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Diagnosis 5 days ago

39 REPLIES 39
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Re: Diagnosis 5 days ago

Xxx , it's so hard , emotions are difficult to deal with at the best of times but when this is all going on then it's harder !

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Re: Diagnosis 5 days ago

Hi,

Ive been on anti depressants for a few years now and won't be coming off them anytime soon I don't think.  xx

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Re: Diagnosis 5 days ago

Spoiler
Ps I am going braless too as since my op all my bras are very uncomfortable !
Think my next bit of surgery will be postponed which is very understandable at the moment ! It's not urgent so can wait for as long as needed 

stay safe x
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Re: Diagnosis 5 days ago

It all takes time, speak to your nurse or oncologist! I was very emotional throughout and really only now getting a better ! I am anti depressants though. I wanted to come off them but the consultant said to stay on them for a while !

glad you are logging on here though and chatting , that all helps xxx 

big hugxx

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Re: Diagnosis 5 days ago

Hi,

Yes Im moisturising like mad! And going braless when I can which is most of the time now.

Emotions are a bit all over the place, either feeling energised or totally knackered, trying to find that balance. xx

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Re: Diagnosis 5 days ago

Hi there ,

yes I am fine thanks , just all a bit scary ! Even though I haven't received a text to say I should stay in , I am not going far ! 
You will certainly be glad when the roads are finished ! I expect you are tired , just take things easy xxx Are you putting on cream , that will help prevent any blistering xx

big virtual hugs 

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Re: Diagnosis 5 days ago

Hi there,

Just wondering how you are doing after your treatment, are you recovering well? Its especially difficult at this time with the Coronavirus isn't it but we need to stay safe and look after ourselves.

I'm nearly at the end of my rads, two more to go, so will be pleased when I don't have to do daily hospital visits. Starting to look abit red in that area but its not been too bad.

Take care xx

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Re: Diagnosis 5 days ago

Hi 

That is fantastic news xx you must be so relieved x 

I am doing well , just recovery still xxx

lots of love xxx

 

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Re: Diagnosis 5 days ago

Hi Philippa,

Good news at the hospital yesterday, lymph nodes and margins clear and wounds healing nicely, I feel so relieved as I was getting in a real state. I have an app on Wed to plan radiotherapy and hormone therapy. I feel very lucky that my cancer was grade 1 and detected early and so the prognosis is very good, there are lots of ladies who have gone through and are going through so much worse, you included.

I do hope you are doing ok. Tx

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Re: Diagnosis 5 days ago

Hi 

hope it all goes well x

i am ok , just after effects of the radiotherapy etc etc 

Good luck

Philippa x 

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Re: Diagnosis 5 days ago

Hi Pjf0265,

I have my post op app later today so hoping pathology results will be ok. 

I do feel a lot better in as far as body aches and pains go but struggling abit emotionally.

Hope you are doing ok.

Tx

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Re: Diagnosis 5 days ago

Hi ,

Just wondered how you are doing ? Hope it's not too horrendous a journey for you !

sending big hug x

 

 

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Re: Diagnosis 5 days ago

Hi ,

Just wondered how you are doing ? Hope it's not too horrendous a journey for you !

sending big hug x

 

 

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Re: Diagnosis 5 days ago

Hi,

Thankyou for sharing that, I have been told mine is grade 1 so I think the prognosis is very good.  I am glad that things are ok for you though, you must have had a tough time but having support from family and friends is so important, I also have lots of support, apart from my dear mum who passed away a few months ago.

Thank you for your support, means alot, take care and its good to know I can message you xx

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Re: Diagnosis 5 days ago

Yes unfortunately it was , they thought the tumour was  about 14mm but turned out to be 60mm . They couldn't get clear margins the first time round so I had to have another lumpectomy two weeks after the first then because they couldn't get clear margins again I had to have a mastectomy! I decided on reconstruction at the same time ! I then had 15 treatments of radiotherapy over a month which finished at the end of July 2019 ! 
My cancer was Grade 2 invasive lobular cancer which they have thankfully sorted for me ! The oncologist said we can't say cured but clear for now ! 
It was tough but I had brilliant care and the support from my family and friends was amazing and helped me through it ! 
Please message me at any time , private message on here if it's easier for you xx

will be thinking of you and hope that you don't have to endure too many operations x

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Re: Diagnosis 5 days ago

Hi,

Thank you for your reply so quickly, I appreciate that. Yes, that is what I am having the radiation dye the day before. Was your tumour bigger than 5mm?

