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Change in diagnosis?

4 REPLIES 4
LunaMuna
Member

Re: Change in diagnosis?

I hope so.

Does anyone know if you can have a negative skin biopsy and still have Ibc?

Xx

 

 

pastasmissus
Member

Re: Change in diagnosis?

They may have mixed you up with someone else when dictating the letter. It happens sometimes. Try not to panic, and take the letter with you to your next appointment to clarify.

LunaMuna
Member

Re: Change in diagnosis?

Hi 

Yes have contacted my breast nurse who couldn't seem to offer any more information other than that it is not a T4c tumor as it is not in my chest wall or skin. So confused, I had only just come to terms with my diagnosis and now this.

 

Xx

pastasmissus
Member

Re: Change in diagnosis?

Contact them, they may have made a mistake. Hugs.

LunaMuna
Member

Change in diagnosis?

Hi all

I'm wondering if any of you lovely ladies can help?

I was diagnosed with stage 2 grade 3 dcis and idc (10mm tumor) with 2 possible lymph nodes. 

I am over halfway through my chemotherapy and am due to meet my surgeon next month. 

I was originally referred to breast clinic as I had what was believed to be a mastitis type infection. However, I was diagnosed with the above. A skin biopsy was taken and tested negative for any cancerous cells.

Yesterday, I received a copy of a letter from my oncologist to my surgeon. She states me as having inflammatory breast cancer and a T4c tumor.

Wow! You can imagine my shock as this has never been said before. I've spoken to my breast nurse who said that a T4c tumor would mean that cancer was present in the chest wall and my skin but it is in neither.

She wasn't able to say if it is a mistake or not.

I'm so sick already fromy chemo on Wednesday, I have 2 young children at home and I cant get my head around any of this. I feel dreadful and now I'm not able to sleep because of this letter.

Can anyone help or shed any light on this for me.

 

Xxx