff are amazing, so respectful and gentle. 

Luckily for me a friend gave me a heads up for free parking opposite hospital, down some side roads. Sometimes have to drive round a little but manage to find space eventually.

Have a good day everyone!

Member

Re: May 2018 Radiotherapy

Andi, CONGRATULATIONS YOU MADE IT! All the best to you and here’s hoping that if you get any side effects from the rads they will only be minor. Let us know otherwise!
Well done again!
Member

Re: May 2018 Radiotherapy

I agree Helena and Fenouillard, here our car parking is free but that attracts people from all over the city to park there and then take a bus or short train ride to work!

Today was hard enough, but tomorrow is going to be much neater for time for me.....I wonder what excitement I’ll be having then?! 😅

 

 

 

 

Community Champion

Re: May 2018 Radiotherapy

Vonne

 

What a lovely lovely post.

 

I can so sympathise with you on car parking, it was the bain of my life when I was having them, having to allow an extra 30 minutes so that you can try and get parked, the one day I actually rang my team from the car to let them know I was there but could not find a parking space, they just said not to get stressed and get there whenever I could, the rads teams are little angels I am sure, they just do everything they can to make you a comfortable and reassured as possible.

 

Helena xxx

Member

Re: May 2018 Radiotherapy

Hi Vonne

 

 I do so sympathise! Our carpark is never big enough and we always have to queue. The other day we had been waiting for about 20 minutes or so when a space became free just behind us but as we started turning a newly arrived car nipped into it. When I remonstrated the woman driver simply said airily “oh that’s happened to us too and we were nearly late the for appointment”. Why on earth would she want to inflict this on someone else? 

 

F

Member

Re: May 2018 Radiotherapy

Day 3. 

 

Am sitting in my Treatment Room and as usual they’re running a little late, but I’m incredibly grateful for that because there are simply not enough places at the hospital to park. After the long drive I spent 35 minutes circling round trying to beat others into the potentially vacant space of a poor, reluctant, harassed driver.  Other hawk-like drivers’ eyes spotted him exiting the doors of the unit first and stalked him! 

As I kept losing out, (the other birds of preys are more mature in treatment than me and have learned to pounce faster),  I instead circled around the lone parking attendant who was ‘in hiding’  near the bushes! A few tears and pleading later and I was parked on a pavement and running. 

 

 

Now, I’m still waiting to bare all.....but had enough time to calm down and am extremely grateful to that wonderful parking attendant who rescued me from my worst self of emotionalism! 

 

Member

Re: May 2018 Radiotherapy

Good mornng,

have just read your post.  I actually finished my rads last June 2017 but just wanted to say i used Aveeno right thru my treatment and for 3 months after with no problems.  I did have a real itchy nipple/area but dr said to use a little steroid cream which i did n sorted in 4-5 days.

good luck with your continuing treatment. ❤️

Member

Re: May 2018 Radiotherapy

Well done Vonn for getting the first session done.  To be honest, I think that's the hardest one, as until you have to do it, you dont really know what to expect in terms of atmosphere of the room, noises, movement of the bed, the manhandling, etc. to ensure you;re in the right position.  It really does get easier each time.

 

Having said it gets easier though, had a nightmare yesterday on session 4 with my breath hold as for no reason, I was really struggling to get my lungs unflated enough. i did it in the end, but it took a few goes. Sessions 1, 2 and 3 had been fine.  Got a big apology from the radiogrpaher this morning as they confessed that they'd forgotten to give me a nose peg (and i hadnt realised either).  Then said that they were impressed that i'd actually managed to hit all the levels despite not having one! 

 

Today's mishap in session 5 was the machine getting stuck on some cables post the minin CT scan and setting loads of alarms off.  Cue what felt like a million people running in the room at once to try and sort it out.  Still makes it all a bit more interesting i suppose.

 

Loving my radiography team too.  They really do make such a big effort to make the process as 'enjoyable' as possible.

 

 

Member

Re: May 2018 Radiotherapy

That's a lovely post Vonne and you are so right about the volunteers. They made such a difference when I was having chemo coming round with hot drinks and stopping for a chat x

Member

Re: May 2018 Radiotherapy

Day 1 of rads yesterday and I discovered ‘The Walled Garden’ in the grounds of the hospital!  I sat there in the sun feeling empathy from the shrubs and trees and just let my emotional tears stream down my cheeks! Thanks volunteers for everything you’ve done in the garden, you helped me feel more calm after my first session! 

 

Day 2 today and I sat drinking a regular size hot chocolate at the lovely little volunteers cafe, which I’m convinced acts a bit like a therapy centre for a lot of people!! The light in this cafe is bright but at the same time it’s very warm and homely so it’s the kind of place where you can just sit, relax, and prepare for “the big room with the big machine!!!”

 

To volunteers everywhere....you do a great job and right now I feel you have been doing it all just for me!!! Thanks! 

 

Member

Re: May 2018 Radiotherapy

What a beautiful morning!  Had an really early session today.  No 3 of 20.  In and out within 15 mins and it really does get easier every time.......  Still drinking stacks of water.  My skin (face) is going to end up looking fantastic by the end of it all given the fluids I'm taking on.

 

Hope everyone else is OK and enjoying the sushine today....albeit from underneath a sun umbrella perhaps..... .......

