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Oncology appointment soon

4 REPLIES 4
Lilacmoon14
Member

Re: Oncology appointment soon

Hi Julie, 

Looks like Im about a year ahead of you. Had my surgery for lumpectomy and lymph nodes on the 3rd May last year and started rads on the 13th June. 

As well as my onc appointment at my local hospital were the procedure was done, I also went to Mt Vernon in Watford for a 2 hour induction session where heaps was explained to a group of 5 of us. I had to travel there every day, just over an hour each way. In the end it all went really well, not too much skin damage, possibly due to the fact I used heaps of AV gel. 

In truth I found the whole process fascinating and slightly unreal! 

A year down the line I've had my first mammo and there was nothing of concern thank gawd. So from here on in its a case of getting on with living and moving on. 

Im the biggest stresshead/drama llama I know, but I got there xxxxx

Jewels994
Member

Re: Oncology appointment soon

Thank you so much Jaybro and Jac67. At least I have an idea of what to expect now.

Julie xx

Jaybro
Member

Re: Oncology appointment soon

Hi Julie

 

I just wrote a long reply and the iPad froze! Grr. I’ve had my first three treatments out of 15 and now have the weekend off. So far it’s been a doddle. The worst thing has been the uncomfortable ‘bed’ as I’m very skinny right now but the treatment is quick and painfree. More time is spent getting undressed and dressed again. It’s also a pain having to go to the hospital every day, with appointments all over the place - very hard to organise a life! The equipment is pasted with dinky dolphin and octopus stickers and it was a salutary reminder to me that even children undergo this treatment!

 

My oncology appointment was a talk through the treatment, with diagrams a 5 yo could have produced to show how they avoid damage to organs close by, and signing yet another form. There was also time for questions (hence the diagrams) so maybe think about it and go prepared. This was followed by a simple CT scan (no need for fluids and no injections) to work out the perfect positioning for radiotherapy and three of the tiniest tattoos (I can actually only find one, under my sternum). The talk about possible side effects and how to care for the area being treated was done by the radiographer just before the first treatment.

 

I’m not naive - anything that could have gone wrong in chemo went wrong, including neutropoenic sepsis and neuropathy - and I’m ready for soreness and exhaustion but I have friends who were barely affected and I hope I’m lucky like them. If I’m not, like with the chemo, surely it’s worth it to have that additional protection against any recurrence? Certainly my chemo oncologist saw radiotherapy as the most effective of all the treatments. So good luck. Your prognosis looks very good so a little discomfort and inconvenience (and a lot of napping) is a small price to pay for the reassurance the treatment will give you. Whether I’ll say the same in two weeks time is another matter 😉 

Jac67
Member

Re: Oncology appointment soon

Hi Julie  Good luck I had my appointment on Tuesday got letter yesterday. Planning appointment this Wednesday and starts on 19th June all happening quickly now . Last few months has been a whirlwind . Keep me updated how you’re getting on. 💕xx

Jewels994
Member

Oncology appointment soon

Hi all, I had lumpectomy and SNB 14th May. Clear margins and lymph nodes clear. I’ve got my oncology appointment for rads on 13th June

Julie xx