Whey h ey congratulations on finishing your rads and an rining the bell for you tonight.
What a lovely way to celebrate the end of your active treatment, very special
That is totally lovely to hear Wombat woo.
I cannot figure out how to download a bell. So instead I will say:
Congratulations Wombat woo
Thankyou for your replies about how your team looks after you. Maybe my area just don’t think it’s needed but it also feels like there is a huge rush to get you out and on to the next person, and so far I’m side effect free apart from a really bright red boob a couple of hours after treatment which goes back to normal by bed time, so don’t want to waste their time by asking about trivial concerns. Only 3 sessions to go so will keep up with the fluids and moisturiser.
Congrats to all those ringing the bell this week, another leg of this marathon completed. 🤗
Good morning everyone,
wombat woo - I can hear that bell you rang for me. Thank you.
I hope you get to ring that bell today. Let us know how your last session goes. Squeezey hugs.
It is a pleasure, I remember when I finished and the ladies did that for me xxx
Green Damsel - I am always asked how I’m feeling that day, they don’t ask about my skin - I assume they are looking and monitoring. When I went red the first few sessions they got the rads nurse to see me and she came back the next day to check how it was. I had a rads check after 2 weeks and she said she would see me again before I finish - I’m having 20 sessions.
Anxious ringing for you - well done for getting through - you will celebrate when you have had a rest xxx Goo luck xxx
Hi there GreenDamsel,
Yes, I have rang those bells, around 3.30pm, no apparent emotions at present possibly because I am very tired.
On arrival the nurses always asked how I was feeling and asked about my skin, whether it was feeling itchy, they would also have a look at my skin and reassure me that everything was looking okay. Every day they would ask what cream I was using and how often I was applying the cream. And yes they would ask what plans I had for the rest of the day.
The NHS radiotherapy staff have all been totally brilliant.
Maggie48, wow, hola! It is lovely to hear from you across the water.
if i”ve got it right you ring that bell today Anxious-Soul, well done on completing what can feel like a very long journey.
I finish next Tuesday and can’t wait to be appointment free and not having my day revolve around whichever appointment slot I have that day.
One question for you all, have you been asked about side effects at all during treatment? While the radiographer will say hello and what are my plans for the day etc. no one has actually ever asked how I am feeling, how my skin is etc. Apparently I get a treatment review with a nurse on the last day of treatment (no doubt to warn me it gets a lot worse 2 weeks after treatment stops).
Maybe they are just surreptitiously eyeing up my skin each day while they check the measurements and can see the skin all looks ok and because I usually have some activity planned they work out that I can”t be feeling tired etc but just very aware no one has ever asked me directly. Just wondered what everyone else had experienced ?
I know in my particular case I have an appointment with my onoclogist annually for 5 years and a mammogram yearly as well, if it is like this year the mammo will be about 4 weeks before my oncologist apt.
I think everyone is different, I find if I am having an anxious time, and I do still have moments even two years after my diagnosis, I immerse myself in my cross stitch which seems to work. Honestly it does get easier, I would say now 99% of the time I do not even think about having had bc, it is certainly not the first or last thing I think of now. Have you thought about having some counselling which your bcn should be able to organise for you. It gives you a safe comfortable space in which to talk to someone about how to you are feeling.
I also found that I set myself small milestones, like starting to drive again, building up to do my normal working hours, getting back into my lawn green bowls, gardening, it was great to tick each one off as I achieved it. I didnt look to far ahead and was realistic in what I wanted to achieve.
Also never fear to come on here and talk to us when you are feeling anxious, the wonderful ladies on this forum will be there to help and support you in whichever way you can
Sending you hugs
Yes ladybowler it will be strange, I see the chemotherapy consultant on Monday but after that I don't appear to have many appointments.
From then on, I am going to have to learn to reassure myself. Do you have any thought regarding this? Sometimes when my mind is racing towards worst case scenarios I concentrate on my breathing and this helps me. I think reassuring myself may be slightly different to being positive. I am trying to figure out what approach would work best for me and lead me to feel some reassurance rather than getting relief externally, that is from hearing the words from others.
Wombat woo - it is good to know you will be popping next door too. I will await others to finish before I go next door.
Hi Anxious Soul
Just here as one of the ‘recent Rads finishers’ to say congrats, hope you ring that bell today loud and clear... - and as Ladybowler said, keep up with the fluid, exercising, and moisturising..
It definitely peaked for me at about 14 days, fatigue hit occasionally too, but nothing major..it’ll all be fine for you. Emotionally, I found it a bit of a struggle, but get yourselves over to the After the Bell thread, advice and support is invaluable at this time, (as it’s been right the way through), so keep together, and look after each other..
