That's great news Barry, sent Nikki congrats and hugs...what a relief! Hope you're planned a little celebration for when Nikki is up for it! 🍾 🎉
Hoooooooraaaaaaayyyyy!!!!!! 👍🏼👏🏼👏🏼👏🏼☺️ Well done Niki!! Sending you lots of love both! Xxx
Does Niki face radiotherapy Bazza? I've not had any call from BCN so assuming it's all going ahead for mine tomorrow...... Half way...... 😉 Xxxx
Hi Kim, well, glad you saw the funny side, Had my unexpected scan today, So hopefully my journey can begin, the results are in on Friday, She said any health issues,as she is preparing me for radioactive dye, um I'm thinking given the last 2 months my liver may be white!!! No I said none that I no of before BC. I really don't have a drink problem ladies, but I have to say I love a glass or bottle of wine, yes I know its bad for me, NO my 4 children have never seen me drunk, I've never had a hangover or not gone to work who wants to be drunk? Can't think of anything worse, yes I'm sure others may say its contributed to my cancer, but I'm a fairly good eating veggie, cos I don't like meat, don't smoke and don't like sweets and chocolate,have skimmed milk and don't eat crisps, good job cos I'd be like a russian doll!!! I hate the gym but have a reasonable BMI. Walk my two dogs that I was stupid enough to let my two youngest daughters talk me into, before they left home without em. Didn't help Linda McCartney did it? Bless her.Talking of wine, I brought my eldest daughter a glass for christmas, i brought her a whole lot more too, anyway It saz "HANDING EM OVER TO YOU", cos thats what I always text her as I'm boarding a flight for my long suffering husbands and I holiday, as I land home as the plane is on the runway I text her, " Landed I will have them back", Thats because I, like millions of us, love my family, they are my life ,My eldest daughter who unfortunately has my wicked sense of humor, is my stand in for family dramas when we go on holiday, my family call me international rescue, cos that what I do, problems ?? ring mum, wanna borro money (they pay me back) ring mum, grandkids are ill, ring mum, need to go to A & E ring mum. Want to go shopping? my son dosn't want to learn to drive he is 35!!!! ring mum So anywaz sorry to ramble, I get her this wine glass that holds a BOTTLE of wine, she didn't used to drink, but now she does. She saz its my fault!!!!! Then I get diagnosed with poxy BC, I've brought the glass had it engraved, I said to my husband after we all know I'm now on the BC merry go round, " I cant give her that", why not he saz, cos she will think I'm bloody dying and leaving my family to her,(I've only been married to this poor man for 5 years) he tells me not to be so bloody stupid. So if the glass holds a bottle I'm thinking I will have to get her a magnum, think its 2 and 1/2 bottles in one, She likes Prosecco,I could have saved a lot of money cos she said its her favorite christmas pressie. She ran out of wine the other night an her partner said, "Youve got that magnum your mum brought you", well me and her are on the tube like bloody sardines whilst she is telling me this , we off to my scan, that Ive been given 3 hours notice to get to in London, we live 60 miles away TODAY. Don't you dare open that she tells me she says to him, me and mum are going to get rat*rsed on it when she is given the all clear, so I'm holding on like grim death on a packed tube thinking it holds 2 and 1/2 bottles, so how we gonna do that?????? Your right though when this bloody cancer is sorted bloody Blossomhill is gonna go out of buisness.!!! Anyway HOW ARE YOU??? Hope your ready to face another day and don't forget, "whack the next divvy twit who has NEVER had cancer and tells you to STAY POSITIVE", TWAT.!!!! Time for me to sign off, My results are in Friday, good or bad, my breast consultant has tried to talk me out of DMX for two months, even today she phoned me as I was on train for scan, she said if you wern't insisting on such radical surgery we wouldnt insist on CT scan, I told her I didnt want to know either but I was strapped in for the roller coaster ride, No i didnt want the bloody CT scan, but its part of the process, whats the point in burying my head, she sand, she said this is sooooo small, I said really,??? sooo small you think it might have spread so ur making me have a CT scan to check, well its in the lap of the gods and the fates.
Sending a hug Kim55pink
Love Bloss (well i've run out so its NAPOLEON tonight) XXX
Hi guys!..... I'm with you Jill, wine bottles, crisps packs, bars of dairy milk all getting smaller! Don't get me started on the size and quality of creme eggs! 😜
Ange, fingers crossed you get the go ahead for your chemo. Mine is Friday and though dreading it all again I want it over with!
