How did your first chemo go, I hope it went ok and you haven’t had too bad SE’s? How you coping?
Update I’m 3 wks post op tomorrow, at A&E sat got infection just red patch nowhere near wound but now on mega dose antibiotics 😩 I’m frustrated as still not sleeping and feel really sore thought would b well on the mend by now🙁 Had Ongologist today I have Lobular invasive cancer Er pos Her neg, my tumour was 2.5 inch had mx recon with expander and lobe clearance 2 lobes positive. advised normally chemo Fec t then rads and hormone therapy. I’ve been offered to go on Optima trial so have decided to sign up, maybe one of lucky ones and not need chemo. does mean a delay to treatment but won’t cause any issues. My thoughts are if there is a chance of side stepping chemo I will give it a go😂.
Trying to keep positive love and Hugs 🤗
Yes Mai7... They sure do!
Thankyou for the link, I'll certainly have a look X
Aneebel, I found everyone's kindness would really crack me up at times. People do some really lovely things whilst you are going through your own quiet hell and I think it changes you, in a good way. The October thread has been started if you want to join in: https://forum.breastcancercare.org.uk/t5/Chemotherapy-monthly-threads/October-2018-Chemo-starters/m-...
Aneeebel, you can get through this but just have a cry when you need to. You dont have to be strong all of the time. .....though the alcohol is best avoided, at least during chemo. Just when you want to drown your sorrows. Sorry! Have you joined the "going through treatment" chemo monthly thread ready for when you start chemo next Friday? Everyone will be in the same position as you are now, nervous and in need of company. I hope next Friday goes well for you. xxx
Yes, you're right about the holiday... Altho, it did give a bit of distraction, or was that the ouzo!!! 🌞
The waiting is awful isn't it!
Its 5 weeks since I was diagnosed, a very long 5 weeks... But I'm starting my chemo next Friday so I have a few days to "sort my head out"...
Thankyou for your lovely message and the hug.... I hope things go well for you, please let us know how you get on xx
I'm calm some days... and other days not... 🙄
I'm starting my chemo next Friday!! (5th Oct) I'm having chemo before surgery... Then radiotherapy!
I only found out about my chemo yesterday so it was a bit of an 'Oh my God' moment...
I went out and got pickled, had a cry and went to bed....
This morning my glass is half full (for the moment anyway!!)... And at least I know where I'm up to now and can start sorting my head out, so to speak!
Thankyou for your lovely message x
bazzies, I'm sure its not the questions so dont feel its anything you did or didnt do. I suspect its the decision making process which is causing the waiting. All decisions have to be approved through various boards before the treatment plan is agreed and communicated. This seems like a really long time when you're waiting! x
Think I thought I would have been told last night if chemo was on the cards, unfortunately it’s a waiting game yet again until I see the encologist, all I know is My Bc is invasive grade 2 intermediate. I am happy to meet anything head on, but it’s frustrating all the waiting. Maybe I’m not asking the right questions......... I will definitely take a look at your blog 😀
Hi bazzies, well done on getting through your surgery. Take it easy. The chemo is a bit of a shocker, I cant deny but you can motor through it. Just get yourself prepared as best you can. There are lots of tips on my blog which helped me: http://lifeafterlola.com
Have you joined the "going through treatment" thread on this forum? there is a monthly chemo thread which starts up each month for everyone starting chemo at the same time to join. I found this really helpful and I still keep in touch with my chemo buddies and we've met up in real life too!
Best wishes. xx
update on my op on 18th all went as expected, came home on 19th with 3 drains still in😩 We’ll yesterday had final drain out and results. Wanted to share had mx recon and node clearance 19 removed and fab news only 2 came back positive😀 consultant said defo radiotherapy. I’m having couple of weeks recovery and healing, waiting on appointment to see Oncologist to discuss if chemo appropriate. Anyone else in same boat I think it’s the chemo which is the unknown. Hugs to all you amazing guys x x
I just came across this thread and was wondering how you're doing now? Have you started chemo already? Has some of the calmness returned?
Sending you hugs and lots of supporting thoughts,
My "calmness" seems to have disappeared... Very short lived I'm afraid... I don't know what to say or think at the mo! 💔😥
Thankyou for your message, much appreciated xx 😘
Hi Anneebel, you are welcome to waffle all you like! Been there, done that, got a lumpy boob to prove it. We all have our own ways of coping, be it detachment, black humour, crying, aggression. I'm sure that at some time we have cycled through them all. Whatever gets you through will do. Loads of help on here when you need it. No ones going to tell you it's an easy journey, but, we will tell you it's doable because we've all done it. So...big hugs and good luck to you. 💐 X
Hi bazzies, sorry you find yourself here but glad you've joined us as you'll get lots of support on here. Once you know your treatment plan you can chat with others going through the same on the "going through treatment threads". I still keep in touch with my chemo buddies and we all finished chemo a year ago. Sendng hugs. Xxx
I would like to thank you all for your threads, I was diagnosed with bc 15/08/18 it is invasive lobular cancer of r
the left breast and in my lymph. I have been reading your threads for l ast few weeks and felt they have really helped...... I’m not the only one. My surgery is the day after tomorrow 18/09/18 mx, recon and lobe clearance. I am keeping positive have very supportive partner , 3 grown up children and 10 grandchildren so lots to be thankful for,,,,,,,,, unsure of following treatment, taking each step at a time, think too much to deal with otherwise tiny steps. Results clinic 26/09/18 so we shall see........Thank you again........
