40 Barry , you are a mere child!i hope you have a wonderful day! I'm 50 in October and I'm determined to be blonde again by then and feel more like myself!
Amanda I hope you are ok and any future surgery is straightforward. Sissy and I have booked on the moving wars course at the k and c in October. Are you going to do it?
Robin, this thread is a supportive and positive one that really helped me. I was due to go to Antigua just after I was diagnosed. The surgeon gave me the choice of having surgery after the holiday as he said bc doesn't grow that fast. I chose to cancel and we got a full refund. I also had to cancel a skiing holiday we had booked for February due to chemo. Again we got a full refund. Hopefully you will be able to go n your holiday. We have now booked a family holiday to Italy which I am going on two weeks after rads finish. Can't wait! Good luck with everything. You will get through.
Crikey Barry, that sounded bloody eye-watering! I assume July follow up is for results? I have my second Gyno at the end of this month, to see what she wants to do about my prolapsed bladder and possible hysterectomy, more surgery is not something I look forward to but I just want to get it all sorted!
Robin, welcome to this huge and superb thread, glad you have found it useful so far. I initially had a WLE in September 2015 and was only expected radiotherapy after, but pathology results and subsequent MRI (dense breasts, too!) set me on the course for a mastectomy and chemotherapy, now having rads so the diagnosis can change and active treatment can go on for many months! Maybe phone you breast care nurse and see when the late the results and decisions of the multi disciplinary team will be in, explain your dilemma. They may be able to rush the results but some do take time as they need 'culturing' so they may not be able to give you definitive results in time and your health safety is what is most important here. If you haven't had final results by the 24th; maybe you could cancel and get your money back but still might be able to re-book (with new travel insurance) if you will be finished active treatment in time? On making enquiries about travel insurance earlier this year, I found that no one wanted to offer annual travel insurance for me anymore but it would be possible to get single trip for specific travel dates/destinations. Make enquiries to insurance companies before you book, to make sure you can get insurance and make sure everyone who will be travelling with you is on the same policy.
I wish I could say "only" 40 Ruth! Thanks you for the wishes though ladies.
Robin, when my wife Nikki was diagnosed last August, the rest of the year was one big low point. But it feels a long time ago when Nikki was beginning her chemotherathy in October and everything that came with it. We can't wait until Florida in October, so give yourself something to look forward to. Whether it be between treatment or afterwards!
Welcome Robin. I feel for you and your holiday woes - I had to cancel a short trip last September which was one of the low points for me. Hope you get something sorted.
Great to see you here again Barry. Hope you have a wonderful birthday. Wish I was still only 40!!
I know Jill I'm getting on!
Nikki's arranged a small meal and drinks with a few "selected" friends and family tomorrow night to celebrate.
Should be good.
Hello ladies, and any gentlemen who read these posts. I do get alerts when this post is active, so thought I'd quickly pop in and say hi.
How is everyone doing? All the ladies from last summer, sorry to hear about any struggles back at work. Nikki works way too hard if you ask my, she's been back full-time since she finshed her rads. Working does seem to keep your mind occupied though. Her hair is growing back nicely, with people who didn't know thinking she chose to have her hair short.
Amanda. I had my first visit to the doctor in May. I won't lie a needle up the you know where isn't very pleasant. Another one planned for July!
I still notice the cancer ads and any news about possible treatments, what about everyone else? Do you dwell on things much?
Oh and I'm 40 on Tuesday!
Sending love to you all.
sorry to hear that you had to join us - but really happy sto see you here. It is great, that you already have a 'handle' on us all, lol.
Dense breast, lol - I had the same challenge - it just means that the tissue inside is still in pretty good shape!
MRI might not be able to 'see' through it all, but it will depend on the initial diagnosis of your type of bc.
It will give then a better picture of how large and whether there are other undetected unusual 'bits'.
The result for MRI and also biopsy should take about two weeks to come through.
My suggestion would be to discuss with your assigned BC nurse, if you haven't already done so.
She may be able to get 'provisional' results and to help you make the relevant decisions as to your holiday plans.
Hello everyone, I've been reading through the start of this thread and following people's stories, particularly Jill1998 - thankyou for starting it 🙂
I was diagnosed a few weeks ago and will have my WLE next Friday 10th. It was my OH who first spotted the lump so I have him to thank, I admit I've been a bit lax over the years in doing breast checks, although I've always gone for mammograms. Although this lump didn't show up on the mammogram they gave me when I saw the consultant, as apparently I have 'dense breasts' (?) so I had to have an MRI. Anyway, the consultant is upbeat so, well, 'fingers crossed' sounds a bit pathetic but you know what I mean!
I really appreciate this forum and it has helped me a lot to read about other people's experiences. I've been telling a few people 'as and when' but mainly just planning to go on as normal, for as long as possible.
The headache for me at the moment is about holidays - we've had to cancel one weekend away but I'm hoping I'll be OK for September when we are planning a big holiday (booked about 6 months ago) to celebrate OH's 60th birthday and retirement. Either we cancel before June 24th which is when our annual travel policy runs out, and then find we could have gone, which would be a huge disappointment, or we hope I'll be OK but may not find an insurer to cover us, or I need more treatment and we have to cancel at a later date and lose £1000+. I probably won't know the result of the biopsy by 24th, so - to cancel or not to cancel?? - ACK!
Good monring Peggy....
advancing years ?
