Well done Barry, great run and am impressive amount raised!
Brilliant Barry well done!! My hubby runs 10k regularly and 48 mins is his best time 😊
Not that I know about times Bazza.....but I'm sure that's a good one......as it would take me 5 hours walking it.
Full of admiration for anyone who can run at all, let alone a 10k run! Wishing you a satisfying and successful experience Bazza.....go go go !!!
Hey Barry, good luck for tomorrow. I khow Ele J is doing it too so Chemo Team October 2015 is well represented.
Hi Jackie, Nikki works with me in London and she was also advised to avoid commuting to avoid the germs and possible infections (your immune system is weaker during chemotherapy).
Good luck with your biopsy next week x
I hope everyone is doing well. Off to Brighton tomorrow for the run on Sunday. I once again want to say a massive thank you to not only everyone who has donated (I've raised a lot more than I imagined), but everyone who was their for us throughout Nikki's diagnosis and treatment. P.S you can follow me with the BM10K app on Sunday morning (if you're bored)
Thanks for the suggestion of the cold capping Bazza. My care nurse did say about this at my appointment on Monday. I may well try it.
We have decided to start with the 4-6 months of chemo therapy, and then do the operation after that. This is because due to my family history, I have decided to have a double mastectomy. But this needs to be approved and will take a few weeks to do so, so rather than wait, we will crack on with the chemo whilst the operation decision is being made.
I found out that I have grade III cancer, so I wonder if that will mean I will have a combined chemo to combat the more aggressive nature of the grade III's. I am waiting for an appointment with the oncologist, so hopefully that will be within the next week or so. Then I should get my chemo start date and know exactly what they are going to give to me.
I just want to get cracking now, even though reading these blogs it seems that chemo may well be a rough ride. Is that the case more with the combined drugs than with the single application? Any thoughts from anyone? My nurse says I can't go into the office due to my vulnerability to infection...I can work from home, but I feel strange about doing that for up to 6 months! Although my cats will be pleased to have me!
I am having a small op next week to remove a sample of the abnormal lymph nodes, to see if they are cancerous. If it has spread there, I will need radiotherapy after the op and chemo are finished. I guess raditotherapy is not as bad as chemo?
I think I am feeling pretty strong at the moment, which is good. But I guess this is just the very beginning of a potentially fairly long road...
Hugs to all and thanks for being here.
That sounds rotten Amanda. I found the emotional side of the T difficult at certain times, especially as I thought I'd been doing so well up to that point. BUT, only one more to go for you now. End is in sight.
Hi everyone, been out of the loop for a week.... T2 hit me like a ton of bricks on day 4.... basically all the SE's you get listed came along and camped out for nearly a week! Day 11 now on feeling more normal at last!
I have been reading but felt too out of it and emotional to post. Couldn't seem to concentrate on anything or pull myself out of the abyss, let alone be positive about anything! I was really down and crying all over the place on Friday, everything just got to me, but I've improved over the weekend with the SE's settling down at last.
Next bloods 19th and then... fingers crossed, last T on the 21st!
Love and hugs to everyone,
👍🏼👑😂 Yay! Thanks Jill...... Hoping every day that passes I'll feel better!
Still feeling pretty **bleep**e at mo. My lower back feels as if I'm having electric shocks! Breathless, eating for Britain! No taste. And my NOSE!!!!! Argh!! Had to ring dr for advice. Feels like I've been punched in nose, got breath through mouth it's that sore! Raw inside, though runny, hurts to wipe and if I blow!!?!! 😖 It bleeds. Afraid of infection as this is the high risk point?! He sent a prescription to boots tea time for me, said if no better after using this aft and tonight to ring and get emergency appointment tomorrow. Drove over there at 5:30, waited for it, to be told, 'sorry, we've just given the last supply to another customer, it won't be in till Saturday/Monday!? Other chemists closed now. So, I came away with nothing, having to suffer this pain in my nose till I see someone tomorrow 😖 Meaning my throat will continue to feel crap too.
