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November 2018 Radiotherapy

Member

Re: November 2018 Radiotherapy

I think they do a moving forward day, probably in January, so I’ll make sure I get to that. The staff have been good, but the Radiotherapy department is very busy, and the staff don’t have the time, and I don’t think the training to cope with emotional needs. Although the breast care nurses have said that they can be contacted, they’re short staffed, and my impression is that they are busy with new patients, and don’t normally offer support post surgery. I’m happy with my care, but my only criticism is that they don’t do much emotional support, which is fine, but a gap in service provision, and means that if I do need help further on, that will mean going to the GP.

Kip Community Champion
Community Champion

Re: November 2018 Radiotherapy

Hi Kim,  I'm feeling more teary the nearer to the end of treatment I get too.  I am hoping to get on a "moving on" course to deal with some of the emmotions, do they offer that at your hospital?

Kip

x

Member

Re: November 2018 Radiotherapy

Have finished 15 sessions of whole breast Radiotherapy, and had the first of 5 breast boost sessions today, as posterior margin was very narrow. I’m feeling really tired now, my skin is mildly pink, but the 2 surgical scars are really itchy and have got very red. I’m using Aveeno and Aloe Vera Gel which I keep in the fridge. Also advised by the Radiotherapy team to use 1% Hydrocortisone sparingly. It helps, but not for long, has anyone got any other recommendations? I’m looking forward to finishing treatment, but also worried about the emotional effects hitting home then, which seems to be a common experience, just wondering how other people feel after the treatment ends? I’ve had a few tearful days, but mostly bottled it up in order to be able to carry on, which I know isn’t healthy, but I was worried that I wouldn’t cope if I let myself properly cry.

Member

Re: November 2018 Radiotherapy

Hi Kip. Thank you so much for this. I know I'm not going through nearly as much as you and alot of other ladies. Yesterday was just awful, but today I've been fine and even went to the yoga class with no tears!

  This was my 1st time on here so really appreciated your message. I did speak to my Breast Cancer Nurse a couple of weeks ago when out of the blue I burst into tears and she just said it was normal . 

  Good luck with you radiotherapy. My journey has been very short compared with your's.

    Thanks again.

        CyclingSoo

Kip Community Champion
Community Champion

Re: November 2018 Radiotherapy

Aveeno it is then!  Thanks everyone

Member

Re: November 2018 Radiotherapy

hi Kip I am now on day 12 of 20 and have only used Aveeno just a small amount of redness today but I suppose it does depend on your skin type.  good luck Fezzy x

Member

Re: November 2018 Radiotherapy

Hello Kip
I’m on day 4 and been using Aveeno daily moisturizing. I seem to be doing well and not applying too much cream to skin - I seem to be doing fine under Rads as I don’t feel any pain / burn or sensation . Perhaps it’s early days for me .

I haven’t used any other cream other than Aveeno so interested to know others views on this
Kip Community Champion
Community Champion

Re: November 2018 Radiotherapy

Rads ladies - what kind of creams are you using?  My rads nurse suggested Aveeno?

Kip

x

Kip Community Champion
Community Champion

Re: November 2018 Radiotherapy

Hi CyclingSoo, sorry to hear you are feeling down.  As everyone says it is completely normal to have ups and downs, you wouldn't be human if you didn't.  I was diagnosed in April of this year and have had a masectomny , chemo, axillary node clearance and am about to being Rads on 29th November (15 sessions).  I have had every emotion known to man and still do.  I have days when I am so positive and feel great and then out of the blue I could sit and cry for ever and usually do.  I broke down in tears at my plannig session this week, and couldn't really place why, just felt overwhelmed, sick to the back teeth of hospitals and just needed to cry.  It does help to let it all out and I am sure your friends don't mind, I regularly sob on my friends shoulders.   Do you have Breast Cancer Nurse you can call and talk to?  Or a Macmillan centre or similar?  We have one attached to Ipswich hopsital and they offer all sorts of counselling, therapies etc and encourage you to take them up as they are used to dealing with this sort of thing.  My Rads nurse has told me to seek help after the treatment is finished as you can feell a bit "set adrift and alone" once its all over.   There is a course run called "Moving On" which is designed to help you deal with psychology part of this nasty journey.  And please don't be afraid to come on these forums and let out how you feel, we have all been there and will be happy to chat.

