Just had a quick read up on yers.
JDW - Sooo glad of your good news ref no chemo required. Hope you're healing well. Have you started chemo yet, or still waiting on?
ice_cc - Great on your clear margins and nodes. Hope chemo can be ruled out for you too. Had to larrf at your comment about "satsuma" sized ovaries!! Am having visions of two bumps jutting out from under your skin! Can sooo relate to your comment, "Just wish I could concentrate on anything other than the 'C' word". Hard for anyone at the early stages when you've all got so much going on with it. Yeh, I agree with JWD, hopefully work will provide 'some' distraction though.
Maggiemay - Have you had your scan results yet?
Keep kicking at it in the delicates, everyone.
Loadsa love, Doolally xxxxxxxxx
Thanks for the comments - really helpful and puts my mind at ease a bit!
Moving from Breast Unit to oncology is, in my experience, normal. A new set of doors, new faces...but all heading you in the right direction 🙂
Caroline, my surgery was 28 June and I started rads on 14 August....so, this Tuesday. I am not sure that rads start as early as 4 weeks after surgery.... maybe your appointment with the radiography doctor might.... then that’s when they plan your dates for rads
They haven't mentioned that test (something to do with whether chemo would be useful?)... To be honest, my results appointment only lasted for 5 minutes and the breast surgeon said I wouldn't be back in the breast care centre now for another year. Oncology seems to be a very separate thing at the hospital I'm being treated at, so now I'm waiting to speak to an onocologist for the first time x
I had my appointment with my oncologist about two weeks after I had my results, it came through the post, after seeing him I had a planning apt two weeks after that and then started two weeks after that, you will probably get something through the post in the next week xx
Yeah I'm not sure about what's normal in terms of waiting? I assumed the breast care nurse and consultant would outline my treatment plan today when I got the results (and also had in my mind that I'd be starting radiotherapy/chemo about 4 weeks after surgery for some reason), but they just said that they'd send a letter to oncology now and that I'd likely get an appointment to talk to them within a few weeks x
Yay!!! Great news Caroline xoxox
Hope you don’t have to wait too long though for your treatment plan. ‘a few weeks’ seems a bit too long...?
Clear margins and clear lymph nodes - yay! (isn't it amazing how a breast cancer diagnosis changes your perception of what good news looks like?? haha)
The only disappointment is that they still can't rule out chemo because of my young age, and it sounds like I'll now have to wait a few weeks to meet with a consultant in oncology to discuss my treatment plan. I was really hoping that I'd find out what my treatment would involve today, but more waiting...
Thanks for the support everyone. I managed to speak to the breast care nurse today and I'll be getting my post-op results on Thursday and can pick up a sick note then to cover the time I've been off so far. I've decided to start work again as of tomorrow though, as I feel like there's no physical need to be off any longer, and it could be a while before the next phase of treatment starts (whatever that is). Although I'm starting fertility treatment today I doubt it will require proper time off except for appointments, so I should probably just suck it up and get on with things!
Just wish my brain would stop running riot so I can concentrate on anything other than the C word
Caroline this isn't right, you should have been given a date for your results either before you left the hospital on the day of your op or within a few days of it by post, leaving you waiting like this with no news just isn't on.
I would ring the clinic in the morning and don't let up until they tell you when you will be getting them , this is hard enough without any extra uncertainty!
I didn't have a sick note as my boss paid me for time off but as Jill says call your doctors surgery and request one, you shouldn't have to be doing all of this at a time when you need to be resting and focusing on yourself but sadly some times we just have to fight for ourselves when other people don't do what they should be doing on our behalf!
Fingers crossed you get some answers soon and things are the best they can be Xx Jo
Brilliant to hear Jo, it's amazing the sense of relief some good news brings even when we have cancer! Xx
"To chemo or not to chemo", that is REALLY the biggest question of all, isn't it?
Thank you for saying it so clearly.
It REALLY IS more emotionally draining than I had imagined, so I completely symapthise. Sorry that things are delayed for you, but I'm sure your breast care team will have your best interests at heart. Fingers crossed things get moving again for you soon!
The whole fertility thing felt like too much for me too on top of everything else... I'll be starting ovarian stimulation any day now before chemo and/or rads start, and I'm "looking forward" to my ovaries becoming the size of satsumas (as the fertility doctor so kindly explained!) followed by some delightful egg harvesting a.k.a worst smear test ever!
Hang in there and feel free to drop me a line 🙂