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Radiotherapy Feb 2020

119 REPLIES 119
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Re: Radiotherapy Feb 2020

Week two done for me πŸ’ͺ.

 

Hope you ladies are all doing well. Wishing you all a fab weekend XX 

πŸ’

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Member

Re: Radiotherapy Feb 2020

Hi Tookie

You must be so pleased your treatment has finished πŸ˜€. Hope the tiredness starts to fade. Now is the time to have fun and enjoy life

Keep Smiling xx

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Re: Radiotherapy Feb 2020

Hope everyone's week has gone well.

Finished my treatment on Tuesday. I didn't get to ring the bell (it was just a small china ornament, not one attached to wall like on TV) but my daughter took me for coffee and cake and hubby bought a lovely bouquet. πŸ’πŸ”” 

Been more tired towards end of week. Skin is quite pink and been very itchy. Clothes have been irritating a bit, even been going bra-less when I'm at home with baggy hoodie. Still managing to exercise though!

Take care all, get plenty of rest over weekend πŸ˜€xx  

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Re: Radiotherapy Feb 2020

Chelle, sorry another senior moment, I’m now thinking it’s Mel on her 2nd week

if so hopefully all is going well for both of you.

 

Had a word about the headache they have suggested drinking more water and not worrying to much. Hopefully your journey will be ok and please don’t worry I’m sure they will still see you stress is not good.

 

Enjoy and have a restful evening 

 

hugs from me to all the lovely ladies out there πŸ‘±πŸ» xx

 

 

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Re: Radiotherapy Feb 2020

Hi Tili

I have only had 3 so far also, but so far so good. Drinking plenty of water, putting the cream on the gave me 3 times a day and going on the exercise bike πŸ˜€

Hope your headaches stop soon, the treatment doesn't bother me, I get stressed out worrying if I will get stuck on the motorway and be late for the appointment. ( takes 45 mins to get there ) xx

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Re: Radiotherapy Feb 2020

Chelle, bless you nothing more lovely than having feeling for others....so kind. 

 

How you doing on your 2nd week. 3rd  treatment for me today doing well, except headaches ??maybe tension.

 

big hugs Tili xxxxπŸ€—

 

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Re: Radiotherapy Feb 2020

Just filled up watching an older gentleman ring the bell 3 times......stupid hormones!......he looked so happy though πŸ˜€

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Re: Radiotherapy Feb 2020

All the lovely ladies having Radiotherapy:- 

 

1st session for me today went very well indeed, I was so appreciative, however no worries

very smooth.

 

Chelle so pleased all went well for you today.

 

hugs Tili xxx

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Re: Radiotherapy Feb 2020

Thanks for the info about Flamigel Tookie 😁

 

 

Glad to hear you got through day one Chelle,  well done. The breathing isn't that difficult either is it πŸ˜‰

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Re: Radiotherapy Feb 2020

Well 1st session is over and was fine πŸ˜€ It's strange that the machine doesn't make any noise most of the time so you wonder if it's working πŸ˜‚πŸ˜‚.

 

Tili  hope yours went well x

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Re: Radiotherapy Feb 2020

All the best to anyone starting/having treatment this week.

Take care xx

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Re: Radiotherapy Feb 2020

Good luck today Chelle, what we imagine is way worse than the reality and it will fly by!

Rest, moisturise and drink lots of water. Enjoy the few minutes of peace while you lie there too! 

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Re: Radiotherapy Feb 2020

Hi Shablah

 

I'm not sure if you can buy Flamigel over the counter as I was given a small tube by radiographer and then a letter for my GP so I could get it on prescription.

 

Hope all goes well this week xx

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Re: Radiotherapy Feb 2020

Chelle, big hugs for Monday, we will get through this together will be thinking of you. Keep me posted.

 

big hugs brave one xxx

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Re: Radiotherapy Feb 2020

Hi Tili

We'll get through this together πŸ˜€

 

Mel...good luck going back to work on Monday, take it easy and let us know how you get on 

Keep smiling ladies x

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Re: Radiotherapy Feb 2020

Thank you Mel, for your good wishes a bit nervous about Monday....however one day at a time.

 

Wishing you all the best, please take it easy going back to work and make yourself number 1 remember you have been through a lot.