Take care

Kip

xx

Member

Re: November 2018 Radiotherapy

 I'm new to this so don't know where to begin! I've just completed a 15 day's of RT for Stage 2 breast cancer with 2 lymph nodes removed, luckily they were OK. I know I'm lucky in alot of respects, but struggling at the moment.

 I stayed very strong throughout most of the time since my diagnosis in early August both physically and emotionally. On day 12 last week I became an emotional wreck- couldn't stop crying all day. Then had a few good day's but yesterday was even worse. My treatment finished Monday.

  My friends have all been very good, but I feel bad as they phone or visit and I crumble in a heap. 

  I know everyone keeps saying it normal, but does anyone know how long this is likely to go on for? Also not sure whether it's due to the RT or the Letrozole which I have now been taking for 6 weeks. 

  Going back to work I'm sure would be good for me, but can't go back whilst I'm like this. I keep myself quite busy most of the time, but not sure what to do about it. Maybe I just need to accept it will go away soon and take each day as it comes.

  Coping with the tiredness is OK as I can just have a nap, it's the emotions I'm finding the hardest part at the moment.

  Soory about all  this.

Member

Re: November 2018 Radiotherapy

hi ladies just a quick update I am on day 11 of 20.  In the last day or so I have been having sharp pains in my breast a bit like after surgery, doesn't last very long so not too bad, skin is fine at the moment just looks a bit Sun tanned. Had a wobble today, very tearful for no particular reason, could be Anastrozole effects or just the constant getting stuck in traffic jams getting to hospital every day, but I just think I am nearer to finishing than starting now so onwards and upwards, hope everyone is doing ok, best wishes to you all.   Fezzy x

Member

Re: November 2018 Radiotherapy

Hi LJ, yes I live in Swindon and doing the daily run to Oxford Churchill. My appointments have been late morning / early afternoon varies during he week. I’m on day 3 and aooointment is 1.35 pm so I’ll need to set off around 12.15 . Leave enough time to find parking space - was actually lucky yesterday I found one ! Amazing !

I was planning dropping into Maggie’s Center today which is across the road from the hospital and familiarize myself with the drop in center

My last Rads session is 7 Dec . I’m on day 3 and already feel fatigue slowly kicking in and I’m keeping myself well hydrated .. I don’t have any pain or sensation in area being treated however that may change as I progress further into my treatment.

I hope it all goes ok for you - keep us updated . . At least you’ve got a few weeks to prepare etc .

Xx
LJ
Member

Re: November 2018 Radiotherapy

Just checking in here to see how everyone is doing. I start on 26 November, so I shall be going once most of you have stopped I think and with 20 sessions I go up to 21 December. I shall also lurk on the December thread when it's up. 

 

Mavit - I'm also going to Oxford, for me because there's no unit in Swindon, is that the same for you?  I'm dreading the parking too. My first two weeks are morning appointments, the second two at lunchtime, so just when I've got used to how hard it is to find a space I'll have new times to wrestle with. 

 

LJ

Member

Re: November 2018 Radiotherapy

Evening ladies , I had my first Rads session this morning and pleased to say that everything went ok. I got to hospital some 33 miles away in plenty of time however hospital parking is a nightmare ! Ended up having to find on the road parking.

I was shown by receptionist how to use their online booking system which I will need to do on each visit and then head straight to the treatment waiting area where i will be called .

I was surprised how quickly they treated me , from having a brief chat with radiologist and then escorted into the radiology room . They spent a good 10 mins or so positioning me on the bed and taking digital images and then once that was completed started radiotherapy which last a few minutes.

I didn’t feel any burning or sensation whilst under .
Once completed, I slapped on Aveeno cream and got dressed and left.

I must admit I felt really tired after the treatment and then had to drive home.

When I got home, got into my PJs - had a nap . Will be off to bed soon as need to do it all over again tomorrow. My appointment tomoro is early afternoon so I can set off a bit later .. hopefully I’ll get the hang of it as it will become my daily routine,

Just hope that any side effects I experience will be towards the end of the treatment, so far all good.

