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ER/HER2 positive invasive ductal?

34 REPLIES 34
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Re: ER/HER2 positive invasive ductal?

Hey lovely,

I'm in 14 of 18 weekly treatments then start 15 radiotherapy sessions . I feel so awful . Counting down the weeks till the end.

I have never felt so poorly but I no it's only temporary so just keep taking each day st a time. I've got neuropathy in my hands and feet as well. I dont want to play any more 😓 and your right not seeing your family is just awful. Sorry for the glum response x

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Re: ER/HER2 positive invasive ductal?

Hi Nicky it's a while since we have spoken how are you doing has your treatment finished yet so quiet in Scarborough although a few more people about now the travelling has been lifted although there is nothing open as yet including loos!!! so if day trippers come hope they have a strong bladder!!!!! how are you feeling in yourself it's missing your family as well I suppose you just want to hug them sending lots of love your way stay safe xxxxxxxx

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Re: ER/HER2 positive invasive ductal?

Lovely to hear from you you are doing brilliantly just remember that honey it seems never ending but you'll get there  just take care of yourself yes Scarborough has been quiet like a ghost town it's weird should be gearing up for a busy Easter but not now I'm afraid don't forget it you ever want to chat I'm here for you love Judi xxxxx

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Re: ER/HER2 positive invasive ductal?

Hey Judi, good to hear from you. It's such a frightening time at the moment isnt it. I'm on my 7th out of 18 weekly chemo cycles, hairs gone and feel like I have been hit by a bus. I shant lie I wasnt quite prepared for how chemo and hair loss makes you feel.

Especially with the addition of not being able to see my family,  I am desperately missing my 10 month old grandson,  but hopefully it wont be too much longer before that day comes. 

How are things in Scarborough, I bet it seems so quite doesnt it?

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Re: ER/HER2 positive invasive ductal?

Hi Nicky it's ages since we have spoken how are you doing it's such a stressful time for everyone at the moment and especially with yourself going through treatment if everyone sticks to the rules then it should subside sooner rather than later I've never done so much decorating and gardening or should I say hubby has done the lions share!!!!! Keep safe Nicky and family love Judi xxxxxxxxx

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Re: ER/HER2 positive invasive ductal?

Glad you have started Nicky it's that initial thought of it which is daunting hope you are feeling o.k. if you ever need to chat I'm right here for you I'm here to help lovely xxxxxx

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Re: ER/HER2 positive invasive ductal?

Morning Judy

Sure have, I've been twice now, I've got 18 weekly treatments of chemo.

I shan't lie it's been tough but I'm glad to have started treatment x

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Re: ER/HER2 positive invasive ductal?

Hi Nicky just wondering how you are are you any further forward with your treatment 

Love Judi xxxxxxx

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Re: ER/HER2 positive invasive ductal?

Hiya. I’ve recently been diagnosed. Have 2 cancerous lumps. One grade 2 and one grade 3 invasive ductal, both hormone dependent but waiting on her2 results as it was borderline. I’m booked in for a mastectomy on 2nd March then been told to expect 6 rounds of chemo and 3 weeks of radiotherapy. I’ve made an appointment to see my consultant as I’m going to ask about oncotypeDX test and other women I know that have been in my situation have had mastectomy and hormone tablets for 10 years.....no chemo or radiotherapy. 

 

I work in heathcare and am lucky to have a wealth of knowledgable people around me. They are all if the same thought that the more treatment you have, the less risk of it returning. I was told to see it that surgery removes the cancer and the treatments mop up any rouge cells to avoid it coming back. As much as I don’t want chemo or radiotherapy, it’s just an insurance package. Xxx

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Re: ER/HER2 positive invasive ductal?

Hi Judy,

Still no date. I've been to see the oncologist last week.

All being well should be within 2 weeks .

Got an appointment tomorrow for an ultrasound on my heart before I start the herceptin. 

Fingers crossed some time soon I just want to get on with it x

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Re: ER/HER2 positive invasive ductal?

