66.5K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Diagnosed 3weeks ago but no further forward

16 REPLIES 16
KirstyC80
Member

Re: Diagnosed 3weeks ago but no further forward

I now have to wait for my surgery as there was not enough of the biopsy to determine... More waiting, I have been for 9 biopsy's in total, I am so mentally drained from all the tests and waiting 😞

I hope your results come through for you soon and it's the best news it can be in this rubbish situation we have found ourselves xx

Debi2
Member

Re: Diagnosed 3weeks ago but no further forward

I have just had my HER2 come back borderline, i will be waiting around a week for the results.  

Livelifetothefull
Member

Re: Diagnosed 3weeks ago but no further forward

Hi

My her2 took 3 weeks to come back- (think it’s usually 2) they had to do an extra test on it called Fish- I think that may have been because it was inconclusive.  So try to think positive- I know it’s hard- but it’s all we can do.

 

I had lump removed/ wide local excision- they took x5 lymph nodes- which makes me worried- just waiting for the results on the 27/3.

 

Good luck with your op on Thursday xx

KirstyC80
Member

Re: Diagnosed 3weeks ago but no further forward

Oh that is good news regarding the Her2 coming back negative, mine came back border so had to be sent off again, Have you heard of many people's coming back border? I'm worried about this 

 

I go for my operation Thursday, I'm having a lumpectomy with the sentinel node removal but unsure of how many are to be removed yet, I am told between 1 and 4, I would rather they took more so that I know it hasn't spread 

 

Hope you get the best results you can in this awful situation x

 

 

Livelifetothefull
Member

Re: Diagnosed 3weeks ago but no further forward

Hi, 

The waiting for results is definitely the worst part- but try to remain positive and only think about the negatives if you have to- why stress out - it may be good news.  That’s what I’m trying to do at the moment anyway.  I had my operation on the 12/3- wide local excision & x5 sentinel nodes removed (which is certainly worrying me).  My appointment is on 27/3 to find out the results and treatment plan.  I’m trying to stay positive- my her2 came back negative- which was good news. 

Good luck xx

 

KirstyC80
Member

Re: Diagnosed 3weeks ago but no further forward

Thank you Ann and thank you for all your response's x

ann-m
Community Champion

Re: Diagnosed 3weeks ago but no further forward

Hi Kirsty,

Love what you said about ‘being stressed in a calm way’ It does sum it up really! 

ann x

KirstyC80
Member

Re: Diagnosed 3weeks ago but no further forward

Thank you, I went for my 2nd USS today and had to have another 4 biopsy's so another 12 days of waiting for results, to say I'm stressed is an understatement but it's in a calm way which is quite bizarre

 

Thank you for responding it helps knowing I'm not alone (not that I want anyone to be going through this) 

 

I hope you get your treatment plan soon and everything is as positive it can be xx 

Maryah
Member

Re: Diagnosed 3weeks ago but no further forward

I am sorry your going through this, I agree it’s the waiting that is the worst. I was told on February 14th I had lobular cancer, and since then I’ve had a MRI, US, and contrast mammogram. I am waiting on appointment to get full results and treatment plan. So more waiting. Like you I’m stressing. Try to stay positive. ❤️

ann-m
Community Champion

Re: Diagnosed 3weeks ago but no further forward

Hi Kirsty,

It’s stress that does it & what you describe is common to most of us when first diagnosed. We are under stress & tense & become hypervigilant on any symptom we have. 

This stage does pass 

ann x

 

KirstyC80
Member

Re: Diagnosed 3weeks ago but no further forward

Wow, I bet that felt like you had to go through this agonising time twice! 

I am feeling Pains in my neck,arms and chest with headaches, im thinking is it spreading or is it stress... This waiting is horrendous xx

pastasmissus
Member

Re: Diagnosed 3weeks ago but no further forward

Yes, I had biopsy then mastectomy 2 weeks later with sentinel node biopsy.  Got the results from that 2 weeks later. Needed an MRI on the remaining breast. Had that 2 weeks later. Got called in a week later, needed U/S guided biopsy on remaining breast. Got results 2 weeks later, cancer in that breast as well. 4 weeks later another mastectomy with clearance of nodes on original side.

All the hanging about waiting for results isthe worst bit. I'm over halfway through chemo now, still have radio to come.

KirstyC80
Member

Re: Diagnosed 3weeks ago but no further forward

Hi, thank you for your response, its Just an awful time for us at the moment, I just want to know my diagnosis so I can get on with getting rid of it, I too will be on tamoxifin tablets for the next 10 years but I am still unsure on what surgery I am having and what treatment, I go for an US today as my MRI has shown up shadows on both breasts, if they say it's fine I will get my operation a week today, if they do a biopsy it's back to waiting another week for results, I'm praying that today is straight forward and they are confident it is just hormonal lumps Xx

 

Good luck with your operation next week, keep me updated xx

Mai7
Community Champion

Re: Diagnosed 3weeks ago but no further forward

Hi Kirsty, Sorry you find yourself here and welcome you to our lovely community.  I just want to echo what others have said.  The waiting is really hard but once the scans and tests are all complete the treatment plan will swing into action.  Don’t feel you have to be positive all of the time.  Being positive is better for your mental health if you can achieve it but it’s ok to have darker thoughts too.  I promise you will laugh again. It just hard to believe right now. Xxx

ann-m
Community Champion

Re: Diagnosed 3weeks ago but no further forward

Hi Kirsty,

It does seem an age when going through this, but what you describe is not unusual. Biopsy & scan results have to be read & reported on & generally take at least a week. Then other investigations can be ordered. 

The most important thing is they have all the information to get the right treatment plan for you. 

It’s horrible to go through it though, I remember it well!

ann x

Livelifetothefull
Member

Re: Diagnosed 3weeks ago but no further forward

Hi, 

Everyone seems to have a different story. 

I was told I had high suspicion of breast cancer after mammography / US & biopsy on 15/2  I originally found a lump in my armpit end of jan.  

I went back for the biopsy results 27/2 to be told I had stage 1 breast cancer in the left breast- it was a huge & scary shock. I had not thought much about the tests etc, as we have just had my dads funeral on 1/3.  So this is such a ———- year to say the least. 

Mon 11/3- I’m having a dye injected to show my lymph nodes in preparation for my operation on the 12/3.  I’m having a wide excision biopsy & removal of sentinental nodes. I will need 15-20 sessions radiotherapy- followed by Tamoxifen tablets. 

Im still awaiting my her2 test to come back, I’m praying it’s negative as I am scared of having chemo and it’s side effects. 

I’m not sure if different areas do different tests/ timeframes etc. But you would think they followed the same guidance/ protocols etc.  

My way of dealing with things is to keep busy/ not think about too much.  But once the kids & hubby in bed, I find myself reading up on lots of breast cancer facts/ sites. 

Good luck with your tests & stay positive- it’s all we can do. Xx

 

 

 

KirstyC80
Member

Diagnosed 3weeks ago but no further forward

HI All,

I'm 38 and was diagnosed with breast cancer 3weeks ago, after feeling like my world had just ended I managed to put things into perspective, I have tried to remain so positive but the longer the results take the less confident I feel. I had a biopsy on my lymph nodes and they came back clear but the results from my MRI did show up shadowed areas on the other breast but couldn't determine what they were so I now have to go for another ultrasound and if they want to do a biopsy I will have to wait another week 😥 has anyone else had this x