Hope your all doing good xx
Member

Re: November 2018 Radiotherapy

Hi everyone, just checking in again, great to hear how you’re all doing. #5 tomorrow. Still feeling a bit chilly in the room, I was told I could bring a jumper to pop over the top of my legs which I did, but I chose my lovely thick fleece which was too big and prevented the camera from spying on my breathing block - so, thin fleece today, worked well, everyone happy.

 

I have found that the arm on the axillary clearance side is getting pretty numb towards the end of the session and needs a good rub and flex afterwards. Good news is that because my deep inspiration breath hold is so consistent, I only have to have X-rays during sessions once a week so it’s much quicker.

 

Most stressful thing so far is trying to get a parking space, I arrived an hour early just to be sure as I was driving myself today! Skin ok, using Aveeno twice daily, drinking minimum 2.5ltrs fluids. Day off on Wednesday, going to do something nice or treat myself to something I think! 

Kip Community Champion
Community Champion

Re: November 2018 Radiotherapy

Hello Ladies,

I am having my planning session tomorrow at which I am hoping to get the plan for my 3 weeks of sessions.  I am hoping to finish by Christmas but have been told it may run over... am hoping that I am not juggling cooking the turkey and a visit to hospital.. surely they don't run over Xmas?   I've been reading all your posts and getting tips, am kind of looking forward to getting started but also apprehensive too.  I will be stocking up on Aveeno too, I already use it but will need a shed load more I think.

P.S.   just for info... I had MX in June (no recon), 6 x chemo and then ANC clearance 3 weeks ago so this will be the last leg (hopefully)...

Kip

xx

Member

Re: November 2018 Radiotherapy

Hi all, I have had my first 3 sessions of radiotherapy now. Getting quite good at the breath holding and can do 20 seconds with no bother. So far no skin issues but its early days i know. Compared to chemo this is so far not as bad.... fingers crossed it continues. **currently smothering in aveeno**

 

Member

Re: November 2018 Radiotherapy

Hello ladies

So have had my first 2 sessions, on Thursday and Friday. The team are lovely, efficient and professional, makes it easier to bear. I sense the 80 mile round trip will fast become a bore however needs must. No side effects although I understand they are more common towards the end of treatment. Have been given an emollient called Zerobase by the radiotherapy team to moisturise my breast before bed and after showering in the morning. 21 treatments left including 8 boosters to the tumour bed. Otherwise I seem to be spending a lot of my time reading, Pinterest-ing and watching Netflix, getting outside when the notion takes me. Is anyone else not working at the moment?

Nicola xx

Member

Re: November 2018 Radiotherapy

Hello ladies

So have had my first 2 sessions, on Thursday and Friday. The team are lovely, efficient and professional, makes it easier to bear. I sense the 80 mile round trip will fast become a bore however needs must. No side effects although I understand they are more common towards the end of treatment. Have been given an emollient called Zerobase by the radiotherapy team to moisturise my breast before bed and after showering in the morning. 21 treatments left including 8 boosters to the tumour bed. Otherwise I seem to be spending a lot of my time reading, Pinterest-ing and watching Netflix, getting outside when the notion takes me. Is anyone else not working at the moment?

Nicola xx

Member

Re: November 2018 Radiotherapy

Hope you are all doing ok. I have had 3 sessions so I am counting down and 12 to go for me. Feel ok so far but got quite emotional on day 2. My appointments are all about 4pm or later so spend so much time in traffic jams for rush hour on way home. I won't ask them to change the appointments though, someone has to do the later times. They have already been very good and changed one appointment for me so that I can attend stepfather's funeral.

I am doing the breath holding technique which is quite daunting but managing ok so far. I have started coughing a lot today though, not sure if that is a side effect or whether I am catching hubby's chest infection.