Hi Nicky thinking about you the other day and wondered how you are feeling are you still waiting to start chemo if you have I hope you are coping o.k. if there is anything I can help with don't hesitate to ask sending you a hug love Judi xx

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Re: ER/HER2 positive invasive ductal?

Its brilliant. Cant thank you enough for all your help x

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Re: ER/HER2 positive invasive ductal?

Nicky I am so happy ☺ for you it's a great feeling isn't it sending you a huge hug I'm here for you if there is anything I can help you with sending lots of love xxxxxx

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Re: ER/HER2 positive invasive ductal?

Great news, they have successfully removed the cancer. Yaaaay.

Just waiting on date now to start chemo,then radiotherapy and she said 2 other medications but I cant remember what she said.

Once she told me the cancer had gone I think my ears stopped working x

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Re: ER/HER2 positive invasive ductal?

Hi Nicky been thinking about you how are you xxxxxx

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Re: ER/HER2 positive invasive ductal?

Brilliant, I shall ask when I go back for next set of results on jan 6th.

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Re: ER/HER2 positive invasive ductal?

Hi Nicky hope you are feeling a bit better I contacted my nurse through the Macmillan unit at the hospital she was the one that initially rang me after the meeting to determine whether I needed chemo and from then I used to keep in contact on a regular basis. Love Judi xxxx

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Re: ER/HER2 positive invasive ductal?

Hi Judy

Just another question, you mention your breast care nurse. How do you get in touch, do I just ring the main hospital number ?

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Re: ER/HER2 positive invasive ductal?

Hi Nicky so glad you are feeling a bit better yes I still get down days even now five years on not as much as the early days some days I wondered how I was going to get through the day but so long as you have plenty of support from family and  your breast care nurse  you will get there mine was brilliant she became more a Friend than a nurse to me she retired last week sadly for me fantastic for her!!!! If ever you need to chat message me anytime.

Love Judi xxxxxxxxxx

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Re: ER/HER2 positive invasive ductal?

Morning, feeling alot better today, surgery wounds are healing nicely again x 

Feeling a bit better emotionally xx

Do you still have down days ?

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Re: ER/HER2 positive invasive ductal?

Hi Nicky hope you are feeling a bit better today xxxxxxx

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Re: ER/HER2 positive invasive ductal?

Hi lovely yes I did feel the same  if anyone asked me the flood gates would open but I felt better after I've always been one for not hiding my emotions I defy anyone to say any other I still do some days even after five years but that's another step forward and fingers crossed you won't need to go back Nicky you just need to rest now it's blowing a gale in Scarborough so there is only one place home feet up film on cuppa lovely hope you are doing the same take care speak soon love Judi xxxxx

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Re: ER/HER2 positive invasive ductal?

Well it's been a whirlwind of a week,the hospital rang me Thursday and said there is a cancellation can you come in today, so I did.

Operation done again, still got my breast and got to wait now until Jan 6th for results.

So fingers crossed.  The doctor said they wouldn't take a third margin if it has spread we would just go for mastectomy. So again it's just a waiting game.

Struggling a bit emotionally, did you find it the same, trying so hard to keep it together . The shower seems to be a good place to have a good cry x

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Re: ER/HER2 positive invasive ductal?

Hi Nicky just to say I will be thinking about you on Tuesday when you are feeling o.k. let me know sending lots of love to you judi xxxxxxx

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Re: ER/HER2 positive invasive ductal?

At the moment she is going ahead with partial but I have given permission to take the whole breast if necessary at the time. Massive thing I no but for my peace of mind I think it's the best thing.

X

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Re: ER/HER2 positive invasive ductal?

So sorry to read that Nicky I can understand your feelings about mastectomy it's such a huge decision to make but thankfully Nicky it hasn't spread what did the consultant say did he leave it up to you or have you decided to have partial love Judi xxxxxx

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Re: ER/HER2 positive invasive ductal?

