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Diagnosed last week

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Re: Diagnosed last week

Hi Rachel

I really feel for you, going through such a difficult time with COVID to boot. I would be highly surprised if  you didn’t feel completely overwhelmed at the moment and having difficulty sleeping. I’m sure a triple negative diagnosis wasn’t what you were hoping for but treatment has progressed so much for all types of BC and the outlook is very positive. Try not to Google, hard as it is (I was very guilty of this!). A lot of the stuff is out of date and doesn’t represent current thinking or treatments. I also had to have genetic testing for BRCA 1 and 2, as I have a family history. I was very concerned for my daughter. Fortunately it was negative but she will have to be monitored and have mammograms from age 40. I can’t speak for current times but my result came back quite quickly and the geneticist rang me before he sent the letter. I’m not a good sleeper and everything seems so much worse in the early hours of the morning. I found listening to the radio or watching stuff on my iPad helped me during the sleepless hours, using headphones so I didn’t disturb my husband. I often fell asleep with them in. 

As regards telling other people, just do what you feel comfortable with. I know some ladies who didn’t want anyone other than their close family to know they had been diagnosed and others who were happy to share with friends and colleagues. It is completely your decision. Be kind to yourself and allow yourself to feel like cr**p! I had meltdowns in the most stupid of places, once in Sainsburys when they had run out of my favourite biscuits! I just sobbed in the middle of the aisle and I’m sure people thought I’d gone mad! I was also sick of people telling me to ‘stay positive’ when I didn’t feel like it. A good cry can be very therapeutic. 
Glad you got some bras anyway. 
Please keep in touch, we have all been through the BC journey, in one way or another so can support you in rough times.
Love Francine xx

 

 

 

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Re: Diagnosed last week

Found out on Thursday that I am triple negative and I had the genetic blood tests on Friday which they have sent as urgent because of my family history, but the results won't be back before my lumpectomy, so still not 100% sure of my plan. Does anyone know how long they are taking to come back at the moment?

Feeling numb this week and seen a few people that we hadn't told and that was quite difficult. I am not sure how many people that I want to know and that it is an emotional rollercoaster still. I seem to be living from one appointment to another and then the phone calls from the GP's every time I get a letter from the hospital, so overwhelmed. 

I am not sleeping very well as my mind goes into overdrive when I wake up during the night, trying some relaxation techniques and waiting to see if they help.  

On a positive note managed to get a couple of bras for after the lumpectomy 🙂

Rachelx

 

 

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Member

Re: Diagnosed last week

Hi Francine,

Thank you I just feel overwhelmed at the moment, It is good to know that there is somewhere to vent. I have started to keep a diary so I can write down all my feelings and anxieties when I wake in the middle of the night and my mind goes into overdrive. 

I just seem to be in limbo at the moment waiting for the next thing to happen and that is what I am struggling with. I am trying to carry on as normal but I am not sure what that is at the moment. 

Thank you for the information about the bras I just felt that as a GG/H there was very little out there that were suitable. 

Rachel x

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Member

Re: Diagnosed last week

Hello, Sorry you find yourself in this situation, especially with covid making things harder. Just wanted to say I've had bc 3 times and never had an MRI. We are all different and your team will do whatever is needed for you. The nurses on here are really helpful if you want to talk to someone who knows all the reasons! It is all a big shock at this stage and I think it gets easier when you have all the results and know your treatment plan. Take care and good luck, Love Mo x 

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Member

Re: Diagnosed last week

Hi there.
Just thought I’d pop in and give you some ideas about the post surgery bras  I’m also a GG/H cup and found most of the soft bras didn’t go up to my cup size  In the end I found the Triumph Delicate bras were good  Make sure you get the Delicate one though and not the standard Doreen  They have large cup sizes and no underwire  The hospital will give you a softie after the op which I found best to pin in it with a couple of those small safety pins  I had three lumpectomies followed by a mastectomy, so quite a bit of stuff done  I also found the Bravissimo sports bras good. Sending you hugs  You will get through this horrid time in your life and you will find a strength you didn’t know you had. There is life on the other side and although you can’t imagine ever feeling ‘normal’ again, you will. This forum was a Godsend for me when I was diagnosed in 2015 and I still talk to some of the ladies I met on it. We all understand how you are feeling at the moment and you can vent at any time  

Love Francine x

 

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Community Champion
Community Champion

Re: Diagnosed last week

Hi, sorry you find yourself on here, get a notebook and write things down and your questions, it can help you keep track of everything you are being told ❤️ I used M&S zip front sports bra with racer back post up, do go couple sizes up I. E if you are 36 get 40 cup size was usual size that I got as had therapeutic mammoplasty on boob that had the bc. Genetic testing if you need to have it is easy and will give you further options if it comes back that you carry gene. One step at a time 👭 don’t try and process it all at once, come on here ask away, read the surgery, chemo and rads threads, use the ask the nurse, use the someone like me, most importantly do what you want to do ❤️ There are no right or wrongs it’s always your journey and you do what’s right for you ❤️💕💕Shi xx

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Member

Diagnosed last week

Hi,

Still trying to get my head around it all. my results are Double negative so far just waiting for the HER2 to come back, have a lumpectomy booked towards the end of August. I still feel as if I have no control at the moment. I am trying to find positive things to focus on but it was a shock as I have only had cysts in the past. Getting the diagnosis during Covid was hard as I was allowed in to the the surgeon and my husband was in the car and had to hear the results listening on the phone.  It was not easy to remember to ask questions as in total shock.

I have read that a lot of people have had a MRI as well as the mammogram and the biopsy, I haven't been offered this is that normal?

I have family history so have had to fill out the forms for genetic testing which will fast tracked if HER2 comes back negative as well. 

On a different note, I am a larger busted person (gg-h)  and struggling to find a suitable bra for post surgery any help would be greatly appreciated.