Amanda, Delly has been in touch, she's ok, lots happening, she's trying to catch up with everyone, think she's starting on her night birds thread xx
I second everything that's been said about this thread and others where familiar names have continually been there for support. My highway to hell trip started in August but I don't think I found you all till September either.
Xxx love to all and a big thank you xxx
Hi Claire and all! Seems a bit of a life time ago for me now, where the hell has the year gone!?
You girls are are pretty amazing really and coping with far more than I had too, you will have your sunny days back again soon ☀️😍
Bad luck Ange, you could do without that, but I don't know what you can do to protect yourself from infections other than being a bit OCD about hygiene, I mean you have to live in the real world! As Jill said, try to rest as much as you can. Keep us informed on how you get on.
Nearly there for Nikki the, bar the radiotherapy, what a relief that will be. Well done on th training for the run Barry, 7k is impressive, I don't think I could walk that atm! It's too bad you haven't had your investigy yet; you could do without that extra bit of worry at the moment....have that actually given you a date at least?
Lovely to hear from everyone again, this thread has been such a support throughout it all, it's long old slog and the relief of being able to talk to people going through it and ask questions has undoubtedly helped!
I hope everyone keeps keeps in touch, if only just to write a couple of lines...still waiting for you, Delly!
You may well have been Lorna How are you doing?
5 months ago this horrible journey started. I'll never forget the moment we were told at the hospital.
Some day soon I hope a cure is found xx
Aw noooooo, that's **bleep**e Ange...... Hope they're up where they should be sooner! Take care xxx
Cant wait to tick off (and kick into touch!) the final FEC Bazza! 👍🏼 next Friday 🙏🏼
Yay good to hear from you ange, Bazza, everyone..... Hoping you get home today!
I'm doing ok this is my normal back to self week, where I feel a fraud being off work!! So glad for Nikki having final one Bazza! 👍🏼 I'll be half way next week! 👍🏼
Yes, this thread, these posts, are so supportive and def therapy....... No one judges you, everyone gives advice and personal information to what, really are 'strangers'!? ........ I've had so many tips from you guys, not just on here but right from the begining of just being diagnosed to chemo threads! THANK YOU ALL! It's hard to keep up with everyone's names but I try.....
YAY! I've heard from Delly Dooooo!!!! She's ok, had lots of **bleep**e happening and is trying hard to catch up with everyone's news,..... Watch this space....... She's coming back soon with, I know, a full round up of events that I look forward to reading ☺️
Have a a good day everyone! Xxxxx lots of love! Tina
Morning everyone, i hope you all had a good Christmas and new year!
Firstly. Ange, that's not good 😞 I hope you're OK
I'm training for the Brighton 10K, not going too bad but I have played sport or been to the gym most of my life. Ran almost 7k on Saturday, so 10k by April will be easy (I wish).
I'm still awaiting a hospital appointment, I actually went to A&E a couple of weeks ago and they said just wait until your appointment comes through! Trying not to stress myself out about it.
Nikki, has her 6th and hopefully last ever chemo next Thursday. The time has flown by, you wonder where the time has gone and look back on the days of her being diagnosed. Especially when when reading about when who have just been given the bad news. Nikki's found the Tax a lot tougher, the aches and pains mean she can't really do much for the first couple of weeks.
I hope anyone newly diagnosed is coping OK, it's tough. While I also hope the rest of you are doing OK too,
Sending my love Barry xx
Just as an aside!
Blimey I think this page has become my new 'Facebook' - I check it all the time at the moment!
Not doing too badly, Claire, yesterday (day 6) I was extremely tired and felt a bit sick, never felt so fatigued in my life! Today has been much better and I'm trying to get a better balance between doing stuff and resting, I went streroid crazy the first few days then paid the price! You should definitely rest as much as you can with bits of light exercise in between, I made the mistake of doing loads because I felt OK!
Oh well Jill, hopefully your visit will be more informative but the best thing to happen is they are happy with everything I guess!
I hope Delly is ok, maybe she's having some treatment or something?
Just sent us a line Delly, we're worried about you!
How are you doing Claire, nice (if that's the right word...you know what I mean!) to get the first FEC under your belt!
How did your follow up go Jill, if you have had it yet?
Anyone heard from Barry ad Nikki lately, I guess Nikki must be nearly through chemo now!
Hi guys,...... Yeah I've asked the same question a few days ago on here and on night birds..... I've messaged her privately too but not had reply! 😒 Anyone live near her? I'll try again xx
Good luck for today Claire, hoping its as kind as it can be to you 😊
HinJill, I m still here. First chemo today so feeling a bit apprehensive! I just want it over now and I am focussing on getting to the finish line! I am glad you are well and moving on with life. Stories like yours help me stay positive about the future!
Amazing that you have a big milestone coming up Jill and glad to hear that it seems your diagnosis was a lifetime ago. I hope that's a good thing for you and life is treating you kindly.
I have my final chemo on 29th January and have fared pretty well. I've been lucky and not suffered too much so far for which I'm very grateful. It would have all been a lot harder without this site though.
I'm on FEC 2 now and have had very few side effectts to speak of, bit of chemo brain and tiredness here and there, probably due too doing too much as I felt pretty normal, I hope that will last!
I do drink 2L of water the day before, on the day and the day after the chemo, on FEC 1 I had terrible nausea etc for the first evening, about 5 - 6 hours but that was it, none this time on FEC 2, day 4, so far anyway! I don't know if the water helps of its the Emend of just that I've been very lucky so far, keeping everything crossed it will continue like this!
Next bloods and assessment 2nd Feb, Onc appointment 3rd of Feb and FEC 3 on the 4th Feb, all being well.
Good luck with your follow up appointment next week Jill, should be fairly routine I guess. It must seem a long time ago it all started but you've boon through a lot in that time!
I hope everyone else it ok, it will be nice if we can keep in touch with where everybody is and how they are doing from time to time!
Was told dec 23 my biopsy results were positive for pre cancerous cells mid grade. Am I supposed to be scared? Hmmph, not sure, right now Im more annoyed and feeling rebellious. Considering the the treatment options, I'm throwing a Bye Bye Boobies party, for all my friends to help say goodbye to the girls.....has anyone else ever felt the same? I know im not the only one not afraid of whats coming.....
I drop in on this thread too - in fact I probably drop in on most threads, but mostly Jan chemo starters because that's what I will be - eventually! and Dec chemo starters to see how you're all getting on too 🙂
Take care everyone 🙂 xxx