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Just diagnosed and wanting to talk to people who understand

Tandy 4
Community Champion

Re: Just diagnosed and wanting to talk to people who understand

I'm still popping on here Amanda too! As you know I'm on the December chemo thread with you too. I also pop on the night birds and feeling weepy one!! 👍🏼 xx Tina 

 

Claire!....... Where are you Hun? Hope all ok? I've messaged you today 😚

Ali-B
Member

Re: Just diagnosed and wanting to talk to people who understand

We're still here so keep posting Amanda!!! Xxxx
A.Faed
Member

Re: Just diagnosed and wanting to talk to people who understand

Hello everyone, hope you are all ok...not so much activity here now, I guess people are moving on or to different parts of the forum?

 

I got a short back and sides today and actually didn't mind the way it looked at all. The same however, can't be said for the wig, which looked awful, like something from a dodgy porn movie, can't quite believe it it the same one I actually chose! I will wash it and try it again one all my hair is gone, but I have a feeling that I am going to be a scarf and hat person!

 

Bloods on Tuesday and FEC 2 next Thursday, hope it will go as well as the first one, but I'm trying to be being realistic and not just assume that it will be the same every time!


Love and hugs to everyone,

 

Amanda x

Caffy
Member

Re: Just diagnosed and wanting to talk to people who understand

You'll probably cling onto your eyebrows and lashes for some time yet. Mine are only  just thinning now after T2. I keep hearing good things about Wonderbrow, going to investigate next time in in Boots. Xx

A.Faed
Member

Re: Just diagnosed and wanting to talk to people who understand

If I stay on target, first T will be 25th Feb. 

 

Day 12 after first FEC and the hair is coming out rapidly! Looks like I will be ready for the major cut and wig fitting / trim on Friday! It's not bothering me that much atm, but I think it might when I have it cut!

 

I am going to rely on my make-up savvy 20 year old daughter to take care of my eyebrows for me, and maybe putting on eyeliner for and eyelash effect.

 

Amanda x

bazza7676
Member

Re: Just diagnosed and wanting to talk to people who understand

Hi Amanda, we had a good Christmas thanks. I hope you did. Nikki's 5th session is on Thursday, so one more after that. Yeah she will have radiotherapy, but not 100% how many week's it is for yet. Ange and Chris have nailed the SEs of FEC n T. Fingers crossed yours won't be so bad x
MadAnge
Member

Re: Just diagnosed and wanting to talk to people who understand

Caffy has the side effects to a T xxx
MadAnge
Member

Re: Just diagnosed and wanting to talk to people who understand

Hi Amanda:) to be honest they are both so different. I found FEC difficult the first 5-7 days as I was really sick and my hospital would not give me emend. The difference with the T is the aches, the best bit is I do not feel/was not sick but the aches for me have been worse than expected plus the mouth ulcers 😞 you will be given meds to counter act these and as we keep getting told everyone is different but at the moment I think personally I am finding T harder and I have started herceptin too ( but for me the thought of the injection is worse than having it) plus I am so used to injecting myself now with the gsf and my anti clotting stuff that I am getting used to it.

Not a definitive answer Amanda but hope it makes sense xxxx
A.Faed
Member

Re: Just diagnosed and wanting to talk to people who understand

Thanks Chris, trying to gather as much info as possible. I had read that the T is very achy! I won't be getting to that uniting the third week of February, if I stay on target. 

 

Hope me you and Nikki had a good Christmas and New Year, Barry, how many has Nikki got to go now? Will she be having radiotherapy after?

 

Hope everyone is doing ok.

 

Amanda x

Caffy
Member

Re: Just diagnosed and wanting to talk to people who understand

Hi Amanda, I just saw your question to MadAnge re FEC and T and thought I'd put in my tuppenceworth. TBH it's difficult to say which is worse, the SEs are quite different. I suffered with sickness and nausea with all 3 FECS I was on Emend by no 3 but still had nausea, so the good thing about T is that ther has been very little nausea, just a little bit of queasiness and no sickness. (I've had 2 Ts so far). The downsides of T though are the mega doses of steroids which make sleeping tricky, the bone/joint aches and the diarrhoea. But I'm more prepared this time and will start taking the codeine and loperamide more quickly. Hope this helps but everyone is so different and we all seem to suffer in different ways ! Good luck xxxx Chris X 

bazza7676
Member

Re: Just diagnosed and wanting to talk to people who understand

Morning everyone and Happy New Year!  hope everyone had as good a Christmas as can be.

 

Just seen that Victoria Derbyshire is talking about the hairloss this morning. May be of interest to people. 