I have been told to use Aveeno to moisturise but someone else suggested Bio Oil as well. Sending love and hugs to all of you 💕💕

JWD
Member

Re: November 2018 Radiotherapy

Hi fezzy didn't know you had to have extra 5 but I'm sure the time will go quick for you. Maybe you do need more fluids to compensate for your other problems you have to cope with. I think your a star coping with everything else too👏👏 you will soon be ringing that bell.. take care xxx
Member

Re: November 2018 Radiotherapy

Thanks for replying JWD it is possible that I should be drinking more water, I do have to drink water regularly throughout the day anyway because I have an ileostomy and need to stay hydrated but because of rads  I maybe should be drinking more to compensate, unfortunately I am not quite half way through as I have got 5 boosters as well, thank you for your support its much appreciated.   Fezzy x

JWD
Member

Re: November 2018 Radiotherapy

Hi fezzy are you drinking plenty of water as I found that helped me a lot.. I'm 2 weeks post rads and I'm still drinking plenty of water and moisturising the same as when I was having treatment. Your half way through now you will do this💪💪💕 x x
Member

Re: November 2018 Radiotherapy

Hi all hope everything is going well. I am day 8 today and I can honestly say I have never felt fatigue like it, even having a shower wears me out, my skin is fine at the moment, a bit of discomfort in my breast. Has any one else experienced this level of fatigue, I am going for a walk most days even though I feel like collapsing in a chair. best wishes to all Fezzy x

Member

Re: November 2018 Radiotherapy

Thanks for replying. its so scary knowing whether they have seen something new on the CT ( i had to sign a disclaimeer to say the ct wasnt going to be formally reported by the radiologist, but was just for the oncolgist to plan treatment) but oviously have a call to say the plan has changed makes me worried they saw something they arent officially mentioning as it hasnt been reported. I start on wenesday the 7th too, bring it on XXXXXX

 

Community Champion

Re: November 2018 Radiotherapy

Moonwing

 

I had 20 sessions of rads over 5 weeks and to be honest other than a bit of redening and a sensitive area around my nipple I was absolutely fine, not everyone has any or all of the side effects from rads and your team will be keeping a close eye on you, if you are concerned about anything mention it to them at your appointment so that they are aware and can give you reassurance.

 

Well you are now a third of the way through so it will not be long before you are waving them goodbye for the last time.

 

Helena xxx

Member

Re: November 2018 Radiotherapy

Hi everyone

 

My first five days of radiotherapy are over and two more weeks to go - ending on 16th November.  So far so good, but I am dreading getting sore - which seems to be common.  It's been ok so far - I've got a friend driving me, so I'm not getting too tired.  And my appointments are all at the same time, and I usually get seen on time.Can't wait for all to be over though, and move on with my life!!!!

Member

Re: November 2018 Radiotherapy

I’m so sorry to hear about your husband JWD, life’s just rubbish sometimes isn’t it. I hope things get better for you both soon. We don’t currently have a Maggies Centre, but I think one is in the planning stage at my Radiotherapy Centre and they have a Macmillan information centre. I have two friends who have been through breast cancer treatment, and one is coming with me next week to one session. It’s great to have their support, but equally I’m concerned that inadvertently supporting me might be upsetting for them, and bring back bad memories for them. Thanks everyone for your support, it really does help.
Member

Re: November 2018 Radiotherapy

Talking of councilling, I start my HOPE course tomorrow. This was organised for me through the MacMillan centre at my hospital and my BCN.
Sp many people say how well I look and how well I've done to come through everything these past 6 months, but its the stuff inside my head that now needs fixing and thats the bit no-one sees.
If the help and support is there and its offered, take it xxxxxx
JWD
Member

Re: November 2018 Radiotherapy

Hi Kim. I totally understand how hard all of this is for you. My husband just been diagnosed with secondary oesophageal cancer. I finished rads last week he started palliative chemo the day after and his not coping very well with side effects. I too get fed of people saying your so strong and don't know how you cope. They all mean well and care but we don't have a choice in the card life deals us..we have to cope and it's not easy. It must me awful for you with the added stress of losing your mom. Life is so cruel. I hope you get through rads and hope your hubby gets well too. I think counselling seems a good idea and I too maybe looking into it in the near future.. sending you strength love and hugs xxx Jo ❤
Community Champion

Re: November 2018 Radiotherapy

Kim

 

It will do darling, but I can assure you, being now 2 years post and 22 months post active treatment completed, things do get better and you do get back to some sort of "normal" albeit it a different one as a result of your experience.

