Got results today to say that the cancer is ER+. Hoping that's a good thing as they might opt for hormone treatment instead of chemo?? Desperate to just get on with treatment now and starting to worry that the lump has got bigger.
On a positive note, I had a lovely lemon pastry today
You've certainly taken the bull by the horns in just the last two days. I'm madly impressed and take my hat off to you girl.
I'm presume you're still waiting on Path results from your biopsy are you, as they don't yet know whether ER +ve -ve ??
Was there any family history of BC, Caroline?
I think you've done the right thing with regards to going ahead with harvesting some of your eggs. At least you then have the option, as opposed to if not now, and you then changed your mind about kids in the future, you'd have regrets.
I totally agree, it's weird the not being in control. You're basically having to hand your body over and trust in the onco specialists and team to do what's best for you.
The other thing I found difficult, and others mention too, is the sudden loss of trust you feel in your body. The feeling that it's let you down. Until something like this, we tend to think we're indestructable and take it for granted. And can we ever trust it again? creeps in. Something else that can't be controlled by ourselves, but positive after results and longevity are so much higher these days, with the improved ability to diagnose so much earlier, improved surgical techniques, and more sophisticated treatments greatly reducing reoccurrence.
At least your partner is actively aware and supportive, rather than dumbing it down, or burying his/her head in the sound.
And yeh, it's worrying or frightening to feel the lump once it's been diagnosed. You tend to think all the time it's there it's going to be spreading. But that's a very quick response to be treated 2 weeks after your diagnosis.Fantastic. Great to know they're so on the ball with you and "it".
How big is it? You didn't say.
*Just a tip * - Get loads of healthy food inside you over the next couple of weeks, with lots of lean protein, prawns, fish, chicken, liver (if you like it) to boost up your iron levels, lots of the colourful veges and salad stuffs. All helps prepare the body to repair itself that much better, therefore that much quicker.
So you'd better share what's left of the cake out with us lot then - capische
Keep posting flower. (What kind of cake is it anyway? I'm teasing.
Thanks for all the lovely, helpful responses ladies!
It's been a whirlwind couple of days and my partner and I were given 24 hours to decide whether we wanted to freeze eggs/embryos or not (quite a lot to take in for someone who has really never thought about kids until now!). Currently looks like lumpectomy plus some lymph nodes on 1st August, followed by a cycle of IVF (freezing the embryo for future use), then radiotherapy, then chemo and/or hormone treatment, OR possibly chemo before radiotherapy, the doctors don't know yet if I'm ER positive or negative... argh!
I'm struggling more with the impact on others than with how I feel myself at the moment, and my partner seems to be taking this much harder than me. I've also eaten way more cake than I should as a coping mechanism!
I've had more letters in the post already for various appointments etc than I can shake a stick at, including a request to take part in some research, which is all just a bit much 4 days into my diagnosis! I'm not used to not being in control of things, and feel a bit like I'm on a really fast train than won't stop.
Aside from all of that, I just want this thing out of my body now as I hate being able to feel it so easily!
A warm welcome from us. I'm glad you've posted on this Forum, but not happy for your reasons to. It's a great place for support, advice, similar buds to chat to, or have a rant to or with at ANY time, and hopefully have a few laughs with to lift your spirits along the way.
I'm so sorry on your diagnosis. Yes, you are very young, but your age and the fact it's been found so soon are both plusses for you to concentrate on.
That's something of another shock, that you say you've never wanted children - Jeez, I can bet a threat to your fertility has probably made you think or feel differently on such things.
I can't advise on rads, but I can tell you from both of my mastectomies (2006/07), a delayed recon op, and other knee ops, general anaesthetic is THE absolute least of your worries. Please don't worry yourself about it. All the anaesthetic teams I've experienced have been absolutely fantastic - honestly. The BEST of hospital staff. And it literally gives you the most wonderful sleep you'll have ever had. Wear your best underwear - just gives them something to talk about whilst you're under. . . . I'm joking (tho' 'I' did!!). You'll be amazed - one minute you're counting yourself down to "going under" and then waking up a few hours later and it being all done.
Time off will very much depend on whether you're having a lumpectomy, as opposed to mastectomy? Do you yet know, or do you yet have that decision to make? I'm guessing lumpectomy, as you're saying radiotherapy treatment afterwards. Took me two weeks to fully physically recover from a mastectomy, but I didn't have to get back to work - so Jills' three weeks to fully recover is probably more sensible.