Blossom Hill
Member

Re: Just diagnosed and wanting to talk to people who understand

Hi MadAnge, hope your ok, I'm awaiting my surgery may I ask why you delayed your reconstruction, like most on this site, I'm a newbie, but as I told Delly, we learn fast. Ive got apointment with consultant tues eve to discuss reconstruction at same time as mascectomy. I wont know how long this roller coaster of a ride is for me until as they say "the results are in". You lovely ladies are beyond human kindness, how come such a small word causes so much misery? Total strangers that just get each other through, I'm humbled, its amazing. Sending best wishes and grateful thanks for the hello

Blossom Hill XXXX

A.Faed
Member

Re: Just diagnosed and wanting to talk to people who understand

Hi Ange, glad you're feeling better, hope the pesky cold goes soon, I guess all these things take much longer with the annihilated immune system! So now you've done the T, which do think is worse, the FEC or the T? I'm just on day 10 of my first FEC on Christmas Eve, I reckon my hair might being going south by the weekend!

 

Hope everyone is ok, I was glad to get the Christmas decorations down and the house a bit more normal, although my eldest daughter is still here with my nearly two year old grandson, so the house is still is 'baby proof' mode and the heaps of washing are endless!

 

Amanda x

 

MadAnge
Member

Re: Just diagnosed and wanting to talk to people who understand

Hi all, hey Delly your caps lock is working hard at mi :). Feeling better today 🙂 still have a cold but aches are doable. So have a week until next poison. So not looking forward to it. Hello Blossom Hill, I am also from Bedfordshire. I have had my ops ( until reconstruction as we delayed it) just need to get through rest of chemo then a year of herceptin xxx
Blossom Hill
Member

Re: Just diagnosed and wanting to talk to people who understand

Morning Delly, you nutter, you sure were not gonna get slung off this site for having TOOOOO much FUNNNNN!!!::??? Yes Im married but only by 4 years, told my hubby he had defo got the short straw. Ive got 4 grown up children and 5 grandchildren, I work full time, or did, well tomorro's my last day pending my enforced long sick leave. NAH Im not brave, just plain stubborn and I'm gonna be no good at this being laid up mylarky, my family are dreading it.I know I'm taking the long road and I could take a shorter journey, but the radiotherapy and chemo are gonna be same, why have a second op just when youv'e recovered from the first bloody one? I know some people are not so lucky and thats what I mean about feeling guilty, some ladies don't get the option to keep their breast, I'm chosing to get rid of mine, and one of em's OK!!! Well till it bloody takes up residence in there too. I just want to give it the least chance to come back, I have a daughter with BRAC2 gene, inherited from her dad, although we are divorced, Im an oddity and I'm still friends with the lovely man and his family, (there is no cancer until me in my family), SHE IS 21, I have attended her counselling with her prior to testing and also after the news she tested positive for the gene, she is having mascectomy at 29 or 30 as it hits the women once they get into their 30's, at least god willing I will be able to look her in the face and understand her terror too. She is the only one out of 5 cousins from the family to test positive for the gene!!! I've watched my four sisters in law have breast cancer (one we lost to it 20 yrs ago) and watched their lumpectomies followed by treatments then when it returned mascectomies, I'm not putting myself through that, I'm going the long haul once only road  Um intersesting info regarding reconstruction, thank you, havent really spoken to the surgeon about that cos she has been too busy talking me out of it. But I have appointment with her on tuesday, apparently she has booked me a 40 minute slot, HA she knows!!!!!!! Ive told the breast care nurse thats what I've decided so she has obviously passed on the message. Anyway its their fault I'm on here, I was SOOOOOO bad they were gonna refer to a phsy (oh dunno how you spell it) a head doctor!!!  So the BCN told me to go onto this site as it was the only one they recommended.The only thing messing up my head is them telling me to have what my gut was telling me was wrong. Anyway once I decided to have a mascectomy I felt like the black cloud had lifted from me, I'm sure on the long road ahead I will have my down days, but at the moment although still scaredsh@tless.com, I no its right for me. I willl let you know what I'm going to have.by way of reconstruction, I'm still thinking me stress ball filler is a good option!!!! I hope your results are not your worse fears, you lovely lady, you have made my day too, Oi wheres this nite bird site, before we keep everyone up with our yattering. Must go me face pack has been on for an hour and its only supposed to be on for 10 mins!!!! Hey ho sending love and hugs from one new freind to another. Thank you