Are you having radiotherapy yet and how are you recovering, I hope things are ok after your second surgery.

Sending hugs xx

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Re: Diagnosis 5 days ago

Hi there 

So sorry to hear about your diagnosis ! Yes that is exactly what happened to me ! The day before surgery I had a radiation injection which puts blue dye in to show up the lymph nodes ! I had three taken which included the sentinel node as well as the lumpectomy ! I was lucky that my lymph nodes were not affected but the tumour was bigger than they thought so had to have further surgery ! 
I hope this helps x 

sending you lots of love and a virtual hug and hope all is sorted quickly for you xxx

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Re: Diagnosis 5 days ago

Hi there,

I've just seen your post and wanted to get in contact.  I was diagnosed with tubular breast cancer 5mm on the 18th Dec, I am due for surgery on the 16th Jan and am starting to feel quite anxious about it.  I am having a lumpectomy and then radiotherapy but during surgery my lymph nodes will be looked at to see if there is anything suspicious there, is that what happened with you?  I cant feel any lumps and nothing was picked up on my recent mammogram but I am still worrying.  I'm really trying to keep positive but still trying to get my head round it all.

I hope to hear from you and I hope you are doing well after your surgery x

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Re: Diagnosis 5 days ago

Hi again Nicky ,

Yes I had mastectomy with tram flap reconstruction straight away ! It would have been diep flap but due to my blood vessels being too small they had to take muscle and fat whereas the diep spares the muscle ! For that reason I do have a slight droop on one side of my abdomen but hey that's a small price to pay ! 
big hugs to you also xxxx

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Re: Diagnosis 5 days ago

Hi Phillipa 

 

i was told Lumpectomy then mastectomy it is what it is I am fearful but positive if that makes sense and yes I remember you telling me this you poor thing Did you have a D flap reconstruction straight after I’m sorry if you have already told me my heads like fog most days.

 I’m sorry you got an infection I hope the antibiotics sort it out so you are alright for the arrival of the man in red next week 🎅

rest up and lots of water to flush it out .... hugs 🤗 Nicky xx

 

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Re: Diagnosis 5 days ago

Hi Nicky , Oh my , that is hard - that's what I had as you know except it took doing the two lumpectomies first as didn't know until they went in that couldn't get the clear margins ! Fingers are crossed for you xx 

 Unfortunately I have an infection but antibiotics are beginning to sort it I think !

Try and enjoy Christmas xxx and big hugs from Devon x

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Re: Diagnosis 5 days ago

Hi Phillipa 

 

not been on here as had to get my head around a few things as everything’s changed I’m not having a lumpectomy now it’s mastectomy with diep flap reconstruction as mri shows more cells 😌 but hey I’m back on form a bit & getting positive kept busy up & down hospital appointments & Christmas shopping.

hope you are feeling better & you rested following your procedure.

big hugs from London 🤗🤗

Nicky xx

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Re: Diagnosis 5 days ago

Hi there 

you are not alone being on here helped me heaps & you had the lumpectomy pretty soon after diagnosis that’s good to get things started less time to sit around over thinking as that’s what this horrible C word does to us & sleepless nights etc I wish you all the best in your continuing treatment.

 I’m still waiting for a date to start things have changed for me following the MRI as more cells found so I’ve not coped to well lots of fears & meltdowns as I now have to have a mastectomy and diep flap  reconstruction 10 hours operation but I’ve now got my big girl pants on again & thinking positive girl powers .... it’s Christmas we have to stick our tongue out to this C word & do Christmas I’m hoping to get a date for surgery once I’ve had CT of my belly in ready for them to remove tissues for new boob ..... keep strong big hugs .... Nicky xx

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Re: Diagnosis 5 days ago

You are very welcome to private message me if you would like xxx 

My name is PHILIPPA x

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Re: Diagnosis 5 days ago

Aha! Finally made contact with another woman! 

