Hi Avibaby, I'm sorry you've had to join us also, it's the most popular unpopular club ever!
Herceptin isn't given to those with Triple negative breast cancer as it's only useful when you are HER2 positive, I know it's all confusing in the early days of diagnosis but you will get used to all the terminology.
You are quite right though it is certainly not hopeless and no one is about to die anytime soon Xx
I am just diagnosed also and going through "scares" like you are.
You know, the evidence shows that even if treatments don't completely eliminate this disease, they do keep the disease at bay for a long time. You are not helpless. You will not die soon.
I think that this part of the journey is the most difficult - the "not knowing".
Hopefully you have met your treatment team, or you will meet them soon. They will be upbeat and positive and have a plan for you.
Hi Nicola, Cristina and Pickles, Sorry you find yourselves here. None of us wanted to join this sh**ty club but here we are and how well we all look after each other. I was diagnosed back in March 2017 and I finished treatment back in January. I was just where you are right now feeling very scared and alone and wondering about a lot of things. I had chemo, surgery and radiotherapy and here I am helping you to get through the same with my big survivors torch lighting the way for you. It really is a difficult time between diagnosis and the start of treatment so try and keep yourselves distracted with things which will help you prepare. Once your treatment plan is in place you can join the "going through treatment" threads to network with others going through the same. Here is my story which I hope you find some comfort from as well as a few useful tips:
Sending lots of hugs. xxxx
OK NRose the first thing I want to tell you is that the fear of chemo is far far worse than actually getting it.
You can use a cold cap for your hair - I did and kept loads of it.
With two children you will have more issues than me (mine are grown up) because they will still be at school and possibly bringing in germs so just be extra careful with hand washing and making sure that they are.
Next I would watch this video
at look at the mouse at 42 seconds in compared with the mouse at 50 seconds in. Ask yourself which one you would rather be!
I followed this man's guidelines for my chemo and my side effects were not as bad as others. No bad stomach, no mouth ulcers, never in hospital for infections etc.
I found it easy to fast before chemo and there is a thread about it here:
Make sure you join your chemo monthly thread and please ask if you want to know anything. You are going to be fine xxx
Hi Nicola , as Jill says it's so difficult to stop the fear creeping in but the reality isn't anywhere near what you will be imagining, yes TN tends to be a more aggressive form of BC but it responds very well to treatment for the vast majority and does have a lower recurrence rate in the long term than ER and HER2 +.
Try not to read the horror stories, there are many positive ones too it's just those people are getting on with life and not posting on forums.
Many of us here can't take hormone follow on meds for our ER+ BC for various reasons myself included so we are not getting any benefit going forward either. You certainly wouldn't be alone if you were TN.
Just take things a day at a time and try not to speculate, even the most dire of situations do turn out well in the end, there is so much treatment available that you certainly are not about to die anytime soon, we all feel that initially but all the lovely ladies I've spoken to here since joining the forum 3.5 years ago are all still going strong! Xx Jo
Hi Nicola and Pickles, and everybody else,
I also have two young boys (9 and almost 7), I am 43 and diagnosed with invasive ductal carcinoma last week. I admire your strong disposition to fight this off. I am just depressed, scared and crying a lot. Will need to learn lots from you. I have my appointment tomorrow for treatment plan. I posted my story in another thread. It's great to have this platform so that we can all support each other.
All the best,
A warm welcome ladies to the most unpopular club ever!
Im sorry you've had the need to join us but I hope you will find us a comfort and support during your treatment and beyond, we do have Many ladies with young family's and have had a few with new borns join us this week alone. BC has no thought for your age or circumstances unfortunately.
its an awful shock in the beginning, I was 46 and it felt like I was far too young. We are at all stages of diagnosis, treatment and beyond here so always an answer to any questions you have.