Ah well..... Day 8 tomorrow 👍🏼 How are you doing Jill? 👑 Xxx
Glad it's helpful Sue. I probably should have said that I worked part-time through chemo, albeit mostly from home (I am very productive working in PJs ). I was on FEC-T regime with a treatment once every 21 days. I tended to work about 10 of those. Commuting every day would have been tough but home work with some visits to the office for crucial meetings worked okay. While I won't pretend that I didn't have a few days where I stayed in bed and had a bit of a weep, I was fortunate that I did not suffer hugely with SEs.The phrase a lot of people use is that chemo is "doable" and I certainly found that was the case.
I hope you can work something out and are treated fairly. Keep in touch.
Sue, I'm also someone with lobular which which turned out to be bigger after surgery - I went from 2cm to 4cm with a couple of tiny satelite tumours into the bargain which necessitated "upgrading" from lumpectomy to mastectomy with immediate reconstruction. I completely understand the whirlwind of emotions you go through when such a big change happens. I finished chemo eight weeks ago and while still tired and a bit achy at times am coming through the other side.
I second Tina's suggestions about contacting Macmillan as they can give you financial and legal advice with regards to your work position. Hopefully you won't encounter a difficult situation but it might put your mind at rest to be forearmed. Another organization that I've found helpful is The Haven: http://www.thehaven.org.uk/. They have several locations in the UK but if you don't live near to one they can give advice over the phone. They have at least one specialist legal/financial/benefits expert there who I met when I was on a course at the London branch in January.
Disgraceful that you have had to suffer such age discrimination and that someone with your skills and experience has had to struggle to be valued in the workplace!
Sorry you have had to join us but this is a good place for support, advice and just to come and have a rant when you need it. The people here have saved my sanity on several occasions over the last nine months.
Much strength to you.
Hi Sue H-S,
Thank you for asking about alternative ways to message on the forum. It is good to see the support you are getting on this thread.
You can private message another user on the forum. You can do this by clicking on the envelope in the right hand side of the screen and typing in the name of the user you would like to message. I have included a screen shot of this below.
I hope this helps, just email email@example.com if you have any other questions.
Hi Sue....byes you can click add friend and send private messages ... See top right of page.
No, sadly, I'm not a teacher, but an Eduacation support for learning auxiliary. Working in secondary school, supporting students mainstream and in a base. Additional needs from Autism, Down's, ADHD, Dislexia etc I need to break my sickness cycle by end May or I'll be on nil pay as of June. Money not great at best!?.... Ive been in this post two years so entitlement runs out soon. I just turned 50..... The day after my last **bleep**ty Chemo cycle! Feel more like 70! Celebrations weren't planned as we didn't know how I'd be? So I'm celebrating again with hubby in July! I'm very lucky, (though on my own a lot due to hubby working away and home every couple weeks. My daughter is in uni, though only hour half away and see son not far I need him)
I have plenty of friends offering support and company, but I've not accepted much from them as I look and feel crap most of the time! 😏 On my good weeks intry meet up for coffee with them or girls from Macmillan. My immediate family live in South Wales, I'm in the north of Scotland! Mum can't travel but I hope to visit her in the summer hols.
It's such a bloody worry! I feel for you Hun. Please search this site for support and help. You can get advice from here or Macmillan. Look for local support groups? I attended a living with cancer
Course at my local Macmillan centre where I met some lovely supportive people.
Stay strong Hun, support on here is great. Keep in touch. Xx Tina
Hi Sue, the waiting game is CRAP! Take it then you had similar? Removal of Timor, **bleep**e path results? I had my lymph node biopsy same time as lateral mammoplasty and results 3 wk later?.... Then as no clear margin gained and found in 1/11 they decided to do clearence whilst back in getting margin before chemo.... If margin was clear I would've had chemo then clearence. Good luck with results Hun xxx Feel,free to message me if you want.
I miss work, normal life big time! I was advised to not work during chemo or rads. But hoping to get few days phased back before rads start! Then phased again after around first wk June? We break up for summer hols end June here in Scotland so I'll have 6 wk off before hopefully back fully in August? Though my onc nurse says phased back again after hols. To remind people what I've been/ going through. Says people forget, think as treatment done you're ok now!?.....
