So Tina, I have been told by two different BCN's and my surgeon that I will be having FEC-T. I asked them about chemo at every opportunity I have had to talk with them... will I have it, then when, what will it be be, how long? All three have said it will be on FEC-T starting sometime in January.
As as for info your doctor may or may not have, of course each health authority can be different, but mine write to my doctor and copy me in, so I see everything he's being told....but it is very much delayed, maybe 4 or 5 weeks after the treatment, and then they only anything major, like surgery tends to be mentioned, and not much detail, you will find out more when you see the surgeon. My GP hasn't even been told I had the mx and anc three weeks ago, as far as I can tell, so I doubt yours knows anything yet. I have asked for and been given both my histology (pathology) reports. However, these are a bit complex and need a lot of 'Googling' to understand and can be a little scary; mine included a 'Nottingham Prognosis Index', which wasn't as favourable as Predict! If all this is worrying you, phone either your GP or BCN or surgeons office and ask.
If you want to know something about your diagnosis or treatment, ask clearly as you have the right to know. Your health care professionals will however, not want to deliver you news if they are unable to be sure what it means and answer your questions properly, so that is probably why the nurse minimised the screen, as it was probably beyond her brief to deal with. Also, if they sense that you are a bit wobbly, they won't want to overload you with anything.
Try to be patient, I wouldn't have thought any of them are hiding anything from you, from what you've said so far. Call your BCN or outpatient office and ask when you're appointment will be, I got my date for the appointment the day after surgery, on my discharge papers. Two to three weeks after surgery is the norm for the follow up, so you should be seeing them soon.
Amanda x