Love Tracey xxx

delly
Member

Re: Just diagnosed and wanting to talk to people who understand

Blossom !! - Come join me on the "Night Birds" thread. We need to have a party !! xxxx

delly
Member

Re: Just diagnosed and wanting to talk to people who understand

OY BLOSSOM -  BRAVE !!!! - OH YES YOU ARE !!!! I know it's panto time BUT, I'm not having you running down what you have chosen to do - IT IS INCREDIBLY BRAVE !! STOP IT !! TAKE THE COMPLIMENT PLEEASE . Look, you've made me go all capitals Darlin - That's SERIOUS for DELLY's DOODAA'S - TALKS wo'ever you wanna call  'em . I reeeally like "Delly's DOODAA'S, has a nice/good ring to it don't you think. Delly's doodaa's, Delly's DOODAA's okay, okay - don't get too carried away Delly, otherwise you won't have any DOODAA's left Hey !!

Err NO NO. You must NOT go into your reconstruction BLIND. UH Uh - NOOOOOOOOO! I've been through every which way, was steered by a surgeon which resulted in me NOT having immediate recon, which I DESPERATELY WANTED and NEEDED. NEVER, EVER wanted self tissue recon. You NEED to CAREFULLY consider ALL of this darlin girl. Silicon implants are very much simpler, but NOT so natural. You do without EXTRA SCARRING on your direct BREAST area and Body - obviously. Has less risks with and for healing - scar wise.

Self Tissue - your OWN WARM skin. Huge possible probs with healing - dependent on tiny capillaries and GRAFTS knitting and healing together. There are MANY risks - you can lose the "Viability" of the tissue i.e. it can "die", You end up with yet another scar on your breast area where it's "pieced in" to your chest. But, hold on here - I have to bear in mind you'd be having IMMEDIATE recon and THAT'S different compared to me being a "DELAYED"  GIRL.

You reeally need to go into it more HUN - You have time before the 12th. Please WEIGH it all up. Come on here and discuss it, if you're STRUGGLING with decisions. We'll help you. Huh ?? Yeah ??

 

Yes Darlin - your surgeon is what's known as an ONCO - PLASTIC SURGEON. Meaning she deals with the Cancer side of an op and also the rebuilding Plastic Recon side. Clever these surgeons - I take my flippin hat off to them - what an amazing job they all do Hey?? 

Oh My God - I've FINALLY met my MATCH on POSTS here HAHAHAAAA. All of the rest of you realise it too, don't you. You just kept BLOSSOM from me, cos you knew we would be fuelling each other and taking over the POSTS - WORLD EVEN !!!! AAAAAARRRGH - goodness forbid. You know, if you gave us a chance, you'd realise we talk a LOAD OF SENSE !!

 

Oy - Blossom - Are you MARRIED ?? IF your NOT, and you're single - 'I' wanna marry YOUHOO. YOU are my kinda woman. I'll get over it if you ARE married - No prob. Just another Delly Disappointment BUT I WILL SURVIVE in the words of GLORIA GAYNOR !!

 

Humour us You lot - Me and Blossom (aww, what a nice name even !!) are having a bit of nice, loving New Year banter here. It's GOOD STUFF.and  I NEED a bit of LOVING so bog off will yaa!! Actually, I NEED a HUGE amount of LOVING. I'm absolutely STARVED of HUGS and KISSES. So send, BETTER STILL, BRING your DONATIONS to DELLY'S HEART FOUNDATION. Once 'I' have a full recharge - I can then go give it OUT to EVERYONE ELSE who needs it. Is that fair enough ??

 

Hey - Blossom (awwww that name ! ) erm yeah, you may NOT want to go topless on the beach BUT you still want to be looking GOOD and more importantly for yourself "FEELING GOOD". I'm totally with you sweetheart. Do NOT ever DEGRADE yourself. 58 - you're two years older than me and WE "Blossom Hill Buddies" (Wino's really!! HaHabloodyhaahaaaa!! 🙂  have to STICK together, you know. For my lovely Mum's sake - she'd be PROUD of US, keeping up the GOOD NAME - She Didn't have a GRAVE, but it should have had "Blossom Hill" flippin well ETCHED onto it. I'm laUGHING SO MUCH HERE. HaHaHaaaa

AWWWWW - Blossom - you have been like a "Dose of SALTS" to me tonight. I tell You

Thank You sooooooo much darlin' girl.See what comes out of your own pain and troubles. 

