Hi Magsta, sorry to hear you have found yourself here, I was diagnosed about4 weeks ago, so far been told it's Grade 1 ductal 33mm with some other small spots in same breast, ultrasound showed no lymph involvement. I was only given the option of a mastectomy but then had to decide whether to reconstruct or not. It's a tough decision to make and one that only you can make. I found my BCN helpful, she showed me photos of ladies who had all types of surgery, prothesis, bras etc and I was also lucky to know ladies who are both living with one breast flat and one who had double recon from with expander implants. Both are equally happy, one 2 years post diagnosis and the other 10 years. I am not reconstructing, it still will be an option in the future tho. I think you will know what your choice will be deep down, you must do what feels right for you, ask lots of questions. My surgery I on 16th may so I'll pop back and let you know how I get on. I'm totally scared and don't know what treatment awaits me, still haven't had Her2 result but it is er+. We have a thread May surgery and quite a few ladies already had ops and reconstructions and all doing well, perhaps have a read? Now going to kick my morning gremlins into touch, I hate mornings but find a quick visit on here perks me up and stops me feeling alone. Sending hugs Kip
Hi Magsda, I had a Dexa scan to get a base reading before I started taking Letrozole. Letrozole thins bones. The scan was very easy and painless. Just lay flat and the machine passes over. As I had lymph node involvement the decision was taken to also irradiate the lymph nodes on the sub clavicle. This meant the radiotherapy sessions were slightly longer. First the breast was irradiated, then the machine was repositioned for the sub clavicle. As the skin is quite delicate there was some redness caused. The unit provided a range of skin care products which worked wonderfully. Please let the rads team know of any problems immediately so it can be nipped in the bud. I welcomed the rads as it meant my treatment was nearly over and the bell was in sight. Much easier than chemo. Good luck to everyone still on their journey. XY
Told just over a week ago I have her 2postive. Totally scared, trying to be very positive . On letrozole, staring herceptin within two weeks. Trying to get through the fear every day .going on bike rides to challenge my strength.
I think the bone scan to tthat which Magsta is having, you are right he one you had for bone density which is a Dexa scan to check bone desity as you say because we are on hormone tablets. This should be repeated every 2 years. My oncologist is booking me in for another in July this year so that he can check against the first one how I am doing.
Magsta it is frightening to read the reacurrance stories but there are many more ladies who come through the forum then move on never to return once they are treated , the success stories are out there it's just they don't post about them. I was equally terrified in the early days but the more knowledge you gain the less frightening things seem honestly.
Im in touch on Facebook with a group of a dozen ladies who were diagnosed around the same time as me, we all used this forum but now it's only 2 of us that do but the others are doing great 3 years on they just don't feel the need to be on here anymore.
I lost my mum to breast cancer but I don't live in fear of going the same way, I know she didn't give hereself a chance as she didn't get help soon enough and by that I mean about 5 years too late sadly, I didn't understand the implications at the time but I do now and had she sought help in the beginning she would likely still be with us. Treatment is good and for the most part successful.
The risk of reacurrance after a mastectomy is quite low as pretty much all the breast tissue has been removed but it can happen.We can't tell you for certain that it won't but it's less likely.
Try and stay stay away from the secondary threads as they will only increase your anxiety , there are so many success stories amongst the forum but it's all too easy to focus on the negatives, there were times I had to log off as it used to fuel my worries but you get stronger and your confidence returns.
Hi Magsta, just to reinforce what everyone else has been saying, that these whirling emotions are quite normal. Your mind is trying to a process life changing disease. When you cannot see the future it is understandably confusing and frightening. I found journaling a way of getting rid of some of my anxieties in the early days while I was waiting for appointments etc. I had a small notebook in which I could rant and rave and note my worst nightmares. Also jot down questions to ask the medical lot. I didn't find my GP service either accessible or helpful. I did find my way to the local Maggies centre who have been invaluable on my journey. I was also very fortunate in that I could relate to all my specialists on this journey. Each and every one being supportive and respectful of my wishes and needs. I hope your team is as wonderful. Good luck on this journey. Use those big girl knickers. Helen does launder them between use! X
Hi Magsta, it's very normal to feel like this, putting yourself in a bubble to cope. Just allow yourself time to work through the emotions. The anxiety can make you feel quite ill early on. Once your treatment plan is in place it gets a bit easier. We've all been right where you are now and got through it and so can you. Sending hugs. Xx
Magsta we all completely understand what you are going through right now, it's brutal but believe us when we say it does get easier, your body is on high alert at the moment with anxiety coursing through you, I had never felt so ill in my life as I did in those first few weeks of diagnosis and could not see any end to it.
The first time I felt any sort of peace was the day I got the results after my lumpectomy, my husband had literally dragged me through the hospital corridors to my appointment with me raging at him for making me go as I had wanted to stay in bed and pretend it wasn't happening! That moment being told what they had found and what they were now going to do was a real turning point, that was it no more nasty surprise I knew exactly what was happening from then on, we can cope with facts it's the uncertainty that does us in.
This is the very worst time, it will get easier and you will cope Xx Jo
Sunflower I meant a 2 and 4 week wait for results, yes they do 2 pictures both sides infact I had an extra one as she got my fingers in one of them as i was holding my other boob back whilst leaning forward! Xx
Thanks Sunflower 😊 Results within 2 weeks although I mentioned they took 4 last year so she put on my notes to make sure that didn't happen again!!
