I'm glad you can think so positively, unfortunately for me back then I was not in control of what I was worrying about.
Do you think tomorrow I'll be killed by a bus, or hit by lightening? If not then why are you worrying about what's going to happen about your cancer in maybe 5 years time. None of us know what the future holds for us, we just got to live our lives to the max.
Hi Lorraine ,
i was just Diagnosed with IDC stage1A. 2months ago. Just 2 weeks ago had a Bilateral mastectomy following reconstruction. They took out 3 lymph nodes, 1st one also has a micrometer (dot) 2&3 where good! Doctor is saying they may recommend a little radiation.
How did you come to no radiation? I guess if I did not have Pen size dot in my one node they would say for sure NO radiation. I know they do want me to do hormone therapy as i am positive for estrogen and progesterone & neg HER2. I just don’t know if I want do do radiation for that micrometer and what the pro am cons are with or with out and side affects of radiation vs no etc.
Thank you Leah
Glad your results have come back and you dont require chemo.
Do you know when your second op is planned for?
Good luck with Anastrozole, if you find a brand that suits you stick with it. Mine is Teva and noticed more side effects when given a different brand so be aware. I now have Teva brand all the time with no side effects.
I have my 5th year mammogram on 27th December so keeping my fingers crossed for that.
I wish you all the best for your 2nd Op.
Keep posting. XX
Hi Getorade[Mandy], The waiting really is a tough time and can feel especially bad at this time of year whilst surrounded by all of the Christmas hype too. I too was ER+ grade 2 (stage 3 with lymph mets) and have now been on Tamoxifen for a year. I find that it does make me feel a bit stiff if I sit still for too long but I can still do the same as before. Regular exercise helps a lot but I don't push myself to run half marathons any more like I did in my youth. Little and often nowadays: power walking, cross trainer, yoga: all low impact. Sending hugs. xxx
Hiyer, of course loads of people never have a recurrence and go on with their long full and happy life! My Aunt is one of those, she had her mastectomy 35 years ago, just fine, nothing wrong. I know of about 10 people in my real life who are the same! Personally, I had BC 2 1/2 years ago, and am now discharged from needing any more follow-up surgeon appointments. The ladies on the telephone helpline here all had BC donkey's years ago, some of them. Hope this helps a bit to know it is a very effectively treatable cancer type.
hi Mandy I was told by the oncologist that they send for oncotyping when your cancer is hormone positive and node negative, although mine was caught early it was grade 3 invasive, so the chemo route was always a possibility, when it came back at 22 score, they told me that if the score is under 25 chemo is not usually recommended, but it was my choice. I have also got arthritis so was very worried about taking Anastrozole. I have been on them since September and yes I am getting joint pain but it's not too bad at the moment, but it was always worse in cold weather so will see if it gets worse. must say 4 weeks is a long time to wait for test results I got mine 2 weeks after surgery and the oncotype was 2 weeks after that, hope you get some answers soon, waiting is the hardest part. best wishes Fezzy x
hi Getorade just thought I would add to this thread I had wle and sentinel node biopsy in July it was invasive grade 3 and ER+8 I also had 4 nodes removed which thankfully were negative, a sample was sent to America for oncotype dx which came back as scoring 22. So that was mid range for needing chemo and I had a discussion with the oncologist about chemo but after hearing all the stats decided against chemo as it would only have made a 3 per cent difference and weighing up the side effects opted for Anastrozole, I was also given Evacal D3, and Alendronic Acid as my dexa scan showed osteoporosis. I am currently having radiotherapy and on day 13 of 20 the last 5 being boosts, hope this helps I will gladly answer any questions if I can and wish you good luck. Fezzy x
Thanks for the link that made very interesting reading. I dont think I had this done. I started Anastrozole nearly 5 years ago and was given the Teva brand. I had a few problems nothing major like stifness in my fingers & ankles. A few months into my journey I was given a different brand and what a difference I had real problems with joint pain. My chemist now always gives me Teva and I think I have been really lucky that I dont have any worrying symptons. So if you get a brand of tablet that suits you stick with it, until this happened I would never have believed that the brand would make that much difference, but believe me it does.
When will you know what path of treatment you will be receiving? It is always the waiting time that most people have a problem with.
Take care and have a nice weekend.
My Histology Report states 11mm G3NST + High Grade DCIS(total 13mm) clear margins, no VI, ER/PR 8 HER negative, 0/1 nodes. I am on Anastrazole now for 10 years, it started off for 5 years. Evacal which is a calcium tablet for the bones. I am not sure but they may give you a bone scan that is to check your bone density before they put you on those tablets. I repeated this test again 2 years after and there was no change.
So pleased with that.I am not sure about the test on my tumour. I hope this helps keep us posted. We are all here to help.
Just saw you post, glad that you are pleased with your results. As many ladies have said your team will be making the right decision for you. I was lucky not to have chemo as they stated that it would be of little benefit, which I accepted as I am sure they know best I had a mixture of Invasive Ductal & DCIS, both of high grade. I wish you lots of hugs for the next stage. Just keeping asking the questions to stop your mind going into over drive. Take Care.
