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Looks like its a mastectomy..

8 REPLIES 8
Kip
Member

Re: Looks like its a mastectomy..

Hi,  just stumbled across this thread and thought I woukd add my story.  I was diagnosed 1 year ago with Stage 2 IDC Er+ Her2-. I couldn't have lumpectomy due to size of tumour and little old boobies.  I had already decided I wanted a mastectomy anyway.  So I did and no recon and at present don't feel i want to.  It's a very hard and personal decision and one you need to think about and discuss with docs, friends whoever you can.  But at the end of the day it is Your decision.  I have never regretted it and have been told I can haved reconstruction at anytime in the future if I choose to.   My op was quick,  in at 9am home at 2pm with a drain for a few days.  Healed very quickly too.   I know of many ladies who have had Masectomy and recon and are really pleased too.  Wishing you all the best

Kip... Oh I'm 48 by the way 

monicanatura
Member

Re: Looks like its a mastectomy..

Hi Mini Mad

I had a mastectomy in December 18, I had a large tumour, so I had no choice. 

I am having reconstruction in Dec 19. I’m now happy I had the mastectomy, I had clean margins and the surgeon removed everything, so no cancer left. 

I’ve spoken to women at work who previously had a lumpectomy, then had to have a mastectomy after. This isn’t always the case, however I’m happy in the knowledge, that I’m clear, and eventually I will have new boobs. 

Lots of luck. 😁

mini mad
Member

Re: Looks like its a mastectomy..

Hi ladies,    Latest update....lump in left breast is now recurrence of TNBC in 2017.

next week i have a CT staging scan on my chest and then the following week a full body Bone Scan to see if anything had spread elsewhere.  Then see my surgeon for those results and hopefully a treatment plan for me.... god i hate this waiting...

KirstyC80
Member

Re: Looks like its a mastectomy..

Hi There, I had a mastectomy on Thursday but no reconstruction at present, I am 38 so this is something that I want to consider, I had a 2cm lump and just before my lumpectomy they discovered an area of DCIS, I now want to have the other side done as I have had 9 biopsy's over the past 6 weeks so it has been an emotional rollercoaster to say the least, I am unaware of the reconstruction process at the minute but will be looking into all of this as soon .as I get results from my mastectomy 🤞🙏

 

I hope you have a speedy recovery and get back to full health as soon as possible x

Lucy51
Member

Re: Looks like its a mastectomy..

Hi I am due to have a mastectomy on 11/4 with a reconstruction using my own tissue. I was referred for a mammogram after some pain in my breast and despite a biopsy really did not think I had anything to worry about. I was shocked to be told I had grade 2 breast cancer, which is completely curable, and as they'd found 2 separate spots a mastectomy would be the only course of action. 

I'm still finding it difficult to accept the course of action despite having it explained to me several times why the surgery is necessary.  I chose immediate reconstruction as I don't want to go back for further surgery at a later date. I've found it so difficult to find any help or support and feel very isolated and have been suffering with anxiety. Everyone is being so kind and say if I want to talk they're there but as it's all I can think about don't want to end getting on everyone's nerves with it. I hope you have a treatment plan and you're finding it easier to deal with. Sending you my best wishes xx 

pastasmissus
Member

Re: Looks like its a mastectomy..

There's a facebook group called flatfriends for people who haven't had a reconstruction. It's full of friendly helpful people.

I had a mastectomy (no reconstruction) then 3 weeks later they found cancer in the other breast on the MRI scan, so had a mastectomy that side as well. All the best

mini mad
Member

Re: Looks like its a mastectomy..

Hi LunaMuna,

thx for reply.  Dont know how old you are but i have decided not to have reconstruction.  If i had been 20 years younger then probably would have.  

Wish wednesday would hurry up and come !!  Good luck. xx

LunaMuna
Member

Re: Looks like its a mastectomy..

Hi

I am also facing the likelihood of a mastectomy and it scares me too. I am large busted and keep imagining something hideous! I do know though that there are better than ever options available in terms of reconstruction and they will try and make them match. 

It's such a scary time, and so many hurdles but wait and see what is said. The way I look at it for myself is that i want them to take every last bit of cancer away and stop it from coming back.

Keep positive and hopefully you will get some good news on Wednesday.

Big hugs xxx

mini mad
Member

Looks like its a mastectomy..

Hello lovely ladies,

well my mammo recall showed a lump in same breast as before but in different area so they say its mot connected.  Going wednesday to see same surgeon as before in Feb 2017 for my biopsy results.  Mastectomy already mentioned...this is my worst nightmare.. 

would love to hear back from anyone who is facing this...or have had this op done.

feeling really worried...xxxx