Member

Re: May 2018 Radiotherapy

I started rads last Monday, 5 done, 20 more to go! I've been posting on the April rads, but thought I'd pop onto here too as apart from the first one, all my rads are in May! (plus a few in June)

Dramajo, glad everything is going well for you x

Hope you're all having a lovely weekend Smiley Happy x

Member

Re: May 2018 Radiotherapy

Evening ladies, just had my 7th of 15 rads today. Must say, the first week has gone very smoothly, wonderful staff, feel I am in the swing of things now. Looking forward to a long weekend.

Skins looking ok, moisturising 3 times a day and drinking plenty of water.

I hope all you lovely ladies get a chance to enjoy the weekend and enjoy the sunshine!

Love to all

xxxx

Community Champion

Re: May 2018 Radiotherapy

Elaine

 

I could not have done without having the wonderful support from this forum when I was going through mine, it was so reassuring to post about something and then have so many others come back to say it is quite normal. 

 

I finished rads in January 2017, it seems like a distant memory now xxx

Member

Re: May 2018 Radiotherapy

Thank you Helena, it's so reassuring being on this site, really makes a big difference,

 

Have a fantastic weekend.

 

Elaine xxx

Community Champion

Re: May 2018 Radiotherapy

Knktnak

 

Yay you are nearly there and soon not to have to do those 6am starts, no wonder you are tired xx

 

Enjoy your long weekend break from rads, enjoy the rest and hopefully a bit more sleep

 

Helena xxx

Member

Re: May 2018 Radiotherapy

Hi lovely ladies

 

i had my 10th rad today, only  another 5 to go. Getting red and sore now been using aloe Vera and bio oil and notice some of you are using aveeno, so think I'll  give that a try.  The staff have been amazing and I've got to know the others in My time slot, there's been lots of banter and laughs, even talking of a future reunion.  I am really tired now but been getting up at 6 for my rads and not always sleeping well.  Hope you lovely ladies have a great weekend and enjoy this lovely weather.

xxxxx

Community Champion

Re: May 2018 Radiotherapy

Handbagaddict

 

ticking them off lady Smiley Happy you will soon be at the end of them.

 

Just a suggestion are you taking in enough fluids, it could be that your headache is down to dehydration, and that can be made worse because of the rads?

 

I was 6 weeks post surgery before I plucked up the courage to post, never done anything like it before, and over the last 18 months it has been a godsend to me.

 

Helena xxx

Member

Re: May 2018 Radiotherapy

Session 2 of 20 all done.  I have to say that all the staff - right through from the receptionists through to the radiographers - do try to make the process as painless as possible.  Male radiographer threw me a bit today, but he was lovely - just had cold hands !!  Come away with a small headache each time but i think this is because I'm tensing up / biting down onto the mouth piece for the breathing thing when holding my breath......

 

Hope everyone else is OK and lovely to 'meet' some of you.  

 

To the point made earlier about the forums being of comfort and helpful.  You are absolutely right.  I've been lurking and reading for a couple of months and you would not believe how helpful i have found everyones comments and the sharing of experiences.

Member

Re: May 2018 Radiotherapy

Thank You so much Helena, I will report back tomorrow.
And I agree, the 15 sessions really have gone very quickly.
Heartfelt thanks to you and everyone on the forum for all your support over the last few months
xxx
Community Champion

Re: May 2018 Radiotherapy

Andi

 

Have to say that has gone really quickly I cant believe it is already the day before your last rads.

 

I am going to look forward to ringing the bell for you tomorrow.

 

Helena xxx

Community Champion

Re: May 2018 Radiotherapy

Handbagaddict

 

Thank you so much for starting the May thread, I have suddenly realised today that it was the 3rd of May and I hadnt done it.

 

You will get loads of help and support form the wonderful ladies on here and those who have already finished their rads.

 

Glad today went well, yep we are a bit exposed arent we but it will not be long before you will be finished.

 

Helena xxx

Member

Re: May 2018 Radiotherapy

Hi Handbag

I'm over in the April rads thread and my last session is tomorrow. Woohoo.

Have to say the whole rads experience has been very good. Fast and efficient process each day and excellent caring staff.
I think the feeling of being exposed does eventually disappear.

My rads staff have been both male and female and I can't say that it has bothered me either way. I agree that eventually it's just like child birth in that you really don't mind being exposed. Although they always attempt to preserve my dignity and cover up my untreated breast.

Wishing you all the best for your remaining sessions and any other ladies joining in May.

xx
Member

May 2018 Radiotherapy

Hi,

 

Just joined the forum but have been reading for a couple of months.  Had my first radiotherapy session today - no. 1 of 20 (15 normal and then 5 boosters).  Since it’s May, thought I’d start a new thread for anyone else staring radiotherapy this month.  Hope you don’t mind!

 

History wise, got diagnosed with a grade 2 mucinous carcinoma (18mm) on the left side at the beginning of March.  Had a WLE and SNB at the end of March.  2 nodes removed. All clear and margins clear too.  So now onto Radiotherapy and I will start tamoxifen after rads haven finished.

 

First rads session went OK.  I don’t find the breath hold thing particularly hard.  Worst thing is the feeling of being so exposed whilst they sort themselves and the equipment out....oh and the itch I got on my shoulder blade which was driving me nuts.  I’m sure it’s a bit like being pregnant / childbirth though in that by the time I get to the end of it, I really won’t care at all :-).