Yay!!! Delly is back! She's floating around on other threads, so hopefully pop on here soon 😚
Hugs to all, feeling lazy but must shift my arse into doing something today. I'll go for my little walk, though very windy out there I'll get blown round the block!? Xxx Tina
Im58 and also been diagnosed with grade 2 lobular cancer, I'm still going through the circus of options I want a DMX, I,m waiting for a CT scan date as before op they need to check for the reconstruction and also that it hasn't spread, its a big op, not that they are expecting it to have done, but until the results are in as they say. Good luck with your journey and operation
BlossomHill (er not as good as you detoxing but maybe I will if I ever get my date)
Morning ladies, how are you all feeling? Sorry to hear about the newbies who have recently been diagnosed. It brings back memories from a few months ago when my wife Nikki was first diagnosed. People on this forum are great support though. I learned a lot from them and from reading up, that I felt like an expert. Nutrition is important once you have finished treatment, do what you can while you are going through it. But if you go through chemo, you'll want to eat and eat what you want without feeling guilty. All the best with your treatment, get support from people when are where tyou can.
Anyway I just wanted to post my page for the Brighton run. I know's it's not a marathon and people endure more to raise money, but thought it was good cause and close to our hearts raising money for BCC.
Love to you all Barry xxx
Hi Em I am 59 and I was just diagnosed with breast cancer Invasive Lobular. About the18th of December I got a mammogram and a scan and a biopsies as I had found a massive hard lump at the front of my breast I thought it was a lipoma. i went away for Christmas and Newyear feeling afraid but hopeful as the Radiologist was positive that it was nothing to worry about. Went back after hols, biopsies was inconclusive. Got another done went back, Cancer. Had MRI scan, showed up 2 lumps, went back got biopsi on the other one, scan on lymph nodes. Again they were sure the nodes would be OK. Result cancer. I am going in on Thurs for opp.
I know what you mean about not being able to get it out of you head. On the day I was told I just knew what he was going to say and some how kept my composure, asking questions etc yet feeling my gut had just dropped out. What broke me was when the MacMillan Nurse introduced herself. It just brought back memories of my sister. That's the moment I keep remembering.
I decided des that I was going to go into it fighting, get as much info as I could. I strongly beleive in the benefits of healthy eating, vitamins, mineral, etc. So I have been totally detoxing my body to prepare it for what is coming, eating cancer fighting food, avoiding cancer causing food etc. Have you been detoxing etc.?
I feel so much better for it. Feel that I am doing something to fight this.
I I know what you mean about the Cemo I am reluctant to have that as well and may decline if and when the time comes. I know I will be getting Radiotherapy but for some reason I feel that that is right as part of my treatment.
Do do you have people supporting you Em? It is hard for them as well, they have their fears as well but will be trying hard not to show it.
So much to take in the illness, tests, results, information. It's not easy but please try to stay positive. Help your body by giving it what it needs to fight this. Beleive you can beat it and you will Em. Let me know your opp date. Take care stay strong xxx
Thank to you all for the words of support. I havent been told or didnt hear what sort of cancer it is. I will have to ask next time I see the team. I am glad to know that my reactions are normal. My daughter is more concerned that I will try to be too strong and it will lead to me making myself ill after I have gone through the process. X
Hya..... Just thought I would ask how your chemo is going for you? I think we are at similar stages. I had my second chemo on the 14 jan. Side effects havnt been as bad this time but I'm neutropenic again. Thankfully I am at home and keeping a vigil on any temp etc. despite the bone marrow injections my neutrophils are still hit hard. I'm having to stay at home in isolation because of infections. Not sure if it's going to be like this every treatment? I hope you are coping well and I'm hoping that 2016 is hoping to be very kind to us and we have positive outcomes! On a positive note I can say that the tumour is responding so far and is reducing. I've got a scan on the 17 February to check the size!
Im glad to say that my eating has remained as constant as always and I'm careful about nutrition. Please keep me posted on your diary of how it's all going on our journey.
Take care and huge hugs for us all. Deb xx
Julia and Scareym,
Feeling all over the place, jittery and quite frankly terrified is really normal, let's be clear about this and to use words of my breast care nurse "this is a life changing diagnosis." Having said that, we all have to adapt to a great many changes throughout our lives and willing or not, we do adapt. You will feel a little better about this in time, you need to give yourself time to get used to it.
There is a whole new language to learn, all sorts of procedures and tests to go through and waiting, oh the waiting...its torture! You just need to try and take each step as it comes. Who you do and don't tell is up to you, but you will need lots of support to help you get through the various stages of treatment... and your family and friends will want to know; you would if it was happening to them.
You will be able to cope better than you imagine, please be kind to yourselves and don't think it is in anyway wrong to feel so overwhelmed and shaky at this early stage...but it will get easier!
