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Lumpectomy or double mastectomy?

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Re: Lumpectomy or double mastectomy?

mastectomy with no reconstruction is also an option. If you are considering this, I recommend the group flatfriends on facebook. I had cancer both breasts, had two mastectomys no reconstruction and am very happy flat.

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Re: Lumpectomy or double mastectomy?

Hi Leonie,

My issues were not actually with the implants themselves but a muscle tear and issues with the wounds healing. Before those issues came up I was just starting to get my head around the implant, I haven't had them long enough to settle in but I can say that they absolutely feel different. They don't move as much thats for sure, its weird because I'm obviously used to bigger squishy normal boobs. The main issue for me is that since they're under the muscle it makes the pectoral muscle function in a bit of a different way and I will need to get used to that, i plan to work on it in the gym to get my strength back, as part of that there is a weird pressing feeling that is apparently where the muscle is being strained from being out of place. I am hoping that will go eventually or that I will get used to it. 

Its not my intention to freak you out but more to just say how it has been for me, everyone is different so just because it feels like that for me doesn't mean it will be like that for you. Its a balancing act really, can you handle this hopefully short term stuff in order to avoid /prevent something more nasty coming back to get you later. 

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Re: Lumpectomy or double mastectomy?

Hi Katz,

I posted last reply before I had finished.

 

My other big concern is whether the implants will feel part of 'me'. I know they will feel different because of lack of sensation etc but can anyone who has had them a while say if they feel ok once they have settled in.

 

 

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Re: Lumpectomy or double mastectomy?

Hi Katz,

 

Thanks for the support and candid insight.... It really does help.

 

Yes it seems more and more that the mastectomy is the 'sensible' choice in the long term.....but it's still scary as hell. I read your post so know you experienced complications with the implants. 

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Re: Lumpectomy or double mastectomy?

Hi Leonie68,

This is a super **bleep**ty situation to be in and I have been there and now can say that I have experienced both procedures. 

After 2 lumpectomy's I was left with my right side significant'y smaller than the left and an unpleasant dip in the right side which seemed to appear over night. The surgery is not so bad, I was out of hospital the same day and the recovery was pretty easy. That said, you do end up with the worry and risk of recurrence. I'm guessing although you didn't mention it, that you may need follow up radiotherapy? something to consider is that if that is the case and there is a recurrence then apparently reconstruction is more difficult after radiation. They told me that the risk of recurrence is quite high so i ended up going with the double mastectomy in the end after flip flopping back and forth. It was an awful decision but eventually the percentages swung it for me along with thinking what I would advise someone else to do if they were in the same situation. I also tried to put a positive spin on it by going down a couple of sizes as mine were pretty big before. i'm not gonna lie, its not a fun surgery or recovery but with the recon straight away its not as bad as you might think. I had a few problems afterwards which are apparently pretty rare ( but apparently my whole situation is extremely rare so i'm not surprised it ended up like that) but the important thing is to keep the end game in sight which is the only thing that has stopped me going off the rails, minimal chance of recurrence, smaller boobs and no longer having to do follow ups, MRI's etc or worry anymore. It sounds like you'd get a better more settled out come with the bigger op but you need to make that decision for yourself. For me it felt much better once I had decided on a plan then I could go for it. Hope that helps a little bit, I really do feel your pain right now.

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Lumpectomy or double mastectomy?

Hi, I am recently diagnosed and currently have to make the above choice. I posted a reply to someone else's similar dilemma but would really appreciate any input that would help with my decision.

 

I have 14mm DCIS in left breast and 15mm in right and waiting for results of third biopsies from left. All low grade so far but obviously that can change once they have taken it out and looked at it all. I am apparently in 3% of women who get it in both breasts but obviously lucky they have caught it early. 

 

I only have small boob s so lumpectomy would leave 'deformity' as surgeon said with scar and divots on top of one breast and potentially top and bottom of other. This could be filled by fat transfer but takes multiple procedures and can only be done at later date. The chance of recurrence in remaining breast tissue is obviously a concern for me.

 

Alternatively i have been offered double mastectomy with immediate reconstruction with implants. They hope to save nipples but again that depends what they find when they do the op. It's obviously a bigger op so more possible complications but one plus side is I could go up a cup size! (Always try and get a positive out of a negative). It would also reduce (but not completely negate) the chances of recurrence.

 

If I had a Crystal ball with outcomes of both it would be great. But like many in this forum I am dealing with likelihoods and percentages and veering between best outcomes and worst case scenarios so change my mind by the hour. I need to be as positive but realistic about my choice as possible so any help would be really appreciated.