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Diagnosed this morning

Member

Re: Diagnosed this morning

Thanks Kip...it really helps being able to ‘talk’ with girls who have been through this x

Community Champion
Community Champion

Re: Diagnosed this morning

Yes indeed do as FairyDust says... your decision will make perfect sense to YOU and don't be swayed.

Member

Re: Diagnosed this morning

That was a big fear for me at the beginning. Once I'd research I decided it was what I wanted. I've had the left one done as well, out of choice after a bit of a battle. I was able to have immediate reconstruction, which made a difference to how I felt about it, with my own tummy fat (DIEP flap). I'm 5weeks post op. They look amazing considering and I seem to have a strange urge to flash them to various friends, female only, and they are amazed too.

 

All I would say is listen to what the proffesionals say, but do your research and ask questions on here. Between them, the ladies on here have been through everything. Drive your own journey and don't be rushed until you're happy with YOUR decision. Xxxxx

Community Champion
Community Champion

Re: Diagnosed this morning

Dear JaneBelinda,

Glad the MRI went ok, noisy isn't it, like a very weird fairground ride.   Fingers crossed for the results, those waiting periods are always the worst.  I have bone scan on Thursday prior to chemo but having had the same machine for another scan I know this is not a tunnel and no noises so can cope with that.   I had a masectomy on 16th May and can honestly tell you it was so much easier than I ever anticipated.   No pain, just a couple of paracetomol for a couple of days (more for a sore throat than anything).  The scar healed so quickly, had full arm movement back in couple of weeks, I didn't go for reconstruction though but still really happy and have already come to terms with one boob, with a prosthesis I cannot tell the difference.   You surgeon/BCN will help you through surgery decisions, just write down lots of questions, even if they seem silly, its important we understand everything.  

Take care

Kip

Member

Re: Diagnosed this morning

Just out of the MRI an hour ago. Feeling a bit tired but otherwise OK. Knickers held up well ladies, thanks. 

Now the long wait for the treatment plan on Friday: my fear is mastectomy I guess 😕 BUT I will be guided by my MDT. One step at a time!

Member

Re: Diagnosed this morning

Good luck for this afternoon, Jane Belinda. Don't forget your knickers😁! Xxx 💖

Member

Re: Diagnosed this morning

I definitely need a pair of those tough pants! Extra large!
Member

Re: Diagnosed this morning

Thank you Sally x

oh my...you have been through the mill a bit! All the best for your chemo xoxox

Member

Re: Diagnosed this morning

Janebelinda,

I had grade 2 Invasive lobular cancer which was 11cms, so pretty large. I was told that despite the name it doesn't normally spread far. I think the invasive bit is just because it spreads out of the cells it starts in. Mine was in some of my lymph nodes also which is why I need chemo to mop up any cancer cells that may have escaped and also because I can't have radiotherapy due to having had it when I had my previous cancer, Pagetts disease 12 years ago. I've had two lots of CT and bone scans (before my first and after my second is) and there is no spread to my bones or organs. I think the grading is primarily based on the ferocity of the cancer and size is secondary.

Invasive is just a name, not a prediction or certainty so please try not to stress too much over it.

Salky
Member

Re: Diagnosed this morning

Thanks Fairy Dust and Lady Bowler...That really does help me. Love you all xxx

Member

Re: Diagnosed this morning

Insensitive twit (or replace with stronger words as appropriate)!

 

My grade 2 invasive ductal was the piece that disappeared! The other invasive bit was bigger but grade 1. It was cut out as were the DCIS areas. Good things are possible! Do the best for yourself by eating healthily and exercising. When the gremlins hit I'd hit the gym and the pool. It helped me mentally and physically. Keep yourself well however you enjoy doing it. Xxx

Community Champion

Re: Diagnosed this morning

JaneBelinda

 

That is exactly the same diagnosis as me.  I was grade 1, invasive tubular, 17mm, hormone receptor positive.  I had surgery Oct 2016 followed by 20 sessions of radiotherapy which finished in Jan 2017 and I am now taking tamoxifen for 10 years.

 

It does sound scary and I do think that the consulltant could have phrased it better. When i was diagnosed my consultant told me that it was a rarer type of bc but very treatable and with a very good prognosis.

