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September 2018 Radiotherapy

Member

Re: September 2018 Radiotherapy

Thank you Bibi for the link, I will have a look sometime soon. Smiley Happy

 

GreenDamsel, I hope you're enjoying your hill walking, facing the elements can be exhilarating. 

 

I have spent most of the day sorting through my hospital appointment paperwork, I have 3 full folders! No one can ever warn you about the number of hospital appointments that have to be attended. 

 

My skin redness is definitely peaking, 10 days on, red and angry although being soothed by the diprobase. 

 

Tonight, chocolate is definitely on the menu. I 💚 chocolate. 

 

Member

Re: September 2018 Radiotherapy

https://exercise-anywhere.com/
Here’s a link for you Anxious
Member

Re: September 2018 Radiotherapy

Thanks for your thought Anxious and Green Damsel

Walking in the hills sounds bliss - my favourite activity - although the way I puff up a slow incline it’s hard to imagine ever getting to the top of a big mountain again - but I will ⛰⛰⛰

I find poles really helpful going up and down - don’t tend to use them on the flat but did do a day’s taster session on Nordic Walking a couple of years ago - look for one of them Anxious they will teach you how to use - we did it in autumn on a walking festival week offering free sessions. 

Today the weather is so bad I am going to cook for the freezer 💨💨☔️☔️

Member

Re: September 2018 Radiotherapy

 

 

Bibi, sorry to hear you’ve been unwell, hang on in there, only one to go and then it’s all over.  

 

I’m away for a long weekend in the hills just now, done a bit of walking but kept to routes where no poles required as I was told I’m not allowed to use them until 12 weeks post surgery so still have a month to go. Although there have been so many contradictory statements about what I should/shouldn’t do I have no idea if that’s right or not.

It’s been lovely even in the howling wind and torrential rain of storm Calum,  fresh air and a bit of exercise to get the blood going has been good for me.  Phone reception is patchy which is also a bit of a blessing as I really feel like I’m away from everything, even if it is only 90 mins from home. 

 

4 days post last rads and skin is looking normal but I’m continuing to moisturise etc.

Member

Re: September 2018 Radiotherapy

Bibi - that is good news. You have the weekend and then one more to go........Smiley Happy

 

Yesterday I bought some walking poles in the hope I will get strong enough to do some Autumn walks. I am hoping the walking poles will help me exercise my arms and in particular my side where I had surgery.  I have no idea how to use them so I will be researching this at some point this weekend.

 

I have my bedroom window open and the birds are just starting to chirp away. Back in July this year I remember my 3 night stay in hospital after surgery, every morning, around 4am we, us patients, could only hear the squark of seagulls ( I do not live near the coast). There were no little birds chirping away. Now don't get me wrong I do like seagulls but somehow I view them differently when they live inland. 🔆

Member

Re: September 2018 Radiotherapy

Thanks Anxious - I’m feeling more normal now - just had a v quiet day and eaten easy comfort food - tomato soup and rice pudding.

Only 1 more to go - Yey !

19/20

Have a good weekend everyone x

Member

Re: September 2018 Radiotherapy

Hi Bibi,

 

I am sorry to hear that you have not been well. How are you now? Hugs.

Member

Re: September 2018 Radiotherapy

Thanks Anxious 🤞

Im feeling pretty rubbish today - yesterday it was my hubby’s birthday and we went out for meal and theatre which was lovely but at end of night I was really sick - through all treatments I have never once thrown up but last night was terrible - don’t know what caused it but feeling the effects still - got an afternoon appointment so having a quiet morning in bed.😒

Member

Re: September 2018 Radiotherapy

Hello,

 

yes the the plan is for a phased return as per guidance from plastic surgeon and oncologist, I see them both over the next 2 weeks.   But I’m all too aware of how keeping to only doing set hours can creep into longer days and it’s very hard for everyone else to work around it.  I am also the type of person, certainly before this, who would get very bored and frustrated if I didn’t have a lot to keep me occupied so managing only enough work to fill a few hours/days may be more demotivating than being back full time and being a bit tired at the end of the day. 

 

Will see what plan details my manager and I can come up with, he’s been very good and one of the voices saying to take the time now to fully recover.