You WILL be okay Blossom - Seriously, 'I' will MAKE SURE you are - I just KNOW and FEEL you will be. Please Trust me on this. I can feel it in my bones and "water"

DellyWellyDingDong xxxxxxxxx 

 

Blossom Hill
Member

Re: Just diagnosed and wanting to talk to people who understand

Hi Delly, Im bedfordshire, and no I'm not brave at all, but after the shock of being told by the radiologist who was doing my biopsy, biopsy I thought 48 hrs ago my life was normal and the only thing I had to complain about was housework , going to work and running out of Blossom Hill !!!! Now 48 hrs later having received a letter stating they needed to investigate my mammogram I'm laying on a couch having a biopsy being told its definately cancer and if the result comes back with anything else she is doing the test again!!!!  Er not wanna wait for the result then eah? was all I could mutter!!! Ive no idea what the reconstruction will be, I will sort it out with her on tuesday, and probably much to her relief I will take her advice on implants or body fat, got enough of that!!!! Need a bloody tummy tuck tho if they take it from me stomache or I will be able to sling the skin thats left over me head!!! Handy if it rains I suppose and I've no umbrella, may get a few strange looks, but who cares>? My surgeon has tried to tell me that I could have the cancer removed by way of reduction on my HH boobs, then have the following one matched when the treatment whatever that is is over, until the lymph node results are in I don't no about chemo, she said ive gotta have 3 weeks radiotherapy, Christ 6 weeks ago I knew none of this, but we learn fast don't we? How did they cope without the internet, I'm sure its the bain of the doctors lives, as we now question and make our own suggestions rather than blindly doing what they tell us. Anyway I have a very forward thinking surgeon who only does breast cancer she also does reconstruction and dosnt use a plastic surgeon as she does it herself, a sort of one stop shop!!!! Which is why I wanted her, Ive always thought if I ever got the dreaded C I would have them off, and even though thev'e tried to talk me out of it, on the we can treat this mylarky,  I know in my heart its the right way to go, its gonna come back I just know it is, when? I don't know, but I would rather be facing this at 58 and now than 10 years time. m really worried that I was diagnosed (whos changed me font???I haven't ) on 25th November and although Im on Leterzole that its had 6 weeks to get to my lymph nodes, but she says my Lymph node ultrasound looked normal, yeh 6 bloody weeks ago!!!!! Anyway gotta have the nuclear science radioactive jab and a line put into the cancer, I've already got a metal clip put onto it at biopsy stage, then travel to the other hospital to have the op. I will no on tuesday if the date is staying the same as now I've told em I want the double whammy they need more theatre time, I want skin and nipple saving reconstruction but who knows if I can have it, maybe I should just have stress ball stuff put in then I will have my own inbuilt!!! Some people talk about having reconstruction done after rads and chemo, but Im not gonna make page 3 so I'd rather have it done and it they develop inconsistancies so be it, I'm too old to go topless on the beach so who's gonna know?. But I'm not brave, I am as scared and frightened, as confused and shocked as the next person who has just been told they have cancer. This forum has been very humbling as there are far worse off people than me, I've no idea how long or difficult this poxy journey is going to be, but we all just do the best we can because we have no option, and if we can make anothers suffers day easier by bonding together, well everybody here has done that for me. So thank you from the bottom of my heart

Blossom Hill XXX

 

delly
Member

Re: Just diagnosed and wanting to talk to people who understand

Awwww Jan - I really feel for you - yeah waiting on results is the pits and this is the worst time of year for it, isn't it. Happy New Year and all that, except I'm waiting on flipping awful results. 

I lost my two - 2006 and 2007. Am part way through recon ( "ditioning" I call it as oppo to reconstruction !!!) Fell off the horse due to seriously massive depression 2 years ago so am 1/2 way through. Still have expanders in. Need just one more inflation appointment then replacement with permanent silicons. Allow them to "Drape" or Droop !! before nipple reconstruction. Then final icing on thye cake is AREOLAR TATTOOING - I fancy doing that as a JOB !! Can you imagine ? - It'd be very satisfying and fulfil my need to give/help people !! How on earth do you go about training for it do you think ??

Yeah - amazing ladies on here darlin'. Best thing I ever did for myself - join here and make a nuisance of myself. COMPLETELY turned my life around from literally being seriously "suicidal" to now "soaring" - honest. It's been truely remarkable and I still can't get over it myself.

 

Blossom - who's MF ?? Checked back through the posts here and can't find. Do you think you were responding to another thread elsewhere??

Anyhow HI to you too, me dear. Hey Blossom, I laughed at your name because my Mum and me sank MANY a bottle of it. It was one of her favourite wines and readily available at the local corner coop (as I called it !!) shop. I used to joke to her, that we should just run a PIPE down to the house and have it on tap !!!! I'll get a few bockles in - you and me can have a good sesh and it'll require silly dancing round the kitchen table - book me in for tomorrow night !!!!!!! Hey ?? Come to this party 16th January - why don't you ALL come. Think I may now have found a suitable venue, just from talking (me pestering really - joking) to someone, a couple toni ght whilst I was out having a meal earlier. 

