Many thanks indeed!
I will ask the question at my appointment on Monday.
I really appreciate the prompt and supportive/helpful replies I have received - thank you.
From the BCC website. I'm sure the ladies will tell you not to get too far ahead of yourself, and not think of tamoxifen just yet. Just deal with each stage as and when, which isn't easy to do.
Tamoxifen works on the whole body (known as systemic treatment) and blocks the effects of oestrogen on the receptors. This helps to stop any breast cancer cells from growing. - See more at: https://www.breastcancercare.org.uk/information-support/facing-breast-cancer/going-through-treatment...
What is tamoxifen? What does it do?
Thanks for the wishes.
From what I remember I think you'll find out from the biopsy they do after your op.
They don't boost your levels too much, and there may be an opportunity to take a break from the tamoxifen. But it did add a lot to think about for us.
Hopefully your treatment will move along smoothly no matter what you decide x
Thanks so much for the prompt and helpful reply.
I do not yet know if my cancer is estrogen receptor? Do you find that out from the scan or the operation? Or even the biopsy?
I didn't realise there was so much to this business of freezing eggs, but I guess on reflection that was naive.
Yay Tina! Chemo almost done, something to celebrate. I hope rads treats you kindly! x
Hey everyone, a few spare minutes at work so thought I'd pop in.
Well done in completing chemo Jen! Good idea to try not to think about the reamaining treatment in May.
Nikki keeps me up to date with some the ladies from October FB group. I hope them and everyone else is doing OK now.
Oh no Jackie the C word hasn't been too kind to your family, thankfully you don't have the gene. With regards to freezing of your eggs. My wife and I looked into this. It's another thing to agonise over and was quite upsetting at the time. They'll arrange for you to meet a consultant at an IVF clinic, they'll go through the options available. Is your BC estrogen receptive? They may need to kickstart your periods, which in turn increases your estrogen levels. So they warn you about that, plus of course the percentages of getting pregnant with IVF (plenty do get pregnant with or without the help of IVF, which is good). I think they keep them for 10 years then you will have to pay to keep them frozen after that and they'll check to see if your BMI is OK too. Ah one last thing is they recommend you don't take tamoxifen while pregnant. Lots fo things to consider (PS deffo not trying to put you off doing it, just telling you what they will say)
Whatever you decide, try not to think what if.
Sending hugs to all x
👍🏼👏🏼 Yay well done Jen!!!!
To all the newbies finding themselves on this site...... You're in a good supportive place xx
Ask whatever that's concerning or confusing you as someone will have been through it!?! Rant, moan, complain, laugh and curse...... We're here for you.
Not been on this thread for while, but reading posts. Been on the December chemo thread more.
Bloods done this morning, hoping for no delays for Friday! Last chemo!!! 🙏🏼
For those/newbies who don't know my situation...... Diagnosed in August grade 2 lobular. Hormone receptive. Had lateral mammoplasty procedure and lymph node biopsy October, path results proved the **bleep**e was twice as big and in 1 of 11 nodes removed. Another procedure Nov to get clear margin and do lymph clearence. Chemo started 18th December, I've been lucky so far with no delays (but that's prob due to minimising my infection risks and not going to work....... Which I miss terribly!)
3 x FEC and 3 x T...... I'm cold capping and its working for me 👍🏼 Month after chemo done, 15 sessions of radiotherapy and will be on medication for 5-10 years. This is all crap, but we wil get through it!!! Thinking of you all, as the memory if early days still very real xxx Tina
This is my first time on the forum, so apologies if I am doing something wrong by repllying to an existing thread rather than starting a new one?
2 weeks ago I was diagnosed with breast cancer. I am 37 and just 18 months ago I lost my mother to Ovarian Cancer, which she battled valiantly for 4.5 years. Her mother died of breast cancer at 34. I do not have the braca gene though.
My friend recommended this forum and site, so I thought I would reach out and see how other people coped with this news, along with any hints and tips. I have had an MRI and get the results and a treatment plan on Monday 4th April.
Apparently I need to decide if I want some eggs frozen, as that will mean having hormone therapy which I guess may delay the chemo? Has anyone else had this dilemma? I am single but would still love a child one day, if at all possible. However I also want to start treatment ASAP and just get this horrible disease gone!
Any help or advice would be greatly appreciated.