Getorade, yes, overthinking is inevitable at this stage but just know that your team are doing everything they can tailored specifically to your histology. I think the loss of control makes us try and fill in the gaps so we can keep a story afloat in our minds. Unknowns are hard to cope with but whatever they decide there will be others going through the same and you will be able to share your experience. xx
They can remove all visible cancer Mandy but with certain types such as HER2 + which tend to more aggresive it only takes a microscopic rogue cell to be missed and for it to take off and set up home elsewhere in your body and form another tumour so Chemo is given to catch these buggers and prevent them from doing any harm. Xx
We are all guilty of putting 2+2 together and coming up with 5 Mandy, it's the frustration of not knowing it sends our brains in to over drive! HER2 results seem to take forever now, I don't remember waiting for mine, I'm Certain I had them the week after biopsy, maybe I didn't as I had no clue about it all back then, could write a trilogy now!! 😜
Herceptin as Ann says is only licensed for use with Chemo at the minute, I have read that it was originally only given to ladies with secondary breast cancer who would have been having Chemo so likely it's never been tested fully on its own, I don't really know a huge amount about the reasoning behind it but I do know its a very effective treatment if you should need it.
None of us want chemo and I was fortunate not to need it and I totally understand your wish not have it so fingers crossed you don't need to go down that road but we have very active Chemo threads here with many ladies at various stages and they will carry you through if need be, you will never be on your own here no matter what treatment you have 👍
Hi Mandy, That all sounds good news! It's common to have a mix of invasive and DCIS, I did, and also to need a second op to get better margins. Clear nodes is great news too 😊
The Oncotype test is something that is offered when it's not clear if Chemo would be of any benefit, a few years ago it would have been given as a safeguard for a lot of ladies with intermediate breast cancer but now many escape it thanks to this test so well worth having.
I don't live on this website the way I used to, but just saw you're post and thought you might like to know about my mum. She was diagnosed with BC way back in 1982 at the age of 47. She will be 83 years young in April next year, so that's 35 years and still going strong! In those days there was no differentiation of bc types, and she wasn't given any chemo or rads, just surgery. I myself was diagnosed with stage 2 grade 2 invasive lobular cancer in 2013 at the age of 50. I had surgery, chemo and rads and continue to do well, so I hope that gives you some encouragement. Whatever your treatment plan turns out to be, I wish you all the best. Take care. Ann xx
Hi Getorade, I just wanted to say hi and sorry you found yourself here. I'm also an ER+ lady and on Tamoxifen after chemo, mx and surgery. I was diagnosed age 48 in March 2017 locally advanced including 9/12 lymph nodes and I'm still here and doing well. It's not quite the 20 years survival you'd hoped to hear about but for me it's wonderful and I've seen my daughter graduate and been on a couple of lovely holidays since I finished treatment. I too became very obsessed with death after diagnosis as you can read in my blog: http://lifeafterlola.com/ but that does get less over time. As Ann suggested, there are many people out there leading normal lives but they don't all come on here, for some it may be too much of a reminder and they want to put it behind them. I'm glad to hear you are doing well and I hope that continues. Feel free to come on here for a rant about the unfairness of it all or you could move to the "going through treatment" threads to ask specific questions to others going through the same. Best wishes.xx
Sunbeam, that's a lovely outlook, I totally agree with you there. Chemo brochures can cause accidents if you read them whilst trying to cross the road so read them safely. x
I am living life to the full. Mammo 50 is a trial, which started 3 years after diagnosis. They ask if you would like to take part, then you are split into two groups, one group would be having mammograms every year, the other group every two years. I was selected in the every year group which I was pleased about as once the 5 years were up for mammograms, I would have gone back to every 3 years, which I feel is to long to wait so at least this way I still feel I am being checked.
You will start feeling better about the situation as time goes by. It really does get better so just look after yourself.
I wish you all the best and will keep checking to see how it is all going for you. XXX
I was diagnosed in 2013 Grade 3 so had a lumpectomy and radiotherapy and like everyone once we hear the word Cancer we do think the worst. In Dec I will be having my 5th mammogram. I am also doing the Mammo 50 trial.Since then I good married for the second time, my oldest son got married. I became a Grandma and have had many lovely holidays and enjoyed them all. We all have bad thoughts but please dont let them take over your life. As many people have said it is difficult when you are diagnosed but it does get better. I dont come on the forum so often but I always take a look to see if I can support someone like yourself.
Take care and any questions just ask there is always someone who will support you.
that is great news, and wonderful to have your results a day early.
I have not heard about the further tests on samples but there are new tests and trials going on all the time.
I hope your doctor can offer further reassurance tomorrow
no just ER+
I have a close friend who was diagnosed a month before me she is going through chemo, it’s not nice but it is shrinking her tumours. They will only advise you to have it if there is a clinical need.
I hope you get good news - I remember several appointments where I kept getting the worst possible news. Your luck will change soon, mine did.
my cancer was ER+ mastectomy was advised as a lumpectomy was not possible once the second lump / tumour was found. I was ‘guided’ towards a double mastectomy due to increased risk factors,see below
- atypical hyperplasia (benign but increased risk of BC)
- the above had developed into BC in my right breast
- age, 50+
To be honest it was an instant decision to have both done.
Chemo was mentioned as a possibility and radiotherapy was likely if I’d had a lumpectomy. My consultant advised I didn’t need either when I had my post surgery histology 😊😍
I am on tamoxifen and am not noticing and side effects so far xx