Ask your onc team, and some of the girls on here who've had rads will be able to advise you ref time off for that. Tho' it seems to depend on the individual. I've known friends and other women who haven't suffered much in the way of side effects from radiotherapy, and have just slotted their appointments into their work. But also others who haven't been able to so easily.
Please keep us in touch with where you're up to with it all, and how you're doing, feeling. Have a rant, sob, or just come and grab a glass of Jills' famous voddie/sprout brew - it's like anaesthetic anyway!! Just keep yourself away from any open flames!!
Loadsa love, Doolally xxxxxxxxxx
My Dear Jill,
I felt quite guilty at proferring your name to answering this thread, despite it being your own original. Bit cheeky of me really and just came on to say sorry for. But looks like I needn't have worried. Bloomin marvellous response really. I doo hope you didn't mind, my darlin girl. Sorry if you did. But obviously you didn't, thank goodness. So I'll shut up on that then !
Jackie - I'm sooo bloomin sorry on your diag. It's a total bummer isn't it, to say the least. Completely knocks you off your "life" perch. Please DO keep us informed with what's happening with you, will you. Glad to hear you saying you're doing okay? but totally with you on the anxious
MadAnge - I've always loved your name. Crikey 3 1/2 stones? Hope you can keep at it girl. We'll give you lots of gee-ing up, if you want or need it.
Hey Jill, Fuffs, Jobey, Mad Ange. Ann-m - Have no worries girls. I took it on board and have been brewing the voddie sprout mixture since this thread's fizzle. But be assured, that fizzle just added to its VaVaVoom impact. What do we call it - our founder's "Jill's Bum Brew"? Doesn't have the right ring somehow. Any better names greatly appreciated. Please note, my own flatulance is to be excused - it's them bloomin sprouts. It was purely due to the tasting process - hic hic and pheeew!! Tastes real good tho'.
I'm off to respond more seriously. Good to see you all
Lotsa love to everyone
I was diagnosed with stage 1 or 2 invasive ductal cancer yesterday after finding a lump a few weeks ago. The consultant was really surprised with the result given my age (31), and they've said they'll be treating it aggresively because I'm young. Surgery in two weeks followed by radiotherapy, and the doctors don't know yet whether chemo and/or hormone therapy will be needed... I've never been under general anaesthetic before and I'm a little worried about it. Any words of wisdom on how to prepare for this and for the radiotherapy? What should I expect realistically? Will I be able to work or need time off??
I've also been told I need to go to the fertility clinic... I've always been adamant that I don't want children, but all of a sudden the thought of fertility being an issue in the future seems scary. So much to take in.
All a bit surreal at the moment, but so glad now that I regularly check myself!
Hi Jill and anyone else looking in.
Jill - It's such a shame this thread seemed to just fizzle out, because it was a great starting and supporting point for just that, i.e. anyone "Just Diagnosed". Lot's of experienced postees, from varying years post treatment, for supporting and proffering advice to newly diag postees. I've just spent a while reading back through a couple of years - provided lots of chuckles as well as seriousness. Needs reviving really.
Bibi - That was a fantastic helpful link you gave us. Thanks very much for it. A really good source of useful information for "Newly"s (diagnosed) and older Booblay's. That was a pun on " Buble' " (as in Michael, but I haven't got the French accent key on my keyboard).
So if you're a "Newly" i.e. "Just Diag", looking at this, pop a post on. I'm sure Jill, the founder of this post, and or others will be along shortly to say a friendly "Hi".
Jennifed - Hi girl. Are you still struggling on Extemestane? Or have you switched?
Lotsa love to everyone
Gosh it is really funny I have just clicked on this thread and seen the posts from Delly and Jill 12 months ago asking how my rads were going and Delly about the Progesterone thread. It is really spooky that seems soooo long ago now.
A day over my last post here.
Well, don't know if most of you have deleted this thread from your lists, but to anyone who hasn't and may pop in, am wishing you all a very Merry and enjoyable Christmas, along with a Happy, Healthy, Content and Peaceful New Year.
Hope you are all very well. If not, that you soon are.
Lotsa love and all good wishes