 

If you want to look at the link below it is from the main information page on here and hopefully will explain things a little better

 

https://www.breastcancercare.org.uk/information-support/facing-breast-cancer/diagnosed-breast-cancer...

 

Sending you hugs

 

Helena xxx

Member

Re: Diagnosed this morning

Thanks everyone. I got the letter sent to my GP. Grade 1 invasive tubular carcinoma. The word invasive scares the crap out of me 😕

 

And also...how come the size, 3cm, does not put it into grade 2? 

 

Letter also says, “I broke the bad news to Mrs Smith...” which I wish they hadn’t put. What’s wrong with just “the news”?

Member

Re: Diagnosed this morning

Link works 😄 ..and it brought it all back..I’d have been 16 or just 17 then 😳.

Amazing how the BBC could think to ban something that now seems so innocent,  - and with a bit of tweaking lyrics this could well be an upbeat rallying anthem for us all going through this..heh.

 

Fairy Dust, your post was the best, so reassuring, -  it made my morning, and JaneBelinda, take your knickers in with you on Monday. Will be rooting for you - in spades (bad pun) ... and willing you through.

 

Grateful hugs xxxx

 

Thistle 

 

 

Community Champion

Re: Diagnosed this morning

Fairy Dust

 

OMG i remember them now flipping heck, I was 13 then, thats right they did

 

🙂 🙂

xx

 

Member

Re: Diagnosed this morning

Unfortunately, Thistle, I'm old enough that I do. Apparently it was by St Cecelia and  to make us feel older it was 1971! The BBC banned it! The link (if it works) is to the Noel Edmonds Show in 1985 where it was played on TV for the first time and they still edited two verses out!

 

https://m.youtube.com/watch?v=fnb0Fn1_iDc

 

We're all here with you too. Hugs xxx

Member

Re: Diagnosed this morning

I remember you too, Mai and if I haven't already said it, thank you for being there. You're so right. I never intended to post on here. I'd only come in looking for information, survivors and good news. I know I really needed that at the time. What I got was amazing support and just feel I need to pay some of that forward now I'm in a better and stronger place. xxx

Community Champion

Re: Diagnosed this morning

Thistle

 

Oh dear I am afraid I have to confess to remembering that song in the 70's !!  Cant remember who sang it though, may be that is a blessing 🙂 🙂

 

Thats is the great thing about this forum, we come on here for help and reassurance, then as we go along our journey we are able to provide that to others coming on after us

 

Helena xxx

Community Champion

Re: Diagnosed this morning

Indeed, I do Mai ☺️!

I think we all cope differently with the shock & anxiety when first diagnosed.

I just went into a sort of denial really with ...’what?, cancer?, me?...are you mad?!’ going through my head.  

I remember just doing as I was told, trotting along to all the appointments in somewhat of a daze, & avoiding google like the plague😐

Anyway, we do come out the other side & maybe a bit wiser as well!

ann x

 

Community Champion

Re: Diagnosed this morning

Fairy Dust, glad you are finished on active treatment now.  I remember chatting with you when you first appeared on here all lost and scared, as we all do.  When I first appeared I was bouncing around all over the place looking for survivors with identical histology/oncotype.  (I'm sure Ladybowler and AnnM remember it?!) I needed hard facts goddammit!  I needed to see someone else could survive the same but the truth is we are all the same and we are all different too.  It takes time to realise that we all have a personal challenge. The journeys we take ourselves on....... Best wishes. Xxx

Member

Re: Diagnosed this morning

Ladies, you are great..

 

Just read these responses to JaneBelinda as I too am travelling, getting support from others and trying to give small reassurance with my own experience so far ..but still getting plagued by the anxiety gremlins especially in the dark small hours. I come on here for your lovely positiveness, it gears me up..

 

So grateful to read stuff like this and have wonderful mental pictures of knicker twirling ! Anyone remember “Leap up and down and wave your Knickers in the air? “...

 

Hope to make that my anthem too ...We all should! 

 

Thank you xxx

 

Thistle 

Community Champion

Re: Diagnosed this morning

Fairy Dust

 

Oh what a lovely ressuring post.