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Re: Diagnosis 5 days ago

It's horrible isn't it , i was diagnosed in January , three operations ,the last one being a mastectomy with reconstruction ! The fourth operation I had on Friday was some repairs to do with my hysterectomy that I had over a year ago ! That bit of it went well but the gynaecologist removed some lesions and that has resulted in an infection where I had the stitches ! 
Regarding  the breast cancer, that has been sorted with the operations and radiotherapy-The oncologist said they can't say cured  but can say clear for now ! 
I hope that you are sorted as quickly as possible ! This forum has been a godsend to me x 

sending a big hug and keep in touch xx

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Re: Diagnosis 5 days ago

You are not alone. I was diagnosed on the 5th of Nov, and have had a lumpectomy, but now need more nymph lodes removed and Chemo. Desperate to know that I, too, am not alone

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Re: Diagnosis 5 days ago

Hi again, 

sorry for not contacting you on Wednesday , how did it all go ? i have been thinking about you x lots going on hear ! Since the gynae op a week ago I now have an infection and on antibiotics! I expect it's due to being a bit run down !
oh well onwards and upwards , just got to get on with things !
sending  virtual hug and hope you have a lovely Christmas despite all that's going on x

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Re: Diagnosis 5 days ago

Thanks xxx you will be brave too , it's amazing where the strength comes from although believe me I haven't been brave all the time xx

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Re: Diagnosis 5 days ago

Aww totally understand that January is a reminder month of 2019 for you but hey this time it’s so different coz you have been through the worst brave lady 💓💓💓

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Re: Diagnosis 5 days ago

Ahhh hi that's so kind to ask xx it all went well and came home same day X feeling tired but not sore , just stings really ! 
See someone in three weeks which unfortunately is at the time I was diagnosed in January so don't really want to be in the hospital then but hey ! I will be strong xxx

how are you doing ? 

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Re: Diagnosis 5 days ago

Hey Phillipa 

how did it go today I was thinking about you 💓 I do hope you’re tucked up & not feeling to sore rest up xx

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Re: Diagnosis 5 days ago

Phillipa 

you are amazing and strong & I do hope that pain eases for you 🤗🤗

I chose the name pinky (as it’s the breast cancer colour & fleur is my middle name) my name is Nicky I live in East Barnet North London.

MRI day tomorrow not to sure what that’s for I kinda blocked my ears last week seeing the consultant it’s all a blur 🤔 I have inboxed you xxx

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Re: Diagnosis 5 days ago

Hi pinkyfleur ( wish I knew your real name ) 

my goodness, you are going through it ! It's horrible all the waiting but they sound like they are on top of it which is good news ! Yes it doesn't stop the worrying , I still worry now ! Please message me your name and location , would be good to visualise where you are ! i am glad they have said it's treatable, that's what they said to me !  Your emotions are very understandable and I felt lonely too , still have moments now and active treatment has finished ! 
I saw the consultant today re my reconstruction and he was really pleased , he said that he can reconstruct my nipple soon which is good news ! The pain I am getting around the sides of my new breast he said is due to the radiotherapy as they had to zap quite close to the chest wall ! He said it would probably not go away but it's manageable at the moment ! I will talk to my oncologist if it gets any worse ! 
sending you big hugs and glad I have been some help xxx You will get through this but it will take time but I am here for you to message me anytime xx

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Re: Diagnosis 5 days ago

Hi Phillipa 

I have not been on here my whole world seems to have turned upside down since I saw the consultant I have Ductal carcinoma in the left breast it’s fed off oestrogen like yours & likes to spread I have another lump with abnormal cells which is not cancer yet but will turn into cancer so one lump is situated at 11 o’clock the other at 6oclock  I have had blood taken & got an MRI on Wednesday to check the area that freaks me out coz I’m just petrified it’s gone elsewhere so on the 18th I’m back at hospital for them results and should be given a date for surgery the consultant has said this will be after surgery he also said it’s treatable it’s a relief to hear but does not stop the worrying and anxiety side of things I have had lots of meltdowns I just fear the worst my head is all over the place but I am and will put my big girls knickers on and kick this and be brave just like you. 
I’m told it’s going to be mastectomy as how far apart the lumps are and Reconstruction straight after using tummy tissue.