 

big hugs Tili πŸ‘ xx

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Re: Radiotherapy Feb 2020

Hi Tookie

 

You've done well with only 2 left. πŸ’ͺ

 

When I had my shower this morning I've peeled like crazy. I'm using Aloe Vera gel 99.9 and Aveeno. Is that flamigel available over the counter or is it prescription only ? 

 

 

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Re: Radiotherapy Feb 2020

Hi Shablah

 

Glad your first week went well and you're still managing to exercise.  I only have two sessions left to go - the time has flown by.  I am still exercising which the radiotherapy team said was good for me, mentally as well as physically.  I do get tired, so often have a doze in an afternoon.  My skin isn't too bad, gets a bit itchy and a bit pink but the Flamigel which they gave me seems to be helping.

 

Hope everything goes well next week for you.  Take care and get plenty of rest. xx

 

 

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Re: Radiotherapy Feb 2020

 

Mel 

 

Thanks for posting your update Mel. Glad you are doing well. Take it easy going back to work. 

 

You are right it's time to put my health first. You know what's it like though I think we as girls put everyone else before us, we do this naturally without thinking.  I also think I will no longer shut up and put up so to speak. I will be taking better care of myself in future.

 

The best of luck for Monday Chelle and Tili. Let us know how it goes xxx

 

 

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Re: Radiotherapy Feb 2020

Well done, relax and do whatever feels right (drink lots of water!!) 

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Re: Radiotherapy Feb 2020

WELL DONE to you hugs Tili xx

Member

Re: Radiotherapy Feb 2020

Well Done Shablah πŸ˜€

You are doing so well given how apprehensive you were, here's to you getting through the next two weeks with no problems xx

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Re: Radiotherapy Feb 2020

Hi Ladies

 

Week one completed! I went to yoga this morning and have walked nearly 6 miles today. I'm feeling ok, a bit tired but not too bad. Boob is a bit warm and very slightly tender but nothing much except the odd stabbing pain. All in all not too bad. 

 

Wishing you all a very a good, restful  weekend xxx  

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Re: Radiotherapy Feb 2020

I have to say I was tired in the first week but I was jet lagged (wedding in US, flew back the day before rads started) and my OH had to go back to work overseas 2 days in so emotionally drained too. I think the drained tiredness happened about a week in but I really listened to my body and rested when I needed to. Two weeks after and Im not so tired now. Still sore inside, hard and lumpy but one of my friends who had same said to massage each day to release any 'stuck' tissue. I'm still wearing vest tops and back to work on reduced hours Monday. If I'm too tired or sore, I'll get signed off again (by mid afternoon I get waves of nagging aches like I really want to take the top off!!).

After everything (2nd lumpectomy in 4 years, first rads) I am determined to listen to all of the good advice and not put a brave face on if I'm feeling stressed. Key for me is that everyone of us is different, whatever symptoms and side effects any of us have, they are valid. It doesnt matter if A didnt feel tired until day 15 and I was falling asleep driving back on day 2, we are all reacting normally for us and should look after ourselves xx

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Re: Radiotherapy Feb 2020

Well done Mel! How is your tiredness and/or fatigue?  If you have had any at what stage did it kick in? X

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Re: Radiotherapy Feb 2020

Great news! The aloe vera gel worked its magic for me too. My skin is slightly darker two weeks after finishing but apart form my nipple being tender my skin is fine. Keep positive!

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Re: Radiotherapy Feb 2020

Thanks Chelle. I'm expecting it to get worse with time but I'm trying to stay as active as possible for as long as I can. Not long til you start, once you get the first one out of the way it's not so bad XX 

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Re: Radiotherapy Feb 2020

Thank you Tili xx

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Re: Radiotherapy Feb 2020

You're doing so well Shablah πŸ˜€ hope it stays this way for you all the way through x

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Re: Radiotherapy Feb 2020

Hi Sheblah,

 

WELL DONE. you are doing so well, walking, drinking lots of water and Yoga. By posting this you don’t know how much you are helping me and the other ladies.