What a lovely positive post which I know will reassure ladies who are about to start rads and are anxious, thank you for that, it is just what they need
Yes it is going to be strange moving forward after today because you have spent so long "in the system" but remember you do have your breast care team there to support you and us lovely lot . I remember the first time I drove after my op I just went round the block and back, yes it was a bit scary but do you know what within days I was not even thinking about it.
Remember to to keep up your regime for the next couple of weeks, especially the fluid intake as that will help with any fatigue you might experience.
Sending you hugs
Wombat woo - I hear you regarding the new normal. I have noticed some positive aspects within my new normal, for example when I am feeling physically rubbish I push myself so I can spend time with the people I care about.
Wombat woo - you are finishing today too? I think we started together. Let me know how you are doing. I read some discussion in the thread named a few weeks after ringing the bell that the side effects from rads peak 10 to 14 days after treatment.
I am planning to continue to use the forum and later maybe use the thread named a few weeks after ringing the bell if this is active.
Ring that bell Wombat woo. x
🛎🎉 hope your final day goes well - ring that bell really loud - it may take a while to adjust but you will find yourself again Anxious. Thank you for all your support xxxx
Good morning everyone,
Bibi - it is so hard when experiencing side effects and we are never too sure which treatment is the cause. Tummy troubles is never nice. Today, I do hope very much you feel a little better. Please let me know how you get on.
It is my last session. For me, the hospital transport has worked really well. The pattern has been travelling with two other patients who live near to me and who are going through rads and we have got to know each which has been comforting. And to add the drivers have been supportive throughout.
Yesterday I noticed there is a bell near to the reception area. I am really not sure how I am going to feel. In some ways I feel the biggest tests are to come, that is: letting go, learning to reassure myself, learning to trust my body again, gaining confidence in driving, gaining physically and emotionally strength and the list goes on and on but I guess ultimately I would like to start feeling more like me, the person I know.
For anyone feeling anxious about the radiotherapy, for me, so far this has been far easier emotionally and physically compared to chemo and surgery. The bcn said this was the easy part but I was thinking about a marathon, how the running gets harder near the end. I may get hit by more fatigue after I finish but I am ready and waiting and hopefully I will find the strength to get through the other side.
Anxious I thank god for whoever discovered Herceptin! Yes definitely appreciate that it is giving me a better chance of survival and reduces chances of reoccurrence.
But it makes me tired - although at the moment I’m still not sure which is the biggest contributor to tiredness, rads, Herceptin or Letrozole- think they all do.
Im lucky I don’t seem to be getting of the aching bones and muscles that some people seem to suffer from it so 🤞that continuesHowever I do seem to be suffering a bit in the nausea and upset bowels and I’m wondering if it’s the Herceptin- I thought I might not be able to lie on the bed for rads today as I felt so bad - they were very kind to me and I did manage but have been on sofa all afternoon feeling terrible and frequent bathroom visits. Didn’t help they were running about an hour late today either- hoping I will feel better tomorrow- have started to pick up in last half hour.
And Bibi, what are your thoughts and feelings about herceptin? Although they give me a runny nose and I think contribute to my tiredness I find having them reassuring, the drug makes me feel safer.
How are you doing Sue62?
Good morning everyone,
I finished watching Keeping Faith and so currently binge watching Killing Eve to help with distracting myself.
Bibi I think the herceptin contributes to my tiredness too.
Wombat Woo - how are you feeling about finishing?
Happy Birthday Maggie - what a great way to celebrate - have a fantastic holiday x
Anxious yes I do think the Herceptin contributes to my tiredness - especially the first few few days after it - also affects my digestive system .
I also find the reassuring words from the radiologists make me feel secure.
Good luck to you both Wombat and Anxious for your last week - you will be soon ringing that bell xxx
Oh Maggie so soon, a very Happy Birthday for tomorrow. I hope your holiday in Spain is everything you wish for.
Yes I am nearly done. Like you I am on herceptin and this Thursday I will have completed 12 of 18. Bibi, do you think the herceptin contributes to your tiredness?
This Wednesday I will have finished rads and I think I may feel a little lost. I think this is because I struggle to reassure myself and most days the nurses will say something which gives me the reassurance I can't give myself.
The reassurance can include words like you're doing really well or you're doing everything right. Does anyone else feel emotionally better when they get this type of reassurance?
Hi everyone - I had a great weekend - our coffee afternoon was a great success and we raised almost £400 so are very happy.