the op should be straight after Xmas I have never wanted to get on an operating table so fast . Family are fabulous support a few close friends know but it still feels so lonely . How are you doing? Is your treatment finished.... I really really from the bottom of my heart thank you 🙏 for being the one that replied to my frantic post a few weeks ago & I do hope that you will guide me through this Xx coz your a fighter too 🥰

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Re: Diagnosis 5 days ago

How are you and how did the appointment go? 
Been  thinking of you ! 
Sending a big hug from Devon xx

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Re: Diagnosis 5 days ago

Of course you can private message me anytime x I apologise if you dont get a quick response as don't always get to my iPad until the evenings ! 
I was told by my oncologist that we can't say all clear as they can never tell whether it will come back which is the frightening thing ! I had something called an oncotype test where part of my tumour was sent of to America to test to see whether I would need chemotherapy and what likelihood of recurrence there was ! I was lucky in that I didn't need chemo and came back as saying only 7% of recurrence !! Let's hope that is accurate!!

i had an amazing support team xx

Big  hugs  and fingers crossed for Wednesday . I will be thinking of you xxx

 

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Re: Diagnosis 5 days ago

Aww thank you Phillipa for your kind words I am finding comfort being on here & reading all you brave ladies story’s and journeys I am not going to lie I’m frightened I sit here and just want to start treatment now I’m scared there maybe a waiting list I will know what I’m dealing with on Wednesday I have positive thoughts & weak moments too.

I take my hat off to you for your bravery what an amazing lady you are I hope you had a wonderful support team behind you i have heard the radiotherapy will make me tired. If you don’t mind I’d really like to private message you once I know my plan of treatment I think you will help me through this. I’m too sorry to read of all you have been through but wow you are almost there & have you been given the all clear now I hope you have 🙏 big hug 🤗 & thank you Xxx

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Re: Diagnosis 5 days ago

Hi ,

I am so sorry to hear about your diagnosis. All your feelings are very normal, I went through the same in January. I think the first few weeks are the most worrying when your consultant is determining your treatment. My journey began in December last year just before Christmas ! I had found a lump near my nipple . Went to the doc and was fast tracked to the hospital - saw a consultant about four days later ! Nothing showed on the mammogram and the ultrasound but she did a biopsy! She was 99% sure she would be writing to me to say all was ok but I had a call from the hospital on New Year's Eve asking me to come in on the 2nd January ! I was diagnosed with a grade 2 invasive lobular cancer . The cancer likes to feed off oestrogen so I was put on Letrozole to stop any oestrogen ! I had one lumpectomy to begin with and three lymph nodes removed . unfortunately she couldn't get clear margins so two weeks later had another op !! Turned out luckily my lymph nodes were clear but unfortunately she couldn't get clear margins again so ended up with a mastectomy but opted for reconstruction at the same time ! That is coming up to seven months ago now but still recovering although back to doing lots again ! I had 15 sessions of radiotherapy which left me very tired ! 
I hope that your breast care nurse explained that every bodies journey is different! It all depends on your specific cancer as to how your journey will be ! It is a very frightening journey and you will have highs and lows ! I am still getting down now and I have finished active treatment ! I cried this afternoon I'm not sure why but possibly due to tiredness and the fact the pills I am on make me achy . 
Take  all the help you can from your nurse. Mine is fantastic and doesn't mind if you want to ring and have a chat . She has had many conversations with me in tears ! 
Also if you have a cancer charity attached to your hospital use them as much as possible! The force charity attached to Exeter hospital have been amazing ! 
you have done the right thing coming on here , it has helped me through some very difficult times . 
I am more than happy for you to private message me on here if you would like to chat .

sending a big hug and hope that your journey isn't a long and difficult one .

we are all on here to help xxx 

love PHILIPPA xxx

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Diagnosis 5 days ago

Hi All 

I am new to this I’ve joined to get tips & advice I’m scared I feel like I’ve become a needy person overnight I’ve sobbed I’ve screamed and I’m not sleeping well with worry I have 2 lumps in left breast i have had 2 biopsies ( painful) I am struggling to even look at my breast right now I know I’m being silly I also know that I’m not alone in this & i just need inspiration I am usually a strong positive person I’m looking forward to hearing all of your journeys 💓