Hi Maxine, welcome to our lovely forum but sorry you find yourself here. It is a very daunting time but it will get easier once your treatment starts. The good news is that you can have surgery first and chemo after which means your tumour is operable. Mine was inoperable so I had to have the chemo first. Thankfully I responded enough for surgery. It is important that you keep away from people whilst on chemo. If you need financial support McMillan offer help so it may be worth popping into their information centre at your hospital to discuss. You can also submit a PIP claim on hmrc https://www.gov.uk/pip/how-to-claim and should be successful if you get it in now as they usually cover you for chemo but they don't pay out retrospectively. In case you didn't see the link below, here's my blog which I hope you find helpful: http://lifeafterlola.blogspot.com It's completely normal for your emotions to be all over the place for a while and you are under no obligation to make sense to anyone. Just give yourself time and if you need a meltdown just have one. Hugs and best wishes. Xx
He he, you have just made me laugh out loud with the image of you wearing them on the outside of your clothes 🙂 🙂 xxx
You call away there will always be someone who will be able to help you with whatever it is you need to know.
Just wanted to echo Jo's post.
One thing with regard to the financial side of things, I know that there have been ladies on here who have enlisted the help and advise of their local McMillan Centre who appear to be very good at helping with that side of it, so I do not know if you have a centre near you but it might be worth giving them a call.
We are all here with you and sending you a pair of our touch pants that have very deep pockets for us all to get in to support you.
Sending you hugs
Good Morning Maxine and a warm welcome to the forum, we are of course sorry you've had the need to Join us but we will help in anyway we can.
It's all pretty surreal in the beginning and everything feels out of your control, you go along from appointment to appointment thinking how can this be happening!? It does get easier I promise 😊
You do have to be very wary of picking up bugs while having chemo and you most likely wouldn't feel up to looking after little ones either, we have lots of teachers across the forum who have to take a break from work during treatment for the same reason.
Once you know exactly what's going to happen it really does help to unscramble your brain, knowledge is the answer to coping, our brains need facts not what ifs.
So many ladies here who who are either about to start treatment or who are out the other side so not much we can't help you with between us. I'm over 3 years on from diagnosis now and can assure you life does get back to normal Xx Jo
Hello Iamstillme, yes, you are still you though your mind has probably gone on a strange vacation for a while. I just wanted to send hugs as I know what a difficult time it is between diagnosis and treatment. Here's my blog which I hope you find some comfort from and there are useful tips which I gathered with other ladies whilst going through chemo. http://lifeafterlola.blogspot.com/
I was diagnosed back in March 2017 with a large invasive tumour, also in the lymph nodes and I went through chemo, surgery and radiotherapy and now I'm on Tamoxifen and doing really well. In fact I did a 5k race for life last weekend! Stay strong, enjoy happy days when you can and cry when you need to. Hugs and best wishes. Xx
The one thing we do become along the road is expert in understanding the terminology which only a few weeks previously we knew nothing at all about.
The thing is that they are making sure that they have all the information they need so that they can make a treatment plan which is specifically for you and whilst it is frustrating and scary waiting it is for the best.
Dare you to wear them on the outside 🙂 :). They come with lots of love and support from all of us
Oh mate I am sorry about that however it is good that they are being thorough and you will have a specific treatment plan put in place soon, it is just the waiting.
The emotionless bit is quite natural and is a defence mechanism, just keep coming on here whenever you need to and we will get you through this. Any questions there is bound to be someone on here who will be able to answer them.
Sending you a pair of our virtual tough pants that we let ladies have as they have very big pockets so that we can all get in there to be beside you. Hopefully it will make you laugh as well as they are rather big and baggy, however as you can tell they are freshly laundered
Sending you hugs
Thank you Helena.
Yes, limbo feels very lonely so I am really looking forward to getting my plan tomorrow. Only concern is it will be delayed cos something else has appeared on mri or chest x-ray but I'm trying to stay positive.
I've had a bit of a wander around, popping my head into several threads and getting a feel for the place. I have quite a small support group around me and they've been great but it's good to know that I have support from those who actually know what I'm going through.
I'm feeling quite emotionless at the moment and I know that will change so you'll probably see a lot of me when it does!
Hello and welcome to the forum, yep not a place any of would willingly choose however it is a place where you will get help and support from the wonderful ladies on here.
This is the worst time where you are in between results and a treatment plan, it feels like you are on a runaway train with no way to stop it, but once you have your treatment plan it will get easier because you will know what is going to happen and when. We can all relate to that on here.
Keep coming on here whenever you want to rant, rave, cry, ask any questions and there will always be someone who be able to help you
Sending you hugs
I found a large hard lump 35 days ago - I examine myself every day so this was a huge shock - went to docs 2 days later, who referred me to the Breast Clinic. 1st appointment was June 4th where I had exam, mammo, scan and biopsy. Also another appointment was made for June 18th for the results. Needless to say, it wasn't good news - invasive breast cancer was the verdict, preliminary 6 mths chemo and op was suggested but they needed to make sure. Another exam told them that the lump had almost doubled in size. They sent me for a gene test and a chest x-ray the same day. 2 days later I had an mri.
Results for those are tomorrow (except gene test as they said it could take 4-5 wks) when I go back to the onco. I should also be told what stage/grade it is and the treatment plan.
I feel like I've been caught in a tornado but I'm scared that when it stops this will all hit me like a freight train.
I know everyone's different but has anyone else felt like this?