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Bilateral with ER+/Her2+

7 REPLIES 7
WestieRuth
Member

Re: Bilateral with ER+/Her2+

not sure crazy cat lady

CrazyCatLady
Member

Re: Bilateral with ER+/Her2+

Hi @WestieRuth oh that sounds promising, can but keep my fingers crossed.  Do you mean 16 more Herceptins (ie the 3 weekly thigh stabs?)  I'll be having mine until Feb 2022!

Thank you xx

Sam (and yes I am the local crazy cat lady lol) xx

 

WestieRuth
Member

Re: Bilateral with ER+/Her2+

Dear cat lady

Herceptan will shrink it very quickly mine was 3.7 x 2.0 after two chemos its now half an inch and ive got 16 to go

Ruth

CrazyCatLady
Member

Re: Bilateral with ER+/Her2+

Hi @WestieRuth 

We sound sooo similar!  I too had a bit of a Pinot Grigio habit but kinda went off wine in the summer so consumption levels have pretty much diminished to nil (nothing other than a couple of small V&Ts since Boxing Day!)  Husband already commented before diagnosis that he thought I was ill....the irony.

I'm approaching 54 in a few months....probably another birthday I'll miss (going to take up my daughter's suggestion of deduction a year for each birthday I miss)....so by that equation I'm actually only 51 lol 🙂

On the plus side, I'm down around 16lbs since Xmas...may be the alcohol free lifestyle or (more likely) the loss of any appetite from finding out the diagnosis.

Have now seen my Onco and starting TCHP imminently as PICC line in tomorrow - so hoping for a call from the chemo unit today to go over everything.  So looks likely I'll shed another stone or two (which I need to do but not really by this method!)

Was a bit disturbed that when onco did the caliper measurement for the HER2+ one on my left breast he estimated it at around 3-3.5cm x 3cm (originally told by breast surgeon consultant on 22 Dec that this one was measured at 10mm) so looks like it is a really fast growing one!  He also said may do my surgery halfway through chemo and then restart chemo afterwards.  So may have to go through all the initial issues of chemo again....ie 2nd hair loss, etc 😞 

I'm probably reading too much into this as I'm still awaiting my MRI results coming in (probably next week at the earliest).  If they do surgery halfway through, does this mean it's a really aggressive one....or just to reduce it sufficiently so BCS can still be done?  So many questions and not sure when I'll get to ask them...hoping my BCN may have some insight or the chemo nurses.

I'm also now thinking if it is a rapid growing and aggressive one, mx may be on the cards.

Like I say, probably running before I can walk but can't help but worry and 2nd guess everything.

How are you doing after your last chemo?  Hope not been too rough on you and good luck for your next cycle.  I'm preparing for all side effects but hoping they'll be as minimal as they can.

Take care my lovely and catch up soon xx

Sam xx

WestieRuth
Member

Re: Bilateral with ER+/Her2+

Hi crazy cat lady

My name is ruth 54 er positive her2 positive diagnosed december 2020 3.7cm x 2.0 cm in three level one lymph nodes im a nurse practioner so have looked into this because like you i dont like the fact that the beast is in me  Neoadjuvant chemo can kill between 70 to 85 % of the cancer including clearing lymph nodes luckily ive got bupa so mither them to death  ill be honest im scared xmas was crap because ive been blaming myself because of my weight pinot grigio addiction i also have PCOS 

started letrozole no side effects

Had two chemos one delayed due to reaction to taxol so changing it this week im at the Christie in MCR

Pls keep in touch 

Ruth x

 

 

 

 

 

Started on letrozole

 

 

 

 

 

dollymixture
Member

Re: Bilateral with ER+/Her2+

I’m am ER+/HER2+ and had chemo prior to my surgery. As far as I’m aware this is standard practise for a HER2+ diagnosis.

Evie-S
Community Champion

Re: Bilateral with ER+/Her2+

Hi CrazyCatLady - sorry you had a shock call today, though glad to hear you got negative gene test result. I’m HER- but when I went through chemo (about 4 years ago) 2 ladies I met on here were HER+ and they were having chemo first followed by surgery and radiotherapy. I also had chemo first, though that’s not really relevant to your question. Yours is a good question and one you should ask your oncologist, but I just wanted to reassure you that it doesn’t seem unusual to have chemo first.

If you haven’t already, do join the monthly chemo thread. You are right, there is a lot to take in, but just take it one day at a time and you will get through and out the other side. If I can help with any questions, please ask.

Sending hugs, Evie xx

CrazyCatLady
Member

Bilateral with ER+/Her2+

Mixed day today...got results from gene testing which were negative (phew!) so relieved that my daughter hasn't inherited any dodgy genes.  So was on a bit of a high for a while....but then I get call from the chemo referral unit booking me in to see oncologist to discuss treatment plan next week.  However I hadn't heard back about my final Her2 results as my BCN doesn't work on a Thursday....they did apologise but it was a bit of a shock.

So now it's going to be chemo first, followed by surgery, then rads/HT...but as my tumors are both relatively small at 10mm (ER+/PR-/Her2+) and 12mm (ER+/PR+/Her2-) hoping lumpectomies still the viable option.

My question really is, is chemo normally done first for Her2+ or is it that they may not have been able to get my surgery date in soon enough?  Guess I'll know more next Tuesday when I see the oncologist and hoping it's still the suggested 6 cycles with Herceptin from 4th one....so much to take in at the mo xx

Thank you for any advice you can give xx