It's back after 18 years!

[jtb]

Doglover, I am so sorry to hear this, having to deal with the re-occurence and your wedding plans. Your head must be spinning. My son gets married in 7 weeks also and just got all my outfit...I don't know if my op will be before this?? Will I be able to wear the outfit. My head is spinning too but I guess we will need to ride it out. My fingers and toes are crossed tight for you xx

[SallyG63]

Hi Doglover,

What horribly timed luck (or no luck at all). I'd hold fire on the wedding postponement till you know exactly what they're going to do and when. Fingers crossed it'll be nothing too drastic.

[doglover]

Hi all, im back today after being told it is back after 12 years. Lump 2cm in lumpectomy scar, i first found a small lump last Easter, and had mammo in October clear, and 2 biopsies over the last few months. A few weeks ago it became larger and angry looking, i thought it was infected, today mammo again, ulstrasound and diosp confirmed cancer. i also have to wait until next wed, timing terrible as im getting married in 7 weeks and dress V neck!

I have decided to tell my partner but not my mum or childred yet, daughter doing A levels, until i know the plan and maybe postpone wedding.

Good Luck on 25th to all

Jill x

[jtb]

Hi SallyG63
Glad your pretty tough and tbh I am too. This might sounds silly but I would rather have both off but not sure if they can do that at the same time. I'm glad to hear it was easier than you thought. I'm trying to read up on it just now. I've had radiotherapy the first time so I guess they won't do it again as it's in the same place. I'll keep my fingers and toes crossed for you this week. Take care xx

[SallyG63]

Hi Jtb,

I'm very angry but ok. I'm pretty tough. Just for info, I had a mastectomy 6 weeks ago and that was far easier than I thought it would be. Fingers crossed it'll be the same for you if you have to have one. I had to partly because radiotherapy wasn't an option to the same site as you can't have it twice in the same place.

[jtb]

Oh dear SallyG63 that's just awful from the hospital, How are you feeling? Are you coping? Thinking about you xx

[jtb]

Hi KitKat...so you've already had a Mastectomy, how are you feeling? I think I'll probably be getting one as well. I would actually prefer a double but don't have any info as yet. Yes will def keep in touch and hope it all goes well for you. I hope your ok xx

[SallyG63]

Hi Jtb,

At the minute I don't know. My original ct scan and bone scan were clear in February but my treatment was massively delayed after hospital sat on mammogram results so everything disease wise has seemed to move quite quickly. 6/11 lymph nodes have cancer in and having ct and bone scans repeated this week to see where we are now. Fingers crossed it'll be the same again.

[jtb]

Hi Cazzy50..I agree the waiting is the worst and I'm only 4 days in. I hope everything goes ok on Wednesday and you get the plan sorted out. I'm gonna try go to work on Wednesday (I work 3 days per week) They are very understanding. I think I might go stir crazy in the house. Wish I had a dog! Maybe I'll get one! I will keep in touch as it really is helping tonight. Hubby seems to be a bit down and is sitting 'moping in the living room'. You take care. xx

[jtb]

Hi SallyG63...I feel your pain..I do hope you are ok. What a kind outlook you have. Sending big hugs xx

[Kitkat23]

Hi jtb

I’ve got my results same days as you see your consultant I think... next wed 25th...

( had left mastectomy and SNLB a week ago)

It depends as to whether anything other than dcis is found as to further treatment...trying not to think about it too much.

I can’t change anything... it is what it is ... so will try not to stress out too much until next week.

It’s just that sense of thinking ...here we go again.... and for you that 18 years must seem like a lifetime ago.

Keep in touch, if you’d like to.
X x

[jtb]

H Jobey68...Thanks for the reply, they are all helping me cope tonight. I'm sure it's 8mm as everyone is saying..I just got a bit mixed up. Good point about treatment moving on. I'm not angry yet as I don't think it has sunk in. I pray yours doesn't come back...I think it will help me to chat on the forum. I was just starting to have a bit of a weep there when I turned on my laptop and there were lots of replies so a BIG thank you to everyone who has taken the time. Big hugs to you all xx

[jtb]

Hi KitKat23...it's horrible coming back again..I'm so sorry you are going through it too. Do you have your treatment plan yet? Take care of yourself xx

[jtb]

Hi Charys...I think it must be 8mm as she did say it was small. No haven't seen the Oncologist yet...that's next Wednesday. The good thing is it's the same one as I seen and have been seeing all along. Thanks again for your input it is very helpful.