 

Do you have a Maggies Centre or McMillan Centre near as they might be able to help with the counselling sessions, also speak to your breast care nurse, I know when I was diagnosed mine said that they could arrange some counselling for me when and if I needed it.  I actually had mine through work, my boss recognised that I was struggling and she sorted it for me.

 

I can totally relate to where you are with regard to your hubby, my partner has MS, is housebound and I am his carer so he was not able to accompany me on any of my appointments etc., I have a wonderful network of friends who stepped in to support me, however when you are caring for someone it put that bit more pressure on you, so please make sure you make time for you as well

 

Helena xxx

Member

Re: November 2018 Radiotherapy

Thank you for your kind words, my husband can’t come with me as he’s needs cardiac rehab twice a week, as he’s just had a stent put in a few weeks after my cancer diagnosis, following chest pain. That’s in our small local hospital, even more family dramas! I think it’s just catching up with me. I think the idea of counselling later on might be sensible, if it’s still offered on the NHS. I think everything is just catching up with me at the moment.
Community Champion

Re: November 2018 Radiotherapy

Kim

 

I just wanted to send you a big virtual hug because you really need it.

 

It is hard enough contending with the diagnosis and all that imposes on us but you are also trying to come to terms with your mum passing, for which I want to send my condolences to you.

 

I remember when I was having my rads there was a day when I had just had enough of it all, my life being dictated for 5 weeks by this one apt, I told them I didnt want to do it any more, burst into tears, my lovely rads nurse hugged me, gave me a box of tissues and sat talking to me until I was ready to carry on.

 

As much as people are trying to be positive and thinking that they are boosting you, the comments do not help yes you are coping, yes you are doing well, because you have to, but inside you are still trying to make sense of what has happened to you and what you are going through, that will take time.  perhaps in the coming weeks you might consider getting some counselling which might help you to process everything and allow you to grieve for your mum and what has happened to you.  I know I found it very restorative as I was in a safe comforrtable environment with someone who did not know me and I could be honest about the way I was feeling, she was able to make sense of it all for me.

 

You are right about this forum and the ladies on here who can totally relate to what you are going through and feeling.  Come on here whenever you want there will always be someone to help and support you.  You can rant, rave, cry whatever here we are here for you

 

Helena xxx

 

 

 

 

Member

Re: November 2018 Radiotherapy

I’ve had 7 of 20 sessions so far, the last 5 are a breast boost, due to a narrow margin. I’m starting to get tired, and my skin is itchy, so using cream twice a day, and keeping Aloe Vera gel in the fridge. It still feels like a mountain to climb to get to the end. It’s not helped by having a 56 mile round trip every day either, and twice a week I’m having to drive it on my own, as my husband can’t come on those days. My appointment times vary every day, so finding that hard too, some days they’re early mornings, and others late afternoon, so it feels like Radiotherapy totally dominates my life. The staff are all friendly, but lying on a table whilst they move you a little in the right direction, draw pen marks on your breast  whilst they call out measurements, and holding your breath for 20 seconds, just seems de-humanising somehow. I’m struggling with the concept of being a cancer patient anyway, but there’s no denying it when you’re having Radiotherapy. Lying there on your own, on a table, with the disembodied voice of a radiotherapist issuing instructions just seems to reinforce what a lonely experience it all is. Also my Mum died 8 weeks before I was diagnosed, and I haven’t had time to process that yet, and it’s her birthday next week, the first one since I lost her, but I’ll have to go to Radiotherapy, rather than be able to grieve for her as I would like.  I’m fed up of people saying “it’s good they caught it early”, or “you’re coping  so well”! I don’t have a choice about coping, and do what most of us do, put on a brave face, to spare others, when really my heart is breaking. Also Letrozole doesn’t help, I’m having 12-20 hot flushes every day, it’s just a constant reminder of how life has changed. I’m grateful for free treatment, and that modern treatment is very effective. Sorry for the moan, but I don’t think anyone else but fellow patients can fully understand how it feels to cope with the treatment, and the stress it brings.