Bottles of red wine get better the older they are! I am a 1958 vintage...lol
Totally agree that having something else other than BC to think about is a good thing. I definitely manage to forget about it in the main during the hours I'm at work. And it's great to be with my colleagues again.
Good luck with the start of rads and going back to work Claire. xx
I start rads on Monday and I'm going back to work on a phased return on the same day. I'm working two days a week to start with. I know a lor wil be expected of me and it will be very easy to do more than the agreed hours. ( I'm deputy head of a primary school) but I am determined to keep to those days. My rads are all at half four so I will have to leave school early each day. I'm looking forward to going back and I need it as I have been at home since My first op in October. As Sissy said it will give me other things to think about which I need. It's time to me on and try to put bc behind me. Living with the fear of it returning will be hard but work will help.
i was a pretty confident person before all this happened. I had a great life, loved my job and was pretty happy with who I was. BC has knocked me hard so I wouldn't underestimate the effect it has on us emotionally and mentally. I haven't had counseling but I'm doing a moving forward course in October. One thing I have learned is that it is not a bad thing to show vulnerability and ask for help. I have had fantastic support from friends and family,and this forum and could not have got through it on my own.
love to all
I finished chemo end of January and had node clearence early March. Did not need rads so once I'd recovered from the second lot of surgery (had a MX and recon late last August) I started to feel better physically relatively quickly, give or take the general aches and pains that chemo, and advancing years , seem to leave you with and I'm having some physio for those now. Mentally I mostly think I'm doing okay. Have had some really useful counselling sessions at The Haven which have touched on work related things as well as BC.
Thanks for the virtual confidence.
Anyway, that's enough of me. Bed is calling. Sleep well. xx
Hi again Peggy,
When did you complete treatment? You may be asking a little bit too much of yourself, as your body may still be recovering from the ravages of treatment.
At a guess our minds need recovering too! Although never visible, we fight in our heads and hearts with so many things over such a long time - it must be tireing for our minds, too - not just our bodies.
And although having won major battles, it may not mean that we will initially be mentally strong enough to change challenges we faced before diagnosis.
Have you ever researched or thought of working with a 'confidence coach'? I met a lady recently, who is exactly that! And, by all accounts - it seems to work well for her clients.
Not me, I hasten to add, lol - I fortunately - or unfortunately - depending how you look at it - have the stuff in buckets.
Sending you some of it virtually.
My situation is really not so bad - it's more my ability to handle it that's making me cross at the moment. I had promised myself going through treatment that I'd be more forceful and not allow myself to get so stressed about work issues. To be fair, my company has been very supportive throughout the entire time I was away and working from home. I just need to toughen up a bit and learn to say no a bit more often. I'm glad that you find yourself in such a supportive work environment - I am sure employers who treat their staff in such a way get the benefit of staff loyalty in return - but it's not good that you have to take so much time as annual leave.
Hi PeggyCat, Jill1998 and JenJen,
How horrible, that you are being put under so much pressure.
Not sure how brave you feel - and how large the companies are, which you work in. Do you have an HR department, which you could rope in to raise cancer/chemo awareness?
Do your colleagues know what you have been through?
I am very fortunate in one way and perhaps not so fortunate in another.
Working for a small family run business (9 employees including me) it is nearly impossible for me to consider taking much time off, when I do take days off - I request them as annual holiday. If I am unable to contribute to the business I would have to leave, so they can employ someone more, who can.
However, as one member of staff has been through chemo as a younger person, so there is much understanding, especially during the first 8 days after treatment, which really helps to take the pressure off.
Long may it remain so, as I have no idea how I will be, when challenges, such as fatigue start to have a cumulative effect and my recovery in between cycles may slow down.
I've found it the same with work. Colleagues have been pretty understanding but I've really had to be firm with boundaries which I've not always found easy. It's hard to keep having to say that no, I can't come in for a meeting at 8.45am and stay for another one that goes on until 6.00pm when I'm supposed to only be working six hours. I'm feeling really guilty today because I've just asked for a week's leave in July. I am entirely entitled to it but can't help feeling a bit cheeky after having so much time off recently. xx
Hi everyone, I'm still around, I don't post as much as I used to but do try to check in regularly.
Just done 8/15 rads; it's a little tiring at random times but nothing to report regarding my skin, can't see even slight reddening. I started on tamoxifen three weeks ago, three weeks after chemo finished.
I think my first post here was on the 11th August, the day I got my diagnosis, so much has happened since then but I have been back here again and again for help, support and advice. The times when I have been down are the times I always know where to come for some encouragement, because you are really the only ones who really understand!
PS....I wonder how Nikki and Barry are, I think Barry was due his appointment with the specialist last month?
I did work through mine Jen but I have a pretty cushy office job and nothing much was expected of me! I found it helped me to focus and I was still in the don't want to spend to much time on my own stage so being at work was great for me, I booked all mine from 4pm on and only had one changed to a mid morning so I took that day off as I had a 40 mile round trip, Mike or my niece came with me each day so I had company and a driver if I didn't feel like doing it, all in all I found it fine but it's best to play it by ear especially as your still recovering from chemo xx
Yes Claire hope they don't give you any problems, it's hard to believe you are coming out the other side now, only seems like yesterday you were joining the thread along with Amanda and Tina and so frightened but your almost there now and have got through with grit and determination! Xx