Thank you for your post, we hope you are finding the Forum useful and supportive.
You can find more information on our Moving Forward courses here
For more information on other services we offer, please visit https://breastcancernow.org/information-support/support-you
Social Media Officer
It's run by breast cancer now just Google it and it should give you some info about where and when it's on in your area x
You are out the other side now. You did fantastic, really well. I'm sure your hair will be back really soon. Have you booked yourself onto the "moving forward" course? Just take it easy for a while and do some nice things for yourself X
It is all very frightening at the beginning and something no one understands unless they have been through it or are going through it.
You are nearly there and it will all be over !
I have to wait for my hair to grow back so it's a constant reminder of what I've been through. X
Yes. I bet it has. You are very strong. I'm very grateful to not have to go through chemo. I find everything medical terrifying! I'm a terrible wuss, the surgeries were enough for me. I felt so bad inside myself. I think this BC is mental torture, at least it has been for me x
And regarding the bell. I don't actually think my hospital has a bell. I've never seen one and I've never heard one ringing or bring rung. Did you get to ring the bell?
No I didn't have chemo, for which I am very grateful. I'm er/pr+ both 8/8 but HER2 negative. Just a lumpectomy and radiotherapy for me. No I don't mind you asking. Did you have to go through chemo? X
Yes you are nearly there! Ring that bell really hard at the end.
Did you have chemo aswell ? I hope you dont mind me.asking ... x
I'm doing ok thank you. Tomorrow is the start of week 3 for me so nearly there now. I'm very sore but moisturising like mad and keeping up the hydration. Hope you have some good support around you to help you x
Treatment finished on thursday so just feeling very sore and very emotional but I guess that's normal.
How are you?
And go with the flow if/when you get tired.
Radio isn't a race!
Be kind to yourself.
Pleased to hear that. I'm sure the next few weeks will pass by soon enough, even though it seems like a long time when you are making those daily trips.
As I'm sure you are aware the radiographers need to get you positioned in exactly the same way each time, since strength of radio is targeted (hence the alignment tattoos). Sometimes it takes them awhile for them to get you in the right position - I remember the radiographers telling me that set up took most of the appointment time, the zapping (my word, not theirs) a relatively short proportion of the time.
From what you say it sounds like they couldn't get you in quite the right position during the appointment slot. Do ask them tomorrow when you go in. I remember when they were positioning me initially found I had a natural inclination to move my body to try to help them position me correctly.....they rapidly clarified this wasn't the best approach....try not to move but be nudgable and nudged gently into position by them. Do ask them, but it sounds like that was genuinely the issue, so try not to worry.
I hope tomorrow goes well, just pretend you are putty which they are gently nudging.
Phone up in the morning and speak to your BC nurse or ask the nurse to speak to the Doctor and find out what's going on. Hope you get some answers. Did they ask you to go back tomorrow? If so ask to see a doctor x
I'm really worried as had first radio yesterday then went along to have my second today and.they.couldnt do.it.because. my alignment was.different. they tried 3 times.to get me.in the.postion but they couldn't. Anyone.elase had this? I'm.worried somethings going on