Member

Re: November 2018 Radiotherapy

Hi Everyone - Had hoped to start my radiotherapy 10 days ago in october  but had my first treatment session this  Thursday 1st November, the 56 days  wait time  made me anxious aka  56 days after 2nd Surgery.

 

Was told 15 sessions , and as always my expectations are never met as I assumed it would be 5, 5 and 5

I accepted as you have no choice  that appointments could be any time of day and and that I would know the times of the following week at the end of the 1st week

So had had two so far but wasnt happy to learn that my week #2 will only be  x 4 session as the hospital cant fit me in - on Friday which means I will have an interuption not of the standard two days over the weekend but 3 - Monday night #3 of 15 is at 7pm which isnt ideal but at least they are fitting me in, the man who gave me my appointment booklet assured me there was no difference to reocurrence rate if treatments are not consecutive and further informed me there had been recent trails yet everything i have read online states to the contrary so Monday morning I will email oncology and ask if they can find another hospital for Friday.

My journey from February to now hasnt been seamless made to feel am on a conveyor belt, after Radiotherapy and who knows how many weeks I assumed it would be 3 but now it will defo be 4 I then start on my endochrine therapy - taxmofen OR Letrozol was always referenced but its #exemestan dreading taking as it will as we know destroy all my oestrogen yet surely the body needs some oestrogen

I so grateful to Breast Cancer Care and will post on here my radiotherapy 13 more sessions to go,

Maybe I am doing my self a disservice pushing for 5 consecutive treatments as having 3 days off could be good but on the other hand it published studies show the reocurrence rate is higher for those who are not compliant ie miss a session even if they make up the session afterwards.

 

Member

Re: November 2018 Radiotherapy

Hi emac, I had to go back for a second CT scan doing the breath holding too. It is a bit daunting knowing I will have to do that for each session. My treatment starts on Wednesday 7th - just want to get going with it now and get it over with. Hope all goes well for you, and everyone else on here 

Member

Re: November 2018 Radiotherapy

Joining this thread as im due to start radiotherapy next week as the last part of my treatment (having had chemo and then surgery). Feel i have had the least preparation about what to expect. Went for my planning CT after seeing the consultant and changing from 3 to 4 weeks of radiotherapy as initially told, and then had a phone call to say they wanted to extend the area being treated to covered (which was already my breast, axilla and neck) to include both chest bone nodes as well. Had to go back to have another CT with breath holding to replan things so i feel a bit stressed. No one has been able to say whether they saw something on the planning CT that is a reason to change the plan or whether the consultant has just decided to change his mind and be over cautious....... Anyway, im glad im a swimmer as i can imagine breath holding for 30 seconds might be hard for some people. 

 

JWD
Member

Re: November 2018 Radiotherapy

Hi fezzy. I've just finished rads and took Anastrazole. I wasn't told to stop have been on anastrazole since June. So far I'm managing with side effects I'm also on calcium and vit d.. side effects of rads are also so far so good.. hope you get on ok with the rest of your treatment. Jo xxx
Member

Re: November 2018 Radiotherapy

Hi ladies I have been on Anastrozole for 9 weeks and just started rads, I was told it is ok to stay on them for radiotherapy but not if  you have chemo, I have been lucky that any se's I have had up to now have been manageable , but I wouldn't want to be coping with bad se's and rads at the same time, best wishes to all starting rads this month, all I can say is its not as bad as I imagined and the staff are lovely and always willing to answer questions, sorry your experience has not been so good Charlie.  Fezzy x

Member

Re: November 2018 Radiotherapy

 
Member

Re: November 2018 Radiotherapy

Mavit, I started to take my Tamoxifen 3 weeks before rads started. My onc never even mentioned waiting till after rads. I thought that if I have to be on them for 10 years, I best crack on!!!
Member

Re: November 2018 Radiotherapy

Fezzy, I was also told about the cream acting as a barrier. My sessions were at 6 every evening so I just made sure I didn't put any cream on after 2. And even then I used a wet wipe just before going in, just to freshen up. Putting the cream on earlier gave it time to sink in. I'm still using Aveeno twice a day although I used Aloe Vera cream and gel during treatment.
My boyfriend drove me to all my appointments so even though it was an hour each way, I could just sit back and let him carry on!!!
There were times when I stressed about being late and missing my slot, as we had to hit the M25 at 5:30pm (!!!!!!) but I just called the unit if I could see us being late and they just swap me with someone who was already there. That said, my unit had 12 machines, not everyone in use at that time of the evening, so there was a bit of leeway and there were times I got bumped up the waiting list just to get us all through and give the staff an early night!!!!!
Community Champion

Re: November 2018 Radiotherapy

mavit

 

My Oncologist said I could start my tamoxifen before or after my rads he said it would not make any difference, I started them a month before I started rads. 

