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Just diagnosed - feels surreal

20 REPLIES 20
3331melanie
Member

Re: Just diagnosed - feels surreal

Thank you ladies xx


@Nicky453 wrote:

Excellent news Mel, another step out of the way . Big hugs xx


 

Nicky453
Member

Re: Just diagnosed - feels surreal

Excellent news Mel, another step out of the way . Big hugs xx

Kip
Member

Re: Just diagnosed - feels surreal

Excellent Mel. One test down... And now you can take a step forward.   Deep breathes...kip

3331melanie
Member

Re: Just diagnosed - feels surreal

Hi

just back from pre op- HER2 negative 😊. Never thought I’d be so pleased about a result.

I have to keep an eye on my blood pressure as sky high. I suffer with anxiety so hoping that’s why! Don’t want surgery delaying because of it.

Kip, that must have been awful waiting for that result! and having to postpone surgery.

i totally relate to wanting the brighter out! Can’t come quick enough!

Mel x


@Kip wrote:

Hi Mel,

Completely understandable that you can't deal with your job at the moment, best piece of advice... be kind to yourself.  Its hard sometimes but you do need to put yourself first sometimes.   I am lucky that I work from home in a secretarial role so not hard for me to continue with that.. even when I looked like a dogs dinner!   It really is hard when you don't know whats happening when.  Once things start rolling you feel supported and in the system so to speak and just deal with it as it comes.   My HER status took ages to come, initially it was "inconclusive" twice and then I had to have another biopsy as they didn't have enough tissue!   I had put off my mastectomy once whilst waiting incase I needed the chemo before surgery but eventually just opted to go with the surgery (just wanted the blighter out) and thankfully the HER2 turned out to be negative anyway.   I think you have to have chemo first to have the specialist drug to be administered if HER+... not sure but something like that.   Good luck with the results.  

Kip

xx


 

Kip
Member

Re: Just diagnosed - feels surreal

Hi Mel,

Completely understandable that you can't deal with your job at the moment, best piece of advice... be kind to yourself.  Its hard sometimes but you do need to put yourself first sometimes.   I am lucky that I work from home in a secretarial role so not hard for me to continue with that.. even when I looked like a dogs dinner!   It really is hard when you don't know whats happening when.  Once things start rolling you feel supported and in the system so to speak and just deal with it as it comes.   My HER status took ages to come, initially it was "inconclusive" twice and then I had to have another biopsy as they didn't have enough tissue!   I had put off my mastectomy once whilst waiting incase I needed the chemo before surgery but eventually just opted to go with the surgery (just wanted the blighter out) and thankfully the HER2 turned out to be negative anyway.   I think you have to have chemo first to have the specialist drug to be administered if HER+... not sure but something like that.   Good luck with the results.  

Kip

xx

3331melanie
Member

Re: Just diagnosed - feels surreal

Thank you Kip for replying. I am not working at the moment - only because I’m a health visitor and haven’t got the strength right now to support families in crisis. I hope when I have a fuller picture that I will be able to return to work. I go for pre op today so hoping I’ll know HER 2 result.

I agree the forum is a lifeline!!!

Many thanks for your advice - it’s good to hear treatment but as bad as you thought. For me it’s the fear of the unknown but at the same time just want to get in with it now!!!

Mel x

Kip
Member

Re: Just diagnosed - feels surreal

Hello Mel,  so glad you've found this forum, it really is a lifeline.  As all the others have said it's the hardest time waiting for a plan but take it slowly, one step at a time.  I was diagnosed this time last year, grade 2 IDC, 2 nodes affected.  I had a single mastectomy, 6 x chemo, 15 x rads and now on Tamoxifen.  Its not all been easy but definately not as bad as I feared  I worked part time all the way through, still managed to get out and enjoy myself too.  When you have appointments it helps to take someone else along as it can be easy to forget things.   Write down any questions before hand too. Hang in there,  you are most definetly not alone.

Kip

3331melanie
Member

Re: Just diagnosed - feels surreal

Yes that would be fab xx

3331melanie
Member

Re: Just diagnosed - feels surreal

Hi - thank you for responding. I’m pleased to hear your treatment is going well and thrilled to hear your oncotype is low 😊. I’m just waiting in HER2 result which I should get this week then I guess I will then fully know what’s going to happen. It’s reassuring to hear the radiotherapy is nothing to be anxious about. I’ve ordered some seamless bralettes for after to be comfy (after reading another recommendation in this forum). 

Thank you for your good wishes - sending lots your way too! 😘

love Mel x

JessJane
Member

Re: Just diagnosed - feels surreal

Hi Mel. You may have read my history on another thread that we have both responded to. Just to say I am in much the same boat as you only a little further along. Lumpectomy and SMB were much easier than I anticipated  and recovery was swift. Most of the sleep was lost whilst waiting and anticipating Oncotype result which thankfully was low.