virtual hugs 🤗
Thanks Aneeebel, your kids will cope with it better than you expect and you will be very proud of them. You all go through this together. xx
I'm pretty sure there will be a bit of waffling going on! 😂 And yes, you're right...deal with the emotions as they appear... I've just said to my daughters that nothing is right, nothing is wrong... It's all new and scary and we're allowed to feel however we want to feel!
I had a quick look at your link yesterday -I've saved it on my favourites to look at some time 💗
Hope you're feeling well... And good luck with your reconstruction-I mentioned a recon to my nurse but they won't consider it until after radiotherapy! 👙
Thankyou for your message
x💗 x 💗 x
Hi Aneeebel, Sorry you find yourself here. It's the club none of us wanted to join but here we are helping each other get through all of this cancer stuff. I think you just need to work through the emotions as they appear. It normal for your feelings to swing all over the place. I found detachment was a protective emotion from diagnosis until the end of treatment and I didn't really cry until I finished treatment. I don't think its easy to cope with the enormity of what you've been served in life so if you are feeling calm, just keep plodding along like that. I had a mastectomy last November and it is a very hard thing to get your head around but I focussed on letting go of something bad to stay alive rather than losing something good. I kept listening to the song "better in time" by Leona Lewis just before my mx and somehow that helped me. There are many options for reconstruction and I have my appointment next week to discuss my delayed recon. Come on here to rant, waffle or whatever you need to offload away from your loved ones as we understand. Once your treatment plan is in place you can join the "going through treatment" threads to chat with others going through the same. I found this really helpful and I've met up with my chemo buddies and we still keep in touch. Here's my story which you may find some comfort from as well as some useful tips: http://lifeafterlola.com Best wishes. xxxx
I'm sure there's going to be a few hurdles along the way but as you said the uncertainty is terrible...and at least I now know where I'm up to!
Onwards and upwards!
Thankyou for your message
x💗 x 💗 x
You're right.. It is very daunting, I think it was the "not knowing" that nearly tipped me over the edge!
At least now I have more of an idea where I'm up to... but I'm still sad about me boob! 👙
Hopefully you're doing okay with your treatment and getting back on your feet! 💗
Thankyou for your message
Sorry to hear about your diagnosis, but so glad you decided to go for a mammogram! It will all seem to daunting for now, but it sounds like your medical team have a solid plan set out for you, which should help to put your mind at ease.
I'm 31 and was diagnosed in July. This forum has been so useful and supportive for me, I hope you'll find it to be just as helpful! There's always someone here to chat to and offer a shoulder.
Hi everyone, just thought I'd introduce my self...
I went for my 1st routine mammogram (I'd ignored the previous invites...only went as I was so shocked that my 30 yo niece had developed breast cancer!)
-was called back to the Breast clinic for further tests/biopsys/lymph node tests and was told on 21st August I had breast cancer and would need a lumpectomy....to say I was shocked is an understatement!
I was advised I would need an MRI which I had before we went on holiday...
I didn't receive any info at all from the hospital which nearly drove me to drink! I was so fragile! It was a very, very long 3+1/2 weeks not knowing what was going on or what was going to happen!
I rang the hospital on the day we got back from holiday to see where I was up to with regards to appointments and was asked to go in to see them on Friday 14th September -the results from my MRI showed that the cancer had spread in little "off-shoots" 5 cm's from the primary tumour and I would need a mastectomy.... I definitely wasn't expecting that news!
It was another shock obviously and I was upset....but after a while I suddenly felt remarkably calm, maybe too calm... Maybe it was because I finally had info about my treatment, I really don't know...but I've been "calm" ever since (apart from the odd little tear!) I'm sure there'll be a few blips along my journey but for now I'm loving the "calm" feeling in my head!
-I have to have several scans this coming week, appointment with my oncologist the following week, 18 weeks of chemo, then mastectomy and lymph nodes removed and then radiotherapy! 💗
And now I appear to be waffling... I've lost the ability to think straight or remember anything but gained the ability to waffle!!
Thanks for "listening" x 💗💗