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September 2018 Radiotherapy

Member

Re: September 2018 Radiotherapy

Hi everyone, 

 

To add, I asked the nurse about the advice to drink loads of water,  You may know this already but apparently when the treatment destroys the cells, the dead cells create toxins which then circulate around the body and this can contribute to the tiredness, so the more you drink the more dead cell toxins you get out of your body. Smiley Happy

Member

Re: September 2018 Radiotherapy

Hi Sue,

 

Yes, you said it - you can do this.

 

For me, attending rads is far less anxiety inducing compared to attending the dentist. 

 

Maggie, lovely to hear your energy is returning. Smiley Happy

 

Bibi - I am excited for you regarding your camera course. 

 

Wombat woo - we have passed the half way mark Smiley Happy

 

DamselGreen - Lovely to hear you're embracing the great outdoors. I have been researching woodland walks and I hope when I get physically stronger I can walk within the trees. 

 

9/15

Member

Re: September 2018 Radiotherapy

Thanks ladies I have a bad habit of over thinking things and today has been one of my worst days since being diagnosed in June and I let everything get to me but tomorrow is another day and I know I can do this, this forum is such a good help to me I don’t comment much but I read everything and you are all so inspiring xx
Member

Re: September 2018 Radiotherapy

Ah Sue as others say you are allowed to feel like that - it’s the waiting every time that is hard - waiting for chemo, waiting for surgery, waiting for results, waiting for radiotherapy- once you have done the first one you will be able to cope better. The physical aspect of radiotherapy is much easier to bear than chemo for sure but it’s still mentally tough. I have done 7/20 and have been feeling fine but have just sat down and had a good cry and I don’t know why - it’s hard keeping going at times but hopefully you have the support of your family - and just tell them when you feel rubbish don’t always be ‘fine’ if you are not feeling it.

Having said all that I agree drink plenty, moisturise and get fresh air every day - that’s what has helped me. Good luck Sue xx

Member

Re: September 2018 Radiotherapy

Hi Sue. You are allowed to feel like that - I believe we all put on the brave face too often and forget ourselves.

Rads is a lot easier than I thought - in that all the radiographers are great, very caring and understanding... once the first one is over you will know what to expect. Expectation is often much worse than reality.

My main hints are to drink a lot of water and moisturise really well

Good luck, allow yourself to have bad days, then put your big girl knickers on and go knock the rads sessions off your calendar 😊 and if you feel like screaming afterwards come let it all out on here. 😘🤗. Wombat x
Community Champion

Re: September 2018 Radiotherapy

Hi Sue,

As ever, the prospect is always worse than the reality. It will be fine & as you say, once the first one is over you'll soon get into the routine of it all.

We've all had days feeling as you describe & it's just fine to feel the way you do.

It will pass.

ann x

Member

Re: September 2018 Radiotherapy

Hi everyone my first radiotherapy session is tomorrow.
I’ve had a lovely laughter filled weekend away with my mother and 3 sisters but since getting back last night the reality of everything has hit me quite hard, I’ve spent a lot of today crying, I’m really trying not to be negative about everything but I think I’m just fed up of putting on a brave face for everyone. When anyone asks how I am the only answer I give is ‘I’m ok’ or ‘I’m fine’ because it’s hard to explain how I’m actually feeling especially when they all say how well I’m looking.
I’m making myself so anxious about it all but I am sure once the first session is over I will be a lot better.
Thanks for listening ladies Sue x
Member

Re: September 2018 Radiotherapy

Maggie good to hear you have some energy back and I hope you have a fabulous holiday - you deserve it after all this.

Green Damsel I agree it would be lovely to go for a swim but advice I think is not - can’t wait to go again - will probably wait for a couple of weeks after end of rads until sure the skin is OK. Walking up a hill is also something I am looking forward to - walking up a slight incline raises my heart rate and makes me a bit breathless - think it might be the drugs rather than rads but again going to keep walking and will discuss with my oncologist when I see him in October.

I had a lovely afternoon in garden sorting out plants. I also became a student again last night for the first time in a long time - signed up for a Photography course at local college - had a great camera for my birthday last year and was going to do this course earlier in year but with chemo didn’t think I was up to it - so I’m quite excited to be learning and feel like it’s a step to getting my life back.

