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Lumpectomy v mastectomy

21 REPLIES 21
Milly15
Member

Re: Lumpectomy v mastectomy

Hello Dippy, how are you feeling?  is the radiotherapy plan in place yet?  You have had a long slogged at this, I feel confident that you will feel so much better once you get this treatment underway.

Today is World Cancer Day which will hopefully highlight how common and devastating this is for many families.  

Try to celebrate the days when you feel good and rest on those not so good days.  Remember you are not alone in this.

Keep in touch.  Hugs and positive thoughts heading your way.

dippy
Member

Re: Lumpectomy v mastectomy

Hi Milly,

that’s great news - hope you feel well enough to have a wee celebration.

really pleased for you 

xx

Milly15
Member

Re: Lumpectomy v mastectomy

Hello Dippy, I received my biopsy results last evening, and I'm pleased to say that the cancer has not spread.  I shall continue to be monitored and will have to take Letrazole for years, but if that keeps the beast away then it's a very small price to pay.  As I'd had a mastectomy I don't need to have chemo or radiotherapy.  I really count my blessings and am grateful to this forum for the kindness and advice available, it has helped me, and I'm sure a lot of others, get through and manage a very difficult time in their lives.

Keep updating on here and don't feel alone.

 

Milly15
Member

Re: Lumpectomy v mastectomy

Hello Dippy,  such good news that there were clear margins on your second op, we are so fortunate to have excellent surgeons to carry out this delicate work.  Once you get your radiotherapy plan in place you will start to see an end to all this, fingers crossed you sail through it.

I eventually had to have the haematoma surgically removed and spent another four days with a drain, but I'm improving by the day.   I get the results from the biopsy late tomorrow (Wednesday) and from that I will know what the treatment plan is.  Whatever it is I shall just go with it, I have no option and am very stoic about it.  

I have had wonderful support from a friend who is staying with me, although she had last weekend off and a niece of mine came and stayed, she stripped the bedding, did loads of washing, cooked and cleaned for me, I felt so lazy, not that I could have done anything.

I'm finding that sleep and rest have helped, I stop when I feel a bit tired and then get a new burst of energy for a short while.  Onwards and upwards.

I do hope that you continue to get better, big hugs and positive thoughts heading your way.

Keep in touch via here.

dippy
Member

Re: Lumpectomy v mastectomy

You’ve really been through the wringer.

hopefully haematoma resolved and you are back on the road to recovery.

be kind to yourself and allow yourself extra time to recover from this as well.

I got clear margins after 2nd op so just waiting on radiotherapy plan.

take care

xx

Milly15
Member

Re: Lumpectomy v mastectomy

Update -  six days later and a haematoma developed in the breast cavity, swelled up, blood pouring from the drain wound site and I was rushed int hospital and passed out twice on the way.  Overnight in hospital, where I must have seen about 8 doctors, who all decided that it should be left alone and wait to see what happens.  In a lot of pain but rested up at home, five days later the pain and swelling had got a lot worse, so off to A&E only to be admitted and then an emergency operation to remove the haematoma.  Back home and feeling so much better, with fingers and everything crossed.

 

Milly15
Member

Re: Lumpectomy v mastectomy

Update - it is almost a week since my mastectomy, there are good days and not so good days, but on the whole I'm doing ok.  I do not have any pain but I do have a sensation of needles pricking the back of my upper arm?  I guess it will go eventually.  The exercises that the bcn gave me have helped enormously with good radial movement in my arm and shoulder, I do them three times a day without fail.  I still have the drain in, it is going to be removed tomorrow, most days there is between 70 and 80cl.  The District Nurses come in daily to check and change the dressings and the drain bottle when it becomes too heavy.  I have had a male nurse over the weekend and he has been so lovely, not that the ladies haven't, but this is the first time in my 70 odd years that I have been cared for by a male nurse.

Take care everyone, big hugs to you all. x

Milly15
Member

Re: Lumpectomy v mastectomy

Hello Dippy, I'm pleased to hear that your surgery went ok, it's always a worry and within no time it's over.  My surgery went well, three lymph nodes removed and I shall have to wait for about three weeks for the results of the biopsy for those. 

The op was at 6pm and I went home, with a drain, the following lunchtime.  Still feel tired, but no pain, the drain is a pest, in terms of you can't move without it, but it's doing its job and for that it's worth putting up with. I'm sleeping for England, Scotland, Wales and Ireland at the moment, which is a novelty for me as I don't usually get more that four hours sleep, I'm making the most of this.

The district nurse came in yesterday to change the dressing on the drain and to check the level in the bottle, she will call again later today.

I have a friend staying with me who is a wonderful cook so I'm getting great food. She is good company and has been a boon for my morale. 

It would be good to have someone to talk this through with, someone who has been through this, but I do find that this site and forum has been a great help.

Keep in touch through this forum.  Thinking of you and all those others who are facing this pest that has decided to take up lodgings in our bodies without invite.

Big hugs xx

dippy
Member

Re: Lumpectomy v mastectomy

Hi Milly,

all went well for me today - had a fabulous anaesthetic- no pain and home mid afternoon 👌.

