Just diagnosed and wanting to talk to people who understand

[Babypink]

THe surgeon was lovely as was the nurse, she went on to talking about bras and false boobs, and I (horribly) thought just shut up!  Shut up!  its not the bloody same.......shut up

She showed me this sponge thing, and i looked at it, didnt touch it, but thought thats me, thats going to be me.  Waking up after the op, glance down and just more disfigurement, more heartache, more "how much more can I take"

I am and always have been a strong person, but sometimes, it just gets too much and sometimes, that strong person isnt who you think they are.......hurting

[bazza7676]

BP, when my wife was diagnosed about 5 weeks ago now it worst news ever. We're still waiting for the full oncology report, but I think we want treatment to begin as soon as so that this horrible thing is got rid of. I've found this forum a great help, it doesn't stop the tears but it really is good to talk to people who are going through the same thing x

[Babypink]

Ok, so I went for my consultation on Monday and this time took a friend.  Glad I did as the news was I need a mastectomy, I just cant believe it.  My world has imploded, thought the diagnosis was bad, but now this, words truly fail me.  On top of that I also two years ago was diagnosed with crohs/colitis, and after a routine exam, the surgeon ruptured my bowel and I ended up with peritonitis and now have a stoma!  At just turned 50 this year, its been utterly dreadful.

I recently came out of a horrendous relationship and I tried so hard to get myself up and running and done chartity walk, and been on lots of mini breaks and kept healthy and busy and now this!

I feel like I am going to be a freak, stoma and one breast.....................

[bazza7676]

Morning everyone. How are you all feeling today?x

[familytree]

Lol Fuffs

Join the club re osteo and more pills! I struggled with a pain killer before BC! hey ho such is life x

[Fuffs123]

Yep, doesn't matter if you're rich, poor, a townie or a country dweller, BC can get you, the little **bleep**! Fat, thin, active or unfit, it respects no one. Let's kick it in the arse! Now been told I have to take a calcium supplement as my bone scan shows early signs of osteoporosis. Oh joy another tablet to add to the pill box! Need to do some weight bearing exercise apparently. Does carrying a large bar of chocolate count for this?! Hope you all have a good night's sleep. Anything more than 4 hours will be a bonus for me. 💤💤

[A.Faed]

Yes, cancer is not fair...if it was, only criminals and like should get it! 😕 

[bazza7676]

Shows bloody BC doesn't care if it's fresh air or our London air x

[newey47]

yes I do have plenty of country air lol x

[bazza7676]

Nice country air for you x

[newey47]

That is our nearest hospital lol, we live out in the country 25 miles from Ipswich.

We are midway between Ipswich and Great yarmouth, no hospitals in between unfortunately.

[bazza7676]

Yeah I mean he was talking about after treatment and years down the line so gives you lots of hope. We'll see if we go through with it though x

[familytree]

Good to hear Dr was positive in the main..must bring some hope,...love to Nikki x

[bazza7676]

Hi Amanda and everyone else. It was fairly useful. The doc said although oestrogen levels are boosted to harvest the eggs, he said no evidence shows it does any further harm. We've got a small window. So just going to do the early testing first. I think she was glad to get home alright, thankfully noone knocked into her which is amazing for central London! Xx

[A.Faed]

Hope you and Nikki had a productive appointment today, Barry and that journey went ok. Bet Nikki is exhausted now...you too, probably!

I was told that radiotherapy would start to tire you as it progresses, try to get as much rest as you can Jill.

Amanda x

[bazza7676]

Thankfully our nearest hospital has a breast care centre x

[Jill1998]

They have specialist centres that deal with radiotherapy ,dependent on where you live there can be quite a journey ,I'm also 50 mile round trip.

[bazza7676]

That's a long way! No hospitals near you? Some people have offered to take her to chemotherapy when she has it, if not we'll get a cab ( more incentives for me to learn to drive) x

[newey47]

hiya, yes you can drive during rads no problem.  I am driving myself there and back 50 mile round trip.  A bit of a nightmare, and only done 2 so far lol. x

[bazza7676]

Are you able to drive during rads? x

[Jill1998]

I am absolutely exhausted by it,don't know how I dragged myself here today ,In fact don't remember driving here!!!

[bazza7676]

Thanks Fiona and Francine. Nikki's health is my primary concern in all this. If we can't have children it will just mean more holidays together! Xx

[Fuffs123]

Sending my best to Barry and Nikki for their appointment today. Jill, you're smashing those rads!