Hope everyone has a good week

Bibi 

7/20

Member

Re: September 2018 Radiotherapy

Thanks Maggie, I thought as much, skin is fine just now but who knows what may happen if it’s exposed to all those chemicals.  I can wait a few more weeks and  I’ll ask the nurses in case there is advice on waiting for a period of time after rads are finished, it just seemed to be a nice way to exercise without any impact and the plastic surgeon is ok with it, will just need to be patient. 

Member

Re: September 2018 Radiotherapy

Hi Green Damsel,

 

My rads team said no to swimming, until after skin has returned to normal after treatment, I'm guessing the puplic pools use pretty harsh stuff... 

 

There is a separate thread running on swimming during rads, some people have been fine...

 

Maggie

Member

Re: September 2018 Radiotherapy

Hello,

 

How glad am I that I did my walking yesterday, today we have strong winds and rain and it’s probably very “dreich” at the top of Ben Ledi today.    It was a good day yesterday and I really enjoyed getting out in the fresh air and some exercise.  A bit tired at the end of the day but no worse than any other time I’ve done the same walking route so I don’t think i’m seeing any side effects of rads yet.

 

 

Good luck with the gardening Bibi, I hope you’re having much kinder weather than me.

 

ps anyone gone swimming during rads, just wondering if it’s a no no due to the chemicals? 

 

Member

Re: September 2018 Radiotherapy

Well done Anxious Sole - more than half way there.... it’ll soon be bell ringing time.

Enjoy your gardening Bibi, it’s a lovely Autumn day here, hope the sun’s shining for you 😎

I’m at the manic packing/washing/ironing pre-hols phase and a week after finishing I’ve loads more energy, such a relief when it comes back
Maggie x
Member

Re: September 2018 Radiotherapy

Morning Anxious Soul- know what you mean about tiredness - early starts this week are good in one way as it gets it over for the day but am not used to them - it was chilly this morning- ice on the windscreen ❄️- but at least the sun is shining now - a spot of gardening I think this afternoon 🌷🌹🌸🌼🌞
Member

Re: September 2018 Radiotherapy

Good morning everyone,

 

How is everyone doing?

 

I am starting to feel very tired, the physiotherapists just reminded me to continue with the arm exercises. 

 

8/15

 

 

 

 

 

Member

Re: September 2018 Radiotherapy

Oh GreenDamsel, walking, fresh air and hills sounds perfect and what a beautiful day for such wonders. x
Member

Re: September 2018 Radiotherapy

Good morning ladies.

 

Rads done first thing and  thanks to a local holiday, traffic and parking were a breeze.  Must admit I was still thinking about the loose ends of Bodyguard on the way in this morning and wondering if that lines up a second series. Thoroughly enjoyed it and glad they kept it to a relatively short series.

 

Anxious-soul I liked Keeping Faith too although got a bit annoyed at her and some of the very silly things she does whilst supposedly being a fairly intelligent woman. 

 

Sun is out and I am now allowed to drive again so off on a little trip today to the hills for some walking and fresh air.  

 

Hope everyone one had a good weekend and this week goes quickly. 

Member

Re: September 2018 Radiotherapy

Good morning everyone,

 

I didn't stay awake to watch the bodyguard, crashed at 8pm, catching up on iplayer - excited.

 

To distract myself over the weekend I was binge watching Keeping Faith on iplayer, really enjoying this. 

 

I have  two appointments today, physiotherapy followed by rads - I am guessing I will be shown different arm exercises to do.

 

On Friday during rads the staff were playing a Fleetwood Mac CD. I caught myself singing over the weekend to one of their songs....For me, a good moment if you know what I mean. Smiley Happy

 

Maggie, how are you feeling after ringing those bells? 

 

All the the best to those heading into treatment. X

 

 

 

 

Community Champion

Re: September 2018 Radiotherapy

Bibi

 

I have a crick in my neck didnt realise how tense I was.

 

Sending you all best wishes for the week ahead my dear xxx

Member

Re: September 2018 Radiotherapy

All nail biting stuff in that final episode - never guessed the bent copper once - and a great twist at the end. I did have to keep going over it and checking I had understood the whole thing about 10 times with hubby to check I had all the threads correct - good stuff - certainly distracted me from the week ahead. 