Member

Re: September 2018 Radiotherapy

Bibi - it is Friday, wishing you no treatment disruptions. 🌈I

Member

Re: September 2018 Radiotherapy

Sort of in that I have a lot of leave to take so will hopefully work 4 day weeks. Difficult as my work involves a lot of travel 🤗😘
Member

Re: September 2018 Radiotherapy

Sorry, I meant GreenDamsel. Smiley Happy

Member

Re: September 2018 Radiotherapy

Bibi - another one ticked off. Smiley Happy

 

DamselGreen/Wombat Woo -  can I ask, will you be doing a phased return to work?

 

 

Member

Re: September 2018 Radiotherapy

Take your time you guys and don’t go back until you are 110% - once you’re back you’re back is true in so many places and I don’t think many people really understand how debilitating fatigue is as opposed to just feeling tired. 

Its 40 weeks since diagnosis for me and will be 35 from start of chemo , through surgery and radiotherapy, with still 12 more Herceptin injections to go. It feels like a never ending journey, I’m retired so I don’t have to face the prospect of going back to work but I am hoping I regain energy not too long after finishing rads so I can start to enjoy my retirement again 🙂

Good luck to all you young people in your return to work.

Only 2 more to go !

Bibi

18/20

Member

Re: September 2018 Radiotherapy

Yes Green Damsel if we don’t get it right now we will never get there xxx
Member

Re: September 2018 Radiotherapy

Yep Anxiuos-Soul it seems wrong to be off when no longer going through treatment etc but as many people keep telling me we have been through a lot and need to recover and it’s a long time since we’ve been our pre diagnosis selves and have perhaps forgotten that it’s not ‘normal’ to always have aches and pains, fatigue and tiredness etc and need to get back to that ‘self’ before taking on the world.  

 

That all sounds very touchy feely but my husband has been saying this for a while now that this is the only time you get to recover otherwise you’ll always be playing catch up.  As someone who had not been sick for years, worked 10 hrs days and was very career driven this is a strange position to be in but I am going to be completely selfish about when I return. 

Member

Re: September 2018 Radiotherapy

I get you GreenDamsel, especially your comment if you're back you're back. Also I don't want to set myself up to fail as I think if I return to work and then I go off again within 8 weeks I will not be entitled to any sick pay. For me, lots to consider. Smiley Happy

Member

Re: September 2018 Radiotherapy

Hello,

 

I worked through chemo which was feb-July and stopped working a couple of weeks prior to surgery to try and recover a bit as I had a lot of joint pain so have been off since August.  I’m off until end October at the moment but am considering not returning until new year as I have lots of leave to use and whilst step up will be an option my work environment is the sort of place that if you are back you are back, no half measures so I want to get stamina and energy levels up before returning full time, but nothing set in stone yet. 

Member

Re: September 2018 Radiotherapy

Morning ! I have been away from work since the day I received my diagnosis. I intend to go back at the beginning of November. So I will have been off around 15 weeks .... 🤗
Member

Re: September 2018 Radiotherapy

Bibi - another session to tick off. And your special day wiith your husband. Smiley Happy

 

I think I am going to give The Marvellous Mrs Maisel a go.

 

I am feeling a little unsettled as this morning I have an appointment with the GP to discuss my fit note (fitness for work) which has to be reviewed. Anyone else off work/working? 

Member

Re: September 2018 Radiotherapy

Hi Bibi, 

 

Another one completed - you're getting there. Smiley Happy

 

Jeepers! I just started watching Department Q, horrible, so I am glad you have given me a couple of suggestions to check out. Smiley Happy I enjoyed the Australian scenery in Mystery Road and I enjoyed the soundtrack.

Member

Re: September 2018 Radiotherapy

Afternoon all - machine working today - and only 30 mins behind schedule 😏 so only 3 left !

I have also been using bio oil on scar - well I was before rads - decided to just stick to Aveeno ( after dropping the Aloe Vera) A’s didn’t think I would be massaging during rads if breast was tender. Actually my skin is less red than it has been at the moment- we will see how that goes 😳

Anxious on Prime - something quite light and funny The Marvellous Mrs Maisel is v good

If you like quite dark detective series Cardinal ( made me decide I couldn’t live in Canada - too big and empty and scary lol ) 2 series - v good if a little gory at times.

watched Mystery Road too - enjoyed it, haven’t watched Killing Eve yet. Watching The Cry - agree that bloke is a bit dodgy .