 

Belinda here you go your freshly laundered pair of tough pants, as Fair Dust says, the pockets are very deep so that we can all get in there with you to support you

 

Sending you hugs

 

Helena xxx

 

tough pants.jpg

Member

Re: Diagnosed this morning

Your start on this rollercoaster ride coincides with me getting off. I've had my op (double mastectomy, left profilactic by choice and immediate DIEP flap reconstruction) and have had my post op results today. I'm now about to get on the hormone therapy ride. I was were you are 6 months ago. I found you because I have just re read my first posts and can't believe how lost and scared I was and how the people on this forum , strangers who I have never met, have helped to carry me through all my meltdowns and rants, or how they've taken time, even through their own ordeals, to listen and impart their wisdom and whit. It will help. It won't take away the fear or the gremlins, but you won't feel alone, because you aren't. I've copied my most recent post below. If you come across Helena one of the community champions she'll let you have a pair of the (metaphorical) knickers I mentioned.

medium.jpeg

Here's a picture as I'm sure she wouldn't mind me sharing my pair. You wear them for your appointments and put us in the pockets for support, but be careful not to sit on us. Yes, some if us are a bit loopy, but it helps.

My post:

Well the big knickers did their job really well again today. As I walked into the consultants office I (honestly) metaphorically adjusted them and checked you were all tucked safely in the pockets. I took a deep breath and stepped inside to the best news I could have had and have had in the last 6 months. I hope you didn't all get too sick or dizzy as they came off and I swung them around my head in joy. Large area of DCIS (as I knew) removed. 2.5 cm IDC grade 1 (as I knew) removed. 1.8 cm grade 2 (as I knew) disappeared!! DISAPPEARED! Told my weight loss etc had helped with this. No more nodes involved so no more needing to be cleared. Low scores on Oncotype test so no chemo. Prescribed Anastrozole.

 

I've taken a while to post. I've gone from feeling elated to feeling guilty. I wanted share my good news with you all. We all need the good news. Then I struggled because after a false start, Feenix is still waiting for results - fingers crossed for knicker twirling ones, Sally and Jem are about to start/have started chemo and Gill's started rads- can't wait for all your knicker twirling moments when you're through it. I suddenly feel I've got off "lightly". Still trying to believe it really. I've restarted this post 3 times because of it.

 

Think I'll printout a picture of Helena's pants to remind me about all this, who I'm sharing it with and who has helped me get this far. Have just read my 1st posts on here (and they were my first on anything and I've not posted anywhere else ever). The wonderful ladies on here have carried me through all the rants and meltdowns. How can you feel so much gratitude and love for people you've never met? I'll keep checking on here waiting for each of your knicker twirling moments, but be careful I'll be in the pockets with you and I do get sea sick!! Xxxxxx

 

You won't believe it now, Jane Belinda, but you'll soon be looking back as I am now. Whatever you get dealt, remember good news is possible (says me who was still dreading the worst this morning). 

 

A good quote I found and is really true for us is " We don't know how strong we are until strong is the only choice we have. Keep strong Jane Belinda xxx

Community Champion

Re: Diagnosed this morning

Hi Jane Belinda.   Welcome to the forum and sorry you are here but it is an amazing place and amazing ladies.  This is the worst time and the waiting carousel unfortunately is a pain as never seems to stop but everybody has to do their jobs and it does take time.   I have been exactly where you are now and know 100% how you are feeling.  Once your plan is in place you will start and get your head around all of it and start the process/roller coaster whichever you wish to call it, mine is the latter..  Stay positive, easy to say I know and never thought I would be telling others to be this way.  My lump was found via routine mammogram then followed with ultra sound and biopsy.   The person who did my ultra sound both times was a DR hence probably the reason for them giving you some info, technicians woulnd't be allowed to I wouldn't think.   And as others have said not all mammograms pick up things,  thankfully mine did.  my motto is as recently read: "Go with the flow, trust the medical staff, and drift with it, because you will travel safer that way".  Not sure who quoted this but think it may have been on the Becca app but rang very true to myself.   Come back to this forum as you will find so much help and support from it  during the trip.   I am 8 weeks post op and start rads on Wednesday.  You will get through this and maybe come back to the recently diagnosed thread as I do and help someone else by giving just one little bit of advise or support.  No its not a nice place to be but it is doable believe me.  Try to keep in your head that this time next week you will have a plan.  Keep them anxiety gremlins at bay and tell them to do one.  Just one other little bit of advise, don't Dr Google, get info of here and the leaflets the hospital will give you.   take care 

Member

Re: Diagnosed this morning

Titanic?! 😂😂😂 I’d like to bring my own if I can.