Pearly start tomorrow- good luck to everyone for this week x

Community Champion

Re: September 2018 Radiotherapy

Wombat

 

I am truly exhausted got it totally wrong, was on the edge of my seat.  What an amazing finale

Member

Re: September 2018 Radiotherapy

So all you Bodyguard watchers - what did you think of the final episode 😳😊.......
Member

Re: September 2018 Radiotherapy

Hope you all had restful weekends and I wanted to say good luck for tomorrow ladies... one more step towards those lovely bells....
Maggie x
Member

Re: September 2018 Radiotherapy

👍🍫
Member

Re: September 2018 Radiotherapy

Good morning everyone,

 

it's the weekend!  I am definitely planning on eating some chocolate.

 

7/15

 

 

 

 

 

 

 

Member

Re: September 2018 Radiotherapy

Hello ladies !!!

Happy weekend everyone.... 7 down !!

Anxious sole I am doing ok - just having SEs that I dont know if they are from the Rads or the Anastrozole... I am hoping that this weekend may make it all a little clearer

Here’s hoping you all have a relaxing 2 days xxx
Member

Re: September 2018 Radiotherapy

Week 1 complete 🎉5/20

Redness has calmed down , not used the Aloe Vera so don’t know whether it was that 🤷🏻‍♀️

Looking forward to a restful weekend- enjoy yours everyone xx

Community Champion

Re: September 2018 Radiotherapy

Bibi

 

I remmeber when I was having mine I was using both E45 and Aloe Vera, my team told me to stop using the aloe vera and instead keep my E45 in the fridge as it work in exactly the same way in cooling the breast xx

Member

Re: September 2018 Radiotherapy

Good morning everyone,

 

Bibi, yes, get those appointments moved if you can. I was advised not to use aloe vera due to the drying effect and just using diprobase cream which seems to be working well at the present time. Not quite knowing what is causing the redness must be a concern, I hope you're taking your temperature if it may be an infection. My fingers and toes are still crossed for you.

 

Maggie, lovely to hear from you and by the sounds of it you're off to a sunny holiday soon....Smiley Happy

 

DamselGreen, I can understand your concern regarding the sun, I remember desperately wanting to get away for a couple of days with a friend and then the heat wave arrived and I didn't go in the end as I thought I'd be consumed with worry about the sun. After chemo my skin feels like plastic.

 

How is everyone coping with the sun? I really struggled with the heat waves, I have learnt that chemo can affect the sweat glands and when I am sweating my skin goes prickly. 

 

Wombat woo - you okay?

 

It is Friday, I have a 2.15pm appointment, a friend is taking me in today and hopefully we will do something nice before or after. Physically I seem to be doing okay at the present time, emotionally I am having a few wobbles.

 

All the best to those heading in today Smiley Happy

Member

Re: September 2018 Radiotherapy

Hi everyone- thanks for the kind thoughts - the redness and heat  is worse after I have had rads and then it calms down. I spoke to a nurse as well as radiographer today - they said it shouldn’t really be the rads but it could be that my skin is just very sensitive or possibly an infection but we are waiting to see how it goes tonight and maybe see doc tomorrow if it happens again. She also advised me not to use Aloe Vera - she said although it cools it’s not very moisturising and maybe I was having a reaction to something in that. I have been  using Aveeno during and since chemo - have only used the Aloe Vera when its been red and hot - seems to be highly recommended by lots of people but am going to give it a miss and see if it helps. 

Jealous of your short journeys- we had another epic tonight - half an hour to do a mile at one point tonight 🙄

I have asked them to please give me earlier appointments next week so🤞for me ladies.

PJ’s and fire on for a cosy night now . 

Have a good evening xxxx

Member

Re: September 2018 Radiotherapy

Hi ladies,

Great to read your progress, only one more day this week and you can all recharge over the weekend.

Like Green damsel I only had a short drive to the hospital, but my Radiographer said the fatigue is due to our ‘immune systems diverting attention’ to heal the radiioed cells, he also said it’s normal to be tired which I found very reassuring.

I’d planned lots of lovely things in for this week, and have enjoyed everything, and also felt very tired as a result. Guess I overestimated how quickly my energy would return.

I’m a little pinker than I was when I finished treatments- again normal I’m told. Still moisturising and hydrating plenty.

We going to Spain in 10 days (until Xmas) and I’m going to stay covered up I think, I got lots of advice from the rads guys when they found out.

Anxiou-soul I’ve used Sainsbury’s online for years and they’ve been great. I’ve got friends who rate Asda, Tesco & ocado too.