Keep well 

Bibi 

17/20

Member

Re: September 2018 Radiotherapy

Hi there GreenDamsel,

 

thanks ffor sharing the information regarding bio oil. My skin has become very sensitive after chemo so I may have to test an area to see whether I get a reaction. I hope you have a lovely hill walk, 

 

 I am hoping to do a trot in the local woods this morning and no doubt collapse in a big heap this afternoon.

 

Everyone - On iplayer I have finished watching Killing Eve, Mystery Road and caught up with The Crying (something dodgy going on there). Any recommendations for a drama series I could binge watch on either iplayer or Amazon Prime?  Smiley Happy

Member

Re: September 2018 Radiotherapy

Thankyou for all the bells it’s a very nice feeling.

 

Re surgery scars i’ve been using bio oil since they were all healed over so probably since about week 2 or 3 post surgery, I was given 2 bottles by a friend but I know they can be quite pricey.   Although during radio I didn’t use it on my boob scar as I was using the stuff designed for radio burns, however my tummy scar is looking really good, very thin and no bumps or lumps.  Having said that I think it has more to do with the massaging than the product, I have an older scar on my hip which was just treated with e45 and it’s just as neat so I think if you are massaging quite firmly and frequently then there’s a good chance the scar will do well. Just make sure it’s all healed before getting too vigorous with the massaging!

 

Bibi,  I met a woman during radio who had 2 sessions in one day, as long as there was a gap of 6 hours (I think that’s what it was) between them, this was so she could go away for the weekend and not miss her ftreatment.  Seemed a little too keen to me but if it’s a way to finish on schedule maybe worth asking, although if your unit is anything like mine there’s no guarantee the machines will be working on the day - they do seem to be quite temperamental.  Either way it’s not far off and you’ll be ringing those bells too!

 

I’m off to enjoy this tropical heatwave we’re getting today and find a hill to walk up (slowly) and make the most of the next week or so before the dreaded fatigue kicks in. 

 

 

Member

Re: September 2018 Radiotherapy

Bibi, I hope there are no treatment delays for you today and you get to tick off another completed session. Smiley Happy

Member

Re: September 2018 Radiotherapy

Sleep tight Wombat Woo. Smiley Happy

Member

Re: September 2018 Radiotherapy

Hi Anxious Sole - SNAP fatigue has suddenly hit me tonight so much so that I have come to bed. I also have dose of the runs which isn’t helping

Rest well xx
Member

Re: September 2018 Radiotherapy

Hi wombat woo,

 

This afternoon I collapsed in a big heap as fatigue suddenly took over me, it was quite overwhelming, how the fatigue suddenly hit me. This morning I managed a trot in the sunshine, there was a lovely fresh breeze and now my hair is growing, albeit slowly,  I could feel the breeze ruffle my hair. 🌠🎆🎇

 

 

Anyone using anything for any surgery scars? I read elsewhere on the forum that bio oil is meant to be good. 

 

There are definite prickles here with me together with the annoying hot flush that has suddenly entered my life.

 

Bibi, I am pleased you had a good stretch of the legs, I have seen pictures of Dovedale but I have never been. If I remember correctly there is a river running through. Smiley Happy

Member

Re: September 2018 Radiotherapy

Green Damsel. Your finished

🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔💕💕💕

Sorry the bells aren’t dinging I had a bit of a nightmare trying to make them do that...,, 🙄

BIBI what a bummer ! We will keep the bells warm for you for Monday

Maggie - thank you 😘

Anxious how are you doing ? Any unexpected side effects ???? They gave me 1% hydrocortisone cream for the prickles. I feel as if the inside of my boob is bruised it needs to be supported - no hanging loose at the moment 😳

Wishing all you lovely ladies a very relaxing prickle free evening 🤗&😘
Member

Re: September 2018 Radiotherapy

Thanks for the kind words Anxious - have had a lovely day, really warm and sunny in Dovedale

- feel refreshed and ready for the rest of the week.