I had the company of another lady who also had surgery the same day as me in November tho this time round she was in for a mastectomy.

have to say though for both of us it was so nice to see each other again and I think it made it a nice experience today for us both.

it was good to be able to speak freely and openly face to face with someone else on this journey. We even hope to meet again at our results clinic - funny how new friends can be made in these situations.

thoughts turned to you today also.

Hoping it went well and you don’t have nasty anaesthetic side effects - home or overnight stay.

nothing beats your own bed although an anaesthetic hangover sleep in a cosy bed comes a close second.

take care 

xxx🌼🌼🌼🌼

Milly15
Member

Re: Lumpectomy v mastectomy

Hello Dippy, well today is the day for us both to have surgery and I'm thinking of you.  Wishing you a successful and rapid recovery.  Stay positive, remember you can do this, it's another route on a road well traveled.

Best wishes xx

Milly15
Member

Re: Lumpectomy v mastectomy

Hello Dippy, so we are both having surgery on the 11th Jan, I shall be thinking of you.  It's all so very scary, but necessary, we must do everything in our power to harness this intruder in our bodies, and remain positive.  Of course we will go down the 'what if' route of thinking, and I guess that is normal, but we must also try to be optimistic, because we, and the doctors can sometimes be wrong.

I'm trying to live everyday as it comes, I take the hormone pills (I don't even like taking a headache pill normally), keep myself busy, go for a walk when it all becomes too much, sometimes I walk two or three times a day even when it's chucking it down.  I just get out there, it makes me feel good and calms me.  I get home and feel refreshed and ready to tackle this little pest that has decided to invade my body.

Stay positive and safe.  Keep in touch on here.

 

dippy
Member

Re: Lumpectomy v mastectomy

Hi Milly,

I got my results last week - lymph nodes clear but didn’t get clear margins so due for another lumpectomy on 11th January, also have pre cancerous cells nearby but they aren’t concerned about that 🤔

it was only 1 area that wasn’t clear which is the reason a mastectomy hasn’t been suggested.

ive been on letrozole since July and it’s felt like a very long drawn out process and radiotherapy for me doesn’t start until 12 weeks post 2nd surgery providing clear margins are achieved this time round.

I’m 53 and it was picked up with my 1st screen in April,

Good luck with your surgery and recovery

xx

 

 

Milly15
Member

Re: Lumpectomy v mastectomy

I have just received the results of my biopsy and the news was not good, I have an aggressive grade 3 cancer.  The options are to have an MRI scan to see if there are other cancerous cells in the breast, then await a date for a lumpectomy, followed by radio therapy for two weeks, and then hormone therapy for the next ten years.  There was no talk of a mastectomy.

I decided to go for a mastectomy and hormone therapy.  The consultant said that many women go down this route, and he gave me the option of changing my mind.  The surgery is booked for 11th January.

My decision was based on 1) my age - 73 and 2) supposing they don't see all the possible cancerous cells in the MRI,  I'm then left with going through all this again.  I also felt that the MRI would not show up pre-cancerous cells.

This is obviously not something anyone wants to face, but I'm remaining optimistic albeit dreading the surgery and recovery.

dippy
Member

Re: Lumpectomy v mastectomy

Hi Lynnie,

I was diagnosed with invasive lobular cancer in June.

been on letrozole since July to shrink it so was able to go for wide excision 3 weeks ago.

wasn’t ready for mastectomy unless absolutely necessary,

Tumour removed and basically fat rejiggled about to fill in the space.

get results on Thursday so see if margins clear enough.

if not then mastectomy it will be and I’ll accept that as I’d tried other options.

good luck with your decision.

take care x

amandajgr
Member

Re: Lumpectomy v mastectomy

Hiya

i’m not sure I can offer any meaningful advice but I can tell you my thoughts 😊
I was diagnosed with ILC on 20/08.I was told that it was 2.5cm and was only offered a lumpectomy with sentinel node biopsy although I did ask about a mastectomy I was totally dismissed but when the results came back there were no clear margins so I was then booked in for a mastectomy.

8 days on from the mastectomy I have  today been told that it was a good job that I had a mastectomy as it turned out to be multi focal and they would have never known.It did not show up on any scans.

Right now I’m thanking my lucky stars.

In my opinion a lumpectomy is a much easier surgery to recover from physically and psychologically.As I had originally requested a mastectomy I was not prepared for the mental health impact of having one done .

Having a mastectomy does take away the worry that there could be more cells left behind.

I know it’s hard when faced with such tough decisions.

I wish you luck with your journey xx

amandajgr
Member

Re: Lumpectomy v mastectomy

Hiya

i’m not sure I can offer any meaningful advice but I can tell you my thoughts 😊
I was diagnosed with ILC on 20/08.I was told that it was 2.5cm and was only offered a lumpectomy with sentinel node biopsy although I did ask about a mastectomy I was totally dismissed but when the results came back there were no clear margins so I was then booked in for a mastectomy.

8 days on from the mastectomy I have  today been told that it was a good job that I had a mastectomy as it turned out to be multi focal and they would have never known.It did not show up on any scans.

Right now I’m thanking my lucky stars.


