😂👍🏼 I've only just noticed our stars, knew they were coming! WOOO! Check us out fellow Community Champions!! 🌟🌟 So far.... Amanda, Jobey, Jenjen, Claire, Jill and Peggy? That means there's another 14 on here to point you/us/me! all in the right direction, listen, love, hug, laugh, cry, rant, scream, shout, moan but importantly care and support 👍🏼😚
No, on a serious note, we are All here for each other in these threads and someone on here will be able to help, direct you or advise as we are either all going through the same crap or supporting loved ones through it.
It feels like a lifetime past since I joined the forum though in reality it's only been 6 months, following diagnosis in August. Sooooo much has happened since then and the waiting game is never ending!?!
Hugs and love to all, keep posting xxx Tina....... ⭐️ Community Champion! 😂 (That is ok isn't it? This does mean I can use the title after my name now?? Admin? 👍🏼😜)
Aha, keep up the good work Jill (Amanda, and everyone else). It's good when people take the time out to reply to you
So there are!
When you read those first posts though...just takes you back to when it first happened to you, you just want to give them some comfort!
How right you are mate. On a good week, though it catches you unawares!?.... You have times when you 'forget' but then something is said or reminds you what's going on and back down with a bump you come!?
making the most of feeling good.... This time next week will be n my downer dip again!
But for now.... 👍🏼😂😜 XXX
Hi Bazza...... Or should we start calling you Hot Stuff!?! 😂 Good to hear from you. Flip just as well,she noticed the wrong plan?! You've waited a while now for your apt?
Wishing Nikki luck for tomorrow 😚 Xxx Tina
I had had the picc line fitted this morning...ouch, was a bit of a struggle and took about half an hour but it was much easier when having chemo this afternoon. Maintaining it (weekly flushes and dressing changes) is going to be a pain if my local surgery can't do it as the hospital is a forty minute drive away. Still, I'm half way through now!
Love and hugs to everyone,
I hope all goes well for you tomorrow Amanda. I have read your comments on the Dec thread too. I have a port for my chemo and it's a godsend. No messing with veins. A friend of mine had a pic line I after FEC 2 and she said it made everything much easier. It was ok to look after.
God this is never ending isn't it. I am just focusing on getting to the end of chemo then I will think about radiotherapy and tamoxifen. Sorry you are finding it tough going Jill. My mum had tamoxifen for 5 years and wasn't too bad with it, but vain old me doesn't want to pile on weight on top of everything else! It will be back to slimming world if I Do!, can't imagine the hot flushes either, I haven't had any yet!
My mum said it got easier the longer she was on it.
can't sleep. I think it's steroid induced!
I hope everyone is ok!
Lots of love,
I'm no a medical professional but I don't think that I had cellulitis, vein phlebitis sounds much more likely! Whatever it was has gone now, but not before this narrow string like bruise joined it to the point I had the cannula of FEC 2 went in....so maybe I had a leak I didn't feel and that set it off? Still, I guess the PICC line will be useful against it happening again, just hope I don't have any trouble with it! Are you up for radiotherapy next?
Have you contacted anyone regarding the problems you're having on Tamoxifen Jill, you can't go on like that! In the meantime, don't underestimate the usefulness of a desk fan on you bedside table!
Going to turn in now, lost a few hours sleep last night and will have to set off for the hospital by 8.30 tomorrow and I want breakfast before I go! Picc line 'fitting' due at 9.20 and chemo at 2pm, unless a chair becomes available before!
Love and hugs to everyone, hope you are all forging on without too many hiccups, check in soon!
Yes Jill, final dose was 29th Jan. Still tired and the hot flushes are tiresome but I've got away with it quite lightly I think in terms of SEs. xx
Jill have you thought about trying Venlafaxine to help with SE? I only have to miss a day of mine and I feel sickly, lightheaded and the flushes creep up on me, they taste disgusting but they seem, to do the trick! X
Amanda, thanks for rescuing this thread. I've been somewhat neglectful of it of late so good to see it back up near the top of the page. Sorry to read on the December chemo thread that you have had another delay to your latest FEC - hope it will go ahead tomorrow as planned. Do you mind if I ask you how your cellulitis manifested itself if that's not too personal? I ask because I think I've got a case of vein phelbitis in my chemo arm - one small vein that branches off a main one has a small lump and is a bit red and swollen. But of course reading about cellulitis I wonder if it might be that - hypochondria no doubt!
I'm not feeling too bad day 13 of T3. It's definitely tired me out a lot more than the other rounds but it is doable. I have not found the T anywhere near as unmanagable as I'd feared. Feel free to ask me any questions about it now or when the time comes.
Jill, sorry to hear of your evoloving Tamoxifen issues, hope they will become more managable over time. I expect I'll be starting it in late March so am watching everyones' experiences with interest. Hope all is well with you up in your part of the world. You've not been too badly affected by the recent floods have you?
Right, time for dinner. Hope everyone has as pleasant an evening as possible.
Oh Jill sounds awful! Think ive got that to look forward to also. 😖 Excuse my ignorance but what's a 'chillow'? I can hazard a guess...... 😜
As as for being in the Breast Care Unit I know where you're coming from!! I was there last Monday to see my reconstruction consultant..... Oh my! 😒 the awful feelings in my stomach!? And couldn't stop thinking "God the last time I was here......' Still, at least this time I' didn't walk out crying uncontrollably!!?! I am dreading having to go back for 'the check up'. I really don't know what happens after radiotherapy finished? Do I wait for the annual mammogram in August? Or will they do tests straight away? Oh god it's going to be torture waiting for those results!!!
This is whole thing is so unfair and cruel...,.,
hopecyou sleep better tonight Jill xxxx
Oh dear Jill, that sounds unpleasant, I had heard it can be like the menopause on speed! Have you thought about getting a 'chillow' I don't know how good they are, I noticed they had small ones for sale in my oncology department. How long have you been on the tamoxifen? Dis your check up go ok?
I had my assessment and it was 40 minutes late then I had to go to another department to have the blood taken as they were too busy to do it in the chemo unit!
Tina, I hope FEC 3 is kinder to me than it has been to you, still, you're half way through now! Like you, I am a bit worried about the T, the thing I've heard the most is there is less nausea but more 'bone aches'. I don't thinks it's so hard on the veins either....so swings and roundabouts I suppose!
Hi Amanda was thinking about you earlier! What a bummer having it delayed!! FEC 3 knocked me for 6 and I'm dreading the next round on the 19th.....
I heard from Delly week before last but nothing since!? Bazza had results yet? How's Nikki now chemo done? 👍🏼 xxxx Tina
This thread was on the second page...I thought 'I must do something!!@ 😉
I have had my FEC 3 delayed 6 days, because of an 'infection' which was a storm in a teacup but they are only looking out for me by being ultra cautious! So that should be 4pm on Wednesday, as long as today's bloods are ok.
How is everyone...still nothing from Delly, hope she is ok. I hope you have that appointment by now Barry. Has Nikki started rads yet?
Love and hugs to everyone.
I have been seeing your posts about diagnosis of breat cancer. So thought of sharing a link that may be useful for guiding people who can are taking chemotherapy. It consists of specific side effects to durgs that are being used commonly for breast cancer and other types of cancer. Please check..I hope it helps
Thanks Nikki, you're an inspiration and shows us all we'll get there! Xxxx Tina