Congratulations Jen. We can all coat our sprouts with chocolate today without guilt. xx
Hope you have good hol and feel rested on your return...it's good to hear from someone whose going through the same
Thanks Jo ..everyone has been great as its like a living nightmare...worried I may have to have chemo and this is so daunting ...can't believe it is 6 Months ..hopefully if I cross that awful bridge ...I might need lots of support ,,,this forum is amazing
Welcome to the new 'arrivals' as your already finding, the advice and support you get here is a lot of help, you will have you dark days but I think the lessen as you progress through your treatment.
I didn't have my hair cut until it started falling out in handfuls, which it day from day 13 of my first FEC. I hot footed it to the hairdressers and got it cut to about 4cm. The falling out went on for about a week and I haven't noticed much going since then. I an see my scalp of course but still have a fair amount of the 4cm hair as well as a little short new growth. I've done 3 FEC and one T so far.
Hi Lou and a warm welcome to the group no one wants to join! I can see you have been well looked after by these lovely ladies but just wanted to say hi and that things will get a little easier as the days pass, it's an awful time in the beginning but it does get better Xx Jo
Thanks for that ,you and everyone else on this forum has given me such good feedback and support ! This morning I was in such a dark place but now I feel a lot more positive and you made me laugh about trying to colour your hairx
Oh Bibi, that made me laugh but at least your hair matches the Easter weekend perfectly! I'm about a month behind you I think with hair growth and you cold capped too didn't you so I guess have lots more than me. Not hating my grey fluff too much yet as I'm just so glad to see it and I quite like all my head gear. I can't stop thinking now what colour I'm going to go for when I'm at the stage of being able to dye it. Hopefully I'll be brave and go for something I've never had before.
Hi Lou I had to have two ops .... Devastating isn't it? I'd say it was one of my worst days, after diagnosis. I just felt like I'd spent 2 weeks recovering & back to square one. Seems like a distant memory now & with the benefit of hindsight, of course you need to get it all out if there's any chance it didn't go the first time. It's a super hard thing you're facing, but you can do it. It seems quite common unfortunately. I was a grade 3, which is worrying, but you are HER-ve which is exactly what you want. I was HER+ve & it moves you straight to chemo, don't pass go. You must sieze the positives of the situation or it will do your head in. Try & stay strong & take comfort in the fact you are not alone. If you need a chat, the nurses on the helpline are just brilliant. This will make you laugh. I had tried to colour my hair with blond mousse as still too early to dye & I just hate the grey. Well it's come out Easter chick yellow AND it lasts 5 washes. Thank God for headscarves! xxxx
Lou, I had one node involved but when had clearance no others were affected. From where you are standing at this point in time it is terrifying. All of us on this thread have been there and many of us are now coming through and approaching the finishing line - something we probably thought we would never do. You will too. Stick around. Despite what we are facing there is plenty of humour on this thread as well as sound advice. The folks here have kept me sane throughout. Much strength to you.
Have a fantastic holiday Sarah and try and forget all about bloody BC until you get back!, xx
I've had a recent diagnosis of BC ,had a recent WLE with sentinel lymph node biopsy .Havent slept as the one of the sentinel nodes was positive,so now have to go and have another op for anxillary node clearance. Really scared about the future ,my cancer is grade 3 ER+ and HER2 -.Would love some support and advice
Great news that Nikki is all done, what a relief! Good luck with the run, Barry, or should I say 'hobble' 😉 Hope you heal in time, though!
I joined this thread in August, there's been a hell of a lot of water under the bridge since then, I hope to be finished active treatment by mid June-ish, about a month before the anniversary of my mammogram that set me off on this nightmare roller coaster!
Hope everyone is doing ok,
Oh and Tina, congratulations on being so close to the end. I so admire you for lasting so long with the cold cap. x
Evening all. I'm doing okay. Three weeks post node-clearance and still a bit sore but nothing that can't be coped with. Not sure if I mentioned that the remaining nodes were all clear which I was delighted about of course. Have my Tamoxifen appointment on Tuesday so that is the next thing to get started on. I'll also find out then if I'm having rads too. So, approaching the end and today even started to dare to think about a holiday later this year.
Sorry to hear about the knee Barry and hope you are better soon to get back into the trainers!
Yes, where is Delly? Not seen her for ages and hope she is okay.
Hope everyone manages to have a nice Easter weekend. xx