I'm soooooo glad you are having RECON at the same time. Have you decided what sort ? Are you just having silicons with a tissue matrix sling ?? Or are you going for "Self Tissue" recon - Latflap / Diepp or such ?? Let me know. THAT is FANTASTICALLY BRAVE OF YOU TO ELECT for BOTH and I can completely understand WHY !! There wasn't even 9 months between my two so yeah - bloody go for it woman. Hope you've got yourself a damn GOOD surgeon ?? What area are you flower ?? Poor YOU - No IDEA!

My shower sponge had perished so had thrown it away and soaped up my hands instead to SOAP myself down and there it was - a HARD MOBILE LUMP, the size of a marrowfat pea. Booked GP straight away, may not  be harmful is all I kept thinking. DIDn't tell my Mum what I'd found either. Until I had to go for results and thought I'd better just have someone else with me - tho' I'm not expecting it to be anything serious am I - STILL WASN'T. Thank god she WAS there with me, 'cos I needed picking up off the floor with the SHOCK of the news. Still gives me goosebumps thinking back to it. Funny how it stays with you, the whole SICK feeling. We popped in at the coop on the way back and picked up something far,far stronger than Blossom Hill - Whiskey. Got absolutely blottoed and slept the night cutched up next to my Mum in her bed - like a child again ( at 46 !!!!).  Awwwwww - bless her. I have a huge hole in my heart after I lost her  ( and Dad earlier ).

I don't like Xmas any more - it's too painful for me. I'm so glad to get it over with and celebrate New Year. Far more positive. 

Ah b- your surgery's on the 12th so you're not gonna be able to party are you ?? DOH ! Tell me whereabouts you are in the country - I may be able to bring something of it to youhoo at some point !! Seriously Blossom.

 

Bye to all for now

DingerDelly xxxxxxx

Blossom Hill
Member

Re: Just diagnosed and wanting to talk to people who understand

Hi Delly, what a lovely lovely positive funny the list goes on SUPPORTIVE lady you are. Sadly Christmas has no respect for BC so that got in the way not to mention kept me busy. Thank you for your reply. I think the black hole I fell into was being told I had BC, especially as I had like thousands of others NO IDEA. I've settled down on the Leterzole and luckily for me had no side effects, I take a daily upplement of green muscle extract (thankfully in capsule form) it gets rave reviews for joint pain relief, so I don't know if its helping or not, but I've been ok. My surgery is on 12th Jan, consultant says radiotherapy, dunno yet about chemo until the results are in (as they say). I've taken the decision after much soul searching to go full monty. Im having the lot taken away and reconstruction at same time. I feel that for me it will return and I want to give it the least amount of chance. I no its drastic and some ladies may think I'm over reacting, but I dont want to be doing this again, (nor does anyone) so I feel this will give me the best chance of doing it once. If it comes back again as I'd have had radiotherapy I'd have to have a mascectomy anyway, so thats where I am. Thank you for your posts and comments you give a lot of lovely people a lot of lovely support.

Sending Hugs

Blossom Hill (named due to the amount and type of alcohol I've consummed since diagnosis) XXX

Blossom Hill
Member

Re: Just diagnosed and wanting to talk to people who understand

Hi MF, many thanks for your kind reply, I havent been on here for a while and my meltdown did get worse!!! I've decided to go for the full monty, I'm having a double masectomy and reconstruction at same time, I believe it willcome back, why put myself through all that to have to do it again, its not right for everyone but its right for me, since I made my decision I feel so much better, I've gotta have radiotherapy, don't know till the lymph node result is in about chemo, but I will have done everything in my power to minimise it coming back, which I know is a very small chance. I'm not a single parent anymore but I was for many years one to 4 children, it must have been and probably still is a terrifying time, thank you for helping a stranger, I hope you continue to stay well 

Tracey XX

Kayak Jan
Member

Re: Just diagnosed and wanting to talk to people who understand

Hi Delly
I had therapeutic mammoplasty and SNB on 2nd December. I am waiting to find out if the margins were clear and the results of the biopsy. My appointment is 5th January 5 wees after my op! Waiting is the pits.
I know I must have radiotherapy but am waiting for news about chemo. I was warned it was likely as my tumour was 36mm grade 3 and a further mass was found in another area of the same breast.
I am really scared that the margins weren't clear and I will need further surgery. It's not the actual surgery its just that I am healing well and starting to get back to more normal activities (though not kayaking yet 😊) I dred the thought of starting it all over. I know I can face whatever the next challenge is but there are times when I really wish I didn't have to!
I have found the support here amazing.
Jan
delly
Member

Re: Just diagnosed and wanting to talk to people who understand

Jen - me Dear. Thank You soooo much for the Volunteer link. The CVS SHOP is literally 5 minutes down the road from me. There's loadsa stuff I can do and I know sometimes "voluntary" can often lead to PAID employment. What were you meaning by "RESUS" training in your post to me ?? Am not understanding what you mean.