Radiotheraphy was just fine. Lovely staff and a nice lie down each afternoon! Many chats and laughs at it progressed. Now a bit sore and blistered ( 10 days after last rads) but it is all gradually  subsiding. Be reassured it is nothing to be anxious about honestly.

will be thinking of you and wishing you every good outcome on Weds

big hugs

JJ

Nicky453
Member

Re: Just diagnosed - feels surreal

Your welcome , will keep in touch xx

3331melanie
Member

Re: Just diagnosed - feels surreal

Hi Nicky - thankyou. I am finding the forum invaluable too. Our stories do sound very similar. I should know about HER2 this week. Ultrasound showing no lymph involvement but obviously doing sentinel node biopsy during surgery. I have my ore op on Wednesday and have said I’m happy to have surgery sooner if cancellation comes up. I too have 2 children 18 and 14.

i feel like the m getting my head around it all now and this forum has been so helpful. I’m eased your surgery is done and would be really interested to hear about your radiotherapy when it starts.

hugs to you too and Thankyou for your message.

Mel xx

Nicky453
Member

Re: Just diagnosed - feels surreal

Hi Mel 

welcome to the forum where I have found so much comfort and support. I am similar story to you, 46 yrs old , localised tumor . I have had my lumpectomy at the end of feb and was up and about the next day albeit a little tender. I’ve had a bit of a delay as my tumour was sent for an oncotype test as I was er+ her2 negative with no lymph nodes infected. Waited 2 weeks for the results and now just waiting on starting radiotherapy very soon along with tamoxifen. Once your treatment plan is sorted I found it got easier and less stressful. I’ve tried to keep my normal routine as I have 2 kids aged 7 and  14 . 

Keep positive and even if you have a wobble you will pick yourself up . We are all here for each other. Big hugs nicky xx

3331melanie
Member

Re: Just diagnosed - feels surreal

Thank you Paulus.This forum is already providing comfort and support. It feels very lonely when you are diagnosed, however being part of this forum has made me realise I am not alone and there are lots of lovely supportive ladies going through the same. I hope one day I can provide that support and comfort to others.

i don’t know you’re story but hope you are ok

Mel x

Paulus
Member

Re: Just diagnosed - feels surreal

Wishing you all the best Mel  -  oh yes, those early days of ' OMG how did this all happen ' . . . . gradually as the appointments fall into place, we can veer from wanting to get the whole matter sorted out as soon as possible to feeling it is all going too fast and we need time to take it in.  It's a huge shock  -  but you've come to the right place, and gradually you will feel a bit calmer, and then familiar names will be writing where you write, and the community of this place will be just the ticket when you need to let it all out  -  somewhere to share your fears, but also your good news too. x

ann-m
Member

Re: Just diagnosed - feels surreal

Too right about google, Mel!

There is a time & place for it, when we’re through the shock of diagnosis, know what we’re looking at & can be objective in cutting through the dross. 

I was too scared to google after diagnosis, so took my cue from the team. In hindsight, I’m glad I reacted this way. I only ventured on, after surgery when everything was confirmed & then I found this lovely forum!

ann x

3331melanie
Member

Re: Just diagnosed - feels surreal

Thank you so much for your reply. It’s so good to hear positive stories. I just want to crack on with treatment now. I have quickly learnt to stay away from google! This forum is proving invaluable.

Im so pleased to hear you are well 😊

Many thanks Mel x

Mai7
Member

Re: Just diagnosed - feels surreal

Hi Melanie and welcome to our lovely forum.  Sorry to hear of your diagnosis but just want you to know you can get through this mentally and physically.  It’s really tough just after diagnosis but you will laugh again.  I’m still here after a stage 3 locally advanced diagnosis in March 2017. I had chemo, surgery and radiotherapy and now on a Tamoxifen.  I feel great, lots of energy and working full time.  Just give yourself time to work through the emotions (there will be plenty of them) and avoid looking up the scary stuff.  Only google for healthy things not statistics. Best wishes. X

3331melanie
Member

Re: Just diagnosed - feels surreal

Thank you so much for your reply Ann and your reassuring words - you are absolutely right! I’ve spent a good amount of time going through the forums this evening and certainly don’t feel like the only person to be diagnosed with breast cancer. This site is going to be invaluable.

I am thrilled to hear all is well for you now 😊

Mel x

 

ann-m
Member

Re: Just diagnosed - feels surreal

Hi Mel,

First of all welcome & we’ve all been there, it is such a shock getting diagnosed, but we do get our head around it. 

There‘s every reason to be positive, like you, my treatment plan was the same as proposed to you & all’s fine 3 years down the road, as it is for the vast majority of us. 

I found it helpful to take it a stage & an appointment at a time & tried to avoid getting into the ‘what ifs’ as it’s not helpful. Just go with what the team are telling you & what you know now. 

It does all settle down when the treatment plan is confirmed & you know where you’re going with all. 

It will be ok

ann x

3331melanie
Member

Just diagnosed - feels surreal

Hi 

My name is Mel and I’m 45. On Wednesday I was diagnosed with low grade IDC. My team are telling me they are looking at curative treatment. Plan for lumpectomy and radiotherapy followed by tamoxifen. I am waiting to see if it is HER 2 positive. 

I feel like my world has imploded. I know I need to be positive but I’m really struggling right now.  Never thought I’d be in this position. Any tips on coping strategies would be gratefully received.

thanks in advance 

Mel x