We shall see 🤔 Xx
It will get better Magsta, I was exactly the same and couldn't see how I would ever find the strength to cope but you do, I've just this minute come out of the breast clinic after having my 3rd year mammogram and it doesn't evoke the heart stopping fear to be there any more, accept that this is all part of the process and don't try to fight it , you will feel better it just takes a bit of time to accept what's happening Xx Jo
Hi Magsta74, sorry you find yourself here but you are in good hands with lots of lovely ladies who have had the same misfortune. I'm also hormone positive so I'm on Tamoxifen now after having chemo, surgery and radiotherapy. I get a bit of stiffness and aches from it but I can tolerate it. It's over a year since my diagnosis and life is feeling good again. Your emotions are normal, all of them so don't feel that you are abnormal or overreacting in any way. Don't feel guilty about your BC. It's normal to feel guilty, I felt guilty about the emotional burden I was putting on everyone but once everyone has got over the initial shock they all swing into action and help you. Here's my story which I hope helps you: http://lifeafterlola.blogspot.co.uk/ I was locally advanced with lymph node involvement and have come through the other side. Sendng hugs. Xxx
Hi Magsta, Hormone blockers don't necessarily cause menopausal symptoms, I had a few flushes but my periods remained regular as clock work unfortunately, try not to worry about them as we all cope differently and although there is a huge list of possible side effects you are not going to get them all.
My lump was found by an eagle eyed radiographer while I was having another one checked out, the one I went about turned out to be harmless but the one I couldn't feel and had no idea was there turned out to be cancer, it did give me shivers for a while to think it could have been missed but that soon turned in to a huge relief that it was picked up and could be treated.
Its natural to over think everything at this stage but try to deal with one step at a time, it's easier on our poor brains that way! Xx Jo
Well the way to look on it that they are being very thorough and you will have a treatment plan specifically for you once the scan results come back. Oestrogen positive means you will be on a hormone blocking tablet for 5 years or perhaps longer, it depends what your oncologist says.
I know it is easy to let your mind run away, every ache and pain makes you think it has spread, that is totally natural and we have all been there, One of the big things to hold on to is that they have said it is small and slow growing, that is really good.
At my hospital they do not talk about staging, mine was tubular, grade 1, caught early and slow growing, oestrogen positive, no lymph node involvement.
Mine was found as a result of a 3 yearly routine mammogram, I did not have a clue, there was no lump nothing. It did take two sets of biopsies for them to diagnose it as the first set were inconclusive and they did not want to send me away for another 3 years not being sure that it was cancer or not
That is totally understandable but you will get through this honestly.
You dont say what your diagnosis is, are you happy to share that with us, it might then allow ladies with a similar diagnosis to give you the support and comfort.
When i was diagnosed I called my tumour Mr Blobby and told everyone he was soon going to be out of my body, it helped me in the early days of diagnosis to focus on that.
One thing I would say is to try not to think too far ahead, set yourself small milestones as they are achievable, I did mine as op, results, radiotherapy, it is amazing how when you do this it helps with the anxiety, after all what you dont know about you can not do anything about, better focus your energy on what you do know and can deal with.
Sending you a pair of the tough pants we "virtually" give ladies who are struggling, hope that they might make you laugh, the pockets are deep so that we can all climb in and support you.
Sending you hugs
Hello and welcome to the forum, not a place you want to be however you are in a lovely safe place with loads of ladies who will give you loads of help and support.
This is the worst time as you are trying to take in what they have told you and waiting for further investigations, but it will get better once you have your treatment plan in place, you will know what is going to happen and when.
You are absolutely not a coward, simply a very scared lady who is trying to deal with being told they have bc. The way you are feeling the dread is normal. Have you thought about speaking with your GP to see if there is something they can do to help you through this.
I remember that feeling very well when I was diagnosed in September 2016. It is 16 months since I finished active treatment and life is back to normal, I will be celebrating my 60th birthday very shortly, something which I was scared I would not see when I was first diagnosed.
Just keep coming on here, there will always be someone on here who will be able to help you.
Sending you hugs
Hi MrsS, you sound as though you are managing, but as Helena says, we are here when you want to rant and rave if or when the calm before the storm ends. I was diagnosed as grade 3 , stage 2 , Er+ With LN involvement in January last year. In fact one year ago next week I started chemo, and here I still am! 🤗. Not an easy journey, but doable . As my tumour was oestrogen driven I am now on an aromatise inhibitor for the forseeable future. My Onco is fabulous and assures me he has a full bag of tricks , and that I should treat this as a chronic illness. Once you are on, or in, the NHS conveyor belt you will feel much better. Action is positive and means you are on your journey. We are all here to help you over the finishing line. Good luck. X
Hi Mrs S, sorry you find yourself here but you will get excellent support from the lovely ladies here. As Ladybowler says, the waiting is the worst bit and your mind can run away with you at times. I had the book thrown at me treatment-wise and here I am a year on and glad to be able to help you get through the same. Here is my story which I hope helps a bit. http://lifeafterlola.blogspot.co.uk/
I think it helps when we realise our feelings are universal when we feel so isolated and we find it hard to relate to those around us. Best wishes to you. Xxx