I hope you are COPING with your Chemo darlin. Don't forget, I'm here for you in my DBS (Delly's Buddy Services) capacity. How is your Mum doing now Jen ??

 

Dellywelly xxxx

delly
Member

Re: Just diagnosed and wanting to talk to people who understand

Well, Good Morning again.

WOW, thank You for your responses.

KayakJan - Hi to you and WELCOME. We haven't spoken on here before but we already KNOW each other. Flip, I'm guessing you're waiting on Biopsy results are you?? and as to whether you'll need CHEMO ?? What have you had "done" so far. You feel like filling us in on your details lovey ?? I'm interested to know.

 

JenJen - it's sooooo good to hear/see you. How ARE you doing. Thank You sooo much for your suggestions. I shall deffo look into TAAA. I DO need an INCOME - THAT has to be a PRIORITY, but I need an outlet for all this love. The ideal of course, would be to be able to combine them BOTH

Jen, I'm throwing a big party 16th January. Be fantastic to meet you, will you come ? Pleeease ?? Given you feel WELL enough for. I can let you know the details. 

Anyone else is welcome, but Jen lives nearby, hence me mentioning to her. I'm not being "Exclusive" to you all. It's gonna be big and SPESH. Not a special number (57!!) Just VERY VERY SPECIAL TIME OF LIFE FOR little MEEEHEEEE !!!! Heehee

 

Love to you ALL

Dellydoodaa xxxxx

JenJen
Member

Re: Just diagnosed and wanting to talk to people who understand

Delly the Red Cross in Macc are looking for volunteers to help train first aid with your background probs like me you have done your resus training and it comes as second nature so that maybe an option its on the CVs website if you look on east cheshire CVS there are loads of opportunities yhe hospital is looking for people to go in at mealtimes help elderly people who cant feed themselves eat. You need something that fits your nature you didnt train to be a health professional for nothing its because you are caring that didnt go away when you had to stop work due to your hand x

Jen x

Kayak Jan
Member

Re: Just diagnosed and wanting to talk to people who understand

Hang in there Delly 😊 sending love and good vibes. Really feel for you I too am waiting for results . Post surgery in my case will be 5 weeks by the time I get them. Been frustrated by the delay but now just scared.
Keep posting, it is the only thing that has kept me going at times. Thanks and love to all the ladies on this forum.
Jan
delly
Member

Re: Just diagnosed and wanting to talk to people who understand

I have to admit - I'm SCARED that these symptoms and results could be something more sinister. This is the first time I've admitted this to anyone or anywhere. I have to wait for results. I'm hoping it's a liver or Gall Bladder prob - please just let it be that for me, cos I have too much left to do for my fellow womankind and this gawd awful bleep of a disease.

LOVE TO YOU ALL

Delly xxxx

delly
Member

Re: Just diagnosed and wanting to talk to people who understand

Tina - YOU and ALL of  YOU on here, have been such a solace to me BACK. Yes,, I feel the the pain of your LOSS, family wise too. Xmas and New Year is a VERY difficult time for many people. We just have to get over the HUMP of it. That's the only way I can describe it. !!!!

 

NONE of YOU KNOW just how much HELP you have ALL been to MEEEEEE. 

I am  STILL HERE, because of the support and LOVE, YOU have all given to ME.

How can I begin to "Thank You" for such a GIFT you've given me.

 

But I DO need to do SOMETHING GOOD with what you've left me feeling. I don't know WHAT to do with it at the moment. It  NEEDS to be focussed into something GOOD. 

Any suggestions - Welcomed.

I wanted to volunteer to help up in Keswick, to help all the poor people who've suffered so badly in all these floods, but I can't leave Chloe, my puss, as she currently is.

 

HAPPY NEW YEAR TO YOU ALL. I SERIOUSLY LOVE you guys/girls so  PLEEEEASE FEEL IT.

ALL I want to do is HELP and LOVE.

I'm MADLY in love with people and LIFE !!!!

DellydingdongMerrily xxxxxxxxxx 

Tandy 4
Community Champion

Re: Just diagnosed and wanting to talk to people who understand

Delly my lovely I have everything crossed for you 🙏🏼😚 All in my prayers ( not religious, but maybe, just maybe someone/something is there to listen!?) as I pray and speak to my dad and sister passed on. 