Member

Re: September 2018 Radiotherapy

Well done Green Damsel for getting to the end of rads 🎉🎉

Sure it is a weird feeling to suddenly be free and sometimes these milestones are a bit of an anticlimax - but a few weeks time you’ll hopefully have your energy back like Maggie - good luck.

Member

Re: September 2018 Radiotherapy

Oh Bibi, I am so sorry to hear the finishing line has been moved. We are all here waiting for you. Enjoy the sun  and breeze against your skin. Smiley Happy

Member

Re: September 2018 Radiotherapy

GreenDamsel

 

Congratulations! 

 

t

Member

Re: September 2018 Radiotherapy

Well done GreenDamsel it is a milestone indeed! Ringing some bells on here for you 🔔🔔🔔🔔

Relax and enjoy the rest of your day
Mx
Member

Re: September 2018 Radiotherapy

Well that was a bit of anti climax, unit was very busy this morning, machine problems first thing meant everyone was late and rushed through, but never mind it’s all done now. 

 

Nurse who did my ‘exit interview’ seemed impressed at how my skin is unchanged and asked what I was using.  She had never heard of the R1R2 system which I am using and I got the impression she thought I’d got something dodgy off the internet rather than something recommended by a doctor. (Just not available widely on NHS).   Anyway it’s doing the job so will continue for the next few weeks and hope for the best.

 

There are still appointments to go and possibly more chemo (tablet form) but this feels like a major milestone in dealing with the alien which invaded this year..... and now relax 😁

Member

Re: September 2018 Radiotherapy

Thanks Bibi. Really sorry to hear your machine’s broken, everything crossed they fix it so you can finish Monday instead - horrid to have milestones moved. Sometimes BC feels like one long round of waiting... enjoy the fresh air, Dovedale is lovely isn’t it? Mx

Wombat Woo, sorry no idea why I thought you finished this Thursday!! Congratulations 🔔🔔x
Member

Re: September 2018 Radiotherapy

Oh Maggie swimming sounds good - can’t wait for that - glad you are feeling like you are getting back to normal xxx
Member

Re: September 2018 Radiotherapy

Getting ready to ring for you Green Damsel 😊

Anxious - I won’t be finishing Friday 😢 - machine broken today so appointment cancelled- if it’s fixed it will be next Monday now. Feel really flat - the end of the week has been the goal and I know it doesn’t really matter but I feel fed up. However the sun is shining so going to take advantage of the day off and go for a long walk somewhere - maybe Dovedale. 

Must be weird suddenly not having appointments or waiting for a treatment to start - sure you will readjust but may take some time - sending you hugs 🤗 🤗🤗

Member

Re: September 2018 Radiotherapy

Good luck green damsel, last one!! Bells are poised and ready!! 🔔

Wombat woo & Bibi it’ll be Thursday & Friday before you know it.

It’s 3 weeks since my last treatment and the day I’m ‘permitted’ to start swimming so I’ll be in the pool this afternoon 😎. My energy levels are back to normal and although I’m still adjusting to Tamoxifen I feel I’ve turned a corner this week, being away helps

Maggie x

Member

Re: September 2018 Radiotherapy

Last session Green Damsel. I can hear them polishing the bell for you ..... 🤗🤗
Member

Re: September 2018 Radiotherapy

Good morning everyone,

 

GreenDamsel, one more session for you .........Smiley Happy 

 

Bibi, I hope you're on schedule to finish this Friday. Smiley Happy

 

My skin is getting more prickly so moisturising with diprobase more than 3 times a day to soothe the irritation. Yesterday afternoon I had an appointment with the herceptin onc, he doesn't want to see me until Dec now. For 9 and a bit months a life full of hospital appointments and now all of a sudden they are thinning out. How do I feel about that? I am still processing this. 

 

 

 

 

 

Member

Re: September 2018 Radiotherapy

GreenDamsel, you're nearly there. Smiley Happy

 

As always my counselling session was useful, I think CBT does help me. 