Haven't been on post for while. Update. Had final 6/6 chemo cycle (3xFEC 3xT) Friday 1st 👍🏼 Going through the SE dip, day 7 today, feeling crap..... Trying to stay positive, knowing I'm going through these for last time! Awful sleep last night... Pains like electric shocks in lower back keeping me uncomfortable! 😖 Another day eh? Hope everyone else doing ok? Radiotherapy consultant apt 19th, nervous of the next step..... Should start the sessions by second week May.
Hugs xxx Tina
With regards to hair, their is a thing called cold cold capping that you may want to look in to. It doesn't guarantee you keeping your hair, but you may retain some. A lot of women try it and see how it goes.
Thank you Bazza for yet another prompt and helpful reply.
They did say I would definitely have chemo and it would last 6 months, but just no further detail, however I will get this next week as you say.
I really want to start treatment ASAP and just get this thing gone!
I think I will get my hair cut short too....better than it all coming out when it is so long.
Hi Jackie, at your meeting next week they should give you more details on your treatment plan. I won't speculate what treatment they will give you. Just that yes the most common chemotherapy treatment is 6 treatments every 3 weeks. Chemo side affects are different from person to person, and you should wait until you have your op and they tell you what treatment before worrying about chemo.
AnnaBandana's is a popular site to buy them from. My wife Nikki had her cut short, it can be a traumatic experience for some.
That's a natural reaction, and you will feel better mentally when the treatment begins.
This site is great for questions and support. But the helpline should be able to give you advice too.
I'm glad chemo hasn't been "too bad" for you Amanda. I bet you can't wait for the picc line to come out, Nikki hated that and was a good milestone when that was removed.
Nikki found rads really tiring, lots of travelling back and forth for work and of course she wasn't use to walking much. She had extra rad treatment, and probably because of that her skin split and has had nasty wounds that are taking there time to heal (the wounds are healing now thankfully).
Sunday week is my Brighton run, should be a good day! xx
I had my MRI results yesterday and they showed just one lump in my breast, but unfortunately it also showed a mass in my lymph glands.... I had to have further biopsies and then go back next Monday for the final results and to set a treatment plan.
What is chemo like? Is it a 3 week cycle? I thought I read that days 1-10 were bad, and days 11 - 20 were better? Is that right, or does it vary for everyone?
I have bought some really pretty headscarves and bandanas - found a great site called AnnaBandana. They were really reasonably priced. Would anyone recommend getting my hair cut short before i start the chemo? I have pretty long hair, which has taken me years to grow....
I feel scared that it is in my immune system already....is anyone else feeling like that? Is this the sort of thing I could ring the helpline about, or is it more for specific questions?
Chemo has been pretty kind to me, I have only been sick once so far and that was after the first T. I have definitely found T a harder than FEC but still come out of the worst after about 10 days or so and have a good last week.
Lat one is due 21st April, assuming last delays...will be ecstatic to finish and get the picc line out too. Then four weeks off until rads. How has Nikki coped with the rads, hope working as well didn't prove too much for her!
Well done Jen, must be such a relief to be do Everything! As for the MX and ANC, I had that after a WLE and sentinel node biopsy and despite having two ops on two months, I think it was easier than chemo. It's much more 'topical' and your in, done and out after a night or two and then although it can be locally uncomfortable it's just a sort of one hit and then (hopefully) a steady recovery. Keep us informed how it all goes!
Only one more Tina, you've done really well to have no delays! I have lost two weeks with delays, but assuming to tomorrow's T 2 goes ahead as planned, and I don't get delayed I should finish on the 20th April but I'm not holding my breath!
Welcome Jackie, even though you would prefer not to be here, you have already found out how much information and support there is here, Barry was super helpful with advice about fertility treatments options. I should write down a list of questions for Monday and if possible take someone with you as an extra set of ears.
Love and hugs to everyone,
Brilliant Jen! What a milestone 😊 Onwards and upwards now! Xx
Jen, fantastic for getting to the end. What a relief! Enjoy the break without hospital appointments and make the most of feeling well!
tina you are neatly there! Well done! I can't wait till I don't have to walk in to the hospital knowing I have to go through the it all again. Less than five weeks for me now!
Jackie you will get so much support here. The early days are the darkest. It does get easier and I have gone through my treatment with so much advice and support from others here.
lve to all