Hi Judy

Today wasnt a great day,it was good news and bad news,

Good news is it hasnt spread into my lymph node but it has spread more into my breast so got to go back on Tuesday for surgery to remove more of my breast.

I think I may be wishing they just take the hole breast.

 

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Re: ER/HER2 positive invasive ductal?

Hi Nicky

Hope you are doing o.k. just a quick message as I know you are going for results tomorrow let me know how you get on.

Lots of love Judi xxxx

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Re: ER/HER2 positive invasive ductal?

I will do.

I'm in Leicester, I came to Scarborough 2 years ago,stayed at the royal for a 1940's dinner dance.

Had a good time. Thanks Judi for all your help, I shall certainly keep in touch.

Love Nicky

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Re: ER/HER2 positive invasive ductal?

Let me know how you get on Nicky which part of the country are you from I'm in scarborough always here for a chat if you need me love Judi xxx

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Re: ER/HER2 positive invasive ductal?

I never felt a lump but just had that feeling that something was wrong, I could feel a golf ball in my breast, thank god I acted on it.

Was referred and they found the cancer deep inside.

Its reasurring to hear you are 5 years down the line cancer free, that's brilliant news.

I just need to get my next appointment out the way to get on with which ever treatment is needed.

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Re: ER/HER2 positive invasive ductal?

Hi Nicky I felt exactly the same when I found out it wouldn't sink in for a while I found out from a routine mammogram thank God for mammograms!! I felt I was dreaming and I was going to wake up at some point and that's all it was but hey I've just had my fifth year clear mammogram and feel fine I do get the odd aches and pains with the letrozole but it's manageable don't ever be afraid to ask questions nicky my breast care nurse is brilliant and I ring her when I don't think somethings right I had a year of herceptin the chemo differs to each individual but usually four sessions every three weeks gives you time to recover inbetween but you won't know Nicky until your results come through so very early days yet I had surgery on 23 December 2014 my wedding anniversary!!!!  love Judi xxxxx

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Re: ER/HER2 positive invasive ductal?

Hi Judy,

I am still going through the I cant believe this is happening to me stage.

I asked my surgeon/consultant about having both and she said that she would probably do chemo but would make that decision when I go back on December 4th for the results of the lymph node checks.

Did you have chemo for a year? How did that affect you, to be honest it really scares me.

This is so good to be able to talk to someone. Dont get me wrong I have a great support network of family but i feel very alone.


@ollisj6 wrote:

Hi Nicky I was diagnosed five years ago I had lobular/ductal grade 2 er and her2 positive I had chemo and herceptin for a year which is an injection every three weeks plus I had radiotherapy for three weeks after my chemo but inbetween my herceptin because I was also er positive I am currently on letrozole if you are younger and not gone through the menopause then they usually give tamoxifen hope this helps sending you a gentle hug if there is anything else I can help you with don't hesitate this forum is brilliant I don't know what I would have done without it at times. Love Judi xxxxxxx


 

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Re: ER/HER2 positive invasive ductal?

Hi Nicky I was diagnosed five years ago I had lobular/ductal grade 2 er and her2 positive I had chemo and herceptin for a year which is an injection every three weeks plus I had radiotherapy for three weeks after my chemo but inbetween my herceptin because I was also er positive I am currently on letrozole if you are younger and not gone through the menopause then they usually give tamoxifen hope this helps sending you a gentle hug if there is anything else I can help you with don't hesitate this forum is brilliant I don't know what I would have done without it at times. Love Judi xxxxxxx

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ER/HER2 positive invasive ductal?

Hi all

 

I was diagnosed 3 weeks ago with Grade 2 Invasive Ductal breast cancer and also ER and HER2 positive 

Has anyone got any experience with this?

I had surgery last week and feeling very sore, I'm awaiting results from the lymph node they removed in a couple weeks 

 

I've read that if you have ER and HER2 then you need chemo not just radiotherapy? 

 

If anyone that has had/got the same could discuss with me what treatment they had etc? 

 

Thank you xx