Wombat hope you’re feeling better

Bibi, hope your redness has eased & sorry to read you need 20 sessions.

Have a lovely evening

Maggie x

Member

Re: September 2018 Radiotherapy

Hello ladies, 

 

Well the redness disappeared by the time I went to bed and no sign of it today so maybe just a little over reaction on my part.  I am fortunate I only have a 10-15 minute drive to treatment, traffic allowing, but parking is a nightmare so we need to leave plenty time although this week my husband has been dropping me off and I go in while he looks for a space.  However I get to drive next week (6 weeks post surgery) so will be driving myself (he’s been lovely but I need my independence).  

 

My appointments are all early morning and today I went into town afterwards, met people from work for lunch, got my eyebrows done for the first time since they grew back and had two haircuts!  My regrowth got a trim and tidy up when I went in to see my hairdresser as she’s about to go on mat leave and she wanted  to know how I was doing. Then my wig also got a bit of a trim while I picked out a new one, it’s done well but it’s had a lot of wear and I need a new style. 

 

Waiting on the fatigue to kick in but hoping it’s like chemo where it never really materialised until the very end. Desperately want to look at a holiday at the end of the year but wary about too much sun etc, although I’ve been a factor 50 user for years as I do a lot of outdoor activities. Will wait until rads are over before making any decisions.

 

Hope everyone is coping with all the things that treatment throws at us, amazing how resilient we can be.

Member

Re: September 2018 Radiotherapy

Good morning everyone

 

Bibi and GreenDamsel I do hope your redness settles.

 

Yesterday, no delays with treatment. I was lucky though as in the morning the hospital had a power cut. Smiley Happy

 

For transport, I relied on the ambulance service which has volunteers who use their own cars to take me. Due to the high winds we took the rural route which made the journey longer. We picked up 2 patients on route. It was a long day for me but I very much appreciate the service.

 

A friend was waiting for me when I got home and I really appreciated her big warm hug - priceless!

 

I am getting into a routine of coming home, food, resting and then in bed at a ridiculously early time.

 

 

Fatigue is here -  the thought of doing a food shop seems too much. Anyone doing food shopping online? Never done it before and I could do with tips/ advice if there is any.

 

I am drinking loads in the morning but when I get home not so much which is probably why I have a mild headache this morning.

 

GreenDamsel, I too started chemo in Feb this year although back then I wasn't using this forum.

 

I am sooo looking forward to the weekend..............

 

Bibi - we have the Bodyguard to look forward to. Smiley Happy

 

5/15

Member

Re: September 2018 Radiotherapy

Hi everyone- and hi Green Damsel - how is your redness tonight?

mine was Ok today when I went for treatment but tonight after third lot it is really red and hot - I really hope it settles - just worried how I’ll cope with rest of the sessions.

Wombat I’m really tired but I think it’s the travelling - an hour and half to do 25miles tonight because we hit the commuter traffic - and I’ve got a later appointment tomorrow. Can’t wait for weekend so I can stay home. I’m drinking loads and moisturising and getting walks for fresh air but still tired. 

Hope everyone has a good day tomorrow 

Bibi 

3/20

Community Champion

Re: September 2018 Radiotherapy

Wombat Woo

 

It is very likely the travelling, but are you taking in enough fluid daily as that will help combat the fatique which can be experienced as a result of the dehydration from the rads treatments xxx

Member

Re: September 2018 Radiotherapy

Good evening ladies - I hope you all had a positive day
The fatigue appears to be hitting me already 4/15.

I wonder if it is the travelling rather than the treatment ?

Anxious - I hope you had a delay free day xx
Member

Re: September 2018 Radiotherapy

Hi Bibi,

 

I was on the feb chemo forum and have just started rads today and lo and behold I also have a bright red boob already.  Bit of a shock as I was told it would be a few sessions before I would see any reaction.  I don’t burn easily in the sun either so this is new for me.  Will ask tomorrow if this is a sign of problems as I can’t see how my skin would cope with 3 weeks of this. I’d been moisturising with epaderm after mastectomy/reconstruction so I can’t see that being the issue.  Hope your redness settles down soon.

Member

Re: September 2018 Radiotherapy

Hi Bibi - oh, I do hope the redness has settled, keeping fingers and toes crossed for you.

 

I am already looking forward to the weekend when I don't have to go to hospital.....