Appointment came through for Monday afternoon. Then consultation next Friday. I guess this is where the stuff gets real... Thanks for your support xx

Community Champion
Community Champion

Re: Diagnosed this morning

JaneBelinda, if you mean the MRI, mine was on both breasts, and took about 30 minutes.  Very dignifed position lying face down with your boobies dangling through two holes!!  Painless, boring but fine, I had some lovely headphones on which the ladies talk to you through and also play music, some hospitals I think you can bring your own music.  The first piece they played to me was the theme to Titanic - not entirely uplifting.

Member

Re: Diagnosed this morning

Yes, I am. On both do they can be sure. Does it take 50 or 15 minutes? I was trying to take it all in yesterday and failing miserably x

Member

Re: Diagnosed this morning

She was very senior and also did the biopsies so I might be doing a disfavour in calling her a tech x

thanks for your kind words it is all very reassuring x

Community Champion
Community Champion

Re: Diagnosed this morning

Hi JaneBelinda,  I was diagnosed on 11 April, I had found a lump, referred to hosptial where i had a mammogram followed by an ultrasound and a biopsy.  The chap doing my ultrasound said it looked "suspsicious" which freaked me out, wish he had said nothing but they are doing their job I guess.  The diagnosis came from the biopsy results and mine was 3cm too but I was assured it was treatable and that I would be ok.  As the other ladies have said you have to trust your medical team.  I was in a terrible state in the initial few weeks, I had to wait for an MRI scan (which is completely fine, you just have to lie very still and think of England!!) this then showed an exact picture of the lump and any other areas of concern.   Although it doesn't seem like it at the moment, things do improve, you get to understand what is happening and what the next steps are.  I have had surgery and am now awaiting a treatment plan and am feeling much better in myself.  Its two weeks post surgery, and I am back at work and driving again.  This forum is wonderful for letting of steam, and there is always someone who will offer advise and support.  We are all in this together and will be ready with a shoulder to cry on and a joke to see you through.   Keep on here and take lots of care, Kip xxx

Community Champion

Re: Diagnosed this morning

Presumably you are having a breast mri, Jane & yes, it will be more detailed & can detect any issues that the mammo might have missed. I had a breast mri as the biopsy suggested I had lobular as well as ductal bc. Lobular bc does not usually show up in mammos. Many of us have had mris here. I found waiting for the mri to be the most stressful part of the whole process, but in the end I was glad it was done as I then knew everything was done to get the diagnosis correct to get it dealt with.
As ever, it is the uncertainty when waiting & the mind going into overdrive to fill in the gaps, which is so hard to handle at this stage.
I am surprised the technician said what they did, s/he might have thought they were trying to be reassuring, but I would have thought it was not their role to comment, really.
ann x
Member

Re: Diagnosed this morning

Hi

it was on the ultrasound that the technician (?) told me it was not cancer, that it was more likely a breast within a breast. 

I am so worried that this appears to be an unusual tumour. That’s what the consultant said yesterday too. I can’t think straight

Member

Re: Diagnosed this morning

Thanks. And yes the waiting is awful. I have to have MRI first and then I guess the diagnosis can be more detailed?

Member

Re: Diagnosed this morning

Mine didn't show on mammogram either, it won't pick up everything unfortunately but as you've had this lump for so long had it always been cancerous it would have manifested its self in another way long before now I'm sure so it's not likely to have been so all along. 

My cancer was actually growing on the side of a fibrodenama which is a harmless lump that had likely been there years and it was only recently the cancer had started to form. 

 

This stage is utterly terrifying and i don't think ive ever felt so distraught and hopeless in my life but this passes and your fight and determination will return. I know it seems impossible now but you don't stay in this hideous faze for long thank goodness, at some point our body takes over and snaps us back to reality. 

 

Ive just marked my 3rd year all clear and back then I never imagined this was possible, just deal with one appointment at a time, no sense going over the if onlys, you can only deal with the facts you have now. 