Julia, my lovely, you will go on, you'll get the strength from somewhere, speak to your dr or this helpline on here. It's so hard to hear people say, take each step at a time......... I honestly didn't think I could take the waiting for every apt or result! Lack of sleep makes it harder..... Deep breath Hun, talk to whoever you feel able to, scream, cry, shout, we've all done it and still doing it!! Are you on own? Here for you, PM me if you prefer, but please Julie, talk to someone and if needs be get something to help you relax and doers xxxx Here for you Tina
Thanks Tandy4. Really appreciate your support. I just feel so physically weak and exhausted with not sleeping. The lying awake with intense panic attacks is scaring me to the point I don't t know how I ll go on. Xx
Julia and scarym, what you're both going through is hell and all of us on here have been in the same position at some point. The waiting is bloody awful! This thread (and others) are a godsend and everyone is lovely and supportive. On here there are girls at the same point as you as well as others who are through surgery and going through other treatments. Everyone will be here for you on this **bleep**ty road to recovery girls xxx
Good luck with results and further scans guys, we are all here for you. 😚
i was diagnosed in August with grade 2 lobular after first op in October and lymph biopsy discovered no clear margin (size was bigger than original scans) second op in November to gain clear margin and lymph node clearence. Started chemo in December and I'm almost half way through it. It's a horrible, cruel silent disease but we can do this!!!! 👍🏼 Hugs and love to you xxx Tina
Scareym- you will find this forum a source of strength. Have you had any biopsies done to tell what sort you Have? I am glad that outlook is good for u. Same for me but think the emotions etc still the same.
Thank you. Its reassuring to know that its normal to feel like this. It is one of those things that has always been one of the things that we fear the most so to be affected is a scarey thing. I am grateful that mine has been caught early and the prognosis is good but it is like no other disease in creating such fear.
I am sure that taking it one day at a time is the only way to go and tomorrow is another day.
I m exactly the same. Nod of for 10 mins and then awake in a state and can t control myself. Please keep in touch. Jo is fantastic support and has helped me over the last few days xx
Scareym you are not going mad love and the feelings you have are completely normal, I was a total basket case some days and even getting out of bed was too much, anxiety will grip you and make you feel like you are losing your mind but it's all part of the process of trying to accept what's happening, and you will one step at a time, try and only focus on the next stage and no further as it's just too overwhelming and far too much for our poor shattered brains to deal with! Xx Jo
Thanks for the reply. I have two weeks to wait for lumpectomy but just feel like its a rollercoater up one day have a great day with family or back at work and then I forget about it all but then it seems to hit me harder. Trying to not make it into a big drama but some times it feels like I just want to scream.
Thanks for the support, hope you can find a way to get some sleep. I know if I do sleep I wake up feeling sick when I realise its still there. X
i m in the exact place as you. Diagnosed Friday with DCIS after biopsy by wire guided excision. I have to go back week Tuesday for another wide guide excision to take more tissue to ensure clear margins. Then have to have 3 weeks of radiotherapy. I m so scared, not sleeping, hyperventilating and just feel terrible. If you want to talk anytime just let me know and I ll forward you my number xx
Diagnosed 13th Jan after recall from routine mamogram. Not really sure how i feel even now. Putting a brave face on for the family but just want to cry. I am trying to be positive and get on with normal life but it doesnt feel normal in my head. Havent even told lots of people as i cant say the words. I swing between talking about it as if its happening to some one else and just wanting to cry i would ask if this is normal but looking at other posts i dont think anyone would say what is normal any more.
I have date for surgery and all being well will have radiotherapy after that. So confused as i am such a positive person and am trying to see the positives but still feel so low some days. Can some one just tell me that i am not losing my mind and this is what is to be expected at this time.
I have been thinking about you Ange, hope you're back home and feeling ok now?
How are the side effects Chris...maybe even if you have some, they won't feel quite so bad as it's your last one!
Barry I can't believe how long you're having to wait for an appointment! I went to my GP a couple of weeks with a prolapsed bladder (not uncommon for menopausal ladies, especially those who have had children- I had four, I think it is no coincidence that this happened two weeks after my first chemo!) and I already have been given an appointment with a specialist for the 17th Feb! And out health authority is in special measures and overspent)
Hope everybody is doing ok.
Yep, just to agree with everyone else's comments,without this board I'm not sure I'd have got through these last few months. I was diagnosed at the beginning of June and have my last chemo later today. Yippee! Haven't got to have radio so I'm nearly there. Lots of love to all of you who are still going through the various treatments, you can do it!! Chris xx ps I also logged on to see if Delly had been on, good to hear from Tina that she is ok and yes it is 4:30 am, bleeping steroids!!