Thank you big hugs Tili πŸ€— xx

 

 

 

 

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Re: Radiotherapy Feb 2020

Hi Chelle

 

Doing well so far, thanks. Just got in from today's appointment  Lots of late appointments plus the appointments run up to an hour late. I have been smothering my boob with Aloe Vera gel in the changing room straight after and drinking at least 2 litres of water a day, only day 3 so I'm feeling ok, I went to yoga this morning and did a long river walk in central London along by St Paul's Cathedral, The Globe Theatre and Tower Bridge so I'm doing well, I think so anyway, only 12 more to go... !!   

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Re: Radiotherapy Feb 2020

Hi Shablah

How is your rads going? Hope you are ok x

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Re: Radiotherapy Feb 2020

Thank you Tili xx

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Re: Radiotherapy Feb 2020

Dear Shablah,

 

have been thinking of you, a big hug and very well done. Tili πŸ‘

 

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Re: Radiotherapy Feb 2020

Hi Jill

 

Yes I know what you mean. I got quite emotional at my planning appointment too. Today was a lot less people around which made me feel better.  I've taken on board everyone's comments and advice about dehydration and moisturising so I can try to stay as well as possible.  X 

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Re: Radiotherapy Feb 2020

I found the planning appointment hard - I cried through most of it - it makes you feel very vulnerable .I found side effects hit mainly in second week - suddenly felt extremely tired - dehydration is the main cause of this so drunk lots of water ,I also had a very hot pink boob quite quickly but everyone is different in terms of how much they are affected .Each day means one crossed off the list .x

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Re: Radiotherapy Feb 2020

Thanks Lucy xxx

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Re: Radiotherapy Feb 2020

Thanks Jill. The planning appointment was more of an ordeal, if ordeal is the right word. Only 14 more to go πŸ€ͺ!  Now just got to deal with the side effects if and when they appear too 

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Re: Radiotherapy Feb 2020

Well done Shablah, that is great getting the first one out of the way. Xx

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Community Champion

Re: Radiotherapy Feb 2020

Well done Shablah ,the first one is always the hardest .

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Re: Radiotherapy Feb 2020

 

 

My first radiotherapy session today went fine. I was fine with the breathing and got called a model patient, I'm sure they were just being kind! But still kind words are nice to hear when you are nervous... Xx

 

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Re: Radiotherapy Feb 2020

Thanks Chelle. My positive thinking cap is on already  πŸ’ͺ πŸ˜‰ xx 

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Re: Radiotherapy Feb 2020

Hi Shablah

Good Luck fir tomorrow....you can do this πŸ˜€

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Re: Radiotherapy Feb 2020

Thank you Tili. I will keep you posted xx

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Re: Radiotherapy Feb 2020

Hi Shablah,

 

Having another senior moment, sent a message to Tookie,  it should of been you.

 

GOOD LUCK FOR TOMORROW WITH RADIOTHERAPY....keep me posted I will be starting on the 17th.

 

good luck brave girl. Big hugs Tili xx

 

 

 

 

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Re: Radiotherapy Feb 2020

Sounds as if you have a really good Rads team supporting you Tookie, I actually started to burn on day three and had to wait until day TEN to get Flamigel - too little too late!! once you've completed RT if there's any more burning get FLAMAZINE - contains silver for healing, sending love xxx

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Re: Radiotherapy Feb 2020

Dear Tookie

 

LOTS OF LUCK for tomorrow, will be thinking of you....you are week ahead of me so keep me posted.

 

big hugs brave lady. Tili xxx

 

 

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Re: Radiotherapy Feb 2020

Hi Tookie

 

Thanks for the update. I'm starting rads tomorrow and I'm feeling very apprehensive about it so it's good to know that your doing OK. Hope your sore bits feel better soon. 

 

I've been taking Tamoxifen for the last two weeks, so far I'm a bit achy but doing OK on it so far  xx

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Re: Radiotherapy Feb 2020

Hi all

 

I'm half way through treatment now. Have felt tired the last few days so had an afternoon nap which helped. Skin has felt a bit prickly so hospital gave me a tube of Flamigel and a note for my GP so I can get it on prescription. Started taking Tamoxifen this weekend so hoping I don't get side effects from that.

Good luck to all starting radiotherapy this week x πŸ˜€

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Re: Radiotherapy Feb 2020

Dear Susie

 

Many thanks, for your lovely, caring reply it’s so nice to receive this with the knowledge of someone who has been through the treatment. 

Take good care, keep well bigs hugs Tili xxx