[Jill1998]

You will just have to take it slowly Barry, stop and rest when you can even if just for 5 mins and get her to take some painkillers before you set off(not strong ones).

[Jill1998]

Fiona, if there are no complications I think you will be fine just need lots of padding around your boob as seat belt rubs against your wound.just don't plan to do too much while you are there.

[FionaJMD]

Best of luck today Nikki and Barry. Let us know how the journey goes. My surgery is on Monday and I hope to be able to visit my daughter by the end of the week - 2 hour journey to Sheffield.

[bazza7676]

Thanks Jill. I'm hoping Nikki is going to be Ok with the journey, that's my main concern x

[Jill1998]

Hope your appointment today is helpful to you and Nlkki Barry.

[Fuffs123]

Well my first op was on my birthday, 10 Feb, so perhaps it's a good omen. Some present! I was diagnosed on 27 Jan, seems like a lifetime away. No sign of that tiny pucker I first noticed now, think it's sitting in the path lab along with most of my right boob, lol. Sorry, too much information! Time for bed. Night all. X Francine

[familytree]

Francine my birthday is the 17th.. you will be fine I feel it in my boob! 🙂 x 

[bazza7676]

Evening Francine. Bean sprouts are vegetables the last time I checked 😉 The horrible waiting game. They should give you a health warning about it! x

[Jill1998]

I think bean sprouts count !!!The waiting is a bugger isn't it.

[Fuffs123]

Evening all. I've been on a sensible eating plan today, well it made sense to me! Cheese and crisp sandwich for lunch (brown bread of course) and a chinese for tea. No sprouts I'm afraid, do bean sprouts count? Have my date for my results now, 17 Sep. Going to be a long 2 weeks so am stocking up on Cadbury's chocolate fingers! Sending hugs to everyone fighting the **bleep**ty BC. X Francine

[Jill1998]

Don't **bleep** come back or else!!!!

[familytree]

Loads off suggestions!Can't put it on here but every swear word imaginable lol x

[Jill1998]

Think I may put it in a bottle with a message and throw it into the Irish Sea,any suggestions for the message????

[familytree]

Great news Jill... Not long now before you launch your bra down the river! X

[Jill1998]

Have you tried them deep fried with chocolate fondue Chris??

[Caffy]

Hold on a minute Jill, I said I'd agree to chemo, but I didn't say anything about eating sprouts, THAT really would be the limit ! Only joking actually, I love them! Congratulations on being over half way through radiotherapy, you're on the downward slope now, heading back to a normal life - whatever normal is!! Xx

[bazza7676]

Good news Jill, a little milestone for you 🙂 x

[Jill1998]

Morning all ,I now have less radiotherapy sessions ahead of me than behind me!!!!Chris hope you get the news you want on Friday,
like you say most of us are prepared to do anything to get rid if this b****r (even eat sprouts.....)

[lisajane7878]

Amazing husband and amazing family and friends. I'm very lucky in that sense. My mum has taken 6 months off working as a children's nurse to be in hand with looking after me and kids xxx

[familytree]

Oh Lisa what a nightmare with children. Do you have a good partner/ support? I hope so. Lorna x

[lisajane7878]

Thanks Sarah same back to you. It's so hard with little ones but then at times I do think the fact they are unaware is a bit easier. I can't bring myself to say anything to my adorable 5 year old. She's such a sensitive girl and practical my shadow. Barrie I think it's just when the lump is big and hercep positive xxx

[familytree]

I took a card and chocs for every rad room I had used. They were lovely. Was looking for biscuit tin but couldn't find any...must be a Christmas thing? X

[Sarahd-1]

Some surgeons decided to do chemo first to shrink the tumour and sometimes it makes it disappear I think it depends on the type of b.c it is

[bazza7676]

Big hugs to everyone going through this! x

[Sarahd-1]

Lisa this is so hard on any family but with young children aswell. I finish in December too. Keep strong Hun big hugs to you xxxxxxxx

[bazza7676]

Morning everyone. Lisa what books do you recommend? It's odd which way round they do surgery and chemo, I haven't looked into the reasons yet x

[lisajane7878]

I get all the books from Amazon. I'm yet to start my treatment. So far have had ct scan which I'm still nervously waiting on results. I'm starting my chemo next Wednesday and my last one will be 23rd dec then having mastectomy. I was shocked when they decided this way round but fully support the decision. I have a 1 and 5 year old xx