5,000 posts - wow. You have created a monster Jill.
I must admit I went back to the start of this thread and the time I started posting the other day just to see how things had changed and to reassure myself that I have come a long way since then (I was having a bit of a wobble).
Nikki was told she'll have 4 and half weeks, not shure if it's high or low. Just that it was a booster! Orginially told it was for 3 weeks, so a little disappointed it was extended.
Definitely, I don't want her breaking down with exhaustion!
They have said to her they can review it at any time and she can let them know if it gets too much. I think now she's back she doesn't want to go backwards if you know what I'm getting at? But we'll see, it's down to her as there is the possibility to work some of her hours at home.
How many weeks did you have rads for Jill?
Jomo, you wouldn't believe how much I was on this forum. I read so many posts (my wife Nikki got joined later and for better or worse probably read more posts over time).
There's so much to take in. But everything you are thinking/feeling is what we did. One question you asked was about full node clearance, they will remove all of the remaining lymph nodes from the side they found one to be positive in. It can leave you out of action for a few weeks, as they have to work around the nerves and muscles under your arms. There's more to it than that, but best to talk to the doctors to see what the next course of action is first.
Hi ladies, noticed a few new members in my forum alerts and thought I'd pop in and wlcome you (not that you'd choose to be here) and see how everyone else is too.
Update on us, Nikki is now back at work. Commuting then having to go back fo rads in the afternoon, before finishing her hours at home. A long tiring day for her at the moment, the walking ups the stairs is the toughest part. On the positive side, one week of the 4.5 weeks of rads she has to go through is almost over. A bit sore and red from treatment already
I've finally got a referral date, but it's not until May13th! Let's hope it's not unlucky for me. Training for the 10k in Brighton is going pretty well, I'm running about 25k per week at the moment. I'm running it around 52 mins, but my target is under 50 minutes on race day in April.
Enough about us. How is everyone? With regards to the newbies, you are in great hands, They got us, me in paricular through the really tough early diagnosis stage. So many sad and horrible thoughts enter your heads, you can't turn a switch on and suddenly forget about it all or not worry and cry. It just happens over time. Once treatment begins you're too busy dealing that and slowly you get back to "normal" life. It's just how it is, try and give yourself something to look forward to once it is all done, whether it be concerts, shows, holidays etc.
Sending love and thoughts to everyone as always.
I can't tear myself off this site, I am reading things that are like a foreign language, I was diognosed with IDC: just getting the lingo, but have been told some cancer in one of lymph nodes, found by core biopsy, goi g to see oncologists on Monday , I have to have scans? Will I have to wait for these? What is lymph node clearance? I know I am having chemo first, and my breast hurts well aches all the Time, I swear I feel it in ther e what is going on? I went to work today broke down, decided I had to go home, I was so ready to fight, but I feel beaten already, I don't know how to get through the next hour, I never thought I would be thinking why me, but know I'm looking at every one, and thinking how this time last week, I was like them, now I am not, I am scared , sick, and feel surd Its eating me inside , and its to late, is this so bad to feel this way? I just don't know what as!l these things are , and if the home apply to me, you all seem upbeat, but me I'm crap very every one is saying I'm coping well I am just as good actor, didn't realise how good
Jomo, just popping in to give you a bit of advice on one of your worries that was a big one of mine too - worrying about your teeth. I have quite a few crowned teeth too and as due to an accident I had several years ago have spent quite a bit of money getting them fixed. I was so concerned that they would be damaged when I was having the anaesthetic or by the chemo itself but they have survived just fine. You will be mindful of your oral hygiene I'm sure as that helps to prevent things like thrush and mouth ulcers so that will help to protect your dental health too.
As Amanda says, they have to tell you about all of the possible side effects but you would be most unlucky to experience them all. I'm almost four weeks post-my final chemo now and apart from a few aches and pains and a little tiredness am feeling better every day. It's a rubbish situation to find yourself in but you WILL get through it.
Much strength to you.
Everything is always much worse at night Jomo, you mind just goes into bloody overdrive! You want run away...yes of course, it's a basic and ancient in stink to a threat of danger! If you work in customer services in a busy store, you are clearly a strong person, I wouldn't last ten minutes doing that!
Don't panic about chemo, it is in the 'unpleasant but doable' category. It varies from person to person of course but your chemo nurses and oncologist will do what they can to alleviate the side effects you may have. You are already aware of some of them and there are a lot that are possible...not necessarily probable though! They are obliged to warn you of any side effects you might get and sometimes it seems overwhelming but you would be extremely unlucky to suffer from lots of them. I am half way through FEC-T chemo now and although for some days here and there, I do feel tired and fuzzy I have had very little in the way of side effects so far. You may well need sick leave while having treatment to help avoid infections, if you do get an infection, you will be treated for it. Your oncologist and team will go through what you need to do to support and protect your body during chemo and you should go in armed with a list of questions and also tell them of your fears, they are used to dealing with it and reassuring patients.
You CAN do this and will get through it all, it does dominate your life for quite a while but eventually you will get used to this 'new normal' and then get your life back!
I had plenty of days like that love , not doing this , don't want to know, get me the hell out of here!!!!! It's all part of the process and your not going mad honestly, shock gives way to fear then sheer bloody anger that this would dare happen to you, I could have screamed the flaming house down at times and spent days hiding under the duvet but as Jill rightly says, it's still there when you get up! Some how you just find a way to cope, it creeps up on you and suddenly you realise your heart isn't in your mouth all day and you don't feel like you are going to choke with anxiety, it takes time but it will happen Xx Jo
Today I had convinced myself it was nothing!! Yeh bit of chemo op radio then that's it all done, tonight I am i n bed thinking I just don't want to do this, everyone's like oh you are do brave, I was but now I'm not, what if I get infection during chemo? What if my heart packs up? What about my teeth? They are crowned they will fall out! Wtf, I can't do it I can't. Said I would be in work tomorrow no problem, noe I don't want to go, I want to just run awsy
Hi Jomo, and welcome to our special club, that no one ever wanted to join! You feel like the rug has been pulled out from order you feet at the same time as you're being pushed towards a cliff edge! You will really be reeling from the shock for a while and on an emotional roller coaster, unpleasant as those these feelings are, it's really normal. Give your self time to come to terms with your diagnosis, it's a hell of a thing to take in but it does get easier as you sort of accept what's going on and you generally will feel less all over the place once you can concentrate on the treatment and get things underway. Lots of ups and down but you are stronger than you think and you will manage this!
I know one min I feel like nothings wrong, you know like its just an illness that needs antibiotics, then its over, then it scares me, I just want to start treatment, like now!
Diagnosed today but knew it was coming, I am same as you chemo. Then op then radio I am up and down, my body feels heavy with emotion,
So I have had the news today, its all a bit mad, going to see doctor Monday to sort out chemo, operation after then radio!! Its IDC, apparently common, some trace in nodes, well in one, really scared about that, having MRI and ct scan, what if its spread,?
Big hugs Lisa x Radiotherapy will blast the rest x its rubbish news I know but chemo will have done its job and they might have been "dead" traces of cancer cells
Well that was a bit of a nasty shock, I can understand how you feel, almost like when you were first diagnosed but you came to terms with it and have been getting on with treatment and life in general and you will be doing the same again soon! And as you said, they are out and you will have a good blast of radiotherapy in case there is anything left, which there probably isn't!
The trouble with scans and even node biopsies, is that they can sometimes miss the microscopic stuff. I suspect the surgeon wasn't worried either, and do remember, it was microscopic!
Welcome even though we wish you didn't have to be here, if you know what I mean!) to Emmajane and Skyblue, you can already see there is loads of help and support here!