 

Member

Re: September 2018 Radiotherapy

Morning Folks,

 

It’s nice to hear that you are feeling well Anxious and fingers crossed the next couple of weeks go well, it would seem cruel to have gone through everything so far only to have nasty side effects once it’s all finished, it’s as if that magical finish line keeps being moved.  

 

Bibi,  I think celebrations of any size make a big difference, just something to mark the milestone and effort you’ve put in so I hope you get to celebrate with hubby. Frustratingly though I know it can be the last thing you feel like at the time but for me even marking it off on a calendar has helped remind me I am going forward each time. 

 

I have one last zapping to go tomorrow morning and I think I’m getting a little excited about it 💃🏻

Member

Re: September 2018 Radiotherapy

Morning Anxious - ready to face my final week. Have decided to just have a quiet week as much as possible so I have energy to get through - travel times are really tiring - although hubby’s big birthday on Thursday so maybe a little celebration - saving a bigger one until I finish and kids come home the weekend after - so something nice to look forward to.

Hope you continue to gather strength - have a good week xx

15/20

Member

Re: September 2018 Radiotherapy

Good morning,

 

How is everyone doing?

 

I am waiting for the fatigue to start, I managed to stay up until 9pm so I have more energy at the present time. My skin feels more prickly but the diprobase is soothing. Drinking loads, a combination of herbal teas, green tea, milky coffees, cordial. Physically I feel like I am getting stronger.  Emotionally I am still healing. Smiley Happy

 

I have an appointment with the herceptin onc this afternoon to just check how I am getting on. Smiley Happy

Member

Re: September 2018 Radiotherapy

Good morning everyone,

 

Bibi - you're nearly there, this last push, and perhaps a very challenging one given the fact you have these extra sessions. 

 

I hope this weekend you get to enjoy your days off. 

 

Bibi - yesterday was a different day for me as I felt much calmer. Smiley Happy

 

 

 

 

 

 

 

 

 

Member

Re: September 2018 Radiotherapy

Morning Anxious - what a nice feeling it must be to wake up and not have the hospital to visit - can’t wait for that feeling - I have today and then 5 boosters next week and then I’m done .

im feeling good today - hoping the weather stays nice for the weekend.

well done on the driving - I too have had periods of not being confident of driving - I’m OK locally but I couldn’t face the cross city drive we have to do for my appointments- city drivers are crazy!

I hope your counselling helps you xxx

Community Champion

Re: September 2018 Radiotherapy

Anxious Soul

 

Well done you on the driving, you have got over the first hurdle.

 

I did find that I had a bit more fatigue during the 14 days after rads, but that was more about my not taking in enough fluid during the day once I upped it the effects were not as bad.  I did find that I would have a nap later in the day, usually about 3pm, I would just drop off for about 10/15 minutes, wake up and carry on.  I did not really experience many problems with my breast during that time, I had 5 boosters so that area took a little bit of time to settle but as that was at the end of treatment I suppose it was to be expected.

 

I think as long as you listen to your body and keep up the regime for those couple of weeks you will be fine.

 

Great to hear that you have counselling arranged and I am sure it will help loads

 

Helena xxx

Member

Re: September 2018 Radiotherapy

And Maggie, -  beunos dias. 

 

Member

Re: September 2018 Radiotherapy

Good morning everyone,

 

Wombat Woo - today is a different day - you do not have to travel into radiotherapy. Smiley Happy

 

Bibi - how are you doing? Could you remind me how many sessions you have had so far? I have remember that you are scheduled 20 sessions. 

 

GreenDamsel - Tuesday is soon approaching. Smiley Happy

 

 

 

Yesterday morning I had my 12th herceptin injection. After this I went for a drive in order to gain some confidence. Since going through treatment I had long periods of not driving as I did not feel well enough. I can now relate to those who are nervous driving. Yesterday, the weather here was lovely and so in the afternoon I dragged myself out and emersed myself in the outdoors. 

 

I have been informed side effects from radiotherapy will peak 10 to 14 days after treatment and so this weekend and early next week I am planning to get out and about, meet up with friends in anticipation that I may crash later on in the week. 

 

I have a counselling session Monday morning which I think is very good timing.

 

All the best to those heading into treatment today. Smiley Happy