In my opinion a lumpectomy is a much easier surgery to recover from physically and psychologically.As I had originally requested a mastectomy I was not prepared for the mental health impact of having one done .

Having a mastectomy does take away the worry that there could be more cells left behind.

I know it’s hard when faced with such tough decisions.

I wish you luck with your journey xx

Charliegirl78
Member

Re: Lumpectomy v mastectomy

Hello 

I have grade 2 dcis I think I’d be inclined to go for a mastectomy with reconstruction just to make sure it didn’t come back but you need to do you, what does your gut say? Can you ask your surgeon/nurse what they would do in your shoes? 

Charlie xx

Linda Corinne
Member

Re: Lumpectomy v mastectomy

Hi,

I got a 2nd opinion as was going to see a surgeon re immediate reconstruction. Ended up having a lift basically and was back at work after just over 3 weeks and it was a much shorter op. I would have a lumpectomy but I guess it depends if you would worry about it coming back but I think it is the same with rads. Maybe double check re that. I don't regret my decisipn 3 years ago but wonder if I did the right thing. I have my boob still and had the other lifted too. Anyway good luck with your decision.x

Eglis
Member

Re: Lumpectomy v mastectomy

Hello Lynnie

I don’t feel I have any wise words as each decision is so very personal.

I had two lumpectomies.  One breast was possibility for mastectomy but I felt the less surgery was for me the better option and I didn’t want to lose my breast unless absolutely necessary.

Everyone of us has different perspectives, thoughts and feelings.  Wishing you all the best in reaching the decision that’s best for you!  Big hugs!

delly
Member

Re: Lumpectomy v mastectomy

Hi @lynnie19 

So sorry you're here, plus haven't yet had much response.

I must apologise for my very lengthy reply upfront, sorry.

So haard isn't it. Having to deal with the diagnosis alone, without having to decide on surgery options.

Have you been told whether you'll require radiotherapy and chemo, whatever surgery options you decide??

Lumpectomy is obviously less surgery and therefore a quicker recovery. With the possibiilty of lipo filling later, if required.

Mastectomy without recon is very much dependent on how you think you're going to "feel" without anything physically there. Going flat or with a prosthesis in your bra.  So is a very personal one. But I would think, with the option of recon later, should you not be happy with and wished.

Mast and immed recon, with self tissue, a much longer op, and healing time/increased possible risks of infection, but many women on here have had it, and happy with the results, whichever area of body chosen, tummy, back etc. Or Mast with immed "implant" recon, no scarring to the rest of your body as with self tisuue options and therefore also less risk of infection and quicker recovery/healing time. 

You've probably already been through all these options in your mind and maybe still weighing up the various pros and cons??

Me? Both masts and full ANC, 2006 and 07. Wanted immed recon with both, because I knew I wouldn't be happy without. Was 46 and still single. It Didn't happen due to change from my initial surgeon retiring, and various miscommunications with the new surgeon, over me only ever wanting "implants" over "self tissue" recon, which was his "forte", so to speak. Ended up going without any recon and very unhappy, but with the option to take up my desire for implant recon later.

Other "life" brown stuff happened after, e.g. death of all 3 family and other such trauma's, so it ended up being early 2014 (7yrs later!), when I finally got around to implant recon. And it's a looong process when it's from a flat and delayed perspective. Takes approx a year, from initial expanders installation op, successive inflations, op to then install permanent silicons, then nipple recon op, and later icing on the "boob" of areolar tattooing.

Fell off the horse after completed all the inflation appointments, now late 2014, due to other life s**t happening.

I'm basically telling you all of this, because I soo wished I'd pushed for immed implant recon, and got it all over and done with from the early beginnings. Those were my thoughts and feelings from the off.

I've often said this on here, when other women are offered mastectomy with ref to choosing "immed recon", over NOT doing. Personally? "I" would take the immediate recon option EVERY time, as you never know what else is gonna crop up life wise, that's going to get in the way, if you delay it. 

And why my looong post. Am just speaking from my own personal experience and heart to you. And many others are happy to go without recon. I greatly applaud them. Much depends on how you feel about yourself, personally, whether happy to be without boobs, have a partner/husband and in a happy, long term relationship, where it may not matter so much? All of that sort of thing.

I hope you're happy with your decision, whatever you choose, Lynnie, and I wish you a speedy recovery, and to be healthy and happy.

Much love and strength to you, flower, Delly xXx      

ZoeK_BCN
Community Manager

Re: Lumpectomy v mastectomy

Hi lynnie19,

Thank you for your post.

I'm sorry that you haven't had any response yet. I am hoping my response will help our members to see your post and share their experience and advice.

In the meantime, please remember that for any clinical questions, our nurses are here and always happy to talk things through.

Sending you our best wishes,

Zoe

lynnie19
Member

Lumpectomy v mastectomy

Hi all, I am 55 and have just been diagnosed with stage 2 grade 3 invasive ER+ HER negative breast cancer and have to choose between lumpectomy or mastectomy with or without reconstruction. The lymph nodes also have to be removed. Really struggling with deciding and wondered if any of you lovely ladies have any wise words for me please??!!