I am tired though and it’s only Monday!
I had a rads review with a nurse after treatment on Friday and it was good to chat with someone and be able to ask questions. My skin was fine but over the weekend I have started cooking and it’s quite pink in parts - keeping up with fluids and moisturising so hoping it settles down.
Anxious you are nearly done ! Have you any more treatment ahead? Are you nervous about treatment finishing? I think it will be weird to be ‘let go’ after treatment. I still have Herceptin injections every 3 weeks for a while yet so will still feel attached - will be seeing oncologist every 3 months till that finishes as well.
Maggie enjoy your sun holiday and have a good relax.
Have a good week everyone xx
Maggie - good to hear about your energy levels rising. When do you head to Spain?
GreenDamsel it sounds like you're tolerating the treatment quite we'll.
My skin is doing well, no sore areas, a little red and prickly but otherwise okay,
I was with friends on Sunday which was lovely, we visited our local canals and grabbed some fresh air, the ducks were out and about. Emotionally, when I am alone I feel like I could do with a good cry but there are no tears at the present time.
I had a good weekend, no obvious changes in the skin or dip in energy yet but that’s only session 9/15 done so still a little way to go. I wasn’t planning on moving threads, unless the September one becomes ‘empty’.
Hope you had a good couple of days as well and aren’t suffering from side effects.
Good morning everyone,
Sue - I do hope the process gets a little easier for you, I have always found the staff very understanding when I have told them about my fears and anxieties. One member of staff simply said 'we will look after you' and that was enough to comfort me.
Swimmer - I am sorry to hear about your loss, this forum is a good place to let it all out and people here will listen and understand.
Maggie, Bibi and Wombat woo - I am so pleased it is nearly the weekend.
This week has flown by, I am feeling a little emotionally numb at the present time and I wonder whether I may burst somehow when I finish. Emotions can be so unexpected at times, they are never planned and can come out of nowhere. Bibi, you have a tough day, I hope you reward yourself over the weekend.
Sue - well done for getting through that first sesssion- I felt something similar on my first session- it was like a fresh realisation that it was really happening to me just like when I was first diagnosed. I am on my halfway point tomorrow 10/20 and it does get easier - in fact it’s quite boring after a while. Good luck with the rest of your sessions.
Swimmer you are having a tough time - sorry to hear about your dad that is a hard loss to cope with as well as getting to rads everyday- look after yourself and let your family look after you.
Only one more day this week - looking forward to a lie in on Saturday- got 3 appointments at 2 different hospitals tomorrow 😲 so wish me luck on the traffic.
Well done on getting through your first session, it does get easier and from here on in the sessions are shorter which will help. It is a bit weird at first but just think this is the last part of your active treatment and you will soon be at your last session
Sounds lovely to have your daughter and grandson with you as a distraction.
Sending you hugs
Just wanted to send you hugs, undergoing rads is hard enough but you are also dealing with the passing of your dad, it is not surprising at all that you are feeliing anxious, totally understandable.
Please try and give yourself time for you, let the others do stuff for you, the effects of treatment do build up and at some point you have to let go, this is a lovely comfortable place where you can do that with ladies who understand and get you. I remember bursting into tears one day as I walked into the room, I just wanted it all to stop, my lovely rads nurse gave me a hug and a box of tissues, had a cry and then got on with it. Be honest with them they will totally understand and do everything they can to help you.
I am on 8/15. Not too many side effects - I moisturise with E45 about three times a day! I had a therapeutic reduction and I think some of the scarring is looking redder and I think my breast just feels a bit different. I felt I was coping quite well - I am a bit claustrophobic and I don't like the idea of being trapped on the table. Today however I felt a real sense of panic which I just about got under control, thinking about the measurements having to start again and being there even longer. Has anyone else had this feeling and what did you do? Sadly my father died last week, so I am not getting much rest - having to travel a 200 mile round trip to see my mother at the weekend following my treatment. I am tired and I am sure it is cumulative - months of treatment - I had a haematoma after my operation. I am struggling to prioritise my own needs, as of course I look OK and everyone else in the family is tired too. This is despite having a really supportive husband and lots of lovely friends. I think I just feel quite low not suprisingly.
Just wanted to say something about swimming - to me it is a life saver. I have been once to the pool this week and once in the sea - chilly but rejuvenating. When the radiographers at my centre asked me this week about my shoulder movements they were pleased to hear I swam a lot and said it was good. I think the only contraindications I have picked up is if your skin was broken.
Thanks for listening - just feeling very anxious tonight.