Take care lively lady, you've been (and still are) such a tonic of whit, strength, positivity and love I thank you. So, my girl, keep being you and here for you too 😚 Xxx Tina 

delly
Member

Re: Just diagnosed and wanting to talk to people who understand

What are you like, you lot.  I DO LOVE YOU ALL  - SERIOUSLY. Yes I'm a gusher, but it's due to my experiences that I AM and  it's all very GENUINE. I can't help it, I'm flowing overflowing with it and need to put it to a GOOD use. Hopefully I'll find it in the oncoming New Year. 

I get so emotional at this time of year. Had a good sob earlier - I needed it. I miss my parents/family sooo much more at this time of year. But Ali, the guy who runs my local corner shop that I pop into almost every day, gave me a great big meaty, manly HUG. Ooooooo, did me a power of good. 

 

And then I come on here and I'm sobbing again. I have learned toALLOW myself to FEEL and just let it flow, I need to let the pain out and keep the love in !! Just watching Ken Dod's "An Audience With" He's a wonderful "Dose of Salts" to anyone.

 

Claire - YOU have given me sooo much and yes it comes back to you. I'm am here for you when the nitty gritty happens in Jan.

Luscious Lorna - Happy New year to you my darlin.

Tina - you gorgeous woman, THANK YOU. It's only been today that I've been feeling better tum wise. I'm now waiting on results and I have to admit - I'm frightened, it having been 6-7 weeks of a horrible nasty stomach.But keeping my fingers crossed ey? Please all keep yours crossed for me will ya !!

Amanda - I'm ALL FOR kicking this blasted disease in the BUTT. We are ALL gonna be here for you, Sissy, MadAnge and Claire through all you have to come, treatment wise, until it's DONE. OKAY ?? 

Jobes - my friend. Bet your GEM of a hubby cooked Xmas dindins, did he ?? Mmmmmmm - I WANT an invite next year or else !!

 

Hey Mad but lovely Ange - You're nearly there. And there's more to life than Xmas and New Year. The REST of YOURS for example. Sorry you're feeling so S**t. Look forwards to chatting with you when you're feeling more like yourself again. It shalln't be long now - just hang in there babe !!

 

I've got my beeeautiful Chloe, lying acrooss my lap as I try to type this to you all. She won't leave me alone at the mo'. Yeh, I'm still getting some weight on her. Can't have the thyroid op until she's heavier and more stable.

 

I've set the wheels in motion for my big party 16th JAN. Got the fireworks yesterday!!  Priorities an all that. Need someone to teach me about how to record music in this teccy age, need a full 4-5 hours recorded. Don't need a DJ, just need to hire a good sound system. More importantly, need to find a good venue and QUICK. I'm up to 60 + people so far, and it's growing by the day !! I chat to anyone and everyone - just LOVE people, have a passion for 'em. comes from my heart - I can't help it. There's only ONE person that I can't feel ANYthing GOOD for, that's my cousin. I'm totally NUMBED to her. That's how much damagte she has done to me. I'll survive, so shall she.

 

LOVE TO YOU ALL

Dellypoos xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx 

 

 

A.Faed
Member

Re: Just diagnosed and wanting to talk to people who understand

Hello everyone, Happy New Year! I'm ready to get tidied up after the Christmas chaos, ten people in the house was quite hard work, and my two year old grandson makes most of the mess....you know how it is, Ange! Hope you have been managing... don't know how you do it, especially with all the aches and pains of  T! 

 

I felt lousy for a few hours on the first evening but not too much since then. Tired and woozy from time to time...if it didn't get too much worse than this...still, only time will tell! I reckon sometime from 10th January onwards for my hair to go south!

 

The interrupted sleep is a bit of a pain though. I had steroids to take for three days but the munchies and sleepless got more pronounced after I had finished the doses, has anyone else having chemo found that?

 

Hope everyone one is doing ok.

 

Amanda x

Sissylw1980
Member

Re: Just diagnosed and wanting to talk to people who understand

Happy new year everyone. Sissy xx

MadAnge
Member

Re: Just diagnosed and wanting to talk to people who understand

Happy New year to you all. My body aches are actually easing today but still have a cold :(, I got through the festivities but did not really enjoy them. Think the T is worse than the FEC in my case, bonus is only 2 more left 🙂 Big hugs to you all xxxxx
Roch
Member

Re: Just diagnosed and wanting to talk to people who understand

Dear all,

 

Happy new year. 

 

It is been noted that people had been struggling to find out various methods used for the diagnosis of cancers. In this context following link will assist patients and other preople about various methods use for the confirmation of cancer.