 

Honestly it is the fear of the unknown that makes us nervous and as always with the real thing it is never as bad as we imagine it to be.  The first apt will be longer than the rest of them as they have to go through all the measurements and information from your oncologist, plus if it is like mine I had a talk with a rads nurse first who explained what would happen etc., so in all it was about 30 minutes.  After that the actuall sessions themselves were only 10/15 mins from undressing and getting dressed again.

 

Hope this helps

 

Helena xxx

Member

Re: November 2018 Radiotherapy

Mavit1,
There was an attempted aspiration of it a week prior to surgery, but it was too thick.
Measured 7x5cm on ultrasound.
It became infected 3 days later on a Sunday typically so got antibiotics from the GP on the Monday.
My breast care nurse got me an appointment for 2 days later but it opened up the scar before i got there.
It’s my breast only and I think I’ve got another 2 weeks of dressing changes at least before it closes up.
Member

Re: November 2018 Radiotherapy

Good morning everyone

I still have to wait another week before starting my Rads. Seems the waiting is making me very nervous.

Did your radiologist tell you that you could continue taking hormonal tablets such as tamoxifen etc during Rads ? Presumably this will not affect it ?

Sending you all hugs x
Member

Re: November 2018 Radiotherapy

Hi Katie poo

Haematonas are very unpleasant. was this underarm or in the breast area ?

I had WLE and SNB and developed one under arm where they removed my sentinel nodes and the breast care nurses tried to drain it but then realized they couldn’t as blood . Saw a doctor and he told me to leave it as it would go away in its own and lucky enough it did just that so didn’t need any surgical intervention . It did take a good 8 weeks for it to heal . Contracted mine 10 days after surgery . It’s so painful and uncomfortable. Hope it heals quickly for you.
I understand why need to postpone the Rads as you need to be able to raise your arm above your head whilst undergoing Rads and can imagine it’s very sore for you now .

It will get better - sending you hugs x
Member

Re: November 2018 Radiotherapy

Hi Fazzy,

I see you have started and wish you all the best .
The radiologist told he that I could apply a water based cream beforehand after showering providing it has been applied on lightly .

She did also say not too worry too much over it as they would ensure that the area is cleaned off ?

Hope rest of the sessions go ok for you x


Member

Re: November 2018 Radiotherapy

I was supposed to start rads on 26th October, but it’s been delayed after I developed an infected haematoma 3 weeks post WLE. Surgically removed on 19th October. Wound still oozing and need dressing changes every other day.
Has anyone else had this type of situation?
I’m lucky in a way that is was an intermediate grade non-invasive DCIS, so I’ve been assured the delay won’t cause any harm.
Member

Re: November 2018 Radiotherapy

hi ladies hope you are all getting on ok. It was day two of rads today, has anyone else been told its best not to use cream just before treatment as it can act like a second skin and rads might not be as effective. Early days yet but not feeling any effects yet just maybe a bit more tired, only 18 more to go ....   Fezzy x

Community Champion

Re: November 2018 Radiotherapy

Jules

 

Oh I remember that moment very well.  I had gone to my apt, they were running late and I was in a bad mood, the nurse asked me how I was to which I burst out crying and said I did not want to do it any more, that I was fed up with this apt controlling my life every day, she just put her arms around me gave me a hug and a box of tissues, after a few minutes we got on with it.

 

I can honestly say the worst part of it was the going back and forward to the hospital every day, which did not help if they were running behind, but as you say you are halfway there now so it will not be long before you are finished.

 

Sending you hugs

 

helena xxx