 

Xx Jo 

Community Champion

Re: Diagnosed this morning

Hi Jane,
Sometimes mammos don’t show bc changes, they’re not a 100%, so it is the biopsy which confirms whether it is bc or not. Sometimes they can have an idea beforehand if it’s bc, but not always. Thank goodness the biopsy was done to make sure.
It’s horrible going through this stage though, the mind is all over the place with the anxiety of it all, we’ve all been there...but, it does settle & get better.
Although it is easier said than done, it can help to just try to concentrate on the next appointment & try not to let the mind go into overdrive with the ‘what ifs.’ It will get sorted out.
Do what you need to do about work & be as selfish as you need to be. You have had an awful shock & it takes time to get your head around it, let alone go through treatment & recover afterwards.
I had enough sick leave, so I took it. My job involves dealing with vulnerable people & I was not in a position where I felt could concentrate or do my best, so I took the time off.
Do take care & do what you need to get through.
ann x


Member

Re: Diagnosed this morning

No it wasn’t. I’ve had it for as long as I can remember and assume it was my make up. Nothing has ever showed on mammogram, only on ultrasound and even them, the specialist said “I am pretty sure this is a breast within a breast but I wouldn’t be doing my job if I didn’t perform a biopsy on it.”

 

i was told to go on holiday and not worry. That it was nothing. And now this! My concern is that they were so sure before it wasn’t...and now it is. I am told it’s curable today...but after the MRI scan what if they are wrong about that too! Absolutely terrified. I just feel sick too. 

Member

Re: Diagnosed this morning

Thanks Ann-m.  I am finding it hard to cope with right now though. And I have a very demanding job with lots of pressure. I am just terrified. 

Member

Re: Diagnosed this morning

Hi, a diagnosis is a huge shock and it's natural to feel like a bomb has just gone off in your otherwise happy life, its a scary time and one we can all completely relate too.

 

They are generally hugely positive about treating breast cancer because there is no reason not to be, to us this is massive but to your medical team it's just another day in the office and they know exactly what they are doing, you will learn to have faith in them. 

 

You say you have had this lump for years, was it ever checked out before? I'm just curious and the important thing now is it's going to be dealt with and you will find yourself getting through each stage and gaining confidence, we will be here to off load to whenever you need Xx Jo 

 

Community Champion

Re: Diagnosed this morning

Hi Jane,

There’s loads of support here, so do come back & ask anything or to chat or vent.

Yes, if they’ve told you it’s treatable & curable, then go with that, they wouldn’t say it otherwise & there’s every reason to be positive. You will come through this, we all do. 

Thankfully, It will now be dealt with & the outcomes for bc treatment are excellent now. 

The early days are the worst as it is all such a shock, but it does get better when your treatment plan is confirmed & you know where you’re going with it all. 

ann x

Member

Re: Diagnosed this morning

Thanks so much for taking time to respond Bellasmum. I am reeling yes x

Member

Re: Diagnosed this morning

Hi JaneBelinda

 

I had a cancer like you that was small and yes it is treatable. I am 4 weeks post surgery and luckily it has been caught early. 3cm is small. they can do so much with regards treatment. You will have a lot of tests during the process and it will most probably mean surgery. As mine had not spread and was contained I will need radiotherapy in a few weeks time. 

You will reel from the shock and that is entirely normal. There were days when I could not concentrate, was upset, tired and emotional. You will get through it. Use this forum as it is brilliant for asking questions, gaining more information or for just having a good old rant and a whinge. 

 

Good luck x

Member

Re: Diagnosed this morning

Thanks for the reassurance. I guess I’m in shock really

Member

Re: Diagnosed this morning

3cm is pretty small. Also, it may not have been cancerous all the time you had it. I had an 11cm cancer which I had for getting on for two years before I was diagnosed. If they tell you they can deal with it believe them! They know. The vast majority of people diagnosed are successfully treated.

Good luck.

Sally
Member

Diagnosed this morning

I have been told it’s treatable and curable but how can they be sure this early? Mammograms, ultrasounds and biopsies. I had this lump for so many years I assumed it was just normal. Now told I have a small cancer. 3cm doesn’t sound small to me. Reeling from shock...