 

http://www.oncologybiomarkers.com/2015/12/clinical-diagnosis-of-cancer-or-cancers.html

Kim555pink
Member

Re: Just diagnosed and wanting to talk to people who understand

Happy New Year to you all 🙂 xxx
Jobey68
Member

Re: Just diagnosed and wanting to talk to people who understand

Wishing a very happy new year to you ladies! To those of us who are done and those of us who are still doing , onwards and upwards my friends, 2016 will be better!!!!! Xxx

Aura
Member

Re: Just diagnosed and wanting to talk to people who understand

Happy new year to you all , love Julie x
Jill1998
Community Champion

Re: Just diagnosed and wanting to talk to people who understand

Happy New Year ladies ,hope 2016 is a better one!!!'
A.Faed
Member

Re: Just diagnosed and wanting to talk to people who understand

Happy New Year everyone, have a good evening and let's prepare to kick our C into touch in 2016!

 

Amanda x

Ali-B
Member

Re: Just diagnosed and wanting to talk to people who understand

Wishing everyone on this thread a happy and peaceful new year. Draw a line under 2015, it's in the past. 2016 onwards and upwards towards a good recovery.

 

The very best of everything to all,

 

Ali-B xx

 

Tandy 4
Community Champion

Re: Just diagnosed and wanting to talk to people who understand

I second that Claire! 

Wishing you all a happier healthier new year........  Thank you everyone for being so supportive.

Delly my love, hoping you feel much better soon. Xxxx big big hugs xxx Tina 

familytree
Member

Re: Just diagnosed and wanting to talk to people who understand

Happy New year to you all. Believe it will be. Always love Lorna x x x
Cs66
Member

Re: Just diagnosed and wanting to talk to people who understand

To everyone who has supported, encouraged and offered me very valuable advice on this thread as I have come to terms with having BC and faced two lots of surgery and the interminable wait for results, I would like to wish you a very happy and healthy New Year! 

I start my chemo early Jan so I am hoping to get through it as best I can and then look forward to getting my life back on track and putting this whole horrible experience behind me. 

Clouldnt have got this far without you all. Thank you!! 

Lots of love

claire xxxxxx

delly
Member

Re: Just diagnosed and wanting to talk to people who understand

Hi to ALL

Amanda and MadAnge - hope your chemo didn't sully your Xmas festivities too much. Another one ticked off so that's one less to go.

 

Hope you all had a good Crimbo. Most of mine was spent in bed with worse tum. VERY glad to just have a quiet, warm, cossetting one. Had anal probe scan, lungs, liver, heart scans and bloods yesterday. Have to wait 10 days on results. I thinkmy tums something to do with either liver and/or gall bladder, as I feel sick 15 mins into eating and then for an hour afterwards. Desperately need to put some weight on - unlike the rest of the world. Have ultrasound appointment for tum on 9th Jan now.

 

All Good Wishes to everyone for the New Year

DellyDingDong xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

 

Jill1998
Community Champion

Re: Just diagnosed and wanting to talk to people who understand

Hope you managed to have a good Christmas despite chemo Debs.
GIGI 28
Member

Re: Just diagnosed and wanting to talk to people who understand

Hya. I found out I was having mine on Christmas Eve about a week before. I'm on day 3 following my first FEC, different reactions but manageable, just got to listen to your body and rest and treat yourself kindly. X

MadAnge
Member

Re: Just diagnosed and wanting to talk to people who understand

Thanks Amanda. Yep no sickness but am really achy and tired. Herceptin went really well today not too much of a problem.

Hope you all have a fab Christmas, better get on with the wrapping xxx
Jill1998
Community Champion

Re: Just diagnosed and wanting to talk to people who understand

Well done Amanda,fingers crossed that the bomb doesn't explode!!!
bazza7676
Member

Re: Just diagnosed and wanting to talk to people who understand

Sounds like Nikki's treatment. I hope you don't feel too bad later and tomorrow.Have a good Christmas, one down! 🙂 x
A.Faed
Member

Re: Just diagnosed and wanting to talk to people who understand

Thanks for the thoughts...appointment at 10.30 and I was done by12.15. It all went smoothly at the hospital, first drug was emend, then steroids then the drip and more anti-sickness in that way. Have two more emend for tomorrow and Boxing Day and two more types of anti-sickness drugs and steroid to start tomorrow. Also five injections that I have to give myself from Monday.

 

I feel fine at the moment but it's early days yet...I feel a bit like a bomb that might go off! 

 

Hope me you are all ok, have a great Christmas.

 

Amanda x