 

All the best to everyone heading in for another session.

 

4/15

Member

Re: September 2018 Radiotherapy

Hi
Bibi it didn’t get any worse but stayed red. No swelling that I can see.
Sweet dreams xx
Member

Re: September 2018 Radiotherapy

Hi everyone- radiographer said they wouldn’t expect to see redness after only 1 so got to see what it’s like tomorrow- they are checking if it’s warm ( it is) and swollen - not so much - so will see what they say. Wombat Woo did yours get any worse? 

I have had some nausea and also find walking up slight hills and stairs makes me a bit breathless - can’t tell if it’s just my general unfitness, the Letrozole or the Herceptin.

Sleep well all 

Member

Re: September 2018 Radiotherapy

Hi wombat woo, I have not had any nausea since starting rads.

 

Just adding that I have noticed my arm stiffening up so keeping up with the exercises is going to be important.

 

Smiley Happy

Member

Re: September 2018 Radiotherapy

Rads not roads 🤣
Member

Re: September 2018 Radiotherapy

Hello all. Quick question. Have any of you experienced nausea after treatment ??

Not sure if it is the roads or the Anastrozole

Thank you xx
Member

Re: September 2018 Radiotherapy

Hi everyone,

 

I was quite anxious this morning but settled as the day progressed, no delays with the treatment and they seem to be going quicker, not so much adjusting, not so much asking me to move here and move there. 

 

Bibi -  as of yet I have no redness to the skin.  I can understand your concern and I hope you get some reassurance/ advice from the staff.

 

Wombat woo - I am sorry to hear you're in a difficult place, I do hope the counselling works out for you and he or she has the compassionate approach you deserve.

 

Maggie, I am guessing you may be indulging in some more fizz. Smiley Happy

 

No chocolate here today so I guess it is going to be full fat rice pudding. Smiley Happy

 

4/15

 

 

Member

Re: September 2018 Radiotherapy

Maggie - brilliant I so hope you enjoyed your fizz xxx

Bibi - my breast went red after the second zap! The radiographers said some people have an initial flare very early. So I guess that is us ?

Anxious sole - I hope no delays today x

Bad day today feeling tearful, angry and weary - I start counselling next week so hopefully that will help

Have a lovely relaxing evening all 🤗😘. Wombat x
Member

Re: September 2018 Radiotherapy

Well done Maggie 🛎🛎🛎🛎🛎🛎😘 Remember to still take it easy for the next few weeks while things work their way through your system x
Member

Re: September 2018 Radiotherapy

Congratulations Maggie - what a great feeling that must be 🥂🛎🛎🍾🎉🎉

Good luck to everyone today - I’ve already been to one hospital this morning for a bone density scan - bit of a rest and then to a different one for rads and then out to the theatre - hope I’ll stay awake 😴

Question about skin reaction - how quickly did you get any reddening of breast - did you get any ? 

I am quite surprised that after the first rads I have some redness - obviously will ask this afternoon but am worried about how Im going to get through 20 sessions . 

Member

Re: September 2018 Radiotherapy

Congratulations Maggie - I can hear those bells! Smiley Happy

 

An easy to read book sounds like the perfect solution to escaping when low in concentration. A very thoughtful gift. 

 

I will expect delays from now on and think of a plan to keep myself distracted - perhaps I will take along an easy to read magazine. 

 

3/15

 

 

 

 

 

 

 

 

 

Member

Re: September 2018 Radiotherapy

Good luck with today’s treatments ladies.

Delays are a pain, hospital waiting rooms are so dull really. We had a water fountain and a coffee machine for the really long delays.

They were a little behind last night, but walking out
with no more to do felt amazing. 🥂🔔🔔🔔🔔🥂

To answer your question about gifts I was very touched when a friend sent me some ‘easy’ books, as I was struggling to concentrate and mentioned I couldn’t lose myself in a story. Same friend sent my hubby some tea pigs as he’s a tea drinker which was very thoughtful.
Maggie xx
15/15!
Member

Re: September 2018 Radiotherapy

Wishing everyone the best to those heading into treatment today. Smiley Happy

Member

Re: September 2018 Radiotherapy

Hi everyone,

 

An hour delay today, got through it though. 

 

Bibi, that is a pain regarding meeting rush hour traffic - not what you could do with.

 

Maggie, you finished?

 

Tired zzzzz

 

3/15