[cazzy50]

Hi, Second time for me too. Last had breast cancer 12 years ago in left breast. Routine mamogram picked up a mass in right breast, in all about 4cm.Still cant feel it but have seen the masses on xray? Two weeks after initial mamogram I was called back for  two biopsies and an ultra sound. 11 days later a CT scan, now waiting for info from my team. There is a multi disciplinery meeting on weds then I will be called to make an appointment to hear the game plan. In all within the 4 weeks time scale, and Easter in there too. The waiting is the worst, keeping busy is good walking the dog is excellent. keep in touch lots of us on here to listen  and chat. X

[SallyG63]

Hi Jtb,

I feel your pain after recently getting a second and new bc 12 years after the first, same breast. I'd also think they said 8mm as 8cm would be large. I've just had 11cm removed and was told it was very large (about the only thing about my breasts that was!).

I've tried to look at getting it twice as taking one for the team - if 1 in 2 people get cancer in their lifetime and I've had it twice then two people haven't, if that makes sense. At least you have an idea of what is involved. You've done it once, you can do it again.

[Jobey68]

Hiya, We never like to see anyone coming back for a second time, once is enough for anyone! you must have all but forgotten it had happened by now after 18 years. 

I would say it was 8mm if you've been told it's small as 8 cms is pretty big so that's a positive. 

Treatment has obviously moved on enormously since your first diagnosis and is more tailored to the individual now so you may not have the same as you did before. 

I'm sure you feel angry at this happening again but you will get your head around it and deal with your treatment but allow yourself time to feel sorry for yourself , I know I will be furious if mine ever dares to come back! Plenty of help and support across the forum so you don't need to sit at home and stress on your own as there will be someone around to chat to pretty much all the time Xx Jo 

[Kitkat23]

Hi Jtb

really sorry to read your post.

I too am back for a second time ( as of last month)  but after 6 years and it’s really crappy I know.

i had 2 x WLEs for dcis in 2012 and the scans/biopsy this time has shown further dcis ( to be confirmed after my surgery results) in the same breast same area.  

I think if you were told reasonably small then the 8mm is likely to be right.  My dcis area was estimated at 37mm this time round and the consultant called that ‘a large area’.  

I would imagine next next Wednesday seems like ages away and you know as well as anyone that the waiting game is the worst.

take care, am thinking of you

x x

[Charys]

Well, if 'reasonably small' surely not 8cm ?? That would be very large. Maybe someone else could come and give their thoughts here too, fellow CCers, but 8cm in diameter would be huge I would think and very obvious without the need for a mammogram.

So, have you not seen the surgeon at all yet, and it was a radiographer that gave you this news following a biopsy? Have they designated a breast cancer nurse to you yet?

Sorry, quite a few questions, I just like to 'build a picture' to see how we can help.

[jtb]

Hi Charys...thank you so much for your reply.  Yes it's a huge shock and I was probably in a 'sense of security'. I was 'recalled' after a routine mammogram.  She did say it was reasonably small at 8mm (or was it 8cm) I've not been told anything else and my first appointment is on 25th April.  It's the waiting that is so hard and everything is going through my mind like everyone else.  Thank you again.

[Charys]

Hiyer jtb,

Welcome to bcc. Not a nice place to have to be, but a great resource for those who are struggling with their bc diagnosis.

What a huge shock, after 18 years, to have a new primary or recurrence. (not sure which it counts as ?) You know though that you did this once, and can do it again. Those may seem like trite words, I hope they don't, but as horrendous as this is to find out you need to 'go it all again' you know that you can kick it to the dust in the same fashion. I'm not sure how much you know yet from your bc team. Is it the same cancer type or different to last time? Was it found during routine screening?

[jtb]

Hi everyone...Just new to this forum right now.  I first had BC in 2000, had a lumpectomy, chemo & radiotherapy.  I have just been told last Thursday (after 18 years)  it has returned on the same site.  Everyone has gone back to work and I'm struggling this morning...I am trying to be positive and have to wait till 25th April for a consultation.  HELP!!