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New diagnosis of mucinous carcinoma

9 REPLIES 9
AnnieV
Member

Re: New diagnosis of mucinous carcinoma

Hi Nat1972

Thank you. I had a call from my consultant today to outline the results from my surgery as the pathology was done in time for their MDT meeting. My cancer has been re-graded from 1 to 2 (I had been told that re-grading was rare) and because of the size of the tumour (29mm) I am in a grey area for the next treatment step. I don't need further surgery (clear margins, no lymphovascular invasion and no spread to lymph nodes) but chemo is back on the table as an option (didn't see that coming as I was previously told I was low risk for chemo). They are going to send a sample of the tumour to the US for Oncotype DX recurrence scoring or something. I am still trying to process it all. I was so preoccupied with whether I need more surgery (and the good news is I don't) I am now in a tizz for the next 2 to 3 weeks as to whether I will need chemo and how long the treatment plan will be and what else will be in it. It sounds mad but I don't know how to juggle/ plan the rest of my life alongside all potential treatments and side effects. Really had enough of this cancer crap now. 

xx

Nat1972
Member

Re: New diagnosis of mucinous carcinoma

Try to stay positive .

I know it is very difficult to do this at the moment .

Anything more I can support you with please let me know .

Fingers crossed for you xx

 

AnnieV
Member

Re: New diagnosis of mucinous carcinoma

Thank you for your reply. I heard too that this type of bc has a favourable outcome but sometimes still hard to control the fears & worries. I was told I would be reviewed 3 weeks from op date but when I got my appointment letter it is 5 weeks from op date. My dad thinks I should query that but I don’t really think there is much point. In meantime will return to work on reduced hours to distract myself. My immediate concern is whether more surgery will be needed as that will be logistically harder to deal with once term starts! It sounds like you made speedy progress through your treatment plan. Thanks for the tip about tamoxifen! Xx 

Nat1972
Member

Re: New diagnosis of mucinous carcinoma

Hi AnnieV

Your treatment plan sounds exactly the same as mine was.

My last radiotherapy was 8th July 21 and I currently take tamoxifen .

I was never given any explanation as to why I may have got mucinous carcinoma on my 40s but I just try to focus on the fact that my consultant told me if she was to get any of the breast cancers that would be the one she would choose.

I believe it is also one of most successfully treated.

I received my first annual all clear and was absolutely elated. 

It was such a milestone as you have that constant niggle in your head .

The end of August will seem so far away and I'm sure the consultant will reassure you with clear margins.

My advice is to ensure you do the exercises as I had chording too .

Also use the breastcare  nurses for  reassurance ...thats what they are there for regardless of how trivial you think it is .

I felt like I was constantly on the phone .

I have gone through so many emotions too...including anger at this diagnosis I'm my 40's .

A word of advice if you are getting side effects from Tamoxifen ....ask for a change of brand .

It made all the difference to me. 

If you need any more advice or any more questions please ask . I am here and am happy to support during this worrying time of your recovery. 

Xx

 

 

AnnieV
Member

Re: New diagnosis of mucinous carcinoma

Hi Nat1972

I have just found your thread. I was diagnosed with mucinous breast cancer on 25 June and I am 45yrs. Complete shock as I have always been healthy. I had surgery 19 July to remove the lump and the SNB showed my nodes are clear. I was told prior to surgery it was a grade 1 lump, 3cm. Waiting for full pathology findings but my appointment is not until 25 August. Keep wondering if my margins are clear & whether more surgery needed. I was told the treatment plan would then involve radiotherapy & tamoxifen. How far along are you with treatment now? Has anyone told you what risk factors may be involved with this rare cancer and why it might happen in your 40s when it would normally affect someone 60+? 
All best wishes to you xx

Kavi
Member

Re: New diagnosis of mucinous carcinoma

Hey  haii  may I know you're lump visible on screening 

Chelle56
Member

Re: New diagnosis of mucinous carcinoma

I had read that too (I'm 56). I forgot to say that I have just gone back to work also.

There are lots of lovely ladies on this site who will give advice and tips where they can. Tamoxifen has varying side effects but doesn't affect everyone in the same way, so please ask on here if you have questions there are lots of ladies taking it. Also if you have questions about your surgery or other treatments 😀

Please stay off Dr Google, just follow what your consultants tell you to do.

Take care x

Nat1972
Member

Re: New diagnosis of mucinous carcinoma

Thank you Chelle56

 

It is lovely to have some reassuring words. I believe that this is one of the rarer forms of cancer but tends to affect older woman than myself. 

I am 47 . 

I have just started on tamoxifen and am just awaiting a date for surgery now .

 

 

Chelle56
Member

Re: New diagnosis of mucinous carcinoma

Hi Nat

I was diagnosed with mucinous carcinoma, 2cm last November, grade 1. I had lympectomy and SNB in January followed by 15 sessions of radiotherapy.

My lymph nodes came back clear and the margins came back clear. As I am post menopause I am on Letrozole for the next 5 years.

 

My consultant told me from the start that this was a slow growing cancer and it was treatable. The consultant radiologist I saw also said this.

 

Hope everything goes well for you

Keep smiling and stay safe x

Nat1972
Member

New diagnosis of mucinous carcinoma

Hi 

 

I am  very new to this and at 47 I recieved the news yesterday that I have mucinous carcinoma. 

I have been out on tamoxifen as although I will need surgery, due to the CoVid 19 virus surgery is being delayed. 

I am obvious apprehensive but would love to hear from anyone who has this rarer form of cancer